A cross-cultural study on perceived health-related quality of life in children and adolescents with type 1 diabetes mellitus
Abstract Objective This study investigated whether culture can affect self- and proxy-reports of perceived diabetes-specific health-related quality of life of children and adolescents with type 1 diabetes when taking into account glycemic control, gender and age. Methods A total of 416 patients aged...
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| Veröffentlicht in: | Journal of diabetes and its complications 2016-04, Vol.30 (3), p.482-487 |
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| container_title | Journal of diabetes and its complications |
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| creator | Kalyva, Efrosini Abdul-Rasoul, Majedah Kehl, Dániel Barkai, László Lukács, Andrea |
| description | Abstract Objective This study investigated whether culture can affect self- and proxy-reports of perceived diabetes-specific health-related quality of life of children and adolescents with type 1 diabetes when taking into account glycemic control, gender and age. Methods A total of 416 patients aged between 8 and 18 years – 84 (Greece), 135 (Hungary) and 197 (Kuwait) – and their parents completed the Pediatric Quality of Life Inventory™ 3.0. Diabetes Module. Results Gender and age did not have any effect on perceived diabetes-specific health-related quality of life. Significant differences were detected among countries in self- and proxy-reports of diabetes-specific health-related quality of life when controlling for glycemic control. More specifically, Greek patients with type 1 diabetes and their parents reported significantly worse disease-specific health-related quality of life than their peers from Kuwait and Hungary. Moreover, culture affected the level of agreement between self- and proxy-reports with parents from Kuwait underestimating their children's diabetes-specific health-related quality of life. Conclusion The impact of culture on self- and proxy-reports of diabetes-specific health-related quality of life warrants further investigation, since it might suggest the need for differential psychosocial treatment. |
| doi_str_mv | 10.1016/j.jdiacomp.2015.12.021 |
| format | Article |
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Methods A total of 416 patients aged between 8 and 18 years – 84 (Greece), 135 (Hungary) and 197 (Kuwait) – and their parents completed the Pediatric Quality of Life Inventory™ 3.0. Diabetes Module. Results Gender and age did not have any effect on perceived diabetes-specific health-related quality of life. Significant differences were detected among countries in self- and proxy-reports of diabetes-specific health-related quality of life when controlling for glycemic control. More specifically, Greek patients with type 1 diabetes and their parents reported significantly worse disease-specific health-related quality of life than their peers from Kuwait and Hungary. Moreover, culture affected the level of agreement between self- and proxy-reports with parents from Kuwait underestimating their children's diabetes-specific health-related quality of life. Conclusion The impact of culture on self- and proxy-reports of diabetes-specific health-related quality of life warrants further investigation, since it might suggest the need for differential psychosocial treatment.</description><identifier>ISSN: 1056-8727</identifier><identifier>EISSN: 1873-460X</identifier><identifier>DOI: 10.1016/j.jdiacomp.2015.12.021</identifier><identifier>PMID: 26809901</identifier><language>eng</language><publisher>United States: Elsevier Inc</publisher><subject>Adolescent ; Adolescents ; Child ; Children ; Childrens health ; Chronic illnesses ; Clinical medicine ; Cross-cultural ; Cross-Cultural Comparison ; Culture ; Diabetes ; Diabetes Mellitus, Type 1 - ethnology ; Diabetes Mellitus, Type 1 - psychology ; Endocrinology & Metabolism ; Epidemiology ; Families & family life ; Female ; Health behavior ; Health Status ; Health-related quality of life ; Humans ; Hungary - ethnology ; Kuwait - ethnology ; Male ; Pathogenesis ; Patients ; Perception ; Perceptions ; Public health ; Quality of life ; Quality of Life - psychology ; Self Report ; Surveys and Questionnaires ; Teenagers ; Trends ; Type 1 diabetes mellitus</subject><ispartof>Journal of diabetes and its complications, 2016-04, Vol.30 (3), p.482-487</ispartof><rights>Elsevier Inc.