Pattern and determinants of self-reported enacted stigma among rural dwellers living with epilepsy attending a tertiary health facility in Enugu State Nigeria

•Overall level of self-reported enacted stigma is high among young adults and adults living with epilepsy.•Enacted stigma did not differ by gender, current age or age of onset.•Highly stigmatized individuals were more likely to be females.•Age and age of onset negatively correlated with enacted stig...

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Veröffentlicht in:Seizure (London, England) England), 2018-03, Vol.56, p.60-66
Hauptverfasser: Ezeala-Adikaibe, Birinus A., Achor, Justin U., Aneke, Eddy, Ijoma, Uchenna, Onodugo, Obinna D., Orjioke, Casmir, Onyekonwu, Chinwe, Ekenze, Oluchi
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container_title Seizure (London, England)
container_volume 56
creator Ezeala-Adikaibe, Birinus A.
Achor, Justin U.
Aneke, Eddy
Ijoma, Uchenna
Onodugo, Obinna D.
Orjioke, Casmir
Onyekonwu, Chinwe
Ekenze, Oluchi
description •Overall level of self-reported enacted stigma is high among young adults and adults living with epilepsy.•Enacted stigma did not differ by gender, current age or age of onset.•Highly stigmatized individuals were more likely to be females.•Age and age of onset negatively correlated with enacted stigma.•Use of alternative medicine, seizure related injuries and seizure occurring in public correlated wit enacted stigma. Epilepsy related stigma is a barrier to recovery and has been linked to a broad range of psychosocial consequences and has the potential to influence the provision of care to people with epilepsy. Understanding the determinants of enacted stigma in epilepsy is relevant in the understanding of the burden of epilepsy in Nigeria. Using a semi-structured questionnaire, a cross-sectional descriptive study was conducted among rural dwellers receiving treatment for epilepsy in a tertiary referral specialist hospital in Enugu, south east Nigeria. The participants consisted of 108 patients, 63% of whom were males. Most patients 99(91.7%) reported experiencing stigma in the past. The commonest forms of enacted stigma were being regarded as having ‘spiritual attack’ 88(81.5%) and restraining from interacting with others 49(45.4%). Most individuals who received nonorthodox treatment 55(55.6%) experienced stigma. Severely stigmatized individuals were more likely to be females. Age of onset of epilepsy, use of non-orthodox treatment, seizures occurrence in public places and the presence of physical injuries positively correlated with enacted stigma. The burden of epilepsy related enacted stigma is high among rural dwellers attending a tertiary medical outpatient clinic in Enugu, southeast Nigeria.
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Epilepsy related stigma is a barrier to recovery and has been linked to a broad range of psychosocial consequences and has the potential to influence the provision of care to people with epilepsy. Understanding the determinants of enacted stigma in epilepsy is relevant in the understanding of the burden of epilepsy in Nigeria. Using a semi-structured questionnaire, a cross-sectional descriptive study was conducted among rural dwellers receiving treatment for epilepsy in a tertiary referral specialist hospital in Enugu, south east Nigeria. The participants consisted of 108 patients, 63% of whom were males. Most patients 99(91.7%) reported experiencing stigma in the past. The commonest forms of enacted stigma were being regarded as having ‘spiritual attack’ 88(81.5%) and restraining from interacting with others 49(45.4%). Most individuals who received nonorthodox treatment 55(55.6%) experienced stigma. Severely stigmatized individuals were more likely to be females. 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source Elsevier ScienceDirect Journals Complete; Elektronische Zeitschriftenbibliothek - Frei zugängliche E-Journals
subjects Enacted stigma
Epilepsy
Nigeria
Sub Saharan Africa
title Pattern and determinants of self-reported enacted stigma among rural dwellers living with epilepsy attending a tertiary health facility in Enugu State Nigeria
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