“People try and label me as someone I'm not”: The social ecology of Indigenous people living with HIV, stigma, and discrimination in Manitoba, Canada
Indigenous peoples (First Nations, Inuit, and Métis) are currently overrepresented in the HIV epidemic in Canada and are infected at a younger age than those who are not Indigenous. This article presents our findings on the stigma and discrimination (as well as related themes such as disclosure) exp...
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Veröffentlicht in: | Social science & medicine (1982) 2017-12, Vol.194, p.17-24 |
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description | Indigenous peoples (First Nations, Inuit, and Métis) are currently overrepresented in the HIV epidemic in Canada and are infected at a younger age than those who are not Indigenous. This article presents our findings on the stigma and discrimination (as well as related themes such as disclosure) experienced by Indigenous people who contracted HIV in their youth and live in urban and non-urban settings in Manitoba, Canada. The findings were derived from a qualitative study that sought to understand the experiences and needs of Indigenous people living with HIV (including AIDS). We situate such experiences within a social ecological framework towards developing a better structural understanding of the impacts of stigma and discrimination on the lives of Indigenous people who are HIV positive. Stigma and discrimination caused barriers for Indigenous people living with HIV through inhibiting their ease of access to supports including family, peers, community, and long- and short-term health services. Creative forms of outreach and education that are culturally appropriate and/or rooted in culture were considered to be possibly impactful ways of reducing stigma and discrimination at the community level. Learning from communities who are successfully managing stigma also showed promise for developing new programming.
•Indigenous people are currently overrepresented in the HIV epidemic in Canada.•Indigenous people are infected at a younger age than those who are not indigenous.•Social ecology helps understand the impact of stigma and discrimination.•Stigma and discrimination deter Indigenous people with HIV to access services.•Culturally relevant education is needed to reduce stigma and discrimination. |
doi_str_mv | 10.1016/j.socscimed.2017.10.002 |
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•Indigenous people are currently overrepresented in the HIV epidemic in Canada.•Indigenous people are infected at a younger age than those who are not indigenous.•Social ecology helps understand the impact of stigma and discrimination.•Stigma and discrimination deter Indigenous people with HIV to access services.•Culturally relevant education is needed to reduce stigma and discrimination.</description><identifier>ISSN: 0277-9536</identifier><identifier>EISSN: 1873-5347</identifier><identifier>DOI: 10.1016/j.socscimed.2017.10.002</identifier><identifier>PMID: 29055805</identifier><language>eng</language><publisher>England: Elsevier Ltd</publisher><subject>Access ; Acquired immune deficiency syndrome ; Adolescent ; Adult ; AIDS ; American Indians ; Canada ; Community ; Discrimination ; Ecology ; Environmental aspects ; Epidemics ; Female ; Health services ; Health services utilization ; HIV ; HIV Infections - epidemiology ; HIV/AIDS ; Human ecology ; Human immunodeficiency virus ; Humans ; Indigenous people ; Indigenous peoples ; Inuit ; Labelling ; Male ; Manitoba - epidemiology ; Manitoba - ethnology ; Native North Americans ; Native peoples ; Peers ; Population Groups - ethnology ; Population Groups - psychology ; Qualitative Research ; Racism - ethnology ; Social ecology ; Social Environment ; Social Stigma ; Stigma ; Urban areas ; Youth</subject><ispartof>Social science & medicine (1982), 2017-12, Vol.194, p.17-24</ispartof><rights>2017 Elsevier Ltd</rights><rights>Copyright © 2017 Elsevier Ltd. All rights reserved.</rights><rights>Copyright Pergamon Press Inc. Dec 2017</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c399t-3dd66ea2a4553c627d0bcf3b5d0afc0fba34bd9a2a59041667682bc2e585d9be3</citedby><cites>FETCH-LOGICAL-c399t-3dd66ea2a4553c627d0bcf3b5d0afc0fba34bd9a2a59041667682bc2e585d9be3</cites><orcidid>0000-0001-8411-6083</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktohtml>$$Uhttps://dx.doi.org/10.1016/j.socscimed.2017.10.002$$EHTML$$P50$$Gelsevier$$H</linktohtml><link.rule.ids>315,782,786,3554,27933,27934,33783,46004</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/29055805$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Woodgate, Roberta L.</creatorcontrib><creatorcontrib>Zurba, Melanie</creatorcontrib><creatorcontrib>Tennent, Pauline</creatorcontrib><creatorcontrib>Cochrane, Carla</creatorcontrib><creatorcontrib>Payne, Mike</creatorcontrib><creatorcontrib>Mignone, Javier</creatorcontrib><title>“People try and label me as someone I'm not”: The social ecology of Indigenous people living with HIV, stigma, and discrimination in Manitoba, Canada</title><title>Social science & medicine (1982)</title><addtitle>Soc Sci Med</addtitle><description>Indigenous peoples (First Nations, Inuit, and Métis) are currently overrepresented in the HIV epidemic in Canada and are infected at a younger age than those who are not Indigenous. This article presents our findings on the stigma and discrimination (as well as related themes such as disclosure) experienced by Indigenous people who contracted HIV in their youth and live in urban and non-urban settings in Manitoba, Canada. The findings were derived from a qualitative study that sought to understand the experiences and needs of Indigenous people living with HIV (including AIDS). We situate such experiences within a social ecological framework towards developing a better structural understanding of the impacts of stigma and discrimination on the lives of Indigenous people who are HIV positive. Stigma and discrimination caused barriers for Indigenous people living with HIV through inhibiting their ease of access to supports including family, peers, community, and long- and short-term health services. Creative forms of outreach and education that are culturally appropriate and/or rooted in culture were considered to be possibly impactful ways of reducing stigma and discrimination at the community level. Learning from communities who are successfully managing stigma also showed promise for developing new programming.
