What should a person with relapsing-remitting multiple sclerosis know? – Focus group and survey data of a risk knowledge questionnaire (RIKNO 2.0)
Risk knowledge is relevant to make informed decisions in multiple sclerosis (MS). The risk knowledge questionnaire for relapsing-remitting MS (RIKNO 1.0) was developed and piloted in Germany. To produce a revised RIKNO 2.0 questionnaire using mixed methodology in a European setting. The questionnair...
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| Veröffentlicht in: | Multiple sclerosis and related disorders 2017-11, Vol.18, p.186-195 |
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| creator | Heesen, C. Pöttgen, J. Rahn, A.C. Liethmann, K. Kasper, J. Vahter, L. Drulovic, J. Van Nunen, A. Wilkie, D. Beckmann, Y. Paul, F. Köpke, S. Giordano, A. Solari, A. |
| description | Risk knowledge is relevant to make informed decisions in multiple sclerosis (MS). The risk knowledge questionnaire for relapsing-remitting MS (RIKNO 1.0) was developed and piloted in Germany.
To produce a revised RIKNO 2.0 questionnaire using mixed methodology in a European setting.
The questionnaire was translated in seven languages. MS patient and health professional (HP) expert feedback was obtained from Germany, Italy, Estonia, Serbia, and the UK. A German web-based survey of RIKNO 2.0 compared the tool with the MS Knowledge Questionnaire (MSKQ), each one used with two versions (with/without a “don’t know” DN option).
While RIKNO 2.0 was considered difficult, it was rated as highly educational. One item was reframed, and two new items were added. The web-based German survey (n = 708 completers) showed that the DN version did not increase participation rate and did not produce significantly higher scores. Internal consistency (Cronbach alpha) without SN response was 0.73. RIKNO 2.0 scores showed normality distribution irrespective of the answering format. Item difficulty was high ranging from 0.07 to 0.79. Less than 50% of questions were answered correctly (mean 8.9) compared to 80.4% in the MSKQ (mean 20.1). Higher numeracy competency and education were significantly, albeit weakly, associated to higher scores for both RIKNO 2.0 and MSKQ.
Including “don’t know” options in knowledge questionnaires does not increase percentage of correct replies. RIKNO 2.0 is a complex questionnaire to be used in an educational context and studies on patient information. The tool is now available in seven languages.
•A risk knowledge questionnaire has been refined and translated in 7 languages.•Risk knowledge is low in relapsing-remitting multiple sclerosis.•Higher education and numeracy impact on the performance.•Including “I don’t know items” does not improve performance.•The questionnaire is feasible for educational interventions. |
| doi_str_mv | 10.1016/j.msard.2017.09.020 |
| format | Article |
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To produce a revised RIKNO 2.0 questionnaire using mixed methodology in a European setting.
The questionnaire was translated in seven languages. MS patient and health professional (HP) expert feedback was obtained from Germany, Italy, Estonia, Serbia, and the UK. A German web-based survey of RIKNO 2.0 compared the tool with the MS Knowledge Questionnaire (MSKQ), each one used with two versions (with/without a “don’t know” DN option).
While RIKNO 2.0 was considered difficult, it was rated as highly educational. One item was reframed, and two new items were added. The web-based German survey (n = 708 completers) showed that the DN version did not increase participation rate and did not produce significantly higher scores. Internal consistency (Cronbach alpha) without SN response was 0.73. RIKNO 2.0 scores showed normality distribution irrespective of the answering format. Item difficulty was high ranging from 0.07 to 0.79. Less than 50% of questions were answered correctly (mean 8.9) compared to 80.4% in the MSKQ (mean 20.1). Higher numeracy competency and education were significantly, albeit weakly, associated to higher scores for both RIKNO 2.0 and MSKQ.
Including “don’t know” options in knowledge questionnaires does not increase percentage of correct replies. RIKNO 2.0 is a complex questionnaire to be used in an educational context and studies on patient information. The tool is now available in seven languages.
