Consideration of Insulin Pumps or Continuous Glucose Monitors by Adolescents With Type 1 Diabetes and Their Parents: Stakeholder Engagement in the Design of Web-Based Decision Aids
Purpose This article describes the stakeholder-driven design, development, and testing of web-based, multimedia decision aids for youth with type 1 diabetes who are considering the insulin pump or continuous glucose monitoring and their parents. This is the initial phase of work designed to develop...
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| Veröffentlicht in: | The Diabetes educator 2016-08, Vol.42 (4), p.395-407 |
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| container_title | The Diabetes educator |
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| creator | Wysocki, Tim Hirschfeld, Fiona Miller, Louis Izenberg, Neil Dowshen, Steven A. Taylor, Alex Milkes, Amy Shinseki, Michelle T. Bejarano, Carolina Kozikowski, Chelsea Kowal, Karen Starr-Ashton, Penny Ross, Judith L. Kummer, Mark Carakushansky, Mauri Lyness, D’Arcy Brinkman, William Pierce, Jessica Fiks, Alexander Christofferson, Jennifer Rafalko, Jessica Lawson, Margaret L. |
| description | Purpose
This article describes the stakeholder-driven design, development, and testing of web-based, multimedia decision aids for youth with type 1 diabetes who are considering the insulin pump or continuous glucose monitoring and their parents. This is the initial phase of work designed to develop and evaluate the efficacy of these decision aids in promoting improved decision-making engagement with use of a selected device.
Methods
Qualitative interviews of 36 parents and adolescents who had previously faced these decisions and 12 health care providers defined the content, format and structure of the decision aids. Experts in children’s health media helped the research team to plan, create, and refine multimedia content and its presentation. A web development firm helped organize the content into a user-friendly interface and enabled tracking of decision aid utilization. Throughout, members of the research team, adolescents, parents, and 3 expert consultants offered perspectives about the website content, structure, and function until the design was complete.
Results
With the decision aid websites completed, the next phase of the project is a randomized controlled trial of usual clinical practice alone or augmented by use of the decision aid websites.
Conclusions
Stakeholder-driven development of multimedia, web-based decision aids requires meticulous attention to detail but can yield exceptional resources for adolescents and parents contemplating major changes to their diabetes regimens. |
| doi_str_mv | 10.1177/0145721716647492 |
| format | Article |
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This article describes the stakeholder-driven design, development, and testing of web-based, multimedia decision aids for youth with type 1 diabetes who are considering the insulin pump or continuous glucose monitoring and their parents. This is the initial phase of work designed to develop and evaluate the efficacy of these decision aids in promoting improved decision-making engagement with use of a selected device.
Methods
Qualitative interviews of 36 parents and adolescents who had previously faced these decisions and 12 health care providers defined the content, format and structure of the decision aids. Experts in children’s health media helped the research team to plan, create, and refine multimedia content and its presentation. A web development firm helped organize the content into a user-friendly interface and enabled tracking of decision aid utilization. Throughout, members of the research team, adolescents, parents, and 3 expert consultants offered perspectives about the website content, structure, and function until the design was complete.
Results
With the decision aid websites completed, the next phase of the project is a randomized controlled trial of usual clinical practice alone or augmented by use of the decision aid websites.