•Indigenous people are currently overrepresented in the HIV epidemic in Canada.•Indigenous people are infected at a younger age than those who are not indigenous.•Social ecology helps understand the impact of stigma and discrimination.•Stigma and discrimination deter Indigenous people with HIV to access services.•Culturally relevant education is needed to reduce stigma and discrimination.</description><subject>Access</subject><subject>Acquired immune deficiency syndrome</subject><subject>Adolescent</subject><subject>Adult</subject><subject>AIDS</subject><subject>American Indians</subject><subject>Canada</subject><subject>Community</subject><subject>Discrimination</subject><subject>Ecology</subject><subject>Environmental aspects</subject><subject>Epidemics</subject><subject>Female</subject><subject>Health services</subject><subject>Health services utilization</subject><subject>HIV</subject><subject>HIV Infections - epidemiology</subject><subject>HIV/AIDS</subject><subject>Human ecology</subject><subject>Human immunodeficiency virus</subject><subject>Humans</subject><subject>Indigenous people</subject><subject>Indigenous peoples</subject><subject>Inuit</subject><subject>Labelling</subject><subject>Male</subject><subject>Manitoba - epidemiology</subject><subject>Manitoba - ethnology</subject><subject>Native North Americans</subject><subject>Native peoples</subject><subject>Peers</subject><subject>Population Groups - ethnology</subject><subject>Population Groups - psychology</subject><subject>Qualitative Research</subject><subject>Racism - ethnology</subject><subject>Social ecology</subject><subject>Social Environment</subject><subject>Social Stigma</subject><subject>Stigma</subject><subject>Urban areas</subject><subject>Youth</subject><issn>0277-9536</issn><issn>1873-5347</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2017</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>BHHNA</sourceid><recordid>eNqFkc9u1DAQxi1ERZfCK4AlDnBoFseOk5hbtSrtSkVwKFwtx55svUrsxfa22ltfAwlerk9Sp9ty4MJppJnffPPnQ-htSeYlKeuP63n0Omo7gplTUjY5OyeEPkOzsm1YwVnVPEczQpumEJzVh-hljGtCSEla9gIdUkE4bwmfoV93t7-_gd8MgFPYYeUMHlQHAx4Bq4ijH8E7wMv3I3Y-3d3--YQvryDntVUDBu0Hv9ph3-OlM3YFzm8j3uz1Bntt3Qrf2HSFz5c_jnFMdjWq44chxkYd7GidStY7bB3-opxNvsv1hXLKqFfooFdDhNeP8Qh9_3x6uTgvLr6eLRcnF4VmQqSCGVPXoKiqOGe6po0hne5Zxw1RvSZ9p1jVGZEBLkhV1nVTt7TTFHjLjeiAHaEPe91N8D-3EJMc824wDMpBvkaWgldM8EZUGX33D7r22-DydpISOj1U0DpTzZ7SwccYoJebfKkKO1kSObkn1_Kve3Jybypk93Lnm0f9bTfVnvqe7MrAyR6A_JBrC0FmFXAajA2gkzTe_nfIPTfJsfg</recordid><startdate>201712</startdate><enddate>201712</enddate><creator>Woodgate, Roberta L.</creator><creator>Zurba, Melanie</creator><creator>Tennent, Pauline</creator><creator>Cochrane, Carla</creator><creator>Payne, Mike</creator><creator>Mignone, Javier</creator><general>Elsevier Ltd</general><general>Pergamon Press Inc</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7U3</scope><scope>7U4</scope><scope>8BJ</scope><scope>BHHNA</scope><scope>DWI</scope><scope>FQK</scope><scope>JBE</scope><scope>K9.</scope><scope>WZK</scope><scope>7X8</scope><orcidid>https://orcid.org/0000-0001-8411-6083</orcidid></search><sort><creationdate>201712</creationdate><title>“People try and label me as someone I'm not”: The social ecology of Indigenous people living with HIV, stigma, and discrimination in Manitoba, Canada</title><author>Woodgate, Roberta L. ; Zurba, Melanie ; Tennent, Pauline ; Cochrane, Carla ; Payne, Mike ; Mignone, Javier</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c399t-3dd66ea2a4553c627d0bcf3b5d0afc0fba34bd9a2a59041667682bc2e585d9be3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2017</creationdate><topic>Access</topic><topic>Acquired immune deficiency syndrome</topic><topic>Adolescent</topic><topic>Adult</topic><topic>AIDS</topic><topic>American Indians</topic><topic>Canada</topic><topic>Community</topic><topic>Discrimination</topic><topic>Ecology</topic><topic>Environmental aspects</topic><topic>Epidemics</topic><topic>Female</topic><topic>Health services</topic><topic>Health services utilization</topic><topic>HIV</topic><topic>HIV Infections - epidemiology</topic><topic>HIV/AIDS</topic><topic>Human ecology</topic><topic>Human immunodeficiency virus</topic><topic>Humans</topic><topic>Indigenous people</topic><topic>Indigenous peoples</topic><topic>Inuit</topic><topic>Labelling</topic><topic>Male</topic><topic>Manitoba - epidemiology</topic><topic>Manitoba - ethnology</topic><topic>Native North Americans</topic><topic>Native peoples</topic><topic>Peers</topic><topic>Population Groups - ethnology</topic><topic>Population Groups - psychology</topic><topic>Qualitative Research</topic><topic>Racism - ethnology</topic><topic>Social ecology</topic><topic>Social Environment</topic><topic>Social Stigma</topic><topic>Stigma</topic><topic>Urban areas</topic><topic>Youth</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Woodgate, Roberta L.