Caregiver Burden Varies by Sensory Subtypes and Sensory Dimension Scores of Children with Autism
Understanding characteristics associated with burden in caregivers of children with autism spectrum disorder (ASD) is critical due to negative health consequences. We explored the association between child sensory subtype, sensory dimension scores, and caregiver burden. A national survey of caregive...
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| Veröffentlicht in: | Journal of autism and developmental disorders 2018-04, Vol.48 (4), p.1133-1146 |
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| container_title | Journal of autism and developmental disorders |
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| creator | Hand, Brittany N. Lane, Alison E. De Boeck, Paul Basso, D. Michele Nichols-Larsen, Deborah S. Darragh, Amy R. |
| description | Understanding characteristics associated with burden in caregivers of children with autism spectrum disorder (ASD) is critical due to negative health consequences. We explored the association between child sensory subtype, sensory dimension scores, and caregiver burden. A national survey of caregivers of children with ASD aged 5–13 years was conducted (n = 367). The relationship between variables of interest and indicators of caregiver burden, including health-related quality of life (HRQOL) and caregiver strain, was examined with canonical correlation analyses. Caregiver strain was, but caregiver HRQOL was not, significantly associated with child sensory subtype and sensory dimension scores. Caregiver age, child age, and household income were also associated with caregiver strain. Potential explanatory mechanisms for these findings, derived from published qualitative studies, are discussed. |
| doi_str_mv | 10.1007/s10803-017-3348-1 |
| format | Article |
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Michele ; Nichols-Larsen, Deborah S. ; Darragh, Amy R.</creator><creatorcontrib>Hand, Brittany N. ; Lane, Alison E. ; De Boeck, Paul ; Basso, D. Michele ; Nichols-Larsen, Deborah S. ; Darragh, Amy R.</creatorcontrib><description>Understanding characteristics associated with burden in caregivers of children with autism spectrum disorder (ASD) is critical due to negative health consequences. We explored the association between child sensory subtype, sensory dimension scores, and caregiver burden. A national survey of caregivers of children with ASD aged 5–13 years was conducted (n = 367). The relationship between variables of interest and indicators of caregiver burden, including health-related quality of life (HRQOL) and caregiver strain, was examined with canonical correlation analyses. Caregiver strain was, but caregiver HRQOL was not, significantly associated with child sensory subtype and sensory dimension scores. Caregiver age, child age, and household income were also associated with caregiver strain. Potential explanatory mechanisms for these findings, derived from published qualitative studies, are discussed.</description><identifier>ISSN: 0162-3257</identifier><identifier>EISSN: 1573-3432</identifier><identifier>DOI: 10.1007/s10803-017-3348-1</identifier><identifier>PMID: 29076036</identifier><language>eng</language><publisher>New York: Springer US</publisher><subject>Adaptation, Psychological ; Adolescent ; Adult ; Age ; Anxiety ; Autism ; Autism Spectrum Disorder - physiopathology ; Autism Spectrum Disorder - psychology ; Autistic children ; Behavioral Science and Psychology ; Caregiver burden ; Caregivers ; Caregivers - psychology ; Child ; Child and School Psychology ; Child Caregivers ; Child, Preschool ; Children ; Children & youth ; Correlation analysis ; Evaluation ; Female ; Health ; Health aspects ; Health status ; Humans ; Income ; Male ; Multivariate Analysis ; National Surveys ; Neurosciences ; Pediatrics ; Perception ; Pervasive Developmental Disorders ; Polls & surveys ; Psychological research ; Psychology ; Public Health ; Quality of Life ; S.I. : Parenting Children with ASD ; Sensation ; Stress, Psychological - epidemiology ; Stress, Psychological - psychology ; Subtypes ; Surveys and Questionnaires</subject><ispartof>Journal of autism and developmental disorders, 2018-04, Vol.48 (4), p.1133-1146</ispartof><rights>Springer Science+Business Media, LLC 2017</rights><rights>COPYRIGHT 2018 Springer</rights><rights>Journal of Autism and Developmental Disorders is a copyright of Springer, (2017). All Rights Reserved.</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c576t-7cabe37abef2c8ef50ae342287eee5ee86cc6b018807bf148243bfd6ed7dc62d3</citedby><cites>FETCH-LOGICAL-c576t-7cabe37abef2c8ef50ae342287eee5ee86cc6b018807bf148243bfd6ed7dc62d3</cites><orcidid>0000-0003-2026-8461</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://link.springer.com/content/pdf/10.1007/s10803-017-3348-1$$EPDF$$P50$$Gspringer$$H</linktopdf><linktohtml>$$Uhttps://link.springer.com/10.1007/s10803-017-3348-1$$EHTML$$P50$$Gspringer$$H</linktohtml><link.rule.ids>314,780,784,12844,27922,27923,30997,41486,42555,51317</link.rule.ids><backlink>$$Uhttp://eric.ed.gov/ERICWebPortal/detail?accno=EJ1173375$$DView record in ERIC$$Hfree_for_read</backlink><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/29076036$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Hand, Brittany N.</creatorcontrib><creatorcontrib>Lane, Alison E.</creatorcontrib><creatorcontrib>De Boeck, Paul</creatorcontrib><creatorcontrib>Basso, D. Michele</creatorcontrib><creatorcontrib>Nichols-Larsen, Deborah S.</creatorcontrib><creatorcontrib>Darragh, Amy R.