</rights><rights>2016 Elsevier Inc.</rights><rights>Copyright © 2016 Elsevier Inc. All rights reserved.</rights><rights>Copyright Elsevier Limited Apr 1, 2016</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c517t-7351885301e369a1286391436b72c12f7bf5d33650dea2e8457e60a1e9307a1a3</citedby><cites>FETCH-LOGICAL-c517t-7351885301e369a1286391436b72c12f7bf5d33650dea2e8457e60a1e9307a1a3</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktohtml>$$Uhttps://www.proquest.com/docview/2006863999?pq-origsite=primo$$EHTML$$P50$$Gproquest$$H</linktohtml><link.rule.ids>315,781,785,3551,27929,27930,46000,64390,64392,64394,72474</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/26809901$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Kalyva, Efrosini</creatorcontrib><creatorcontrib>Abdul-Rasoul, Majedah</creatorcontrib><creatorcontrib>Kehl, Dániel</creatorcontrib><creatorcontrib>Barkai, László</creatorcontrib><creatorcontrib>Lukács, Andrea</creatorcontrib><title>A cross-cultural study on perceived health-related quality of life in children and adolescents with type 1 diabetes mellitus</title><title>Journal of diabetes and its complications</title><addtitle>J Diabetes Complications</addtitle><description>Abstract Objective This study investigated whether culture can affect self- and proxy-reports of perceived diabetes-specific health-related quality of life of children and adolescents with type 1 diabetes when taking into account glycemic control, gender and age. Methods A total of 416 patients aged between 8 and 18 years – 84 (Greece), 135 (Hungary) and 197 (Kuwait) – and their parents completed the Pediatric Quality of Life Inventory™ 3.0. Diabetes Module. Results Gender and age did not have any effect on perceived diabetes-specific health-related quality of life. Significant differences were detected among countries in self- and proxy-reports of diabetes-specific health-related quality of life when controlling for glycemic control. More specifically, Greek patients with type 1 diabetes and their parents reported significantly worse disease-specific health-related quality of life than their peers from Kuwait and Hungary. Moreover, culture affected the level of agreement between self- and proxy-reports with parents from Kuwait underestimating their children's diabetes-specific health-related quality of life. Conclusion The impact of culture on self- and proxy-reports of diabetes-specific health-related quality of life warrants further investigation, since it might suggest the need for differential psychosocial treatment.</description><subject>Adolescent</subject><subject>Adolescents</subject><subject>Child</subject><subject>Children</subject><subject>Childrens health</subject><subject>Chronic illnesses</subject><subject>Clinical medicine</subject><subject>Cross-cultural</subject><subject>Cross-Cultural Comparison</subject><subject>Culture</subject><subject>Diabetes</subject><subject>Diabetes Mellitus, Type 1 - ethnology</subject><subject>Diabetes Mellitus, Type 1 - psychology</subject><subject>Endocrinology & Metabolism</subject><subject>Epidemiology</subject><subject>Families & family life</subject><subject>Female</subject><subject>Health behavior</subject><subject>Health Status</subject><subject>Health-related quality of life</subject><subject>Humans</subject><subject>Hungary - ethnology</subject><subject>Kuwait - ethnology</subject><subject>Male</subject><subject>Pathogenesis</subject><subject>Patients</subject><subject>Perception</subject><subject>Perceptions</subject><subject>Public health</subject><subject>Quality of life</subject><subject>Quality of Life - psychology</subject><subject>Self Report</subject><subject>Surveys and Questionnaires</subject><subject>Teenagers</subject><subject>Trends</subject><subject>Type 1 diabetes