The impact of sport on children with haemophilia
Summary Sport is nowadays perceived as beneficial for children with haemophilia, as good muscle strength supports joints and may reduce bleed frequency; by contrast psychological benefits are less known. This study introduces the impact of sport on health‐related quality of life (HRQoL) and physical...
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| Veröffentlicht in: | Haemophilia : the official journal of the World Federation of Hemophilia 2012-11, Vol.18 (6), p.898-905 |
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| container_title | Haemophilia : the official journal of the World Federation of Hemophilia |
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| creator | Khair, K. Littley, A. Will, A. von Mackensen, S. |
| description | Summary
Sport is nowadays perceived as beneficial for children with haemophilia, as good muscle strength supports joints and may reduce bleed frequency; by contrast psychological benefits are less known. This study introduces the impact of sport on health‐related quality of life (HRQoL) and physical performance in children with haemophilia. A cross‐sectional, multi‐site, study of boys aged 6–17 years with haemophilia A or B of any severity, current or past inhibitor, which assessed physical performance, sporting activity and HRQoL using age appropriate questionnaires including KINDL, Haemo‐QoL and HEP‐Test‐Q. Eighty‐four haemophilic boys (23 mild, 19 moderate, 42 severe) with a mean age of 11.52 years (SD = 3.4) were enrolled from two haemophilia centres in the United Kingdom. 28.4% were overweight/obese according to their BMI/age and had a good orthopaedic status (M = 1.55, SD = 3.3). Boys watching |
| doi_str_mv | 10.1111/j.1365-2516.2012.02857.x |
| format | Article |
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Sport is nowadays perceived as beneficial for children with haemophilia, as good muscle strength supports joints and may reduce bleed frequency; by contrast psychological benefits are less known. This study introduces the impact of sport on health‐related quality of life (HRQoL) and physical performance in children with haemophilia. A cross‐sectional, multi‐site, study of boys aged 6–17 years with haemophilia A or B of any severity, current or past inhibitor, which assessed physical performance, sporting activity and HRQoL using age appropriate questionnaires including KINDL, Haemo‐QoL and HEP‐Test‐Q. Eighty‐four haemophilic boys (23 mild, 19 moderate, 42 severe) with a mean age of 11.52 years (SD = 3.4) were enrolled from two haemophilia centres in the United Kingdom. 28.4% were overweight/obese according to their BMI/age and had a good orthopaedic status (M = 1.55, SD = 3.3). Boys watching < 1–2 h of TV/PC/day had fewer days lost (M = 3, SD = 3.2) than those with a more sedentary lifestyle (M = 9.40, SD = 7.1) (P < 0.032). 90.5% participated in regular sporting activity; 79.9% at least twice a week. HRQoL in children was generally good, with highest impairments in boys aged 8–12 years. Boys aged 8–16 years reported good physical performance (M = 80.0, SD = 16.0) with highest impairments in the dimensions ‘endurance’ and ‘mobility’. Boys doing sport had a significant better physical performance and HRQoL than boys not doing sport. Sedentary life styles had a negative impact on the subjective physical performance and number of days lost of children. Encouraging haemophilic boys to participate in sport will have a direct impact on their overall HRQoL.</description><identifier>ISSN: 1351-8216</identifier><identifier>EISSN: 1365-2516</identifier><identifier>DOI: 10.1111/j.1365-2516.2012.02857.x</identifier><identifier>PMID: 22630612</identifier><language>eng</language><publisher>England: Blackwell Publishing Ltd</publisher><subject>Adolescent ; Child ; children and adolescents ; Cross-Sectional Studies ; Exercise ; haemophilia ; Health Status ; health-related quality of life ; Hemophilia A - psychology ; Hemophilia B - psychology ; Humans ; Male ; physical performance ; Psychometrics ; Quality of Life ; sporting activity</subject><ispartof>Haemophilia : the official journal of the World Federation of Hemophilia, 2012-11, Vol.18 (6), p.898-905</ispartof><rights>2012 Blackwell Publishing Ltd</rights><rights>2012 Blackwell Publishing Ltd.