Home tele-rehabilitation for rheumatic patients: impact and satisfaction of care analysis

Introduction In this paper, we evaluated patients’ perspectives on the use of a system for home tele-rehabilitation, designed for subjects with low computer literacy suffering hand impairment due to rheumatic diseases. Methods After a clinical trial assessing device effectiveness, the Psychosocial I...

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Veröffentlicht in:	Journal of telemedicine and telecare 2017-02, Vol.23 (2), p.292-300
Hauptverfasser:	Pani, D, Piga, M, Barabino, G, Crabolu, M, Uras, S, Mathieu, A, Raffo, L
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Sprache:	eng
Schlagworte:	Female Humans Male Middle Aged Patient Satisfaction Rehabilitation Rheumatic Diseases - rehabilitation Surveys and Questionnaires Telerehabilitation - instrumentation Telerehabilitation - methods
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creator	Pani, D Piga, M Barabino, G Crabolu, M Uras, S Mathieu, A Raffo, L
description	Introduction In this paper, we evaluated patients’ perspectives on the use of a system for home tele-rehabilitation, designed for subjects with low computer literacy suffering hand impairment due to rheumatic diseases. Methods After a clinical trial assessing device effectiveness, the Psychosocial Impact of Assistive Devices Scale (PIADS), Quebec User Evaluation of Satisfaction with Assistive Technology (QUEST) and Individually Prioritised Problem Assessment (IPPA) questionnaires were administered to evaluate the system’s impact on each patient’s life, and the results were correlated with clinical indices. Patients were asked to continue self-administered rehabilitation with common objects. One year later, a semi-structured telephone interview gathered data on their experience. Results The system received a positive QUEST score (4.5 ± 0.3) and a modest PIADS score (0.84 ± 0.8) due to the small impact on adaptability and self-esteem. The IPPA (3.7 ± 3.4) revealed improvement in the ability to perform tasks considered important, which was significantly correlated (r = 0.60; p
doi_str_mv	10.1177/1357633X16632950
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Methods After a clinical trial assessing device effectiveness, the Psychosocial Impact of Assistive Devices Scale (PIADS), Quebec User Evaluation of Satisfaction with Assistive Technology (QUEST) and Individually Prioritised Problem Assessment (IPPA) questionnaires were administered to evaluate the system’s impact on each patient’s life, and the results were correlated with clinical indices. Patients were asked to continue self-administered rehabilitation with common objects. One year later, a semi-structured telephone interview gathered data on their experience. Results The system received a positive QUEST score (4.5 ± 0.3) and a modest PIADS score (0.84 ± 0.8) due to the small impact on adaptability and self-esteem. The IPPA (3.7 ± 3.4) revealed improvement in the ability to perform tasks considered important, which was significantly correlated (r = 0.60; p < 0.02) with the clinical Health Assessment Questionnaire (HAQ) index improvement. The interviews revealed a positive engagement effect, enhanced by the need to develop skills to be able to use the device (technological challenge) and by the perception of more attention by the medical staff. This may explain the significant dropout rate (80%) from the post-trial rehabilitation of the patients who used the device. Discussion The system was largely accepted by the patients. The results suggest that the need for information on their rehabilitation progress and the technological challenge deserves further study to make patients more autonomous in cases of continuous rehabilitation.