Adolescent and caregivers’ experiences of electronic adherence assessment in paediatric problematic severe asthma
This study explored the experiences of adolescents and their caregivers regarding adherence to inhaled corticosteroids which are assessed through an electronic monitoring device (EMD). These devices are increasingly being used for assessing medication adherence, yet there is little information about...
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Veröffentlicht in: | Journal of child health care 2018-06, Vol.22 (2), p.238-250 |
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creator | Stewart, Amy C Gannon, Kenneth N Beresford, Fran Fleming, Louise |
description | This study explored the experiences of adolescents and their caregivers regarding adherence to inhaled corticosteroids which are assessed through an electronic monitoring device (EMD). These devices are increasingly being used for assessing medication adherence, yet there is little information about patient’s experience of these tools. Semi-structured interviews were conducted with eight adolescents with severe asthma, aged 11–15 years, who were electronically monitored as part of their care, along with their caregivers. Interviews were analysed using thematic analysis. Three themes were identified: ‘they were trying to help me get better’, ‘checking up and catching out’ and ‘who is responsible?’ The themes highlighted differences in priorities between participant groups, the impact of monitoring on the healthcare relationship and the dilemma of transferring responsibility for asthma management to adolescents. The findings suggest it is important for healthcare professionals to engage with patient’s preferences and priorities when introducing EMDs. |
doi_str_mv | 10.1177/1367493517753082 |
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These devices are increasingly being used for assessing medication adherence, yet there is little information about patient’s experience of these tools. Semi-structured interviews were conducted with eight adolescents with severe asthma, aged 11–15 years, who were electronically monitored as part of their care, along with their caregivers. Interviews were analysed using thematic analysis. Three themes were identified: ‘they were trying to help me get better’, ‘checking up and catching out’ and ‘who is responsible?’ The themes highlighted differences in priorities between participant groups, the impact of monitoring on the healthcare relationship and the dilemma of transferring responsibility for asthma management to adolescents. 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These devices are increasingly being used for assessing medication adherence, yet there is little information about patient’s experience of these tools. Semi-structured interviews were conducted with eight adolescents with severe asthma, aged 11–15 years, who were electronically monitored as part of their care, along with their caregivers. Interviews were analysed using thematic analysis. Three themes were identified: ‘they were trying to help me get better’, ‘checking up and catching out’ and ‘who is responsible?’ The themes highlighted differences in priorities between participant groups, the impact of monitoring on the healthcare relationship and the dilemma of transferring responsibility for asthma management to adolescents. 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These devices are increasingly being used for assessing medication adherence, yet there is little information about patient’s experience of these tools. Semi-structured interviews were conducted with eight adolescents with severe asthma, aged 11–15 years, who were electronically monitored as part of their care, along with their caregivers. Interviews were analysed using thematic analysis. Three themes were identified: ‘they were trying to help me get better’, ‘checking up and catching out’ and ‘who is responsible?’ The themes highlighted differences in priorities between participant groups, the impact of monitoring on the healthcare relationship and the dilemma of transferring responsibility for asthma management to adolescents. The findings suggest it is important for healthcare professionals to engage with patient’s preferences and priorities when introducing EMDs.</abstract><cop>London, England</cop><pub>SAGE Publications</pub><pmid>29325420</pmid><doi>10.1177/1367493517753082</doi><tpages>13</tpages><oa>free_for_read</oa></addata></record> |
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subjects | Adolescent Adrenal Cortex Hormones - therapeutic use Adult Anti-Asthmatic Agents - therapeutic use Asthma - drug therapy Caregivers - psychology Caregivers - statistics & numerical data Child Female Humans Male Medication Adherence - psychology Medication Adherence - statistics & numerical data Middle Aged Nursing Patient Preference - psychology Patient Preference - statistics & numerical data Qualitative Research Self Care - psychology Self Care - statistics & numerical data |
title | Adolescent and caregivers’ experiences of electronic adherence assessment in paediatric problematic severe asthma |
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