Preferences for Disease‐Related Education and Support Among Younger People With Hip or Knee Osteoarthritis

Objective To explore the usefulness and accessibility of different delivery modes of disease‐related education and support, as perceived by younger people with osteoarthritis (OA). Methods People ages 20–55 years with hip or knee OA were recruited from 3 major Australian public hospitals and the com...

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Veröffentlicht in:Arthritis care & research (2010) 2017-04, Vol.69 (4), p.499-508
Hauptverfasser: Ackerman, Ilana N., Bucknill, Andrew, Page, Richard S., Broughton, Nigel S., Roberts, Carol, Cavka, Bernarda, Schoch, Peter, Brand, Caroline A.
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container_end_page 508
container_issue 4
container_start_page 499
container_title Arthritis care & research (2010)
container_volume 69
creator Ackerman, Ilana N.
Bucknill, Andrew
Page, Richard S.
Broughton, Nigel S.
Roberts, Carol
Cavka, Bernarda
Schoch, Peter
Brand, Caroline A.
description Objective To explore the usefulness and accessibility of different delivery modes of disease‐related education and support, as perceived by younger people with osteoarthritis (OA). Methods People ages 20–55 years with hip or knee OA were recruited from 3 major Australian public hospitals and the community (n = 147). Data were collected on use of disease‐related education and support services, as well as perceived usefulness and accessibility of delivery modes including group‐based programs, online resources, telephone helplines, mailed information, social media, and mobile applications (rated on visual analog scales from 1–10; higher scores indicate greater usefulness or accessibility). Results Very few participants had used social media (5%), group self‐management programs (3%), or telephone helplines (2%) to obtain OA information. Mailed information packs and online education programs were considered the most useful (median usefulness scores 8.0 and 7.0, respectively) and accessible methods (median accessibility scores 10.0 and 9.0, respectively) for providing OA education and support. Social media was perceived as least useful (median usefulness score 2.0) and least accessible; 45% of participants considered it “not at all useful,” while 35% reported it would be “very difficult” to access OA education and support by this means. Less educational attainment was associated with greater perceived difficulty in accessing online/electronic delivery modes, while people in paid work perceived easier access. Conclusion These data highlight the value of mailed information and online education to younger people with OA and can be used to develop targeted resources for individuals of working age. Social media was not a highly valued source of disease‐related education and support.
doi_str_mv 10.1002/acr.22950
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Methods People ages 20–55 years with hip or knee OA were recruited from 3 major Australian public hospitals and the community (n = 147). Data were collected on use of disease‐related education and support services, as well as perceived usefulness and accessibility of delivery modes including group‐based programs, online resources, telephone helplines, mailed information, social media, and mobile applications (rated on visual analog scales from 1–10; higher scores indicate greater usefulness or accessibility). Results Very few participants had used social media (5%), group self‐management programs (3%), or telephone helplines (2%) to obtain OA information. Mailed information packs and online education programs were considered the most useful (median usefulness scores 8.0 and 7.0, respectively) and accessible methods (median accessibility scores 10.0 and 9.0, respectively) for providing OA education and support. Social media was perceived as least useful (median usefulness score 2.0) and least accessible; 45% of participants considered it “not at all useful,” while 35% reported it would be “very difficult” to access OA education and support by this means. Less educational attainment was associated with greater perceived difficulty in accessing online/electronic delivery modes, while people in paid work perceived easier access. Conclusion These data highlight the value of mailed information and online education to younger people with OA and can be used to develop targeted resources for individuals of working age. Social media was not a highly valued source of disease‐related education and support.</description><identifier>ISSN: 2151-464X</identifier><identifier>EISSN: 2151-4658</identifier><identifier>DOI: 10.1002/acr.22950</identifier><identifier>PMID: 27273912</identifier><language>eng</language><publisher>United States: Wiley Subscription Services, Inc</publisher><subject>Access to Information ; Adult ; Age Factors ; Arthritis ; Consumer Health Information - methods ; Cross-Sectional Studies ; Education ; Female ; Health Knowledge, Attitudes, Practice ; Hip ; Humans ; Information Dissemination ; Internet ; Knee ; Male ; Middle Aged ; Osteoarthritis ; Osteoarthritis, Hip - diagnosis ; Osteoarthritis, Hip - physiopathology ; Osteoarthritis, Hip - psychology ; Osteoarthritis, Hip - therapy ; Osteoarthritis, Knee - diagnosis ; Osteoarthritis, Knee - physiopathology ; Osteoarthritis, Knee - psychology ; Osteoarthritis, Knee - therapy ; Patient Education as Topic - methods ; Patient Preference ; Postal Service ; Self-Help Groups ; Social Media ; Social networks ; Social Support ; Surveys and Questionnaires ; Victoria ; Visual perception ; Young Adult</subject><ispartof>Arthritis care &amp; research (2010), 2017-04, Vol.69 (4), p.499-508</ispartof><rights>2016, American College of Rheumatology</rights><rights>2016, American College of Rheumatology.</rights><rights>2017, American College of Rheumatology</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c3860-62bbc6be11f2526d840757e5b707bf776d2df8a8b7b14ceb149c28dd60d8ae2e3</citedby><cites>FETCH-LOGICAL-c3860-62bbc6be11f2526d840757e5b707bf776d2df8a8b7b14ceb149c28dd60d8ae2e3</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1002%2Facr.22950$$EPDF$$P50$$Gwiley$$H</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1002%2Facr.22950$$EHTML$$P50$$Gwiley$$H</linktohtml><link.rule.ids>315,781,785,1418,27929,27930,45579,45580</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/27273912$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Ackerman, Ilana N.