</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c4407-3496ad3b62de76e0f94c1b515955beaaaa74280ab69a743145aa2e1b03becc9a3</citedby><cites>FETCH-LOGICAL-c4407-3496ad3b62de76e0f94c1b515955beaaaa74280ab69a743145aa2e1b03becc9a3</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1111%2Fj.1365-2516.2012.02857.x$$EPDF$$P50$$Gwiley$$H</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1111%2Fj.1365-2516.2012.02857.x$$EHTML$$P50$$Gwiley$$H</linktohtml><link.rule.ids>315,782,786,1419,27931,27932,45581,45582</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/22630612$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Khair, K.</creatorcontrib><creatorcontrib>Littley, A.</creatorcontrib><creatorcontrib>Will, A.</creatorcontrib><creatorcontrib>von Mackensen, S.</creatorcontrib><title>The impact of sport on children with haemophilia</title><title>Haemophilia : the official journal of the World Federation of Hemophilia</title><addtitle>Haemophilia</addtitle><description>Summary
Sport is nowadays perceived as beneficial for children with haemophilia, as good muscle strength supports joints and may reduce bleed frequency; by contrast psychological benefits are less known. This study introduces the impact of sport on health‐related quality of life (HRQoL) and physical performance in children with haemophilia. A cross‐sectional, multi‐site, study of boys aged 6–17 years with haemophilia A or B of any severity, current or past inhibitor, which assessed physical performance, sporting activity and HRQoL using age appropriate questionnaires including KINDL, Haemo‐QoL and HEP‐Test‐Q. Eighty‐four haemophilic boys (23 mild, 19 moderate, 42 severe) with a mean age of 11.52 years (SD = 3.4) were enrolled from two haemophilia centres in the United Kingdom. 28.4% were overweight/obese according to their BMI/age and had a good orthopaedic status (M = 1.55, SD = 3.3). Boys watching < 1–2 h of TV/PC/day had fewer days lost (M = 3, SD = 3.2) than those with a more sedentary lifestyle (M = 9.40, SD = 7.1) (P < 0.032). 90.5% participated in regular sporting activity; 79.9% at least twice a week. HRQoL in children was generally good, with highest impairments in boys aged 8–12 years. Boys aged 8–16 years reported good physical performance (M = 80.0, SD = 16.0) with highest impairments in the dimensions ‘endurance’ and ‘mobility’. Boys doing sport had a significant better physical performance and HRQoL than boys not doing sport. Sedentary life styles had a negative impact on the subjective physical performance and number of days lost of children. Encouraging haemophilic boys to participate in sport will have a direct impact on their overall HRQoL.</description><subject>Adolescent</subject><subject>Child</subject><subject>children and adolescents</subject><subject>Cross-Sectional Studies</subject><subject>Exercise</subject><subject>haemophilia</subject><subject>Health Status</subject><subject>health-related quality of life</subject><subject>Hemophilia A - psychology</subject><subject>Hemophilia B - psychology</subject><subject>Humans</subject><subject>Male</subject><subject>physical performance</subject><subject>Psychometrics</subject><subject>Quality of Life</subject><subject>sporting activity</subject><issn>1351-8216</issn><issn>1365-2516</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2012</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNqNkE9PwkAQxTdGI4h-BdOjl9ad_dsePBCCoCF6wXDcbNttWmxp7UKAb-_WIledy7zsvDeT_SHkAQ7A1eM6ACq4TziIgGAgASYhl8HhAg3Pg8tOc_BDAmKAbqxdYwyUYHGNBoQIigWQIcLL3HhF1ehk69WZZ5u6dWLjJXlRpq3ZePtim3u5NlXduKdC36KrTJfW3J36CH08T5eTub94n71Mxgs_YQxLn7JI6JTGgqRGCoOziCUQc-AR57HRriQjIdaxiJyiwLjWxECMaWySJNJ0hB76vU1bf-2M3aqqsIkpS70x9c4qCCNJJRZU_m0FwiSXDLCzhr01aWtrW5Oppi0q3R4VYNWhVWvVEVQdQdWhVT9o1cFF709XdnFl0nPwl6UzPPWGfVGa478Xq_l42imX9_t8YbfmcM7r9lMJ91WuVm8zNXsVchWRpYroN7TMlGI</recordid><startdate>201211</startdate><enddate>201211</enddate><creator>Khair, K.</creator><creator>Littley, A.</creator><creator>Will, A.</creator><creator>von Mackensen, S.