Health self-advocacy training for persons with intellectual disabilities
Background People with intellectual disabilities (ID) have unequal access to health care. While systemic efforts are addressing health inequalities, there remains a need to demonstrate that persons with ID can increase their health self‐advocacy skills. Method A randomised control design with up to...
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| Veröffentlicht in: | Journal of intellectual disability research 2012-11, Vol.56 (11), p.1110-1121 |
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| container_issue | 11 |
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| container_title | Journal of intellectual disability research |
| container_volume | 56 |
| creator | Feldman, M. A. Owen, F. Andrews, A. Hamelin, J. Barber, R. Griffiths, D. |
| description | Background
People with intellectual disabilities (ID) have unequal access to health care. While systemic efforts are addressing health inequalities, there remains a need to demonstrate that persons with ID can increase their health self‐advocacy skills.
Method
A randomised control design with up to 6‐month follow‐up was used to evaluate the 3Rs (Rights, Respect and Responsibility) health self‐advocacy training program for persons with ID (n = 31). Training involved teaching participants to recognise and redress health rights violations in the context of respect and responsibility. Training materials included PowerPoint slides and interactive video scenarios illustrating health rights, respect and responsibility problem and non‐problems. Two‐hour training sessions were conducted twice a week in a group format where participants played a game and answered questions.
Results
The health rights training group made significantly more correct responses on post training and follow‐up tests than the control group. Training effects generalised to untrained scenarios and in situ health interviews.
Conclusions
The results of this study suggest that persons with ID can learn complex skills related to health self‐advocacy. More research is needed to improve in situ generalisation. |
| doi_str_mv | 10.1111/j.1365-2788.2012.01626.x |
| format | Article |
| fullrecord | <record><control><sourceid>proquest_cross</sourceid><recordid>TN_cdi_proquest_miscellaneous_1832242441</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><ericid>EJ983728</ericid><sourcerecordid>1266173456</sourcerecordid><originalsourceid>FETCH-LOGICAL-c5886-e2c087c55539bdc10a2d1bc8de2914f79ebfe222593e1b249fd18619397b13793</originalsourceid><addsrcrecordid>eNqNks1u1DAUhS0EokPhDRCKxIZNgq__vWCBSum0DCChIpaW4zjgIZNM7YTOvD1JU2bBpmMvbOl8595r6yCUAS5gXG_XBVDBcyKVKggGUmAQRBS7R2hxEB6jBdaC5URQeoKepbTGGAtg4ik6IRSwkJwt0HLpbdP_ypJv6txWfzpn3T7row1taH9mdRezrY-pa1N2G0YutL1vGu_6wTZZFZItQxP64NNz9KS2TfIv7s9T9P3j-fXZMl99vbg8e7_KHVdK5J44rKTjnFNdVg6wJRWUTlWeaGC11L6sPSGEa-qhJEzXFSgBmmpZApWanqI3c91t7G4Gn3qzCcmNM9nWd0MyoCghjDAGD6NEKDxuYMegAiRlXByBUgVKao0fRoEwySnT07Ne_4euuyG240_eUQyPA0yUmikXu5Sir802ho2NewPYTMkwazMFwEwBMFMyzF0yzG60vrpvMJQbXx2M_6IwAi9nwMfgDvL5lVZUEjXK72b5NjR-f3Rfc3X5bbqN_nz2h9T73cFv428jJJXc_PhyYa4_ffi8wpyaFf0LdaDb3A</addsrcrecordid><sourcetype>Aggregation Database</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>1124402669</pqid></control><display><type>article</type><title>Health self-advocacy training for persons with intellectual disabilities</title><source>MEDLINE</source><source>Access via Wiley Online Library</source><source>Applied Social Sciences Index & Abstracts (ASSIA)</source><source>EBSCOhost Education Source</source><creator>Feldman, M. A. ; Owen, F. ; Andrews, A. ; Hamelin, J. ; Barber, R. ; Griffiths, D.</creator><creatorcontrib>Feldman, M. A. ; Owen, F. ; Andrews, A. ; Hamelin, J. ; Barber, R. ; Griffiths, D.</creatorcontrib><description>Background
People with intellectual disabilities (ID) have unequal access to health care. While systemic efforts are addressing health inequalities, there remains a need to demonstrate that persons with ID can increase their health self‐advocacy skills.
Method
A randomised control design with up to 6‐month follow‐up was used to evaluate the 3Rs (Rights, Respect and Responsibility) health self‐advocacy training program for persons with ID (n = 31). Training involved teaching participants to recognise and redress health rights violations in the context of respect and responsibility. Training materials included PowerPoint slides and interactive video scenarios illustrating health rights, respect and responsibility problem and non‐problems. Two‐hour training sessions were conducted twice a week in a group format where participants played a game and answered questions.