•A risk knowledge questionnaire has been refined and translated in 7 languages.•Risk knowledge is low in relapsing-remitting multiple sclerosis.•Higher education and numeracy impact on the performance.•Including “I don’t know items” does not improve performance.•The questionnaire is feasible for educational interventions.</description><identifier>ISSN: 2211-0348</identifier><identifier>EISSN: 2211-0356</identifier><identifier>DOI: 10.1016/j.msard.2017.09.020</identifier><identifier>PMID: 29141808</identifier><language>eng</language><publisher>Netherlands: Elsevier B.V</publisher><subject>Adult ; Aged ; Attitude of Health Personnel ; Educational Status ; Europe ; Evidence-based patient information ; Female ; Focus Groups ; Health Knowledge, Attitudes, Practice ; Health Personnel ; Humans ; Informed choice ; Internet ; Male ; Mathematical Concepts ; Middle Aged ; Multiple Sclerosis, Relapsing-Remitting - diagnosis ; Multiple Sclerosis, Relapsing-Remitting - psychology ; Multiple Sclerosis, Relapsing-Remitting - therapy ; Numeracy ; Patient Education as Topic ; Pilot Projects ; Regression Analysis ; Reproducibility of Results ; Risk ; Risk knowledge ; Surveys and Questionnaires ; Translating</subject><ispartof>Multiple sclerosis and related disorders, 2017-11, Vol.18, p.186-195</ispartof><rights>2017</rights><rights>Copyright © 2017. Published by Elsevier B.V.</rights><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c359t-61d9d9da6c0e06a4816825ba0540c816e38e8e22965318560ad550ad94a4b8803</citedby><cites>FETCH-LOGICAL-c359t-61d9d9da6c0e06a4816825ba0540c816e38e8e22965318560ad550ad94a4b8803</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>314,776,780,27901,27902</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/29141808$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Heesen, C.</creatorcontrib><creatorcontrib>Pöttgen, J.</creatorcontrib><creatorcontrib>Rahn, A.C.</creatorcontrib><creatorcontrib>Liethmann, K.</creatorcontrib><creatorcontrib>Kasper, J.</creatorcontrib><creatorcontrib>Vahter, L.</creatorcontrib><creatorcontrib>Drulovic, J.</creatorcontrib><creatorcontrib>Van Nunen, A.</creatorcontrib><creatorcontrib>Wilkie, D.</creatorcontrib><creatorcontrib>Beckmann, Y.</creatorcontrib><creatorcontrib>Paul, F.</creatorcontrib><creatorcontrib>Köpke, S.</creatorcontrib><creatorcontrib>Giordano, A.</creatorcontrib><creatorcontrib>Solari, A.</creatorcontrib><creatorcontrib>for the AutoMS-group</creatorcontrib><creatorcontrib>AutoMS-group</creatorcontrib><title>What should a person with relapsing-remitting multiple sclerosis know? – Focus group and survey data of a risk knowledge questionnaire (RIKNO 2.0)</title><title>Multiple sclerosis and related disorders</title><addtitle>Mult Scler Relat Disord</addtitle><description>Risk knowledge is relevant to make informed decisions in multiple sclerosis (MS). The risk knowledge questionnaire for relapsing-remitting MS (RIKNO 1.0) was developed and piloted in Germany.
To produce a revised RIKNO 2.0 questionnaire using mixed methodology in a European setting.
The questionnaire was translated in seven languages. MS patient and health professional (HP) expert feedback was obtained from Germany, Italy, Estonia, Serbia, and the UK. A German web-based survey of RIKNO 2.0 compared the tool with the MS Knowledge Questionnaire (MSKQ), each one used with two versions (with/without a “don’t know” DN option).
While RIKNO 2.0 was considered difficult, it was rated as highly educational. One item was reframed, and two new items were added. The web-based German survey (n = 708 completers) showed that the DN version did not increase participation rate and did not produce significantly higher scores. Internal consistency (Cronbach alpha) without SN response was 0.73. RIKNO 2.0 scores showed normality distribution irrespective of the answering format. Item difficulty was high ranging from 0.07 to 0.79. Less than 50% of questions were answered correctly (mean 8.9) compared to 80.4% in the MSKQ (mean 20.1). Higher numeracy competency and education were significantly, albeit weakly, associated to higher scores for both RIKNO 2.0 and MSKQ.
Including “don’t know” options in knowledge questionnaires does not increase percentage of correct replies. RIKNO 2.0 is a complex questionnaire to be used in an educational context and studies on patient information. The tool is now available in seven languages.
•A risk knowledge questionnaire has been refined and translated in 7 languages.•Risk knowledge is low in relapsing-remitting multiple sclerosis.•Higher education and numeracy impact on the performance.•Including “I don’t know items” does not improve performance.•The questionnaire is feasible for educational interventions.