The quality of life of children with severe developmental disabilities
Background Research examining the quality of life (QoL) of children with severe developmental disabilities (SDD) is limited. The present study examines parent perceptions of child QoL in children with SDD compared with typically developing (TD) children and then examines predictors of QoL for the SD...
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| Veröffentlicht in: | Journal of intellectual disability research 2018-03, Vol.62 (3), p.237-244 |
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| container_title | Journal of intellectual disability research |
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| creator | Ncube, B. L. Perry, A. Weiss, J. A. |
| description | Background
Research examining the quality of life (QoL) of children with severe developmental disabilities (SDD) is limited. The present study examines parent perceptions of child QoL in children with SDD compared with typically developing (TD) children and then examines predictors of QoL for the SDD group.
Method
Parents of 246 children with SDD (aged 4 to 19 years) and 210 TD children (aged 4 to 18 years) responded to an online survey. QoL was measured using a composite variable composed of the child's happiness, achievement of potential and friendship quality.
Results
Children with DD had lower QoL ratings than TD children. In children with DD, higher QoL was related to younger age, higher adaptive skills, lower maladaptive behaviour, lower parent psychological distress and higher satisfaction with the child's education.
Conclusions
Interventions to promote positive outcomes for children with SDD should target both characteristics of the individual and the environment. |
| doi_str_mv | 10.1111/jir.12460 |
| format | Article |
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Research examining the quality of life (QoL) of children with severe developmental disabilities (SDD) is limited. The present study examines parent perceptions of child QoL in children with SDD compared with typically developing (TD) children and then examines predictors of QoL for the SDD group.
Method
Parents of 246 children with SDD (aged 4 to 19 years) and 210 TD children (aged 4 to 18 years) responded to an online survey. QoL was measured using a composite variable composed of the child's happiness, achievement of potential and friendship quality.
Results
Children with DD had lower QoL ratings than TD children. In children with DD, higher QoL was related to younger age, higher adaptive skills, lower maladaptive behaviour, lower parent psychological distress and higher satisfaction with the child's education.
Conclusions
Interventions to promote positive outcomes for children with SDD should target both characteristics of the individual and the environment.</description><identifier>ISSN: 0964-2633</identifier><identifier>EISSN: 1365-2788</identifier><identifier>DOI: 10.1111/jir.12460</identifier><identifier>PMID: 29315939</identifier><language>eng</language><publisher>England: Wiley-Blackwell</publisher><subject>Achievement ; Adolescents ; Age Differences ; autism ; Behavior Problems ; Children ; Children & youth ; Children with disabilities ; Comparative Analysis ; Coping ; Developmental Disabilities ; developmental disability ; Educational Quality ; Foreign Countries ; Friendship ; Happiness ; intellectual disability ; Online Surveys ; Parent Attitudes ; Parents ; Psychological distress ; Psychological Patterns ; Quality of Life ; Severe Disabilities ; Stress Variables ; well‐being</subject><ispartof>Journal of intellectual disability research, 2018-03, Vol.62 (3), p.237-244</ispartof><rights>2018 MENCAP and International Association of the Scientific Study of Intellectual and Developmental Disabilities and John Wiley & Sons Ltd</rights><rights>2018 MENCAP and International Association of the Scientific Study of Intellectual and Developmental Disabilities and John Wiley & Sons Ltd.</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c3750-9d618d1c3911e8fae6415cfabe658ca7a9046fd6bc1195b76b2dfa1eb940361d3</citedby><cites>FETCH-LOGICAL-c3750-9d618d1c3911e8fae6415cfabe658ca7a9046fd6bc1195b76b2dfa1eb940361d3</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1111%2Fjir.12460$$EPDF$$P50$$Gwiley$$H</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1111%2Fjir.12460$$EHTML$$P50$$Gwiley$$H</linktohtml><link.rule.ids>314,776,780,1411,27903,27904,30978,45553,45554</link.rule.ids><backlink>$$Uhttp://eric.ed.gov/ERICWebPortal/detail?accno=EJ1168588$$DView record in ERIC$$Hfree_for_read</backlink><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/29315939$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Ncube, B. L.</creatorcontrib><creatorcontrib>Perry, A.</creatorcontrib><creatorcontrib>Weiss, J. A.</creatorcontrib><title>The quality of life of children with severe developmental disabilities</title><title>Journal of intellectual disability research</title><addtitle>J Intellect Disabil Res</addtitle><description>Background
Research examining the quality of life (QoL) of children with severe developmental disabilities (SDD) is limited. The present study examines parent perceptions of child QoL in children with SDD compared with typically developing (TD) children and then examines predictors of QoL for the SDD group.