Results
The health rights training group made significantly more correct responses on post training and follow‐up tests than the control group. Training effects generalised to untrained scenarios and in situ health interviews.
Conclusions
The results of this study suggest that persons with ID can learn complex skills related to health self‐advocacy. More research is needed to improve in situ generalisation.</description><identifier>ISSN: 0964-2633</identifier><identifier>EISSN: 1365-2788</identifier><identifier>DOI: 10.1111/j.1365-2788.2012.01626.x</identifier><identifier>PMID: 23106754</identifier><identifier>CODEN: JIDREN</identifier><language>eng</language><publisher>England: Blackwell Publishing Ltd</publisher><subject>Access to Health Care ; Adult ; Control Groups ; Convention on the Rights of Persons with Disabilities ; Disabled Persons - psychology ; Disabled Persons - rehabilitation ; Education of Intellectually Disabled - methods ; Female ; Follow-Up Studies ; Games ; group instruction ; Health ; Health care ; Health care access ; Health promotion ; health rights training ; health self-advocacy ; Human rights ; Human Rights - psychology ; Humans ; intellectual disabilities ; Intellectual Disability ; Intellectual Disability - psychology ; Intellectual Disability - rehabilitation ; Interactive Video ; Interviews ; Learning disabilities ; Male ; Mental Retardation ; Middle Aged ; Patient Education as Topic - methods ; Personal Autonomy ; Personal health ; Pretests Posttests ; Program Evaluation ; Scores ; Self Advocacy ; Self Care - methods ; Self Care - psychology ; Surveys and Questionnaires ; Training ; Violations</subject><ispartof>Journal of intellectual disability research, 2012-11, Vol.56 (11), p.1110-1121</ispartof><rights>2012 The Authors. Journal of Intellectual Disability Research © 2012 Blackwell Publishing Ltd</rights><rights>2012 The Authors. Journal of Intellectual Disability Research © 2012 Blackwell Publishing Ltd.</rights><rights>Copyright Blackwell Publishing Ltd. Nov 2012</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c5886-e2c087c55539bdc10a2d1bc8de2914f79ebfe222593e1b249fd18619397b13793</citedby><cites>FETCH-LOGICAL-c5886-e2c087c55539bdc10a2d1bc8de2914f79ebfe222593e1b249fd18619397b13793</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1111%2Fj.1365-2788.2012.01626.x$$EPDF$$P50$$Gwiley$$H</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1111%2Fj.1365-2788.2012.01626.x$$EHTML$$P50$$Gwiley$$H</linktohtml><link.rule.ids>314,780,784,1417,27924,27925,30999,31000,45574,45575</link.rule.ids><backlink>$$Uhttp://eric.ed.gov/ERICWebPortal/detail?accno=EJ983728$$DView record in ERIC$$Hfree_for_read</backlink><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/23106754$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Feldman, M. A.</creatorcontrib><creatorcontrib>Owen, F.</creatorcontrib><creatorcontrib>Andrews, A.</creatorcontrib><creatorcontrib>Hamelin, J.</creatorcontrib><creatorcontrib>Barber, R.</creatorcontrib><creatorcontrib>Griffiths, D.</creatorcontrib><title>Health self-advocacy training for persons with intellectual disabilities</title><title>Journal of intellectual disability research</title><addtitle>J Intellect Disabil Res</addtitle><description>Background
People with intellectual disabilities (ID) have unequal access to health care. While systemic efforts are addressing health inequalities, there remains a need to demonstrate that persons with ID can increase their health self‐advocacy skills.
Method
A randomised control design with up to 6‐month follow‐up was used to evaluate the 3Rs (Rights, Respect and Responsibility) health self‐advocacy training program for persons with ID (n = 31). Training involved teaching participants to recognise and redress health rights violations in the context of respect and responsibility. Training materials included PowerPoint slides and interactive video scenarios illustrating health rights, respect and responsibility problem and non‐problems. Two‐hour training sessions were conducted twice a week in a group format where participants played a game and answered questions.
Results
The health rights training group made significantly more correct responses on post training and follow‐up tests than the control group. Training effects generalised to untrained scenarios and in situ health interviews.
