Analysis of hospital outpatient care of a rare disease: cystic fibrosis

Following the generalization of neonatal screening, the French CF Care Network has become structured around 45 qualified centres, the French CF Society, 2 national expertise centres, the Patient Registry and the National Protocol of CF Care in collaboration with the Vaincre Ia Mucoviscidose patient...

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Veröffentlicht in:	Santé publique (Vandoeuvre-lès-Nancy, France) France), 2015-05, Vol.27 (3), p.363-372
Hauptverfasser:	Rault, Gilles, Pougheon, Dominique, Moisdon, Jean-Claude, Pépin, Michel, Kletz, Frédéric, Bellon, Gabriel, Durieu, Isabelle, Lombrail, Pierre
Format:	Artikel
Sprache:	fre
Schlagworte:	Adult Ambulatory Care - methods Cooperative Behavior Cystic Fibrosis - therapy Follow-Up Studies Health Services Needs and Demand Humans Interdisciplinary Communication Patient Care Team - organization & administration Practice Guidelines as Topic Quality of Health Care Transplant Recipients
Online-Zugang:	Volltext
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