Conclusions
Stakeholder-driven development of multimedia, web-based decision aids requires meticulous attention to detail but can yield exceptional resources for adolescents and parents contemplating major changes to their diabetes regimens.</description><identifier>ISSN: 0145-7217</identifier><identifier>EISSN: 1554-6063</identifier><identifier>DOI: 10.1177/0145721716647492</identifier><identifier>PMID: 27150606</identifier><language>eng</language><publisher>Los Angeles, CA: SAGE Publications</publisher><subject>Adolescent ; Blood Glucose Self-Monitoring - psychology ; Child ; Decision Making ; Decision Support Techniques ; Diabetes Mellitus, Type 1 - blood ; Diabetes Mellitus, Type 1 - therapy ; Humans ; Insulin Infusion Systems - psychology ; Multimedia ; Nursing ; Parents - education ; Parents - psychology ; Patient Education as Topic - methods ; Qualitative Research ; Stakeholder Participation</subject><ispartof>The Diabetes educator, 2016-08, Vol.42 (4), p.395-407</ispartof><rights>2016 The Author(s)</rights><rights>2016 The Author(s).</rights><woscitedreferencessubscribed>false</woscitedreferencessubscribed><cites>FETCH-LOGICAL-c356t-a0503000ff71285ab7b196a068ddd338befd5dca4cb70f5afad8e4e852aba0423</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://journals.sagepub.com/doi/pdf/10.1177/0145721716647492$$EPDF$$P50$$Gsage$$H</linktopdf><linktohtml>$$Uhttps://journals.sagepub.com/doi/10.1177/0145721716647492$$EHTML$$P50$$Gsage$$H</linktohtml><link.rule.ids>314,776,780,21800,27903,27904,43600,43601</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/27150606$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Wysocki, Tim</creatorcontrib><creatorcontrib>Hirschfeld, Fiona</creatorcontrib><creatorcontrib>Miller, Louis</creatorcontrib><creatorcontrib>Izenberg, Neil</creatorcontrib><creatorcontrib>Dowshen, Steven A.</creatorcontrib><creatorcontrib>Taylor, Alex</creatorcontrib><creatorcontrib>Milkes, Amy</creatorcontrib><creatorcontrib>Shinseki, Michelle T.</creatorcontrib><creatorcontrib>Bejarano, Carolina</creatorcontrib><creatorcontrib>Kozikowski, Chelsea</creatorcontrib><creatorcontrib>Kowal, Karen</creatorcontrib><creatorcontrib>Starr-Ashton, Penny</creatorcontrib><creatorcontrib>Ross, Judith L.</creatorcontrib><creatorcontrib>Kummer, Mark</creatorcontrib><creatorcontrib>Carakushansky, Mauri</creatorcontrib><creatorcontrib>Lyness, D’Arcy</creatorcontrib><creatorcontrib>Brinkman, William</creatorcontrib><creatorcontrib>Pierce, Jessica</creatorcontrib><creatorcontrib>Fiks, Alexander</creatorcontrib><creatorcontrib>Christofferson, Jennifer</creatorcontrib><creatorcontrib>Rafalko, Jessica</creatorcontrib><creatorcontrib>Lawson, Margaret L.</creatorcontrib><title>Consideration of Insulin Pumps or Continuous Glucose Monitors by Adolescents With Type 1 Diabetes and Their Parents: Stakeholder Engagement in the Design of Web-Based Decision Aids</title><title>The Diabetes educator</title><addtitle>Diabetes Educ</addtitle><description>Purpose
This article describes the stakeholder-driven design, development, and testing of web-based, multimedia decision aids for youth with type 1 diabetes who are considering the insulin pump or continuous glucose monitoring and their parents. This is the initial phase of work designed to develop and evaluate the efficacy of these decision aids in promoting improved decision-making engagement with use of a selected device.
Methods
Qualitative interviews of 36 parents and adolescents who had previously faced these decisions and 12 health care providers defined the content, format and structure of the decision aids. Experts in children’s health media helped the research team to plan, create, and refine multimedia content and its presentation. A web development firm helped organize the content into a user-friendly interface and enabled tracking of decision aid utilization. Throughout, members of the research team, adolescents, parents, and 3 expert consultants offered perspectives about the website content, structure, and function until the design was complete.
Results
With the decision aid websites completed, the next phase of the project is a randomized controlled trial of usual clinical practice alone or augmented by use of the decision aid websites.
