African American Families on Autism Diagnosis and Treatment: The Influence of Culture
Cultural factors such as health care access and autism spectrum disorder (ASD) symptom interpretations have been proposed as impacting delayed diagnosis and treatment for African American children with ASD. A qualitative study of urban African American families caring for their child with autism was...
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| Veröffentlicht in: | Journal of autism and developmental disorders 2015-10, Vol.45 (10), p.3244-3254 |
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| container_title | Journal of autism and developmental disorders |
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| creator | Burkett, Karen Morris, Edith Manning-Courtney, Patricia Anthony, Jean Shambley-Ebron, Donna |
| description | Cultural factors such as health care access and autism spectrum disorder (ASD) symptom interpretations have been proposed as impacting delayed diagnosis and treatment for African American children with ASD. A qualitative study of urban African American families caring for their child with autism was conducted with 24 family members and 28 ASD professionals. Cultural caring meant families protected their child from harm including potential or actual distrustful encounters, and took action for their child and community to optimize their child’s health and address the knowledge deficits of ASD within their community. Families and professionals believed cultural influences delayed families’ receiving and seeking appropriate health care for the African American child with ASD affecting timely autism diagnosis and treatment. |
| doi_str_mv | 10.1007/s10803-015-2482-x |
| format | Article |
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A qualitative study of urban African American families caring for their child with autism was conducted with 24 family members and 28 ASD professionals. Cultural caring meant families protected their child from harm including potential or actual distrustful encounters, and took action for their child and community to optimize their child’s health and address the knowledge deficits of ASD within their community. Families and professionals believed cultural influences delayed families’ receiving and seeking appropriate health care for the African American child with ASD affecting timely autism diagnosis and treatment.</description><identifier>ISSN: 0162-3257</identifier><identifier>EISSN: 1573-3432</identifier><identifier>DOI: 10.1007/s10803-015-2482-x</identifier><identifier>PMID: 26055985</identifier><identifier>CODEN: JADDDQ</identifier><language>eng</language><publisher>New York: Springer US</publisher><subject>Access to Health Care ; Adult ; African American Children ; African American Culture ; African American families ; African Americans ; Autism ; Autism Spectrum Disorder - epidemiology ; Autism Spectrum Disorder - ethnology ; Autism Spectrum Disorder - psychology ; Autism Spectrum Disorders ; Behavioral Science and Psychology ; Care and treatment ; Caring ; Child ; Child and School Psychology ; Child Rearing ; Clinical Diagnosis ; Community ; Cultural Characteristics ; Cultural Differences ; Cultural Influences ; Diagnosis ; Doctoral Dissertations ; Ethnography ; Family - psychology ; Family Income ; Female ; Health Behavior ; Healthcare Disparities ; Humans ; Knowledge Level ; Neurosciences ; Nursing Research ; Original Paper ; Parent Role ; Patient outcomes ; Pediatrics ; Pervasive Developmental Disorders ; Professional Personnel ; Psychological aspects ; Psychology ; Public Health ; Qualitative Research ; Socioeconomic Status ; Symptoms (Individual Disorders) ; Urban Areas ; Whites</subject><ispartof>Journal of autism and developmental disorders, 2015-10, Vol.45 (10), p.3244-3254</ispartof><rights>Springer Science+Business Media New York 2015</rights><rights>COPYRIGHT 2015 Springer</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c636t-f0e98e2a126f8f46c01df0dcea5a8b5aae6abe79797eecfbcc8560504d4456953</citedby><cites>FETCH-LOGICAL-c636t-f0e98e2a126f8f46c01df0dcea5a8b5aae6abe79797eecfbcc8560504d4456953</cites><orcidid>0000-0001-9494-8553</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://link.springer.com/content/pdf/10.1007/s10803-015-2482-x$$EPDF$$P50$$Gspringer$$H</linktopdf><linktohtml>$$Uhttps://link.springer.com/10.1007/s10803-015-2482-x$$EHTML$$P50$$Gspringer$$H</linktohtml><link.rule.ids>314,780,784,12846,27924,27925,30999,41488,42557,51319</link.rule.ids><backlink>$$Uhttp://eric.ed.gov/ERICWebPortal/detail?accno=EJ1074370$$DView record in ERIC$$Hfree_for_read</backlink><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/26055985$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Burkett, Karen</creatorcontrib><creatorcontrib>Morris, Edith</creatorcontrib><creatorcontrib>Manning-Courtney, Patricia</creatorcontrib><creatorcontrib>Anthony, Jean</creatorcontrib><creatorcontrib>Shambley-Ebron, Donna</creatorcontrib><title>African