Adolescent and caregivers’ experiences of electronic adherence assessment in paediatric problematic severe asthma

This study explored the experiences of adolescents and their caregivers regarding adherence to inhaled corticosteroids which are assessed through an electronic monitoring device (EMD). These devices are increasingly being used for assessing medication adherence, yet there is little information about...

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Veröffentlicht in:Journal of child health care 2018-06, Vol.22 (2), p.238-250
Hauptverfasser: Stewart, Amy C, Gannon, Kenneth N, Beresford, Fran, Fleming, Louise
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container_end_page 250
container_issue 2
container_start_page 238
container_title Journal of child health care
container_volume 22
creator Stewart, Amy C
Gannon, Kenneth N
Beresford, Fran
Fleming, Louise
description This study explored the experiences of adolescents and their caregivers regarding adherence to inhaled corticosteroids which are assessed through an electronic monitoring device (EMD). These devices are increasingly being used for assessing medication adherence, yet there is little information about patient’s experience of these tools. Semi-structured interviews were conducted with eight adolescents with severe asthma, aged 11–15 years, who were electronically monitored as part of their care, along with their caregivers. Interviews were analysed using thematic analysis. Three themes were identified: ‘they were trying to help me get better’, ‘checking up and catching out’ and ‘who is responsible?’ The themes highlighted differences in priorities between participant groups, the impact of monitoring on the healthcare relationship and the dilemma of transferring responsibility for asthma management to adolescents. The findings suggest it is important for healthcare professionals to engage with patient’s preferences and priorities when introducing EMDs.
doi_str_mv 10.1177/1367493517753082
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subjects Adolescent
Adrenal Cortex Hormones - therapeutic use
Adult
Anti-Asthmatic Agents - therapeutic use
Asthma - drug therapy
Caregivers - psychology
Caregivers - statistics & numerical data
Child
Female
Humans
Male
Medication Adherence - psychology
Medication Adherence - statistics & numerical data
Middle Aged
Nursing
Patient Preference - psychology
Patient Preference - statistics & numerical data
Qualitative Research
Self Care - psychology
Self Care - statistics & numerical data
title Adolescent and caregivers’ experiences of electronic adherence assessment in paediatric problematic severe asthma
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