Conclusions
Stakeholder-driven development of multimedia, web-based decision aids requires meticulous attention to detail but can yield exceptional resources for adolescents and parents contemplating major changes to their diabetes regimens.</description><subject>Adolescent</subject><subject>Blood Glucose Self-Monitoring - psychology</subject><subject>Child</subject><subject>Decision Making</subject><subject>Decision Support Techniques</subject><subject>Diabetes Mellitus, Type 1 - blood</subject><subject>Diabetes Mellitus, Type 1 - therapy</subject><subject>Humans</subject><subject>Insulin Infusion Systems - psychology</subject><subject>Multimedia</subject><subject>Nursing</subject><subject>Parents - education</subject><subject>Parents - psychology</subject><subject>Patient Education as Topic - methods</subject><subject>Qualitative Research</subject><subject>Stakeholder Participation</subject><issn>0145-7217</issn><issn>1554-6063</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2016</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNqNkUFP3DAQha2Kqiy0d07IRy6BcWzHzhFtKSBRlcNWPUZOPClGWXvrSQ7775toaQ9ISJzm8L73NDOPsTMBl0IYcwVCaVMKI6pKGVWXH9hKaK2KCip5xFaLXCz6MTshegaQWtX2EzsujdAwQytG6xQpeMxuDCny1PP7SNMQIn-ctjviKfOZGEOc0kT8dpi6RMi_pxjGlIm3e37t04DUYRyJ_wrjE9_sd8gF_xpciyMSd9HzzROGzB9dXrDP7GPvBsIvL_OU_fx2s1nfFQ8_bu_X1w9FJ3U1Fg40SADoeyNKq11rWlFXDirrvZfStth77TunutZAr13vvEWFVpeudaBKecouDrm7nP5MSGOzDfOiw-Aiztc0wgorJQit3oGCrcpSqfo9qLK6tmJJhQPa5USUsW92OWxd3jcCmqXA5nWBs-X8JX1qt-j_G_41NgPFASD3G5vnNOU4__DtwL_RBqK5</recordid><startdate>201608</startdate><enddate>201608</enddate><creator>Wysocki, Tim</creator><creator>Hirschfeld, Fiona</creator><creator>Miller, Louis</creator><creator>Izenberg, Neil</creator><creator>Dowshen, Steven A.</creator><creator>Taylor, Alex</creator><creator>Milkes, Amy</creator><creator>Shinseki, Michelle T.</creator><creator>Bejarano, Carolina</creator><creator>Kozikowski, Chelsea</creator><creator>Kowal, Karen</creator><creator>Starr-Ashton, Penny</creator><creator>Ross, Judith L.</creator><creator>Kummer, Mark</creator><creator>Carakushansky, Mauri</creator><creator>Lyness, D’Arcy</creator><creator>Brinkman, William</creator><creator>Pierce, Jessica</creator><creator>Fiks, Alexander</creator><creator>Christofferson, Jennifer</creator><creator>Rafalko, Jessica</creator><creator>Lawson, Margaret L.</creator><general>SAGE Publications</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope><scope>7TS</scope><scope>7U9</scope><scope>H94</scope><scope>ASE</scope><scope>FPQ</scope><scope>K6X</scope></search><sort><creationdate>201608</creationdate><title>Consideration of Insulin Pumps or Continuous Glucose Monitors by Adolescents With Type 1 Diabetes and Their Parents</title><author>Wysocki, Tim ; 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This article describes the stakeholder-driven design, development, and testing of web-based, multimedia decision aids for youth with type 1 diabetes who are considering the insulin pump or continuous glucose monitoring and their parents. This is the initial phase of work designed to develop and evaluate the efficacy of these decision aids in promoting improved decision-making engagement with use of a selected device.
Methods
Qualitative interviews of 36 parents and adolescents who had previously faced these decisions and 12 health care providers defined the content, format and structure of the decision aids. Experts in children’s health media helped the research team to plan, create, and refine multimedia content and its presentation. A web development firm helped organize the content into a user-friendly interface and enabled tracking of decision aid utilization. Throughout, members of the research team, adolescents, parents, and 3 expert consultants offered perspectives about the website content, structure, and function until the design was complete.
Results
With the decision aid websites completed, the next phase of the project is a randomized controlled trial of usual clinical practice alone or augmented by use of the decision aid websites.
Conclusions
Stakeholder-driven development of multimedia, web-based decision aids requires meticulous attention to detail but can yield exceptional resources for adolescents and parents contemplating major changes to their diabetes regimens.</abstract><cop>Los Angeles, CA</cop><pub>SAGE Publications</pub><pmid>27150606</pmid><doi>10.1177/0145721716647492</doi><tpages>13</tpages></addata></record> |
| fulltext | fulltext |
| identifier | ISSN: 0145-7217 |
| ispartof | The Diabetes educator, 2016-08, Vol.42 (4), p.395-407 |
| issn | 0145-7217 1554-6063 |
| language | eng |
| recordid | cdi_proquest_miscellaneous_1818330154 |
| source | SAGE Complete A-Z List; MEDLINE; Alma/SFX Local Collection |
| subjects | Adolescent Blood Glucose Self-Monitoring - psychology Child Decision Making Decision Support Techniques Diabetes Mellitus, Type 1 - blood Diabetes Mellitus, Type 1 - therapy Humans Insulin Infusion Systems - psychology Multimedia Nursing Parents - education Parents - psychology Patient Education as Topic - methods Qualitative Research Stakeholder Participation |
| title | Consideration of Insulin Pumps or Continuous Glucose Monitors by Adolescents With Type 1 Diabetes and Their Parents: Stakeholder Engagement in the Design of Web-Based Decision Aids |
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