</description><identifier>ISSN: 1357-633X</identifier><identifier>EISSN: 1758-1109</identifier><identifier>DOI: 10.1177/1357633X16632950</identifier><identifier>PMID: 26945913</identifier><language>eng</language><publisher>London, England: SAGE Publications</publisher><subject>Female ; Humans ; Male ; Middle Aged ; Patient Satisfaction ; Rehabilitation ; Rheumatic Diseases - rehabilitation ; Surveys and Questionnaires ; Telerehabilitation - instrumentation ; Telerehabilitation - methods</subject><ispartof>Journal of telemedicine and telecare, 2017-02, Vol.23 (2), p.292-300</ispartof><rights>The Author(s) 2016</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c365t-645b7fcbd7f4abce73b432c5022502fb3452d7a5d6fe9b68433fa453a95c71293</citedby><cites>FETCH-LOGICAL-c365t-645b7fcbd7f4abce73b432c5022502fb3452d7a5d6fe9b68433fa453a95c71293</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://journals.sagepub.com/doi/pdf/10.1177/1357633X16632950$$EPDF$$P50$$Gsage$$H</linktopdf><linktohtml>$$Uhttps://journals.sagepub.com/doi/10.1177/1357633X16632950$$EHTML$$P50$$Gsage$$H</linktohtml><link.rule.ids>314,776,780,21799,27903,27904,43600,43601</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/26945913$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Pani, D</creatorcontrib><creatorcontrib>Piga, M</creatorcontrib><creatorcontrib>Barabino, G</creatorcontrib><creatorcontrib>Crabolu, M</creatorcontrib><creatorcontrib>Uras, S</creatorcontrib><creatorcontrib>Mathieu, A</creatorcontrib><creatorcontrib>Raffo, L</creatorcontrib><title>Home tele-rehabilitation for rheumatic patients: impact and satisfaction of care analysis</title><title>Journal of telemedicine and telecare</title><addtitle>J Telemed Telecare</addtitle><description>Introduction In this paper, we evaluated patients’ perspectives on the use of a system for home tele-rehabilitation, designed for subjects with low computer literacy suffering hand impairment due to rheumatic diseases. Methods After a clinical trial assessing device effectiveness, the Psychosocial Impact of Assistive Devices Scale (PIADS), Quebec User Evaluation of Satisfaction with Assistive Technology (QUEST) and Individually Prioritised Problem Assessment (IPPA) questionnaires were administered to evaluate the system’s impact on each patient’s life, and the results were correlated with clinical indices. Patients were asked to continue self-administered rehabilitation with common objects. One year later, a semi-structured telephone interview gathered data on their experience. Results The system received a positive QUEST score (4.5 ± 0.3) and a modest PIADS score (0.84 ± 0.8) due to the small impact on adaptability and self-esteem. The IPPA (3.7 ± 3.4) revealed improvement in the ability to perform tasks considered important, which was significantly correlated (r = 0.60; p < 0.02) with the clinical Health Assessment Questionnaire (HAQ) index improvement. The interviews revealed a positive engagement effect, enhanced by the need to develop skills to be able to use the device (technological challenge) and by the perception of more attention by the medical staff. This may explain the significant dropout rate (80%) from the post-trial rehabilitation of the patients who used the device. Discussion The system was largely accepted by the patients. The results suggest that the need for information on their rehabilitation progress and the technological challenge deserves further study to make patients more autonomous in cases of continuous rehabilitation.</description><subject>Female</subject><subject>Humans</subject><subject>Male</subject><subject>Middle Aged</subject><subject>Patient Satisfaction</subject><subject>Rehabilitation</subject><subject>Rheumatic Diseases - rehabilitation</subject><subject>Surveys and Questionnaires</subject><subject>Telerehabilitation - instrumentation</subject><subject>Telerehabilitation - methods</subject><issn>1357-633X</issn><issn>1758-1109</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2017</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNp1kM1LwzAYxoMobk7vnqTgxUs132m8yVAnDLwo6KkkaeI62qYm7WH_vRmbCoKHJO-b5_c-CQ8A5wheIyTEDSJMcELeEOcESwYPwBQJVuQIQXmY6iTnW30CTmJcQ4gRZfIYTDCXqUBkCt4XvrXZYBubB7tSum7qQQ217zLnQxZWdmxTa7I-7bYb4m1Wt70yQ6a6KovpMrrUbXnvMqOCTYJqNrGOp-DIqSbas_05A68P9y_zRb58fnya3y1zQzgbck6ZFs7oSjiqtLGCaEqwYRDjtJwmlOFKKFZxZ6XmBSXEKcqIkswIhCWZgaudbx_852jjULZ1NLZpVGf9GEtUYM45k5gm9PIPuvZjSP-NJcYQSoZpgRMFd5QJPsZgXdmHulVhUyJYbmMv_8aeRi72xqNubfUz8J1zAvIdENWH_X31X8MvZ2-J_Q</recordid><startdate>20170201</startdate><enddate>20170201</enddate><creator>Pani, D</creator><creator>Piga, M</creator><creator>Barabino, G</creator><creator>Crabolu, M</creator><creator>Uras, S</creator><creator>Mathieu, A</creator><creator>Raffo, L</creator><general>SAGE Publications</general><general>Sage Publications Ltd</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>K9.