Psychosocial implications of disorders of sex development treatment for parents
PURPOSE OF REVIEWHistorically, studies of caregivers of children with disorders of sex development (DSD) have been limited. RECENT FINDINGSRecent data reveal that parents of young children with DSD report increased stress, anxiety, depression, and decreased quality of life in ways that are similar t...
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| Veröffentlicht in: | Current opinion in urology 2017-01, Vol.27 (1), p.11-13 |
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| creator | Wisniewski, Amy B |
| description | PURPOSE OF REVIEWHistorically, studies of caregivers of children with disorders of sex development (DSD) have been limited.
RECENT FINDINGSRecent data reveal that parents of young children with DSD report increased stress, anxiety, depression, and decreased quality of life in ways that are similar to parents of children with other types of chronic illnesses. Also similar to other chronic illnesses of childhood, parents of children with DSD exhibit overprotective parenting and perceive their child as being vulnerable. These emotions and behaviors exhibited by parents are concerning as they may limit an affected childʼs emotional and social development over time. Perhaps, more unique to the situation of DSD is the perceived, or real, child-focused stigma experienced by parents of children with DSD.
SUMMARYInterventions to improve parents’ psychosocial adaptation to their childʼs medical condition, including coaching in how to discuss their childʼs condition in a manner that makes them feel safe and supported, are needed to optimize outcomes for families. |
| doi_str_mv | 10.1097/MOU.0000000000000344 |
| format | Article |
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RECENT FINDINGSRecent data reveal that parents of young children with DSD report increased stress, anxiety, depression, and decreased quality of life in ways that are similar to parents of children with other types of chronic illnesses. Also similar to other chronic illnesses of childhood, parents of children with DSD exhibit overprotective parenting and perceive their child as being vulnerable. These emotions and behaviors exhibited by parents are concerning as they may limit an affected childʼs emotional and social development over time. Perhaps, more unique to the situation of DSD is the perceived, or real, child-focused stigma experienced by parents of children with DSD.
SUMMARYInterventions to improve parents’ psychosocial adaptation to their childʼs medical condition, including coaching in how to discuss their childʼs condition in a manner that makes them feel safe and supported, are needed to optimize outcomes for families.</description><identifier>ISSN: 0963-0643</identifier><identifier>EISSN: 1473-6586</identifier><identifier>DOI: 10.1097/MOU.0000000000000344</identifier><identifier>PMID: 27584026</identifier><language>eng</language><publisher>United States: Copyright Wolters Kluwer Health, Inc. All rights reserved</publisher><subject>Anxiety - etiology ; Anxiety - psychology ; Disorders of Sex Development ; Humans ; Parenting ; Parents - psychology ; Quality of Life ; Stress, Psychological</subject><ispartof>Current opinion in urology, 2017-01, Vol.27 (1), p.11-13</ispartof><rights>Copyright © 2017 Wolters Kluwer Health, Inc. All rights reserved.</rights><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c4684-f9e8354bc04c3e00248fbf084abcec3aad4c7ae2c0fde24241eb8b41ad8feacb3</citedby><cites>FETCH-LOGICAL-c4684-f9e8354bc04c3e00248fbf084abcec3aad4c7ae2c0fde24241eb8b41ad8feacb3</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>314,780,784,27924,27925</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/27584026$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Wisniewski, Amy B</creatorcontrib><title>Psychosocial implications of disorders of sex development treatment for parents</title><title>Current opinion in urology</title><addtitle>Curr Opin Urol</addtitle><description>PURPOSE OF REVIEWHistorically, studies of caregivers of children with disorders of sex development (DSD) have been limited.
RECENT FINDINGSRecent data reveal that parents of young children with DSD report increased stress, anxiety, depression, and decreased quality of life in ways that are similar to parents of children with other types of chronic illnesses. Also similar to other chronic illnesses of childhood, parents of children with DSD exhibit overprotective parenting and perceive their child as being vulnerable. These emotions and behaviors exhibited by parents are concerning as they may limit an affected childʼs emotional and social development over time. Perhaps, more unique to the situation of DSD is the perceived, or real, child-focused stigma experienced by parents of children with DSD.