Method
Parents of 246 children with SDD (aged 4 to 19 years) and 210 TD children (aged 4 to 18 years) responded to an online survey. QoL was measured using a composite variable composed of the child's happiness, achievement of potential and friendship quality.
Results
Children with DD had lower QoL ratings than TD children. In children with DD, higher QoL was related to younger age, higher adaptive skills, lower maladaptive behaviour, lower parent psychological distress and higher satisfaction with the child's education.
Conclusions
Interventions to promote positive outcomes for children with SDD should target both characteristics of the individual and the environment.</description><subject>Achievement</subject><subject>Adolescents</subject><subject>Age Differences</subject><subject>autism</subject><subject>Behavior Problems</subject><subject>Children</subject><subject>Children & youth</subject><subject>Children with disabilities</subject><subject>Comparative Analysis</subject><subject>Coping</subject><subject>Developmental Disabilities</subject><subject>developmental disability</subject><subject>Educational Quality</subject><subject>Foreign Countries</subject><subject>Friendship</subject><subject>Happiness</subject><subject>intellectual disability</subject><subject>Online Surveys</subject><subject>Parent Attitudes</subject><subject>Parents</subject><subject>Psychological distress</subject><subject>Psychological Patterns</subject><subject>Quality of Life</subject><subject>Severe Disabilities</subject><subject>Stress Variables</subject><subject>well‐being</subject><issn>0964-2633</issn><issn>1365-2788</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2018</creationdate><recordtype>article</recordtype><sourceid>7QJ</sourceid><recordid>eNp1kM1rGzEQxUVpqZ2PQ_6AlIVe0sMmmtXHSscSktYmEAjJedFKs1hG9jqSN8H_feWu40Ohc3mH95s3wyPkAug15LlZ-ngNFZf0E5kCk6KsaqU-kynVkpeVZGxCTlJaUkolcPmVTCrNQGimp-T-eYHF62CC3-6KviuC73CvduGDi7gu3v12USR8w4iFyxL6zQrXWxMK55NpfV70mM7Il86EhOcHPSUv93fPt7_Lh8dfs9ufD6VltaCldhKUA8s0AKrOoOQgbGdalEJZUxtNueycbC2AFm0t28p1BrDVnDIJjp2SqzF3E_vXAdO2WflkMQSzxn5IDWilheC8ohn9_g-67Ie4zt9lSvM6IyAy9WOkbOxTitg1m-hXJu4aoM2-3CaX2_wtN7PfDolDu0J3JD_azMDlCGD09mjfzQGkEkpl_2b0333A3f8vNfPZ03jyDygIjBc</recordid><startdate>201803</startdate><enddate>201803</enddate><creator>Ncube, B. L.</creator><creator>Perry, A.</creator><creator>Weiss, J. A.</creator><general>Wiley-Blackwell</general><general>Wiley Subscription Services, Inc</general><scope>7SW</scope><scope>BJH</scope><scope>BNH</scope><scope>BNI</scope><scope>BNJ</scope><scope>BNO</scope><scope>ERI</scope><scope>PET</scope><scope>REK</scope><scope>WWN</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7QJ</scope><scope>7X8</scope></search><sort><creationdate>201803</creationdate><title>The quality of life of children with severe developmental disabilities</title><author>Ncube, B. L. ; Perry, A. ; Weiss, J. A.</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c3750-9d618d1c3911e8fae6415cfabe658ca7a9046fd6bc1195b76b2dfa1eb940361d3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2018</creationdate><topic>Achievement</topic><topic>Adolescents</topic><topic>Age Differences</topic><topic>autism</topic><topic>Behavior Problems</topic><topic>Children</topic><topic>Children & youth</topic><topic>Children with disabilities</topic><topic>Comparative Analysis</topic><topic>Coping</topic><topic>Developmental Disabilities</topic><topic>developmental disability</topic><topic>Educational Quality</topic><topic>Foreign Countries</topic><topic>Friendship</topic><topic>Happiness</topic><topic>intellectual disability</topic><topic>Online Surveys</topic><topic>Parent Attitudes</topic><topic>Parents</topic><topic>Psychological distress</topic><topic>Psychological Patterns</topic><topic>Quality of Life</topic><topic>Severe Disabilities</topic><topic>Stress Variables</topic><topic>well‐being</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Ncube, B. L.