</creatorcontrib><creatorcontrib>Zurba, Melanie</creatorcontrib><creatorcontrib>Tennent, Pauline</creatorcontrib><creatorcontrib>Cochrane, Carla</creatorcontrib><creatorcontrib>Payne, Mike</creatorcontrib><creatorcontrib>Mignone, Javier</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Social Services Abstracts</collection><collection>Sociological Abstracts (pre-2017)</collection><collection>International Bibliography of the Social Sciences (IBSS)</collection><collection>Sociological Abstracts</collection><collection>Sociological Abstracts</collection><collection>International Bibliography of the Social Sciences</collection><collection>International Bibliography of the Social Sciences</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Sociological Abstracts (Ovid)</collection><collection>MEDLINE - Academic</collection><jtitle>Social science & medicine (1982)</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Woodgate, Roberta L.</au><au>Zurba, Melanie</au><au>Tennent, Pauline</au><au>Cochrane, Carla</au><au>Payne, Mike</au><au>Mignone, Javier</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>“People try and label me as someone I'm not”: The social ecology of Indigenous people living with HIV, stigma, and discrimination in Manitoba, Canada</atitle><jtitle>Social science & medicine (1982)</jtitle><addtitle>Soc Sci Med</addtitle><date>2017-12</date><risdate>2017</risdate><volume>194</volume><spage>17</spage><epage>24</epage><pages>17-24</pages><issn>0277-9536</issn><eissn>1873-5347</eissn><abstract>Indigenous peoples (First Nations, Inuit, and Métis) are currently overrepresented in the HIV epidemic in Canada and are infected at a younger age than those who are not Indigenous. This article presents our findings on the stigma and discrimination (as well as related themes such as disclosure) experienced by Indigenous people who contracted HIV in their youth and live in urban and non-urban settings in Manitoba, Canada. The findings were derived from a qualitative study that sought to understand the experiences and needs of Indigenous people living with HIV (including AIDS). We situate such experiences within a social ecological framework towards developing a better structural understanding of the impacts of stigma and discrimination on the lives of Indigenous people who are HIV positive. Stigma and discrimination caused barriers for Indigenous people living with HIV through inhibiting their ease of access to supports including family, peers, community, and long- and short-term health services. Creative forms of outreach and education that are culturally appropriate and/or rooted in culture were considered to be possibly impactful ways of reducing stigma and discrimination at the community level. Learning from communities who are successfully managing stigma also showed promise for developing new programming.
•Indigenous people are currently overrepresented in the HIV epidemic in Canada.•Indigenous people are infected at a younger age than those who are not indigenous.•Social ecology helps understand the impact of stigma and discrimination.•Stigma and discrimination deter Indigenous people with HIV to access services.•Culturally relevant education is needed to reduce stigma and discrimination.</abstract><cop>England</cop><pub>Elsevier Ltd</pub><pmid>29055805</pmid><doi>10.1016/j.socscimed.2017.10.002</doi><tpages>8</tpages><orcidid>https://orcid.org/0000-0001-8411-6083</orcidid></addata></record> |
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subjects | Access Acquired immune deficiency syndrome Adolescent Adult AIDS American Indians Canada Community Discrimination Ecology Environmental aspects Epidemics Female Health services Health services utilization HIV HIV Infections - epidemiology HIV/AIDS Human ecology Human immunodeficiency virus Humans Indigenous people Indigenous peoples Inuit Labelling Male Manitoba - epidemiology Manitoba - ethnology Native North Americans Native peoples Peers Population Groups - ethnology Population Groups - psychology Qualitative Research Racism - ethnology Social ecology Social Environment Social Stigma Stigma Urban areas Youth |
title | “People try and label me as someone I'm not”: The social ecology of Indigenous people living with HIV, stigma, and discrimination in Manitoba, Canada |
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