</creatorcontrib><title>Caregiver Burden Varies by Sensory Subtypes and Sensory Dimension Scores of Children with Autism</title><title>Journal of autism and developmental disorders</title><addtitle>J Autism Dev Disord</addtitle><addtitle>J Autism Dev Disord</addtitle><description>Understanding characteristics associated with burden in caregivers of children with autism spectrum disorder (ASD) is critical due to negative health consequences. We explored the association between child sensory subtype, sensory dimension scores, and caregiver burden. A national survey of caregivers of children with ASD aged 5–13 years was conducted (n = 367). The relationship between variables of interest and indicators of caregiver burden, including health-related quality of life (HRQOL) and caregiver strain, was examined with canonical correlation analyses. Caregiver strain was, but caregiver HRQOL was not, significantly associated with child sensory subtype and sensory dimension scores. Caregiver age, child age, and household income were also associated with caregiver strain. Potential explanatory mechanisms for these findings, derived from published qualitative studies, are discussed.</description><subject>Adaptation, Psychological</subject><subject>Adolescent</subject><subject>Adult</subject><subject>Age</subject><subject>Anxiety</subject><subject>Autism</subject><subject>Autism Spectrum Disorder - physiopathology</subject><subject>Autism Spectrum Disorder - psychology</subject><subject>Autistic children</subject><subject>Behavioral Science and Psychology</subject><subject>Caregiver burden</subject><subject>Caregivers</subject><subject>Caregivers - psychology</subject><subject>Child</subject><subject>Child and School Psychology</subject><subject>Child Caregivers</subject><subject>Child, Preschool</subject><subject>Children</subject><subject>Children & youth</subject><subject>Correlation analysis</subject><subject>Evaluation</subject><subject>Female</subject><subject>Health</subject><subject>Health aspects</subject><subject>Health status</subject><subject>Humans</subject><subject>Income</subject><subject>Male</subject><subject>Multivariate Analysis</subject><subject>National Surveys</subject><subject>Neurosciences</subject><subject>Pediatrics</subject><subject>Perception</subject><subject>Pervasive Developmental Disorders</subject><subject>Polls & surveys</subject><subject>Psychological research</subject><subject>Psychology</subject><subject>Public Health</subject><subject>Quality of Life</subject><subject>S.I. : Parenting Children with ASD</subject><subject>Sensation</subject><subject>Stress, Psychological - epidemiology</subject><subject>Stress, Psychological - psychology</subject><subject>Subtypes</subject><subject>Surveys and Questionnaires</subject><issn>0162-3257</issn><issn>1573-3432</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2018</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>7QJ</sourceid><sourceid>8G5</sourceid><sourceid>ABUWG</sourceid><sourceid>AFKRA</sourceid><sourceid>AZQEC</sourceid><sourceid>BENPR</sourceid><sourceid>CCPQU</sourceid><sourceid>DWQXO</sourceid><sourceid>GNUQQ</sourceid><sourceid>GUQSH</sourceid><sourceid>M2O</sourceid><recordid>eNp1kl9v0zAUxS0EYt3gA_AAisQLe8jwn9hOH0vZYNMkJAq8Gse5yTwldrETRr89rjI6dSqyZFv3_M61dXUQekXwGcFYvo8El5jlmMicsaLMyRM0I1yynBWMPkUzTATNGeXyCB3HeIsxnpeUPkdHdI6lwEzM0M-lDtDa3xCyD2OowWU_dLAQs2qTrcBFH9I5VsNmnWra1bviR9unm_UuWxkfkuibbHljuzqkHnd2uMkW42Bj_wI9a3QX4eX9eYK-X5x_W37Or798ulwurnPDpRhyaXQFTKatoaaEhmMNrKC0lADAAUphjKgwKUssq4YUJS1Y1dQCalkbQWt2gt5NfdfB_xohDqq30UDXaQd-jIrMuSwELwqW0LeP0Fs_Bpd-pyhO8yOcMvlAtboDZV3jh6DNtqlacMYIScMUicoPUC04CLrzDhqbynv82QE-rRp6aw4aTvcMiRngz9DqMUZ1ufq6z5KJNcHHGKBR62B7HTaKYLVNjJoSo1Ji1DYxiiTPm_thjFUP9c7xLyIJeD0BEKzZyedXhEjGJE86nfSYNNdCeJjm_1_9C2Gd0kE</recordid><startdate>20180401</startdate><enddate>20180401</enddate><creator>Hand, Brittany N.</creator><creator>Lane, Alison E.</creator><creator>De Boeck, Paul</creator><creator>Basso, D. 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The relationship between variables of interest and indicators of caregiver burden, including health-related quality of life (HRQOL) and caregiver strain, was examined with canonical correlation analyses. Caregiver strain was, but caregiver HRQOL was not, significantly associated with child sensory subtype and sensory dimension scores. Caregiver age, child age, and household income were also associated with caregiver strain. Potential explanatory mechanisms for these findings, derived from published qualitative studies, are discussed.</abstract><cop>New York</cop><pub>Springer US</pub><pmid>29076036</pmid><doi>10.1007/s10803-017-3348-1</doi><tpages>14</tpages><orcidid>https://orcid.org/0000-0003-2026-8461</orcidid><oa>free_for_read</oa></addata></record> |
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| subjects | Adaptation, Psychological Adolescent Adult Age Anxiety Autism Autism Spectrum Disorder - physiopathology Autism Spectrum Disorder - psychology Autistic children Behavioral Science and Psychology Caregiver burden Caregivers Caregivers - psychology Child Child and School Psychology Child Caregivers Child, Preschool Children Children & youth Correlation analysis Evaluation Female Health Health aspects Health status Humans Income Male Multivariate Analysis National Surveys Neurosciences Pediatrics Perception Pervasive Developmental Disorders Polls & surveys Psychological research Psychology Public Health Quality of Life S.I. : Parenting Children with ASD Sensation Stress, Psychological - epidemiology Stress, Psychological - psychology Subtypes Surveys and Questionnaires |
| title | Caregiver Burden Varies by Sensory Subtypes and Sensory Dimension Scores of Children with Autism |
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