</creator><general>Blackwell Publishing Ltd</general><scope>BSCLL</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope><scope>7TS</scope></search><sort><creationdate>201211</creationdate><title>The impact of sport on children with haemophilia</title><author>Khair, K. ; Littley, A. ; Will, A. ; von Mackensen, S.</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c4407-3496ad3b62de76e0f94c1b515955beaaaa74280ab69a743145aa2e1b03becc9a3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2012</creationdate><topic>Adolescent</topic><topic>Child</topic><topic>children and adolescents</topic><topic>Cross-Sectional Studies</topic><topic>Exercise</topic><topic>haemophilia</topic><topic>Health Status</topic><topic>health-related quality of life</topic><topic>Hemophilia A - psychology</topic><topic>Hemophilia B - psychology</topic><topic>Humans</topic><topic>Male</topic><topic>physical performance</topic><topic>Psychometrics</topic><topic>Quality of Life</topic><topic>sporting activity</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Khair, K.</creatorcontrib><creatorcontrib>Littley, A.</creatorcontrib><creatorcontrib>Will, A.</creatorcontrib><creatorcontrib>von Mackensen, S.</creatorcontrib><collection>Istex</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><collection>Physical Education Index</collection><jtitle>Haemophilia : the official journal of the World Federation of Hemophilia</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Khair, K.</au><au>Littley, A.</au><au>Will, A.</au><au>von Mackensen, S.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>The impact of sport on children with haemophilia</atitle><jtitle>Haemophilia : the official journal of the World Federation of Hemophilia</jtitle><addtitle>Haemophilia</addtitle><date>2012-11</date><risdate>2012</risdate><volume>18</volume><issue>6</issue><spage>898</spage><epage>905</epage><pages>898-905</pages><issn>1351-8216</issn><eissn>1365-2516</eissn><abstract>Summary
Sport is nowadays perceived as beneficial for children with haemophilia, as good muscle strength supports joints and may reduce bleed frequency; by contrast psychological benefits are less known. This study introduces the impact of sport on health‐related quality of life (HRQoL) and physical performance in children with haemophilia. A cross‐sectional, multi‐site, study of boys aged 6–17 years with haemophilia A or B of any severity, current or past inhibitor, which assessed physical performance, sporting activity and HRQoL using age appropriate questionnaires including KINDL, Haemo‐QoL and HEP‐Test‐Q. Eighty‐four haemophilic boys (23 mild, 19 moderate, 42 severe) with a mean age of 11.52 years (SD = 3.4) were enrolled from two haemophilia centres in the United Kingdom. 28.4% were overweight/obese according to their BMI/age and had a good orthopaedic status (M = 1.55, SD = 3.3). Boys watching < 1–2 h of TV/PC/day had fewer days lost (M = 3, SD = 3.2) than those with a more sedentary lifestyle (M = 9.40, SD = 7.1) (P < 0.032). 90.5% participated in regular sporting activity; 79.9% at least twice a week. HRQoL in children was generally good, with highest impairments in boys aged 8–12 years. Boys aged 8–16 years reported good physical performance (M = 80.0, SD = 16.0) with highest impairments in the dimensions ‘endurance’ and ‘mobility’. Boys doing sport had a significant better physical performance and HRQoL than boys not doing sport. Sedentary life styles had a negative impact on the subjective physical performance and number of days lost of children. Encouraging haemophilic boys to participate in sport will have a direct impact on their overall HRQoL.</abstract><cop>England</cop><pub>Blackwell Publishing Ltd</pub><pmid>22630612</pmid><doi>10.1111/j.1365-2516.2012.02857.x</doi><tpages>8</tpages></addata></record> |
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| source | Wiley Online Library - AutoHoldings Journals; MEDLINE |
| subjects | Adolescent Child children and adolescents Cross-Sectional Studies Exercise haemophilia Health Status health-related quality of life Hemophilia A - psychology Hemophilia B - psychology Humans Male physical performance Psychometrics Quality of Life sporting activity |
| title | The impact of sport on children with haemophilia |
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