SUMMARYInterventions to improve parents’ psychosocial adaptation to their childʼs medical condition, including coaching in how to discuss their childʼs condition in a manner that makes them feel safe and supported, are needed to optimize outcomes for families.</description><subject>Anxiety - etiology</subject><subject>Anxiety - psychology</subject><subject>Disorders of Sex Development</subject><subject>Humans</subject><subject>Parenting</subject><subject>Parents - psychology</subject><subject>Quality of Life</subject><subject>Stress, Psychological</subject><issn>0963-0643</issn><issn>1473-6586</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2017</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNp9kEtPwzAQhC0EoqXwDxDKkUuKH5vEOaKKl1RUDvQcOc5aDTh1sFNK_z2hLQhxYC87K83MSh8h54yOGc2zq8fZfEx_jwA4IEMGmYjTRKaHZEjzVMQ0BTEgJyG8UMp4zsQxGfAskUB5OiSzp7DRCxecrpWN6qa1tVZd7ZYhciaq6uB8hX57BPyIKnxH69oGl13UeVTdVhnno1b5XoZTcmSUDXi23yMyv715ntzH09ndw-R6GmtIJcQmRykSKDUFLZBSDtKUhkpQpUYtlKpAZwq5pqZCDhwYlrIEpippUOlSjMjlrrf17m2FoSuaOmi0Vi3RrULBJCQ8SbI86a2ws2rvQvBoitbXjfKbgtHiC2XRoyz-ouxjF_sPq7LB6if0za43yJ1h7WzXM3q1qzX6YoHKdov_uz8BLJqCfA</recordid><startdate>201701</startdate><enddate>201701</enddate><creator>Wisniewski, Amy B</creator><general>Copyright Wolters Kluwer Health, Inc. All rights reserved</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope></search><sort><creationdate>201701</creationdate><title>Psychosocial implications of disorders of sex development treatment for parents</title><author>Wisniewski, Amy B</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c4684-f9e8354bc04c3e00248fbf084abcec3aad4c7ae2c0fde24241eb8b41ad8feacb3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2017</creationdate><topic>Anxiety - etiology</topic><topic>Anxiety - psychology</topic><topic>Disorders of Sex Development</topic><topic>Humans</topic><topic>Parenting</topic><topic>Parents - psychology</topic><topic>Quality of Life</topic><topic>Stress, Psychological</topic><toplevel>online_resources</toplevel><creatorcontrib>Wisniewski, Amy B</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><jtitle>Current opinion in urology</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Wisniewski, Amy B</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Psychosocial implications of disorders of sex development treatment for parents</atitle><jtitle>Current opinion in urology</jtitle><addtitle>Curr Opin Urol</addtitle><date>2017-01</date><risdate>2017</risdate><volume>27</volume><issue>1</issue><spage>11</spage><epage>13</epage><pages>11-13</pages><issn>0963-0643</issn><eissn>1473-6586</eissn><abstract>PURPOSE OF REVIEWHistorically, studies of caregivers of children with disorders of sex development (DSD) have been limited.
RECENT FINDINGSRecent data reveal that parents of young children with DSD report increased stress, anxiety, depression, and decreased quality of life in ways that are similar to parents of children with other types of chronic illnesses. Also similar to other chronic illnesses of childhood, parents of children with DSD exhibit overprotective parenting and perceive their child as being vulnerable. These emotions and behaviors exhibited by parents are concerning as they may limit an affected childʼs emotional and social development over time. Perhaps, more unique to the situation of DSD is the perceived, or real, child-focused stigma experienced by parents of children with DSD.
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| language | eng |
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| source | MEDLINE; Journals@Ovid Complete |
| subjects | Anxiety - etiology Anxiety - psychology Disorders of Sex Development Humans Parenting Parents - psychology Quality of Life Stress, Psychological |
| title | Psychosocial implications of disorders of sex development treatment for parents |
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