Aging Together: Caring Relations in Families of Adults With Intellectual Disabilities
To examine the dynamics of caring relations in older families that include an adult with Intellectual Disabilities (ID). To date, there has been very little research exploring the experiences of aging families of community-dwelling adults with ID. An exploratory, qualitative study was conducted in B...
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| Veröffentlicht in: | The Gerontologist 2017-04, Vol.57 (2), p.341-347 |
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| container_issue | 2 |
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| container_title | The Gerontologist |
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| creator | Baumbusch, Jennifer Mayer, Samara Phinney, Alison Baumbusch, Sarah |
| description | To examine the dynamics of caring relations in older families that include an adult with Intellectual Disabilities (ID). To date, there has been very little research exploring the experiences of aging families of community-dwelling adults with ID.
An exploratory, qualitative study was conducted in British Columbia, Canada. Eight participants were recruited through purposive sampling. In-depth, semistructured interviews were conducted to explore the experience of aging concurrently with a community-dwelling relative with ID. Data were analyzed using a thematic approach.
Three main themes emerged: (a) Recognizing the Changes of Aging, (b) Strengthening Connections, and (c) Planning for the Future.
Aging concurrently with a community-dwelling relative with ID is a unique experience for older adults and challenges traditional views of familial caring relations. These relationships are characterized by evolving patterns of care and exchange. There is also a sense of urgency to securing future care arrangements for the adult relative with ID. Advanced care-planning is complicated by the adult with ID' understanding of death and dying. Family caregiving policies and practices that take into account the complexities of these relationships are needed. |
| doi_str_mv | 10.1093/geront/gnv103 |
| format | Article |
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An exploratory, qualitative study was conducted in British Columbia, Canada. Eight participants were recruited through purposive sampling. In-depth, semistructured interviews were conducted to explore the experience of aging concurrently with a community-dwelling relative with ID. Data were analyzed using a thematic approach.
Three main themes emerged: (a) Recognizing the Changes of Aging, (b) Strengthening Connections, and (c) Planning for the Future.
Aging concurrently with a community-dwelling relative with ID is a unique experience for older adults and challenges traditional views of familial caring relations. These relationships are characterized by evolving patterns of care and exchange. There is also a sense of urgency to securing future care arrangements for the adult relative with ID. Advanced care-planning is complicated by the adult with ID' understanding of death and dying. Family caregiving policies and practices that take into account the complexities of these relationships are needed.</description><identifier>ISSN: 0016-9013</identifier><identifier>EISSN: 1758-5341</identifier><identifier>DOI: 10.1093/geront/gnv103</identifier><identifier>PMID: 26224764</identifier><identifier>CODEN: GRNTA3</identifier><language>eng</language><publisher>United States: Oxford University Press</publisher><subject>Adult Children ; Advance Care Planning ; Aged ; Aged, 80 and over ; Aging ; British Columbia ; Caregivers ; Families & family life ; Female ; Gerontology ; Humans ; Independent Living ; Intellectual Disability ; Learning disabilities ; Male ; Middle Aged ; Older people ; Parents ; Qualitative Research ; Siblings</subject><ispartof>The Gerontologist, 2017-04, Vol.57 (2), p.341-347</ispartof><rights>The Author 2015. Published by Oxford University Press on behalf of The Gerontological Society of America. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com.</rights><rights>Copyright Oxford University Press, UK Apr 2017</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c360t-d2232fb7143192013db0a0792a3f4ff24ea51259ab3b65bb3413dba28e7f7693</citedby><cites>FETCH-LOGICAL-c360t-d2232fb7143192013db0a0792a3f4ff24ea51259ab3b65bb3413dba28e7f7693</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>314,780,784,27924,27925,33774</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/26224764$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Baumbusch, Jennifer</creatorcontrib><creatorcontrib>Mayer, Samara</creatorcontrib><creatorcontrib>Phinney, Alison</creatorcontrib><creatorcontrib>Baumbusch, Sarah</creatorcontrib><title>Aging Together: Caring Relations in Families of Adults With Intellectual Disabilities</title><title>The Gerontologist</title><addtitle>Gerontologist</addtitle><description>To examine the dynamics of caring relations in older families that include an adult with Intellectual Disabilities (ID). To date, there has been very little research exploring the experiences of aging families of community-dwelling adults with ID.
An exploratory, qualitative study was conducted in British Columbia, Canada. Eight participants were recruited through purposive sampling. In-depth, semistructured interviews were conducted to explore the experience of aging concurrently with a community-dwelling relative with ID. Data were analyzed using a thematic approach.
Three main themes emerged: (a) Recognizing the Changes of Aging, (b) Strengthening Connections, and (c) Planning for the Future.
