Self-Management and Transition Readiness Assessment: Development, Reliability, and Factor Structure of the STARx Questionnaire
The Self-Management and Transition to Adulthood with Rx=Treatment (STARx) Questionnaire was developed to collect information on self-management and health care transition (HCT) skills, via self-report, in a broad population of adolescents and young adults (AYAs) with chronic conditions. Over several...
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| Veröffentlicht in: | Journal of pediatric nursing 2015-09, Vol.30 (5), p.691-699 |
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| creator | Ferris, M. Cohen, S. Haberman, C. Javalkar, K. Massengill, S. Mahan, J.D. Kim, S. Bickford, K. Cantu, G. Medeiros, M. Phillips, A. Ferris, M.T. Hooper, S.R. |
| description | The Self-Management and Transition to Adulthood with Rx=Treatment (STARx) Questionnaire was developed to collect information on self-management and health care transition (HCT) skills, via self-report, in a broad population of adolescents and young adults (AYAs) with chronic conditions.
Over several iterations, the STARx questionnaire was created with AYA, family, and health provider input. The development and pilot testing of the STARx Questionnaire took place with the assistance of 1219 AYAs with different chronic health conditions, in multiple institutions and settings over three phases: item development, pilot testing, reliability and factor structuring.
The three development phases resulted in a final version of the STARx Questionnaire. The exploratory factor analysis of the third version of the 18-item STARx identified six factors that accounted for about 65% of the variance: Medication management, Provider communication, Engagement during appointments, Disease knowledge, Adult health responsibilities, and Resource utilization. Reliability estimates revealed good internal consistency and temporal stability, with the alpha coefficient for the overall scale being .80. The STARx was developmentally sensitive, with older patients scoring significantly higher on nearly every factor than younger patients.
The STARx Questionnaire is a reliable, self-report tool with adequate internal consistency, temporal stability, and a strong, multidimensional factor structure. It provides another assessment strategy to measure self-management and transition skills in AYAs with chronic conditions.
•We describe the development of a transition tool for youth with chronic conditions.•The STARX Questionnaire measures transition readiness and self-management skills.•The STARX Questionnaire displays good internal consistency and temporal stability.•The STARX Questionnaire displays a strong, multidimensional factor structure.•The tool is developmentally sensitive and can guide interventions by age group. |
| doi_str_mv | 10.1016/j.pedn.2015.05.009 |
| format | Article |
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Over several iterations, the STARx questionnaire was created with AYA, family, and health provider input. The development and pilot testing of the STARx Questionnaire took place with the assistance of 1219 AYAs with different chronic health conditions, in multiple institutions and settings over three phases: item development, pilot testing, reliability and factor structuring.
The three development phases resulted in a final version of the STARx Questionnaire. The exploratory factor analysis of the third version of the 18-item STARx identified six factors that accounted for about 65% of the variance: Medication management, Provider communication, Engagement during appointments, Disease knowledge, Adult health responsibilities, and Resource utilization. Reliability estimates revealed good internal consistency and temporal stability, with the alpha coefficient for the overall scale being .80. The STARx was developmentally sensitive, with older patients scoring significantly higher on nearly every factor than younger patients.
The STARx Questionnaire is a reliable, self-report tool with adequate internal consistency, temporal stability, and a strong, multidimensional factor structure. It provides another assessment strategy to measure self-management and transition skills in AYAs with chronic conditions.