</creatorcontrib><creatorcontrib>Bucknill, Andrew</creatorcontrib><creatorcontrib>Page, Richard S.</creatorcontrib><creatorcontrib>Broughton, Nigel S.</creatorcontrib><creatorcontrib>Roberts, Carol</creatorcontrib><creatorcontrib>Cavka, Bernarda</creatorcontrib><creatorcontrib>Schoch, Peter</creatorcontrib><creatorcontrib>Brand, Caroline A.</creatorcontrib><title>Preferences for Disease‐Related Education and Support Among Younger People With Hip or Knee Osteoarthritis</title><title>Arthritis care &amp; research (2010)</title><addtitle>Arthritis Care Res (Hoboken)</addtitle><description>Objective To explore the usefulness and accessibility of different delivery modes of disease‐related education and support, as perceived by younger people with osteoarthritis (OA). Methods People ages 20–55 years with hip or knee OA were recruited from 3 major Australian public hospitals and the community (n = 147). Data were collected on use of disease‐related education and support services, as well as perceived usefulness and accessibility of delivery modes including group‐based programs, online resources, telephone helplines, mailed information, social media, and mobile applications (rated on visual analog scales from 1–10; higher scores indicate greater usefulness or accessibility). Results Very few participants had used social media (5%), group self‐management programs (3%), or telephone helplines (2%) to obtain OA information. Mailed information packs and online education programs were considered the most useful (median usefulness scores 8.0 and 7.0, respectively) and accessible methods (median accessibility scores 10.0 and 9.0, respectively) for providing OA education and support. Social media was perceived as least useful (median usefulness score 2.0) and least accessible; 45% of participants considered it “not at all useful,” while 35% reported it would be “very difficult” to access OA education and support by this means. Less educational attainment was associated with greater perceived difficulty in accessing online/electronic delivery modes, while people in paid work perceived easier access. Conclusion These data highlight the value of mailed information and online education to younger people with OA and can be used to develop targeted resources for individuals of working age. 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Calcified Tissue Abstracts</collection><collection>Nursing &amp; Allied Health Premium</collection><collection>MEDLINE - Academic</collection><jtitle>Arthritis care &amp; research (2010)</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Ackerman, Ilana N.</au><au>Bucknill, Andrew</au><au>Page, Richard S.</au><au>Broughton, Nigel S.</au><au>Roberts, Carol</au><au>Cavka, Bernarda</au><au>Schoch, Peter</au><au>Brand, Caroline A.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Preferences for Disease‐Related Education and Support Among Younger People With Hip or Knee Osteoarthritis</atitle><jtitle>Arthritis care &amp; research (2010)</jtitle><addtitle>Arthritis Care Res (Hoboken)</addtitle><date>2017-04</date><risdate>2017</risdate><volume>69</volume><issue>4</issue><spage>499</spage><epage>508</epage><pages>499-508</pages><issn>2151-464X</issn><eissn>2151-4658</eissn><abstract>Objective To explore the usefulness and accessibility of different delivery modes of disease‐related education and support, as perceived by younger people with osteoarthritis (OA). Methods People ages 20–55 years with hip or knee OA were recruited from 3 major Australian public hospitals and the community (n = 147). Data were collected on use of disease‐related education and support services, as well as perceived usefulness and accessibility of delivery modes including group‐based programs, online resources, telephone helplines, mailed information, social media, and mobile applications (rated on visual analog scales from 1–10; higher scores indicate greater usefulness or accessibility). Results Very few participants had used social media (5%), group self‐management programs (3%), or telephone helplines (2%) to obtain OA information. Mailed information packs and online education programs were considered the most useful (median usefulness scores 8.0 and 7.0, respectively) and accessible methods (median accessibility scores 10.0 and 9.0, respectively) for providing OA education and support. Social media was perceived as least useful (median usefulness score 2.0) and least accessible; 45% of participants considered it “not at all useful,” while 35% reported it would be “very difficult” to access OA education and support by this means. Less educational attainment was associated with greater perceived difficulty in accessing online/electronic delivery modes, while people in paid work perceived easier access. Conclusion These data highlight the value of mailed information and online education to younger people with OA and can be used to develop targeted resources for individuals of working age. Social media was not a highly valued source of disease‐related education and support.</abstract><cop>United States</cop><pub>Wiley Subscription Services, Inc</pub><pmid>27273912</pmid><doi>10.1002/acr.22950</doi><tpages>10</tpages></addata></record>
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subjects Access to Information
Adult
Age Factors
Arthritis
Consumer Health Information - methods
Cross-Sectional Studies
Education
Female
Health Knowledge, Attitudes, Practice
Hip
Humans
Information Dissemination
Internet
Knee
Male
Middle Aged
Osteoarthritis
Osteoarthritis, Hip - diagnosis
Osteoarthritis, Hip - physiopathology
Osteoarthritis, Hip - psychology
Osteoarthritis, Hip - therapy
Osteoarthritis, Knee - diagnosis
Osteoarthritis, Knee - physiopathology
Osteoarthritis, Knee - psychology
Osteoarthritis, Knee - therapy
Patient Education as Topic - methods
Patient Preference
Postal Service
Self-Help Groups
Social Media
Social networks
Social Support
Surveys and Questionnaires
Victoria
Visual perception
Young Adult
title Preferences for Disease‐Related Education and Support Among Younger People With Hip or Knee Osteoarthritis
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