Conclusions
The results of this study suggest that persons with ID can learn complex skills related to health self‐advocacy. More research is needed to improve in situ generalisation.</description><subject>Access to Health Care</subject><subject>Adult</subject><subject>Control Groups</subject><subject>Convention on the Rights of Persons with Disabilities</subject><subject>Disabled Persons - psychology</subject><subject>Disabled Persons - rehabilitation</subject><subject>Education of Intellectually Disabled - methods</subject><subject>Female</subject><subject>Follow-Up Studies</subject><subject>Games</subject><subject>group instruction</subject><subject>Health</subject><subject>Health care</subject><subject>Health care access</subject><subject>Health promotion</subject><subject>health rights training</subject><subject>health self-advocacy</subject><subject>Human rights</subject><subject>Human Rights - psychology</subject><subject>Humans</subject><subject>intellectual disabilities</subject><subject>Intellectual Disability</subject><subject>Intellectual Disability - psychology</subject><subject>Intellectual Disability - rehabilitation</subject><subject>Interactive Video</subject><subject>Interviews</subject><subject>Learning disabilities</subject><subject>Male</subject><subject>Mental Retardation</subject><subject>Middle Aged</subject><subject>Patient Education as Topic - methods</subject><subject>Personal Autonomy</subject><subject>Personal health</subject><subject>Pretests Posttests</subject><subject>Program Evaluation</subject><subject>Scores</subject><subject>Self Advocacy</subject><subject>Self Care - methods</subject><subject>Self Care - psychology</subject><subject>Surveys and Questionnaires</subject><subject>Training</subject><subject>Violations</subject><issn>0964-2633</issn><issn>1365-2788</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2012</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>7QJ</sourceid><recordid>eNqNks1u1DAUhS0EokPhDRCKxIZNgq__vWCBSum0DCChIpaW4zjgIZNM7YTOvD1JU2bBpmMvbOl8595r6yCUAS5gXG_XBVDBcyKVKggGUmAQRBS7R2hxEB6jBdaC5URQeoKepbTGGAtg4ik6IRSwkJwt0HLpbdP_ypJv6txWfzpn3T7row1taH9mdRezrY-pa1N2G0YutL1vGu_6wTZZFZItQxP64NNz9KS2TfIv7s9T9P3j-fXZMl99vbg8e7_KHVdK5J44rKTjnFNdVg6wJRWUTlWeaGC11L6sPSGEa-qhJEzXFSgBmmpZApWanqI3c91t7G4Gn3qzCcmNM9nWd0MyoCghjDAGD6NEKDxuYMegAiRlXByBUgVKao0fRoEwySnT07Ne_4euuyG240_eUQyPA0yUmikXu5Sir802ho2NewPYTMkwazMFwEwBMFMyzF0yzG60vrpvMJQbXx2M_6IwAi9nwMfgDvL5lVZUEjXK72b5NjR-f3Rfc3X5bbqN_nz2h9T73cFv428jJJXc_PhyYa4_ffi8wpyaFf0LdaDb3A</recordid><startdate>201211</startdate><enddate>201211</enddate><creator>Feldman, M. A.</creator><creator>Owen, F.</creator><creator>Andrews, A.</creator><creator>Hamelin, J.</creator><creator>Barber, R.</creator><creator>Griffiths, D.</creator><general>Blackwell Publishing Ltd</general><general>Wiley-Blackwell</general><general>Wiley Subscription Services, Inc</general><scope>BSCLL</scope><scope>7SW</scope><scope>BJH</scope><scope>BNH</scope><scope>BNI</scope><scope>BNJ</scope><scope>BNO</scope><scope>ERI</scope><scope>PET</scope><scope>REK</scope><scope>WWN</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7QJ</scope><scope>7X8</scope><scope>ASE</scope><scope>FPQ</scope><scope>K6X</scope><scope>7TK</scope></search><sort><creationdate>201211</creationdate><title>Health self-advocacy training for persons with intellectual disabilities</title><author>Feldman, M. A. ; Owen, F. ; Andrews, A. ; Hamelin, J. ; Barber, R. ; Griffiths, D.</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c5886-e2c087c55539bdc10a2d1bc8de2914f79ebfe222593e1b249fd18619397b13793</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2012</creationdate><topic>Access to Health Care</topic><topic>Adult</topic><topic>Control Groups</topic><topic>Convention on the Rights of Persons with Disabilities</topic><topic>Disabled Persons - psychology</topic><topic>Disabled Persons - rehabilitation</topic><topic>Education of Intellectually Disabled - methods</topic><topic>Female</topic><topic>Follow-Up Studies</topic><topic>Games</topic><topic>group instruction</topic><topic>Health</topic><topic>Health care</topic><topic>Health care access</topic><topic>Health promotion</topic><topic>health rights training</topic><topic>health self-advocacy</topic><topic>Human rights</topic><topic>Human Rights - psychology</topic><topic>Humans</topic><topic>intellectual disabilities</topic><topic>Intellectual Disability</topic><topic>Intellectual Disability - psychology</topic><topic>Intellectual Disability - rehabilitation</topic><topic>Interactive Video</topic><topic>Interviews</topic><topic>Learning disabilities</topic><topic>Male</topic><topic>Mental Retardation</topic><topic>Middle Aged</topic><topic>Patient Education as Topic - methods</topic><topic>Personal Autonomy</topic><topic>Personal health</topic><topic>Pretests Posttests</topic><topic>Program Evaluation</topic><topic>Scores</topic><topic>Self Advocacy</topic><topic>Self Care - methods</topic><topic>Self Care - psychology</topic><topic>Surveys and Questionnaires</topic><topic>Training</topic><topic>Violations</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Feldman, M. A.