mellitus</subject><issn>1056-8727</issn><issn>1873-460X</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2016</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>8G5</sourceid><sourceid>ABUWG</sourceid><sourceid>AFKRA</sourceid><sourceid>AZQEC</sourceid><sourceid>BENPR</sourceid><sourceid>CCPQU</sourceid><sourceid>DWQXO</sourceid><sourceid>GNUQQ</sourceid><sourceid>GUQSH</sourceid><sourceid>M2O</sourceid><recordid>eNqNkk1vEzEQhlcIREvhL1SWuHDZMGPH9u4FUVV8SZU4ABI3y7FnFQdnN7W9RZH48Tik7aGXcrItPfN6xo-b5hxhgYDq7Wax8cG6abtbcEC5QL4Ajk-aU-y0aJcKfj6te5Cq7TTXJ82LnDcAoKTE580JVx30PeBp8-eCuTTl3Lo5ljnZyHKZ_Z5NI9tRchRuyLM12VjWbaJoSz1ezzaGUpmBxTAQCyNz6xB9opHZ0TPrp0jZ0Vgy-x3KmpX9jhiy2vCKCmW2pVgD5vyyeTbYmOnV7XrW_Pj44fvl5_bq66cvlxdXrZOoS6uFxK6TApCE6i3yTokel0KtNHfIB70apBdCSfBkOXVLqUmBReoFaItWnDVvjrm7NF3PlIvZhtpfjHakac4GO657Dkrhf6DAtUAtxeOo1suK6W5Z0dcP0M00p7HObHiVcpin7yuljtQ_I4kGs0tha9PeIJiDdbMxd9bNwbpBbqr1Wnh-Gz-vtuTvy-40V-D9EaD6yjeBksku0OjIh0SuGD-Fx-949yDCxTAGZ-Mv2lO-nwdNrgXm2-HvHb4eSgCJIMRf6ujUmw</recordid><startdate>20160401</startdate><enddate>20160401</enddate><creator>Kalyva, Efrosini</creator><creator>Abdul-Rasoul, Majedah</creator><creator>Kehl, Dániel</creator><creator>Barkai, László</creator><creator>Lukács, Andrea</creator><general>Elsevier Inc</general><general>Elsevier Limited</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>3V.</scope><scope>7RV</scope><scope>7X7</scope><scope>7XB</scope><scope>88E</scope><scope>8AO</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>8G5</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>AN0</scope><scope>ASE</scope><scope>AZQEC</scope><scope>BENPR</scope><scope>CCPQU</scope><scope>DWQXO</scope><scope>FPQ</scope><scope>FYUFA</scope><scope>GHDGH</scope><scope>GNUQQ</scope><scope>GUQSH</scope><scope>K6X</scope><scope>K9-</scope><scope>K9.</scope><scope>KB0</scope><scope>M0R</scope><scope>M0S</scope><scope>M1P</scope><scope>M2O</scope><scope>MBDVC</scope><scope>NAPCQ</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PRINS</scope><scope>Q9U</scope><scope>7X8</scope><scope>7T5</scope><scope>H94</scope></search><sort><creationdate>20160401</creationdate><title>A cross-cultural study on perceived health-related quality of life in children and adolescents with type 1 diabetes mellitus</title><author>Kalyva, Efrosini ; Abdul-Rasoul, Majedah ; Kehl, Dániel ; Barkai, László ; Lukács, Andrea</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c517t-7351885301e369a1286391436b72c12f7bf5d33650dea2e8457e60a1e9307a1a3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2016</creationdate><topic>Adolescent</topic><topic>Adolescents</topic><topic>Child</topic><topic>Children</topic><topic>Childrens health</topic><topic>Chronic illnesses</topic><topic>Clinical medicine</topic><topic>Cross-cultural</topic><topic>Cross-Cultural Comparison</topic><topic>Culture</topic><topic>Diabetes</topic><topic>Diabetes Mellitus, Type 1 - ethnology</topic><topic>Diabetes Mellitus, Type 1 - psychology</topic><topic>Endocrinology & Metabolism</topic><topic>Epidemiology</topic><topic>Families & family life</topic><topic>Female</topic><topic>Health behavior</topic><topic>Health Status</topic><topic>Health-related quality of life</topic><topic>Humans</topic><topic>Hungary - ethnology</topic><topic>Kuwait - ethnology</topic><topic>Male</topic><topic>Pathogenesis</topic><topic>Patients</topic><topic>Perception</topic><topic>Perceptions</topic><topic>Public health</topic><topic>Quality of life</topic><topic>Quality of Life - psychology</topic><topic>Self Report</topic><topic>Surveys and Questionnaires</topic><topic>Teenagers</topic><topic>Trends</topic><topic>Type 1 diabetes mellitus</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Kalyva, Efrosini</creatorcontrib><creatorcontrib>Abdul-Rasoul, Majedah</creatorcontrib><creatorcontrib>Kehl, Dániel</creatorcontrib><creatorcontrib>Barkai, László</creatorcontrib><creatorcontrib>Lukács, Andrea</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>ProQuest Central (Corporate)</collection><collection>Nursing & Allied Health Database</collection><collection>Health & Medical Collection</collection><collection>ProQuest Central (purchase pre-March 2016)</collection><collection>Medical Database (Alumni Edition)</collection><collection>ProQuest Pharma Collection</collection><collection>Hospital Premium Collection</collection><collection>Hospital Premium Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni) (purchase pre-March 2016)</collection><collection>Research Library (Alumni Edition)</collection><collection>ProQuest Central (Alumni Edition)</collection><collection>ProQuest Central UK/Ireland</collection><collection>British Nursing Database</collection><collection>British Nursing Index</collection><collection>ProQuest Central Essentials</collection><collection>ProQuest