American Families on Autism Diagnosis and Treatment: The Influence of Culture</title><title>Journal of autism and developmental disorders</title><addtitle>J Autism Dev Disord</addtitle><addtitle>J Autism Dev Disord</addtitle><description>Cultural factors such as health care access and autism spectrum disorder (ASD) symptom interpretations have been proposed as impacting delayed diagnosis and treatment for African American children with ASD. A qualitative study of urban African American families caring for their child with autism was conducted with 24 family members and 28 ASD professionals. Cultural caring meant families protected their child from harm including potential or actual distrustful encounters, and took action for their child and community to optimize their child’s health and address the knowledge deficits of ASD within their community. Families and professionals believed cultural influences delayed families’ receiving and seeking appropriate health care for the African American child with ASD affecting timely autism diagnosis and treatment.</description><subject>Access to Health Care</subject><subject>Adult</subject><subject>African American Children</subject><subject>African American Culture</subject><subject>African American families</subject><subject>African Americans</subject><subject>Autism</subject><subject>Autism Spectrum Disorder - epidemiology</subject><subject>Autism Spectrum Disorder - ethnology</subject><subject>Autism Spectrum Disorder - psychology</subject><subject>Autism Spectrum Disorders</subject><subject>Behavioral Science and Psychology</subject><subject>Care and treatment</subject><subject>Caring</subject><subject>Child</subject><subject>Child and School Psychology</subject><subject>Child Rearing</subject><subject>Clinical Diagnosis</subject><subject>Community</subject><subject>Cultural Characteristics</subject><subject>Cultural Differences</subject><subject>Cultural Influences</subject><subject>Diagnosis</subject><subject>Doctoral Dissertations</subject><subject>Ethnography</subject><subject>Family - psychology</subject><subject>Family Income</subject><subject>Female</subject><subject>Health Behavior</subject><subject>Healthcare Disparities</subject><subject>Humans</subject><subject>Knowledge Level</subject><subject>Neurosciences</subject><subject>Nursing Research</subject><subject>Original Paper</subject><subject>Parent Role</subject><subject>Patient outcomes</subject><subject>Pediatrics</subject><subject>Pervasive Developmental Disorders</subject><subject>Professional Personnel</subject><subject>Psychological aspects</subject><subject>Psychology</subject><subject>Public Health</subject><subject>Qualitative Research</subject><subject>Socioeconomic Status</subject><subject>Symptoms (Individual Disorders)</subject><subject>Urban 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American children with ASD. A qualitative study of urban African American families caring for their child with autism was conducted with 24 family members and 28 ASD professionals. Cultural caring meant families protected their child from harm including potential or actual distrustful encounters, and took action for their child and community to optimize their child’s health and address the knowledge deficits of ASD within their community. Families and professionals believed cultural influences delayed families’ receiving and seeking appropriate health care for the African American child with ASD affecting timely autism diagnosis and treatment.</abstract><cop>New York</cop><pub>Springer US</pub><pmid>26055985</pmid><doi>10.1007/s10803-015-2482-x</doi><tpages>11</tpages><orcidid>https://orcid.org/0000-0001-9494-8553</orcidid></addata></record> |
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| source | MEDLINE; Applied Social Sciences Index & Abstracts (ASSIA); Education Source; SpringerLink Journals - AutoHoldings |
| subjects | Access to Health Care Adult African American Children African American Culture African American families African Americans Autism Autism Spectrum Disorder - epidemiology Autism Spectrum Disorder - ethnology Autism Spectrum Disorder - psychology Autism Spectrum Disorders Behavioral Science and Psychology Care and treatment Caring Child Child and School Psychology Child Rearing Clinical Diagnosis Community Cultural Characteristics Cultural Differences Cultural Influences Diagnosis Doctoral Dissertations Ethnography Family - psychology Family Income Female Health Behavior Healthcare Disparities Humans Knowledge Level Neurosciences Nursing Research Original Paper Parent Role Patient outcomes Pediatrics Pervasive Developmental Disorders Professional Personnel Psychological aspects Psychology Public Health Qualitative Research Socioeconomic Status Symptoms (Individual Disorders) Urban Areas Whites |
| title | African American Families on Autism Diagnosis and Treatment: The Influence of Culture |
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