</creatorcontrib><creatorcontrib>Owen, F.</creatorcontrib><creatorcontrib>Andrews, A.</creatorcontrib><creatorcontrib>Hamelin, J.</creatorcontrib><creatorcontrib>Barber, R.</creatorcontrib><creatorcontrib>Griffiths, D.</creatorcontrib><collection>Istex</collection><collection>ERIC</collection><collection>ERIC (Ovid)</collection><collection>ERIC</collection><collection>ERIC</collection><collection>ERIC (Legacy Platform)</collection><collection>ERIC( SilverPlatter )</collection><collection>ERIC</collection><collection>ERIC PlusText (Legacy Platform)</collection><collection>Education Resources Information Center (ERIC)</collection><collection>ERIC</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Applied Social Sciences Index & Abstracts (ASSIA)</collection><collection>MEDLINE - Academic</collection><collection>British Nursing Index</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>British Nursing Index</collection><collection>Neurosciences Abstracts</collection><jtitle>Journal of intellectual disability research</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Feldman, M. A.</au><au>Owen, F.</au><au>Andrews, A.</au><au>Hamelin, J.</au><au>Barber, R.</au><au>Griffiths, D.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><ericid>EJ983728</ericid><atitle>Health self-advocacy training for persons with intellectual disabilities</atitle><jtitle>Journal of intellectual disability research</jtitle><addtitle>J Intellect Disabil Res</addtitle><date>2012-11</date><risdate>2012</risdate><volume>56</volume><issue>11</issue><spage>1110</spage><epage>1121</epage><pages>1110-1121</pages><issn>0964-2633</issn><eissn>1365-2788</eissn><coden>JIDREN</coden><abstract>Background
People with intellectual disabilities (ID) have unequal access to health care. While systemic efforts are addressing health inequalities, there remains a need to demonstrate that persons with ID can increase their health self‐advocacy skills.
Method
A randomised control design with up to 6‐month follow‐up was used to evaluate the 3Rs (Rights, Respect and Responsibility) health self‐advocacy training program for persons with ID (n = 31). Training involved teaching participants to recognise and redress health rights violations in the context of respect and responsibility. Training materials included PowerPoint slides and interactive video scenarios illustrating health rights, respect and responsibility problem and non‐problems. Two‐hour training sessions were conducted twice a week in a group format where participants played a game and answered questions.
Results
The health rights training group made significantly more correct responses on post training and follow‐up tests than the control group. Training effects generalised to untrained scenarios and in situ health interviews.
Conclusions
The results of this study suggest that persons with ID can learn complex skills related to health self‐advocacy. More research is needed to improve in situ generalisation.</abstract><cop>England</cop><pub>Blackwell Publishing Ltd</pub><pmid>23106754</pmid><doi>10.1111/j.1365-2788.2012.01626.x</doi><tpages>12</tpages></addata></record> |
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| ispartof | Journal of intellectual disability research, 2012-11, Vol.56 (11), p.1110-1121 |
| issn | 0964-2633 1365-2788 |
| language | eng |
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| source | MEDLINE; Access via Wiley Online Library; Applied Social Sciences Index & Abstracts (ASSIA); EBSCOhost Education Source |
| subjects | Access to Health Care Adult Control Groups Convention on the Rights of Persons with Disabilities Disabled Persons - psychology Disabled Persons - rehabilitation Education of Intellectually Disabled - methods Female Follow-Up Studies Games group instruction Health Health care Health care access Health promotion health rights training health self-advocacy Human rights Human Rights - psychology Humans intellectual disabilities Intellectual Disability Intellectual Disability - psychology Intellectual Disability - rehabilitation Interactive Video Interviews Learning disabilities Male Mental Retardation Middle Aged Patient Education as Topic - methods Personal Autonomy Personal health Pretests Posttests Program Evaluation Scores Self Advocacy Self Care - methods Self Care - psychology Surveys and Questionnaires Training Violations |
| title | Health self-advocacy training for persons with intellectual disabilities |
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