Central</collection><collection>ProQuest One Community College</collection><collection>ProQuest Central Korea</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>Health Research Premium Collection</collection><collection>Health Research Premium Collection (Alumni)</collection><collection>ProQuest Central Student</collection><collection>Research Library Prep</collection><collection>British Nursing Index</collection><collection>Consumer Health Database (Alumni Edition)</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Database (Alumni Edition)</collection><collection>Consumer Health Database</collection><collection>Health & Medical Collection (Alumni Edition)</collection><collection>Medical Database</collection><collection>Research Library</collection><collection>Research Library (Corporate)</collection><collection>Nursing & Allied Health Premium</collection><collection>ProQuest One Academic Eastern Edition (DO NOT USE)</collection><collection>ProQuest One Academic</collection><collection>ProQuest One Academic UKI Edition</collection><collection>ProQuest Central China</collection><collection>ProQuest Central Basic</collection><collection>MEDLINE - Academic</collection><collection>Immunology Abstracts</collection><collection>AIDS and Cancer Research Abstracts</collection><jtitle>Journal of diabetes and its complications</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Kalyva, Efrosini</au><au>Abdul-Rasoul, Majedah</au><au>Kehl, Dániel</au><au>Barkai, László</au><au>Lukács, Andrea</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>A cross-cultural study on perceived health-related quality of life in children and adolescents with type 1 diabetes mellitus</atitle><jtitle>Journal of diabetes and its complications</jtitle><addtitle>J Diabetes Complications</addtitle><date>2016-04-01</date><risdate>2016</risdate><volume>30</volume><issue>3</issue><spage>482</spage><epage>487</epage><pages>482-487</pages><issn>1056-8727</issn><eissn>1873-460X</eissn><abstract>Abstract Objective This study investigated whether culture can affect self- and proxy-reports of perceived diabetes-specific health-related quality of life of children and adolescents with type 1 diabetes when taking into account glycemic control, gender and age. Methods A total of 416 patients aged between 8 and 18 years – 84 (Greece), 135 (Hungary) and 197 (Kuwait) – and their parents completed the Pediatric Quality of Life Inventory™ 3.0. Diabetes Module. Results Gender and age did not have any effect on perceived diabetes-specific health-related quality of life. Significant differences were detected among countries in self- and proxy-reports of diabetes-specific health-related quality of life when controlling for glycemic control. More specifically, Greek patients with type 1 diabetes and their parents reported significantly worse disease-specific health-related quality of life than their peers from Kuwait and Hungary. Moreover, culture affected the level of agreement between self- and proxy-reports with parents from Kuwait underestimating their children's diabetes-specific health-related quality of life. Conclusion The impact of culture on self- and proxy-reports of diabetes-specific health-related quality of life warrants further investigation, since it might suggest the need for differential psychosocial treatment.</abstract><cop>United States</cop><pub>Elsevier Inc</pub><pmid>26809901</pmid><doi>10.1016/j.jdiacomp.2015.12.021</doi><tpages>6</tpages></addata></record> |
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| subjects | Adolescent Adolescents Child Children Childrens health Chronic illnesses Clinical medicine Cross-cultural Cross-Cultural Comparison Culture Diabetes Diabetes Mellitus, Type 1 - ethnology Diabetes Mellitus, Type 1 - psychology Endocrinology & Metabolism Epidemiology Families & family life Female Health behavior Health Status Health-related quality of life Humans Hungary - ethnology Kuwait - ethnology Male Pathogenesis Patients Perception Perceptions Public health Quality of life Quality of Life - psychology Self Report Surveys and Questionnaires Teenagers Trends Type 1 diabetes mellitus |
| title | A cross-cultural study on perceived health-related quality of life in children and adolescents with type 1 diabetes mellitus |
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