</scope><scope>7X8</scope></search><sort><creationdate>20170201</creationdate><title>Home tele-rehabilitation for rheumatic patients: impact and satisfaction of care analysis</title><author>Pani, D ; Piga, M ; Barabino, G ; Crabolu, M ; Uras, S ; Mathieu, A ; Raffo, L</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c365t-645b7fcbd7f4abce73b432c5022502fb3452d7a5d6fe9b68433fa453a95c71293</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2017</creationdate><topic>Female</topic><topic>Humans</topic><topic>Male</topic><topic>Middle Aged</topic><topic>Patient Satisfaction</topic><topic>Rehabilitation</topic><topic>Rheumatic Diseases - rehabilitation</topic><topic>Surveys and Questionnaires</topic><topic>Telerehabilitation - instrumentation</topic><topic>Telerehabilitation - methods</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Pani, D</creatorcontrib><creatorcontrib>Piga, M</creatorcontrib><creatorcontrib>Barabino, G</creatorcontrib><creatorcontrib>Crabolu, M</creatorcontrib><creatorcontrib>Uras, S</creatorcontrib><creatorcontrib>Mathieu, A</creatorcontrib><creatorcontrib>Raffo, L</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>MEDLINE - Academic</collection><jtitle>Journal of telemedicine and telecare</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Pani, D</au><au>Piga, M</au><au>Barabino, G</au><au>Crabolu, M</au><au>Uras, S</au><au>Mathieu, A</au><au>Raffo, L</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Home tele-rehabilitation for rheumatic patients: impact and satisfaction of care analysis</atitle><jtitle>Journal of telemedicine and telecare</jtitle><addtitle>J Telemed Telecare</addtitle><date>2017-02-01</date><risdate>2017</risdate><volume>23</volume><issue>2</issue><spage>292</spage><epage>300</epage><pages>292-300</pages><issn>1357-633X</issn><eissn>1758-1109</eissn><abstract>Introduction In this paper, we evaluated patients’ perspectives on the use of a system for home tele-rehabilitation, designed for subjects with low computer literacy suffering hand impairment due to rheumatic diseases. Methods After a clinical trial assessing device effectiveness, the Psychosocial Impact of Assistive Devices Scale (PIADS), Quebec User Evaluation of Satisfaction with Assistive Technology (QUEST) and Individually Prioritised Problem Assessment (IPPA) questionnaires were administered to evaluate the system’s impact on each patient’s life, and the results were correlated with clinical indices. Patients were asked to continue self-administered rehabilitation with common objects. One year later, a semi-structured telephone interview gathered data on their experience. Results The system received a positive QUEST score (4.5 ± 0.3) and a modest PIADS score (0.84 ± 0.8) due to the small impact on adaptability and self-esteem. The IPPA (3.7 ± 3.4) revealed improvement in the ability to perform tasks considered important, which was significantly correlated (r = 0.60; p < 0.02) with the clinical Health Assessment Questionnaire (HAQ) index improvement. 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subjects	Female Humans Male Middle Aged Patient Satisfaction Rehabilitation Rheumatic Diseases - rehabilitation Surveys and Questionnaires Telerehabilitation - instrumentation Telerehabilitation - methods
title	Home tele-rehabilitation for rheumatic patients: impact and satisfaction of care analysis
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