•We describe the development of a transition tool for youth with chronic conditions.•The STARX Questionnaire measures transition readiness and self-management skills.•The STARX Questionnaire displays good internal consistency and temporal stability.•The STARX Questionnaire displays a strong, multidimensional factor structure.•The tool is developmentally sensitive and can guide interventions by age group.</description><identifier>ISSN: 0882-5963</identifier><identifier>EISSN: 1532-8449</identifier><identifier>DOI: 10.1016/j.pedn.2015.05.009</identifier><identifier>PMID: 26209873</identifier><language>eng</language><publisher>United States: Elsevier Inc</publisher><subject>Adolescent ; Adolescents ; Adult ; Age Factors ; Child ; Chronic conditions ; Chronic Disease - therapy ; Female ; Humans ; Male ; Measure ; Nursing ; Pilot Projects ; Program Evaluation ; Reproducibility of Results ; Self Care - methods ; Self-management ; Surveys and Questionnaires ; Transition ; Transition to Adult Care - organization & administration ; Transitional Care - organization & administration ; Young Adult ; Young adults</subject><ispartof>Journal of pediatric nursing, 2015-09, Vol.30 (5), p.691-699</ispartof><rights>2015 Elsevier Inc.</rights><rights>Copyright © 2015 Elsevier Inc. All rights reserved.</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c271t-dd8ccc90210e706073a35a19efdaef7bfc99d179f63ef4dfe63aa059b73a7b673</citedby><cites>FETCH-LOGICAL-c271t-dd8ccc90210e706073a35a19efdaef7bfc99d179f63ef4dfe63aa059b73a7b673</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktohtml>$$Uhttps://www.sciencedirect.com/science/article/pii/S0882596315001530$$EHTML$$P50$$Gelsevier$$H</linktohtml><link.rule.ids>314,776,780,3537,27901,27902,65306</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/26209873$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Ferris, M.</creatorcontrib><creatorcontrib>Cohen, S.</creatorcontrib><creatorcontrib>Haberman, C.</creatorcontrib><creatorcontrib>Javalkar, K.</creatorcontrib><creatorcontrib>Massengill, S.</creatorcontrib><creatorcontrib>Mahan, J.D.</creatorcontrib><creatorcontrib>Kim, S.</creatorcontrib><creatorcontrib>Bickford, K.</creatorcontrib><creatorcontrib>Cantu, G.</creatorcontrib><creatorcontrib>Medeiros, M.</creatorcontrib><creatorcontrib>Phillips, A.</creatorcontrib><creatorcontrib>Ferris, M.T.</creatorcontrib><creatorcontrib>Hooper, S.R.</creatorcontrib><title>Self-Management and Transition Readiness Assessment: Development, Reliability, and Factor Structure of the STARx Questionnaire</title><title>Journal of pediatric nursing</title><addtitle>J Pediatr Nurs</addtitle><description>The Self-Management and Transition to Adulthood with Rx=Treatment (STARx) Questionnaire was developed to collect information on self-management and health care transition (HCT) skills, via self-report, in a broad population of adolescents and young adults (AYAs) with chronic conditions.
Over several iterations, the STARx questionnaire was created with AYA, family, and health provider input. The development and pilot testing of the STARx Questionnaire took place with the assistance of 1219 AYAs with different chronic health conditions, in multiple institutions and settings over three phases: item development, pilot testing, reliability and factor structuring.
The three development phases resulted in a final version of the STARx Questionnaire. The exploratory factor analysis of the third version of the 18-item STARx identified six factors that accounted for about 65% of the variance: Medication management, Provider communication, Engagement during appointments, Disease knowledge, Adult health responsibilities, and Resource utilization. Reliability estimates revealed good internal consistency and temporal stability, with the alpha coefficient for the overall scale being .80. The STARx was developmentally sensitive, with older patients scoring significantly higher on nearly every factor than younger patients.
The STARx Questionnaire is a reliable, self-report tool with adequate internal consistency, temporal stability, and a strong, multidimensional factor structure. It provides another assessment strategy to measure self-management and transition skills in AYAs with chronic conditions.