</creatorcontrib><creatorcontrib>Perry, A.</creatorcontrib><creatorcontrib>Weiss, J. A.</creatorcontrib><collection>ERIC</collection><collection>ERIC (Ovid)</collection><collection>ERIC</collection><collection>ERIC</collection><collection>ERIC (Legacy Platform)</collection><collection>ERIC( SilverPlatter )</collection><collection>ERIC</collection><collection>ERIC PlusText (Legacy Platform)</collection><collection>Education Resources Information Center (ERIC)</collection><collection>ERIC</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Applied Social Sciences Index & Abstracts (ASSIA)</collection><collection>MEDLINE - Academic</collection><jtitle>Journal of intellectual disability research</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Ncube, B. L.</au><au>Perry, A.</au><au>Weiss, J. A.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><ericid>EJ1168588</ericid><atitle>The quality of life of children with severe developmental disabilities</atitle><jtitle>Journal of intellectual disability research</jtitle><addtitle>J Intellect Disabil Res</addtitle><date>2018-03</date><risdate>2018</risdate><volume>62</volume><issue>3</issue><spage>237</spage><epage>244</epage><pages>237-244</pages><issn>0964-2633</issn><eissn>1365-2788</eissn><abstract>Background
Research examining the quality of life (QoL) of children with severe developmental disabilities (SDD) is limited. The present study examines parent perceptions of child QoL in children with SDD compared with typically developing (TD) children and then examines predictors of QoL for the SDD group.
Method
Parents of 246 children with SDD (aged 4 to 19 years) and 210 TD children (aged 4 to 18 years) responded to an online survey. QoL was measured using a composite variable composed of the child's happiness, achievement of potential and friendship quality.
Results
Children with DD had lower QoL ratings than TD children. In children with DD, higher QoL was related to younger age, higher adaptive skills, lower maladaptive behaviour, lower parent psychological distress and higher satisfaction with the child's education.
Conclusions
Interventions to promote positive outcomes for children with SDD should target both characteristics of the individual and the environment.</abstract><cop>England</cop><pub>Wiley-Blackwell</pub><pmid>29315939</pmid><doi>10.1111/jir.12460</doi><tpages>8</tpages></addata></record> |
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| ispartof | Journal of intellectual disability research, 2018-03, Vol.62 (3), p.237-244 |
| issn | 0964-2633 1365-2788 |
| language | eng |
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| source | Wiley Online Library Journals Frontfile Complete; Applied Social Sciences Index & Abstracts (ASSIA); Education Source |
| subjects | Achievement Adolescents Age Differences autism Behavior Problems Children Children & youth Children with disabilities Comparative Analysis Coping Developmental Disabilities developmental disability Educational Quality Foreign Countries Friendship Happiness intellectual disability Online Surveys Parent Attitudes Parents Psychological distress Psychological Patterns Quality of Life Severe Disabilities Stress Variables well‐being |
| title | The quality of life of children with severe developmental disabilities |
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