Development and validation of oral health‐related quality of life measure in oral submucous fibrosis

Objective The aim of this study was to develop and assess the validity and reliability of disease‐specific oral health‐related quality of life (OHRQoL) instrument for oral submucous fibrosis (OSF). Materials and Methods Items for the OHRQoL‐OSF were generated from personal interviews and focus group...

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Veröffentlicht in:Oral diseases 2018-09, Vol.24 (6), p.1020-1028
Hauptverfasser: Gondivkar, SM, Bhowate, RR, Gadbail, AR, Gaikwad, RN, Gondivkar, RS, Sarode, SC, Sarode, GS
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container_end_page 1028
container_issue 6
container_start_page 1020
container_title Oral diseases
container_volume 24
creator Gondivkar, SM
Bhowate, RR
Gadbail, AR
Gaikwad, RN
Gondivkar, RS
Sarode, SC
Sarode, GS
description Objective The aim of this study was to develop and assess the validity and reliability of disease‐specific oral health‐related quality of life (OHRQoL) instrument for oral submucous fibrosis (OSF). Materials and Methods Items for the OHRQoL‐OSF were generated from personal interviews and focus group discussions, the existing questionnaires, reviews of literature and inputs from expert's panel. Item reduction was performed by clinical impact method followed by pretesting of the developed questionnaire. The validity and reliability of the instrument were then examined. Results Forty‐five items were generated from qualitative data and item pooling from various sources. After item reduction, 17 items were finalized with four domain‐structure having Eigenvalues greater than 1. OHRQoL‐OSF was shown to be valid in distinguishing patients with varying degrees of OSF severity. For the concurrent validity, the observed impact of OSF based on OHRQoL‐OSF significantly correlated with Oral Health Impact Profile and global self‐ratings of oral health and overall well‐being. OHRQoL‐OSF and all its domains demonstrated good internal consistency reliability with Cronbach's alpha ˃0.7 and excellent test–retest reliability (ICC = 0.96). Conclusion The first disease‐specific OHRQoL‐OSF instrument appeared to be highly reliable and valid measure for assessing impact of OSF on life quality.
doi_str_mv 10.1111/odi.12857
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Materials and Methods Items for the OHRQoL‐OSF were generated from personal interviews and focus group discussions, the existing questionnaires, reviews of literature and inputs from expert's panel. Item reduction was performed by clinical impact method followed by pretesting of the developed questionnaire. The validity and reliability of the instrument were then examined. Results Forty‐five items were generated from qualitative data and item pooling from various sources. After item reduction, 17 items were finalized with four domain‐structure having Eigenvalues greater than 1. OHRQoL‐OSF was shown to be valid in distinguishing patients with varying degrees of OSF severity. For the concurrent validity, the observed impact of OSF based on OHRQoL‐OSF significantly correlated with Oral Health Impact Profile and global self‐ratings of oral health and overall well‐being. OHRQoL‐OSF and all its domains demonstrated good internal consistency reliability with Cronbach's alpha ˃0.7 and excellent test–retest reliability (ICC = 0.96). Conclusion The first disease‐specific OHRQoL‐OSF instrument appeared to be highly reliable and valid measure for assessing impact of OSF on life quality.</description><identifier>ISSN: 1354-523X</identifier><identifier>EISSN: 1601-0825</identifier><identifier>DOI: 10.1111/odi.12857</identifier><identifier>PMID: 29570905</identifier><language>eng</language><publisher>Denmark: Wiley Subscription Services, Inc</publisher><subject>Adult ; Aged ; Dentistry ; Female ; Fibrosis ; Humans ; Male ; Middle Aged ; oral health ; Oral hygiene ; oral submucous fibrosis ; Oral Submucous Fibrosis - complications ; Oral Submucous Fibrosis - psychology ; potentially malignant disorders ; Quality of Life ; questionnaire ; Reproducibility of Results ; Surveys and Questionnaires - standards ; Validity ; Well being ; Young Adult</subject><ispartof>Oral diseases, 2018-09, Vol.24 (6), p.1020-1028</ispartof><rights>2018 John Wiley &amp; Sons A/S. Published by John Wiley &amp; Sons Ltd. All rights reserved</rights><rights>2018 John Wiley &amp; Sons A/S. Published by John Wiley &amp; Sons Ltd. All rights reserved.</rights><rights>Copyright © 2018 John Wiley &amp; Sons A/S. Published by John Wiley &amp;Sons Ltd.</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c3537-ad1ad29ad69f19a0b3001e28ebbf833629b0ed0532f0e3ab972cd5d959ed94153</citedby><cites>FETCH-LOGICAL-c3537-ad1ad29ad69f19a0b3001e28ebbf833629b0ed0532f0e3ab972cd5d959ed94153</cites><orcidid>0000-0002-6546-7694 ; 0000-0003-0704-7509</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1111%2Fodi.12857$$EPDF$$P50$$Gwiley$$H</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1111%2Fodi.12857$$EHTML$$P50$$Gwiley$$H</linktohtml><link.rule.ids>314,776,780,1411,27901,27902,45550,45551</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/29570905$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Gondivkar, SM</creatorcontrib><creatorcontrib>Bhowate, RR</creatorcontrib><creatorcontrib>Gadbail, AR</creatorcontrib><creatorcontrib>Gaikwad, RN</creatorcontrib><creatorcontrib>Gondivkar, RS</creatorcontrib><creatorcontrib>Sarode, SC</creatorcontrib><creatorcontrib>Sarode, GS</creatorcontrib><title>Development