Life after sepsis: an international survey of survivors to understand the post-sepsis syndrome

Abstract Objective In this study, we aim to describe the post-sepsis syndrome from the perspective of the sepsis survivors. Design and Setting The study is a prospective, observational online international survey. Participants Sepsis survivors enrolled via social media from 13 September 2014 to 13 September 2016. Interventions None. Main Outcome Measures Physiologic, physical and psychological function post-sepsis; and patient satisfaction with sepsis-centered care. Results 1731 completed surveys from 41 countries were analyzed, with 79.9% female respondents, age 47.6 ± 14.4 years. The majority of respondents (47.8%) had sepsis within the last year. Survivors reported an increase in sensory, integumentary, digestive, breathing, chest pain, kidney and musculoskeletal problems after sepsis (all P-value