Interdisciplinary psychosocial care for families with inherited cardiovascular diseases
Abstract Inherited cardiovascular diseases pose unique and complex psychosocial challenges for families, including coming to terms with life-long cardiac disease, risk of sudden death, grief related to the sudden death of a loved one, activity restrictions, and inheritance risk to other family membe...
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| Veröffentlicht in: | Trends in cardiovascular medicine 2016-10, Vol.26 (7), p.647-653 |
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| container_title | Trends in cardiovascular medicine |
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| creator | Caleshu, Colleen Kasparian, Nadine A Edwards, Katharine S Yeates, Laura Semsarian, Christopher Perez, Marco Ashley, Euan Turner, Christian J Knowles, Joshua W Ingles, Jodie |
| description | Abstract Inherited cardiovascular diseases pose unique and complex psychosocial challenges for families, including coming to terms with life-long cardiac disease, risk of sudden death, grief related to the sudden death of a loved one, activity restrictions, and inheritance risk to other family members. Psychosocial factors impact not only mental health but also physical health and cooperation with clinical recommendations. We describe an interdisciplinary approach to the care of families with inherited cardiovascular disease, in which psychological care provided by specialized cardiac genetic counselors, nurses, and psychologists is embedded within the cardiovascular care team. We report illustrative cases and the supporting literature to demonstrate common scenarios, as well as practical guidance for clinicians working in the inherited cardiovascular disease setting. |
| doi_str_mv | 10.1016/j.tcm.2016.04.010 |
| format | Article |
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Psychosocial factors impact not only mental health but also physical health and cooperation with clinical recommendations. We describe an interdisciplinary approach to the care of families with inherited cardiovascular disease, in which psychological care provided by specialized cardiac genetic counselors, nurses, and psychologists is embedded within the cardiovascular care team. We report illustrative cases and the supporting literature to demonstrate common scenarios, as well as practical guidance for clinicians working in the inherited cardiovascular disease setting.</description><identifier>ISSN: 1050-1738</identifier><identifier>EISSN: 1873-2615</identifier><identifier>DOI: 10.1016/j.tcm.2016.04.010</identifier><identifier>PMID: 27256036</identifier><language>eng</language><publisher>United States: Elsevier Inc</publisher><subject>Adaptation, Psychological ; Adjustment ; Cardiology ; Cardiomyopathy ; Cardiovascular ; Cardiovascular disease ; Cardiovascular Diseases - diagnosis ; Cardiovascular Diseases - genetics ; Cardiovascular Diseases - psychology ; Cardiovascular Diseases - therapy ; Cooperative Behavior ; Cost of Illness ; Death, Sudden, Cardiac - etiology ; Death, Sudden, Cardiac - prevention & control ; Defibrillators ; Delivery of Health Care, Integrated - methods ; Exercise ; Family Relations ; Genetic Counseling ; Genetic Predisposition to Disease ; Genetic testing ; Genetics ; Grief ; Health education ; Humans ; Hypertrophic cardiomyopathy ; Interdisciplinary aspects ; Interdisciplinary Communication ; Lifestyles ; Mental Health ; Mortality ; Nurses ; Patient Care Team ; Patient Compliance ; Patients ; Phenotype ; Physical fitness ; Psychological wellbeing ; Psychologists ; Psychotherapy ; Psychotherapy - methods ; Quality of Life ; Self esteem ; Self image ; Short term ; Stress</subject><ispartof>Trends in cardiovascular medicine, 2016-10, Vol.26 (7), p.647-653</ispartof><rights>2016 Elsevier Inc.</rights><rights>Copyright © 2016 Elsevier Inc. All rights reserved.</rights><rights>Copyright Elsevier Limited 2016</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c512t-d20c28e431e17b02ac01eff882ea5083acf356521bd2ec0843d6f0270e51efdb3</citedby><cites>FETCH-LOGICAL-c512t-d20c28e431e17b02ac01eff882ea5083acf356521bd2ec0843d6f0270e51efdb3</cites><orcidid>0000-0003-2746-0202</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktohtml>$$Uhttps://dx.doi.org/10.1016/j.tcm.2016.04.010$$EHTML$$P50$$Gelsevier$$H</linktohtml><link.rule.ids>314,780,784,3550,27924,27925,45995</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/27256036$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Caleshu, Colleen</creatorcontrib><creatorcontrib>Kasparian, Nadine A</creatorcontrib><creatorcontrib>Edwards, Katharine S</creatorcontrib><creatorcontrib>Yeates, Laura</creatorcontrib><creatorcontrib>Semsarian, Christopher</creatorcontrib><creatorcontrib>Perez, Marco</creatorcontrib><creatorcontrib>Ashley, Euan</creatorcontrib><creatorcontrib>Turner, Christian J</creatorcontrib><creatorcontrib>Knowles, Joshua W</creatorcontrib><creatorcontrib>Ingles, Jodie</creatorcontrib><title>Interdisciplinary psychosocial care for families with inherited cardiovascular diseases</title><title>Trends in cardiovascular medicine</title><addtitle>Trends Cardiovasc Med</addtitle><description>Abstract