and validation of oral health‐related quality of life measure in oral submucous fibrosis</title><title>Oral diseases</title><addtitle>Oral Dis</addtitle><description>Objective The aim of this study was to develop and assess the validity and reliability of disease‐specific oral health‐related quality of life (OHRQoL) instrument for oral submucous fibrosis (OSF). Materials and Methods Items for the OHRQoL‐OSF were generated from personal interviews and focus group discussions, the existing questionnaires, reviews of literature and inputs from expert's panel. Item reduction was performed by clinical impact method followed by pretesting of the developed questionnaire. The validity and reliability of the instrument were then examined. Results Forty‐five items were generated from qualitative data and item pooling from various sources. After item reduction, 17 items were finalized with four domain‐structure having Eigenvalues greater than 1. OHRQoL‐OSF was shown to be valid in distinguishing patients with varying degrees of OSF severity. For the concurrent validity, the observed impact of OSF based on OHRQoL‐OSF significantly correlated with Oral Health Impact Profile and global self‐ratings of oral health and overall well‐being. OHRQoL‐OSF and all its domains demonstrated good internal consistency reliability with Cronbach's alpha ˃0.7 and excellent test–retest reliability (ICC = 0.96). Conclusion The first disease‐specific OHRQoL‐OSF instrument appeared to be highly reliable and valid measure for assessing impact of OSF on life quality.</description><subject>Adult</subject><subject>Aged</subject><subject>Dentistry</subject><subject>Female</subject><subject>Fibrosis</subject><subject>Humans</subject><subject>Male</subject><subject>Middle Aged</subject><subject>oral health</subject><subject>Oral hygiene</subject><subject>oral submucous fibrosis</subject><subject>Oral Submucous Fibrosis - complications</subject><subject>Oral Submucous Fibrosis - psychology</subject><subject>potentially malignant disorders</subject><subject>Quality of Life</subject><subject>questionnaire</subject><subject>Reproducibility of Results</subject><subject>Surveys and Questionnaires - standards</subject><subject>Validity</subject><subject>Well being</subject><subject>Young Adult</subject><issn>1354-523X</issn><issn>1601-0825</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2018</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNp10LtOwzAUBmALgbgPvACyxAJDwJe6iUfUcqmExAISW-TEx6qRExc7KerGI_CMPAkuAQYkvNjD51_n_AgdUXJO07nw2p5TVoh8A-3SMaEZKZjYTG8uRplg_GkH7cX4TAjNJWfbaIdJkRNJxC4yU1iC84sG2g6rVuOlclarzvoWe4N9UA7PQblu_vH2HsCpDjR-6RPqVmvgrAHcgIp9AGzb4UPsq6avfR-xsVXw0cYDtGWUi3D4fe-jx-urh8ltdnd_M5tc3mU1FzzPlKZKM6n0WBoqFal4mhlYAVVlCs7HTFYENBGcGQJcVTJntRZaCglajqjg--h0yF0E_9JD7MrGxhqcUy2keUpGaEGYyEdrevKHPvs-tGm6pCQdy5xTntTZoOq0RwxgykWwjQqrkpJyXX6Zyi-_yk_2-Dsx7Q_6V_60ncDFAF6tg9X_SeX9dDZEfgIai4-l</recordid><startdate>201809</startdate><enddate>201809</enddate><creator>Gondivkar, SM</creator><creator>Bhowate, RR</creator><creator>Gadbail, AR</creator><creator>Gaikwad, RN</creator><creator>Gondivkar, RS</creator><creator>Sarode, SC</creator><creator>Sarode, GS</creator><general>Wiley Subscription Services, Inc</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7QP</scope><scope>K9.</scope><scope>7X8</scope><orcidid>https://orcid.org/0000-0002-6546-7694</orcidid><orcidid>https://orcid.org/0000-0003-0704-7509</orcidid></search><sort><creationdate>201809</creationdate><title>Development and validation of oral health‐related quality of life measure in oral submucous fibrosis</title><author>Gondivkar, SM ; 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Calcified Tissue Abstracts</collection><collection>ProQuest Health &amp; Medical Complete (Alumni)</collection><collection>MEDLINE - Academic</collection><jtitle>Oral diseases</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Gondivkar, SM</au><au>Bhowate, RR</au><au>Gadbail, AR</au><au>Gaikwad, RN</au><au>Gondivkar, RS</au><au>Sarode, SC</au><au>Sarode, GS</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Development and validation of oral health‐related quality of life measure in oral submucous fibrosis</atitle><jtitle>Oral diseases</jtitle><addtitle>Oral Dis</addtitle><date>2018-09</date><risdate>2018</risdate><volume>24</volume><issue>6</issue><spage>1020</spage><epage>1028</epage><pages>1020-1028</pages><issn>1354-523X</issn><eissn>1601-0825</eissn><abstract>Objective The aim of this study was to develop and assess the validity and reliability of disease‐specific oral health‐related quality of life (OHRQoL) instrument for oral submucous fibrosis (OSF). 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source MEDLINE; Wiley Online Library Journals Frontfile Complete
subjects Adult
Aged
Dentistry
Female
Fibrosis
Humans
Male
Middle Aged
oral health
Oral hygiene
oral submucous fibrosis
Oral Submucous Fibrosis - complications
Oral Submucous Fibrosis - psychology
potentially malignant disorders
Quality of Life
questionnaire
Reproducibility of Results
Surveys and Questionnaires - standards
Validity
Well being
Young Adult
title Development and validation of oral health‐related quality of life measure in oral submucous fibrosis
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