Development of the Autosomal Dominant Polycystic Kidney Disease Impact Scale: A New Health-Related Quality-of-Life Instrument

The impact of autosomal dominant polycystic kidney disease (ADPKD) on health-related quality of life (HRQoL) is not well understood due to a lack of instruments specific to the condition. Content for a new self-administered patient-reported outcome (PRO) questionnaire to assess ADPKD-related HRQoL w...

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Veröffentlicht in:	American journal of kidney diseases 2018-02, Vol.71 (2), p.225-235
Hauptverfasser:	Oberdhan, Dorothee, Cole, Jason C., Krasa, Holly B., Cheng, Rebecca, Czerwiec, Frank S., Hays, Ron D., Chapman, Arlene B., Perrone, Ronald D.
Format:	Artikel
Sprache:	eng
Schlagworte:	ADPKD autosomal dominant Cost of Illness cystic disease burden Emotional Adjustment - physiology Fatigue - psychology Female Focus Groups Humans kidney diseases Male Middle Aged pain Patient Reported Outcome Measures patient-centered outcomes patient-reported outcome (PRO) Physical Functional Performance Polycystic kidney Polycystic Kidney, Autosomal Dominant - physiopathology Polycystic Kidney, Autosomal Dominant - psychology PRO instrument Quality of Life quality of life (QoL) Reproducibility of Results Surveys and Questionnaires - standards
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