Inherited cardiovascular diseases pose unique and complex psychosocial challenges for families, including coming to terms with life-long cardiac disease, risk of sudden death, grief related to the sudden death of a loved one, activity restrictions, and inheritance risk to other family members. Psychosocial factors impact not only mental health but also physical health and cooperation with clinical recommendations. We describe an interdisciplinary approach to the care of families with inherited cardiovascular disease, in which psychological care provided by specialized cardiac genetic counselors, nurses, and psychologists is embedded within the cardiovascular care team. We report illustrative cases and the supporting literature to demonstrate common scenarios, as well as practical guidance for clinicians working in the inherited cardiovascular disease setting.</description><subject>Adaptation, Psychological</subject><subject>Adjustment</subject><subject>Cardiology</subject><subject>Cardiomyopathy</subject><subject>Cardiovascular</subject><subject>Cardiovascular disease</subject><subject>Cardiovascular Diseases - diagnosis</subject><subject>Cardiovascular Diseases - genetics</subject><subject>Cardiovascular Diseases - psychology</subject><subject>Cardiovascular Diseases - therapy</subject><subject>Cooperative Behavior</subject><subject>Cost of Illness</subject><subject>Death, Sudden, Cardiac - etiology</subject><subject>Death, Sudden, Cardiac - prevention & control</subject><subject>Defibrillators</subject><subject>Delivery of Health Care, Integrated - methods</subject><subject>Exercise</subject><subject>Family Relations</subject><subject>Genetic Counseling</subject><subject>Genetic Predisposition to Disease</subject><subject>Genetic testing</subject><subject>Genetics</subject><subject>Grief</subject><subject>Health education</subject><subject>Humans</subject><subject>Hypertrophic cardiomyopathy</subject><subject>Interdisciplinary aspects</subject><subject>Interdisciplinary Communication</subject><subject>Lifestyles</subject><subject>Mental Health</subject><subject>Mortality</subject><subject>Nurses</subject><subject>Patient Care Team</subject><subject>Patient Compliance</subject><subject>Patients</subject><subject>Phenotype</subject><subject>Physical fitness</subject><subject>Psychological wellbeing</subject><subject>Psychologists</subject><subject>Psychotherapy</subject><subject>Psychotherapy - methods</subject><subject>Quality of Life</subject><subject>Self esteem</subject><subject>Self image</subject><subject>Short term</subject><subject>Stress</subject><issn>1050-1738</issn><issn>1873-2615</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2016</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNqNkk2LFDEQhoMo7rr6A7xIgxcv3VYlnY9BEGTxY2HBg4rHkEmqmYz9MSbdK_PvTTurwh7EU3J46oV6n2LsKUKDgOrlvpn90PDybaBtAOEeO0ejRc0VyvvlDxJq1MKcsUc57wFAtQofsjOuuVQg1Dn7ejXOlELMPh76OLp0rA756HdTnnx0feVdoqqbUtW5IfaRcvUjzrsqjjtKcaawAiFONy77pXepKknkMuXH7EHn-kxPbt8L9uXd28-XH-rrj--vLt9c114in-vAwXNDrUBCvQXuPCB1nTGcnAQjnO-EVJLjNnDyYFoRVAdcA8nCha24YC9OuYc0fV8oz3You1Dfu5GmJVs0XBujUZv_QRE2ulRX0Od30P20pLEs8ovayI3RulB4onyack7U2UOKQ6nQIthVkN3bIsiugiy0tggqM89uk5ftQOHPxG8jBXh1Aqi0dhMp2aKGRk8hJvKzDVP8Z_zrO9O-WI3e9d_oSPnvFjZzC_bTeiHrgaASUGqV4ifQtLW2</recordid><startdate>20161001</startdate><enddate>20161001</enddate><creator>Caleshu, Colleen</creator><creator>Kasparian, Nadine A</creator><creator>Edwards, Katharine S</creator><creator>Yeates, Laura</creator><creator>Semsarian, Christopher</creator><creator>Perez, Marco</creator><creator>Ashley, Euan</creator><creator>Turner, Christian J</creator><creator>Knowles, Joshua W</creator><creator>Ingles, Jodie</creator><general>Elsevier Inc</general><general>Elsevier Limited</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7TK</scope><scope>K9.</scope><scope>NAPCQ</scope><scope>7X8</scope><orcidid>https://orcid.org/0000-0003-2746-0202</orcidid></search><sort><creationdate>20161001</creationdate><title>Interdisciplinary psychosocial care for families with inherited cardiovascular diseases</title><author>Caleshu, Colleen ; 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| subjects | Adaptation, Psychological Adjustment Cardiology Cardiomyopathy Cardiovascular Cardiovascular disease Cardiovascular Diseases - diagnosis Cardiovascular Diseases - genetics Cardiovascular Diseases - psychology Cardiovascular Diseases - therapy Cooperative Behavior Cost of Illness Death, Sudden, Cardiac - etiology Death, Sudden, Cardiac - prevention & control Defibrillators Delivery of Health Care, Integrated - methods Exercise Family Relations Genetic Counseling Genetic Predisposition to Disease Genetic testing Genetics Grief Health education Humans Hypertrophic cardiomyopathy Interdisciplinary aspects Interdisciplinary Communication Lifestyles Mental Health Mortality Nurses Patient Care Team Patient Compliance Patients Phenotype Physical fitness Psychological wellbeing Psychologists Psychotherapy Psychotherapy - methods Quality of Life Self esteem Self image Short term Stress |
| title | Interdisciplinary psychosocial care for families with inherited cardiovascular diseases |
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