‘Autism and the good life’: a new approach to the study of well-being
Medical, psychological, educational and social interventions to modify the behaviour of autistic people are only justified if they confer benefit on those people. However, it is not clear how ‘benefit’ should be understood. Most such interventions are justified by referring to the prospect that they...
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| Veröffentlicht in: | Journal of medical ethics 2016-06, Vol.42 (6), p.401-408 |
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| creator | Rodogno, Raffaele Krause-Jensen, Katrine Ashcroft, Richard E |
| description | Medical, psychological, educational and social interventions to modify the behaviour of autistic people are only justified if they confer benefit on those people. However, it is not clear how ‘benefit’ should be understood. Most such interventions are justified by referring to the prospect that they will effect lasting improvements in the well-being and happiness of autistic people, so they can lead good lives. What does a good life for an autistic person consist in? Can we assume that his or her well-being is substantively the same as the well-being of non-autistic individuals? In this paper, we argue that, as it stands, the current approach to the study of well-being is for the most part unable to answer these questions. In particular, much effort is needed in order to improve the epistemology of well-being, especially so if we wish this epistemology to be ‘autism-sensitive’. Towards the end of the paper, we sketch a new, autism-sensitive approach and apply it in order to begin answering our initial questions. |
| doi_str_mv | 10.1136/medethics-2016-103595 |
| format | Article |
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However, it is not clear how ‘benefit’ should be understood. Most such interventions are justified by referring to the prospect that they will effect lasting improvements in the well-being and happiness of autistic people, so they can lead good lives. What does a good life for an autistic person consist in? Can we assume that his or her well-being is substantively the same as the well-being of non-autistic individuals? In this paper, we argue that, as it stands, the current approach to the study of well-being is for the most part unable to answer these questions. In particular, much effort is needed in order to improve the epistemology of well-being, especially so if we wish this epistemology to be ‘autism-sensitive’. 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For permission to use (where not already granted under a licence) please go to http://www.bmj.com/company/products-services/rights-and-licensing</rights><rights>2016 BMJ Publishing Group Ltd and the Institute of Medical Ethics</rights><rights>Copyright: 2016 Published by the BMJ Publishing Group Limited. 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| ispartof | Journal of medical ethics, 2016-06, Vol.42 (6), p.401-408 |
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| source | MEDLINE; BMJ Journals - NESLi2; Jstor Complete Legacy |
| subjects | Adoptive parents Analysis Autism Autistic children Autistic Disorder Behavior Therapy - ethics Beneficence Bioethics Care and treatment Desire Editor's choice Emotional states Epistemology Friendship Good life Happiness Helping behavior Helping behaviour Humans Intuition Knowledge Knowledge, Theory of Parenting Parents & parenting Quality of Life Wellbeing |
| title | ‘Autism and the good life’: a new approach to the study of well-being |
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