Aging concurrently with a community-dwelling relative with ID is a unique experience for older adults and challenges traditional views of familial caring relations. These relationships are characterized by evolving patterns of care and exchange. There is also a sense of urgency to securing future care arrangements for the adult relative with ID. Advanced care-planning is complicated by the adult with ID' understanding of death and dying. Family caregiving policies and practices that take into account the complexities of these relationships are needed.</description><subject>Adult Children</subject><subject>Advance Care Planning</subject><subject>Aged</subject><subject>Aged, 80 and over</subject><subject>Aging</subject><subject>British Columbia</subject><subject>Caregivers</subject><subject>Families & family life</subject><subject>Female</subject><subject>Gerontology</subject><subject>Humans</subject><subject>Independent Living</subject><subject>Intellectual Disability</subject><subject>Learning disabilities</subject><subject>Male</subject><subject>Middle Aged</subject><subject>Older people</subject><subject>Parents</subject><subject>Qualitative Research</subject><subject>Siblings</subject><issn>0016-9013</issn><issn>1758-5341</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2017</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>BHHNA</sourceid><recordid>eNpdkM9LwzAYhoMobk6PXiXgxUtdfrRp621Mp4OBIBOPJWmTLqNLZpIK_vdmdHrw9PF9PLy83wPANUb3GJV02kpnTZi25gsjegLGOM-KJKMpPgVjhDBLSoTpCFx4v0VxJyQ_ByPCCElzlo7B-6zVpoVr28qwke4Bzrk7HN5kx4O2xkNt4ILvdKelh1bBWdN3wcMPHTZwaYLsOlmHnnfwUXsuIhYieAnOFO-8vDrOCVgvntbzl2T1-rycz1ZJTRkKSUMIJUrkOKW4JLFnIxBHeUk4ValSJJU8wyQruaCCZULEryLCSSFzlbOSTsDdELt39rOXPlQ77etYiRtpe1_hgjBGc0aLiN7-Q7e2dyaWi1SRRWk4-puAZKBqZ713UlV7p3fcfVcYVQfd1aC7GnRH_uaY2oudbP7oX7_0B7owfB0</recordid><startdate>20170401</startdate><enddate>20170401</enddate><creator>Baumbusch, Jennifer</creator><creator>Mayer, Samara</creator><creator>Phinney, Alison</creator><creator>Baumbusch, Sarah</creator><general>Oxford University Press</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7U3</scope><scope>7U4</scope><scope>ASE</scope><scope>BHHNA</scope><scope>DWI</scope><scope>FPQ</scope><scope>K6X</scope><scope>K9.</scope><scope>NAPCQ</scope><scope>WZK</scope><scope>7X8</scope></search><sort><creationdate>20170401</creationdate><title>Aging Together: Caring Relations in Families of Adults With Intellectual Disabilities</title><author>Baumbusch, Jennifer ; Mayer, Samara ; Phinney, Alison ; Baumbusch, Sarah</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c360t-d2232fb7143192013db0a0792a3f4ff24ea51259ab3b65bb3413dba28e7f7693</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2017</creationdate><topic>Adult Children</topic><topic>Advance Care Planning</topic><topic>Aged</topic><topic>Aged, 80 and over</topic><topic>Aging</topic><topic>British Columbia</topic><topic>Caregivers</topic><topic>Families & family life</topic><topic>Female</topic><topic>Gerontology</topic><topic>Humans</topic><topic>Independent Living</topic><topic>Intellectual Disability</topic><topic>Learning disabilities</topic><topic>Male</topic><topic>Middle Aged</topic><topic>Older people</topic><topic>Parents</topic><topic>Qualitative Research</topic><topic>Siblings</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Baumbusch, Jennifer</creatorcontrib><creatorcontrib>Mayer, Samara</creatorcontrib><creatorcontrib>Phinney, Alison</creatorcontrib><creatorcontrib>Baumbusch, Sarah</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Social Services Abstracts</collection><collection>Sociological Abstracts (pre-2017)</collection><collection>British Nursing Index</collection><collection>Sociological Abstracts</collection><collection>Sociological Abstracts</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>British Nursing Index</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Premium</collection><collection>Sociological Abstracts (Ovid)</collection><collection>MEDLINE - Academic</collection><jtitle>The Gerontologist</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Baumbusch, Jennifer</au><au>Mayer, Samara</au><au>Phinney, Alison</au><au>Baumbusch, Sarah</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Aging Together: Caring Relations in Families of Adults With Intellectual Disabilities</atitle><jtitle>The Gerontologist</jtitle><addtitle>Gerontologist</addtitle><date>2017-04-01</date><risdate>2017</risdate><volume>57</volume><issue>2</issue><spage>341</spage><epage>347</epage><pages>341-347</pages><issn>0016-9013</issn><eissn>1758-5341</eissn><coden>GRNTA3</coden><abstract>To examine the dynamics of caring relations in older families that include an adult with Intellectual Disabilities (ID). To date, there has been very little research exploring the experiences of aging families of community-dwelling adults with ID.
An exploratory, qualitative study was conducted in British Columbia, Canada. Eight participants were recruited through purposive sampling. In-depth, semistructured interviews were conducted to explore the experience of aging concurrently with a community-dwelling relative with ID. Data were analyzed using a thematic approach.
Three main themes emerged: (a) Recognizing the Changes of Aging, (b) Strengthening Connections, and (c) Planning for the Future.
Aging concurrently with a community-dwelling relative with ID is a unique experience for older adults and challenges traditional views of familial caring relations. These relationships are characterized by evolving patterns of care and exchange. There is also a sense of urgency to securing future care arrangements for the adult relative with ID. Advanced care-planning is complicated by the adult with ID' understanding of death and dying. Family caregiving policies and practices that take into account the complexities of these relationships are needed.</abstract><cop>United States</cop><pub>Oxford University Press</pub><pmid>26224764</pmid><doi>10.1093/geront/gnv103</doi><tpages>7</tpages><oa>free_for_read</oa></addata></record> |
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| ispartof | The Gerontologist, 2017-04, Vol.57 (2), p.341-347 |
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| language | eng |
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| source | MEDLINE; Oxford Journals - Connect here FIRST to enable access; Alma/SFX Local Collection; Sociological Abstracts |
| subjects | Adult Children Advance Care Planning Aged Aged, 80 and over Aging British Columbia Caregivers Families & family life Female Gerontology Humans Independent Living Intellectual Disability Learning disabilities Male Middle Aged Older people Parents Qualitative Research Siblings |
| title | Aging Together: Caring Relations in Families of Adults With Intellectual Disabilities |
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