</description><subject>Adult</subject><subject>Aged</subject><subject>Attitude of Health Personnel</subject><subject>Educational Status</subject><subject>Europe</subject><subject>Evidence-based patient information</subject><subject>Female</subject><subject>Focus Groups</subject><subject>Health Knowledge, Attitudes, Practice</subject><subject>Health Personnel</subject><subject>Humans</subject><subject>Informed choice</subject><subject>Internet</subject><subject>Male</subject><subject>Mathematical Concepts</subject><subject>Middle Aged</subject><subject>Multiple Sclerosis, Relapsing-Remitting - diagnosis</subject><subject>Multiple Sclerosis, Relapsing-Remitting - psychology</subject><subject>Multiple Sclerosis, Relapsing-Remitting - therapy</subject><subject>Numeracy</subject><subject>Patient Education as Topic</subject><subject>Pilot Projects</subject><subject>Regression Analysis</subject><subject>Reproducibility of Results</subject><subject>Risk</subject><subject>Risk knowledge</subject><subject>Surveys and Questionnaires</subject><subject>Translating</subject><issn>2211-0348</issn><issn>2211-0356</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2017</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNp9kcFu1DAQhi0EolXpEyAhH8shwXZi4xwQQhWFiopKVaseLa89u-ttEgeP06o33gGekCfB3S09Ykv2WPr-Gc_8hLzmrOaMq3ebekCbfC0Yf1-zrmaCPSP7QnBesUaq509xq_fIIeKGlaUkbxV_SfZEx1uumd4nv6_XNlNcx7n31NIJEsaR3oW8pgl6O2EYV1WCIeRcIjrMfQ5TDxRdDyliQHozxruP9M_PX_QkuhnpKsV5onb0FOd0C_fU22xpXJbsKeDNlu_Br4D-mAFziONoQwJ6dHH67fs5FTV7-4q8WNoe4fDxPiBXJ58vj79WZ-dfTo8_nVWukV2uFPdd2VY5BkzZVnOlhVxYJlvmygMaDRqE6JRsuJaKWS9lObrWtgutWXNAjnZ5pxS3nzFDQAd9b0eIMxpelEKqRvKCNjvUla4xwdJMKQw23RvOzIMjZmO2jpgHRwzrTHGkqN48FpgXA_gnzb_5F-DDDoDS5m2AZNAFGB34MhKXjY_hvwX-Apnsno4</recordid><startdate>201711</startdate><enddate>201711</enddate><creator>Heesen, C.</creator><creator>Pöttgen, J.</creator><creator>Rahn, A.C.</creator><creator>Liethmann, K.</creator><creator>Kasper, J.</creator><creator>Vahter, L.</creator><creator>Drulovic, J.</creator><creator>Van Nunen, A.</creator><creator>Wilkie, D.</creator><creator>Beckmann, Y.</creator><creator>Paul, F.</creator><creator>Köpke, S.</creator><creator>Giordano, A.</creator><creator>Solari, A.</creator><general>Elsevier B.V</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope></search><sort><creationdate>201711</creationdate><title>What should a person with relapsing-remitting multiple sclerosis know? 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– Focus group and survey data of a risk knowledge questionnaire (RIKNO 2.0)</atitle><jtitle>Multiple sclerosis and related disorders</jtitle><addtitle>Mult Scler Relat Disord</addtitle><date>2017-11</date><risdate>2017</risdate><volume>18</volume><spage>186</spage><epage>195</epage><pages>186-195</pages><issn>2211-0348</issn><eissn>2211-0356</eissn><abstract>Risk knowledge is relevant to make informed decisions in multiple sclerosis (MS). The risk knowledge questionnaire for relapsing-remitting MS (RIKNO 1.0) was developed and piloted in Germany.
To produce a revised RIKNO 2.0 questionnaire using mixed methodology in a European setting.
The questionnaire was translated in seven languages. MS patient and health professional (HP) expert feedback was obtained from Germany, Italy, Estonia, Serbia, and the UK. A German web-based survey of RIKNO 2.0 compared the tool with the MS Knowledge Questionnaire (MSKQ), each one used with two versions (with/without a “don’t know” DN option).
While RIKNO 2.0 was considered difficult, it was rated as highly educational. One item was reframed, and two new items were added. The web-based German survey (n = 708 completers) showed that the DN version did not increase participation rate and did not produce significantly higher scores. Internal consistency (Cronbach alpha) without SN response was 0.73. RIKNO 2.0 scores showed normality distribution irrespective of the answering format. Item difficulty was high ranging from 0.07 to 0.79. Less than 50% of questions were answered correctly (mean 8.9) compared to 80.4% in the MSKQ (mean 20.1). Higher numeracy competency and education were significantly, albeit weakly, associated to higher scores for both RIKNO 2.0 and MSKQ.
Including “don’t know” options in knowledge questionnaires does not increase percentage of correct replies. RIKNO 2.0 is a complex questionnaire to be used in an educational context and studies on patient information. The tool is now available in seven languages.
•A risk knowledge questionnaire has been refined and translated in 7 languages.•Risk knowledge is low in relapsing-remitting multiple sclerosis.•Higher education and numeracy impact on the performance.•Including “I don’t know items” does not improve performance.•The questionnaire is feasible for educational interventions.</abstract><cop>Netherlands</cop><pub>Elsevier B.V</pub><pmid>29141808</pmid><doi>10.1016/j.msard.2017.09.020</doi><tpages>10</tpages></addata></record> |
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| ispartof | Multiple sclerosis and related disorders, 2017-11, Vol.18, p.186-195 |
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| subjects | Adult Aged Attitude of Health Personnel Educational Status Europe Evidence-based patient information Female Focus Groups Health Knowledge, Attitudes, Practice Health Personnel Humans Informed choice Internet Male Mathematical Concepts Middle Aged Multiple Sclerosis, Relapsing-Remitting - diagnosis Multiple Sclerosis, Relapsing-Remitting - psychology Multiple Sclerosis, Relapsing-Remitting - therapy Numeracy Patient Education as Topic Pilot Projects Regression Analysis Reproducibility of Results Risk Risk knowledge Surveys and Questionnaires Translating |
| title | What should a person with relapsing-remitting multiple sclerosis know? – Focus group and survey data of a risk knowledge questionnaire (RIKNO 2.0) |
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