•We describe the development of a transition tool for youth with chronic conditions.•The STARX Questionnaire measures transition readiness and self-management skills.•The STARX Questionnaire displays good internal consistency and temporal stability.•The STARX Questionnaire displays a strong, multidimensional factor structure.•The tool is developmentally sensitive and can guide interventions by age group.</description><subject>Adolescent</subject><subject>Adolescents</subject><subject>Adult</subject><subject>Age Factors</subject><subject>Child</subject><subject>Chronic conditions</subject><subject>Chronic Disease - therapy</subject><subject>Female</subject><subject>Humans</subject><subject>Male</subject><subject>Measure</subject><subject>Nursing</subject><subject>Pilot Projects</subject><subject>Program Evaluation</subject><subject>Reproducibility of Results</subject><subject>Self Care - methods</subject><subject>Self-management</subject><subject>Surveys and Questionnaires</subject><subject>Transition</subject><subject>Transition to Adult Care - organization & administration</subject><subject>Transitional Care - organization & administration</subject><subject>Young Adult</subject><subject>Young adults</subject><issn>0882-5963</issn><issn>1532-8449</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2015</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNp9kMFu1DAQhi0EokvhBTggHzk0yzjexDHisioUKrWq6C5ny7HH4FXWWWynoheeHYdtOSKNNLL0_b88HyGvGSwZsPbdbnlAG5Y1sGYJZUA-IQvW8LrqViv5lCyg6-qqkS0_IS9S2gEw1gj5nJzUbQ2yE3xBfm9wcNW1Dvo77jFkqoOl26hD8tmPgd6itj5gSnSdUlkz855-xDscxsP8OCvI4HXvB5_vz_7GL7TJY6SbHCeTp4h0dDT_QLrZrm9_0a8Tprk6aB_xJXnm9JDw1cM-Jd8uPm3Pv1RXN58vz9dXlakFy5W1nTFGQs0ABbQguOaNZhKd1ehE74yUlgnpWo5uZR22XGtoZF9A0beCn5K3x95DHH_OH1B7nwwOgw44TkkxUdRw0UlZ0PqImjimFNGpQ_R7He8VAzV7Vzs1e1ezdwVlYA69eeif-j3af5FH0QX4cASwXHnnMapkPAaDtlgwWdnR_6__D4fPlpM</recordid><startdate>201509</startdate><enddate>201509</enddate><creator>Ferris, M.</creator><creator>Cohen, S.</creator><creator>Haberman, C.</creator><creator>Javalkar, K.</creator><creator>Massengill, S.</creator><creator>Mahan, J.D.</creator><creator>Kim, S.</creator><creator>Bickford, K.</creator><creator>Cantu, G.</creator><creator>Medeiros, M.</creator><creator>Phillips, A.</creator><creator>Ferris, M.T.</creator><creator>Hooper, S.R.</creator><general>Elsevier Inc</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope></search><sort><creationdate>201509</creationdate><title>Self-Management and Transition Readiness Assessment: Development, Reliability, and Factor Structure of the STARx Questionnaire</title><author>Ferris, M. ; Cohen, S. ; Haberman, C. ; Javalkar, K. ; Massengill, S. ; Mahan, J.D. ; Kim, S. ; Bickford, K. ; Cantu, G. ; Medeiros, M. ; Phillips, A. ; Ferris, M.T. ; Hooper, S.R.</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c271t-dd8ccc90210e706073a35a19efdaef7bfc99d179f63ef4dfe63aa059b73a7b673</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2015</creationdate><topic>Adolescent</topic><topic>Adolescents</topic><topic>Adult</topic><topic>Age Factors</topic><topic>Child</topic><topic>Chronic conditions</topic><topic>Chronic Disease - therapy</topic><topic>Female</topic><topic>Humans</topic><topic>Male</topic><topic>Measure</topic><topic>Nursing</topic><topic>Pilot Projects</topic><topic>Program Evaluation</topic><topic>Reproducibility of Results</topic><topic>Self Care - methods</topic><topic>Self-management</topic><topic>Surveys and Questionnaires</topic><topic>Transition</topic><topic>Transition to Adult Care - organization & administration</topic><topic>Transitional Care - organization & administration</topic><topic>Young Adult</topic><topic>Young adults</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Ferris, M.</creatorcontrib><creatorcontrib>Cohen, S.</creatorcontrib><creatorcontrib>Haberman, C.</creatorcontrib><creatorcontrib>Javalkar, K.</creatorcontrib><creatorcontrib>Massengill, S.</creatorcontrib><creatorcontrib>Mahan, J.D.</creatorcontrib><creatorcontrib>Kim, S.</creatorcontrib><creatorcontrib>Bickford, K.</creatorcontrib><creatorcontrib>Cantu, G.</creatorcontrib><creatorcontrib>Medeiros, M.</creatorcontrib><creatorcontrib>Phillips, A.</creatorcontrib><creatorcontrib>Ferris, M.T.</creatorcontrib><creatorcontrib>Hooper, S.R.</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><jtitle>Journal of pediatric nursing</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Ferris, M.</au><au>Cohen, S.</au><au>Haberman, C.</au><au>Javalkar, K.</au><au>Massengill, S.</au><au>Mahan, J.D.</au><au>Kim, S.</au><au>Bickford, K.</au><au>Cantu, G.</au><au>Medeiros, M.</au><au>Phillips, A.</au><au>Ferris, M.T.</au><au>Hooper, S.R.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Self-Management and Transition Readiness Assessment: Development, Reliability, and Factor Structure of the STARx Questionnaire</atitle><jtitle>Journal of pediatric nursing</jtitle><addtitle>J Pediatr Nurs</addtitle><date>2015-09</date><risdate>2015</risdate><volume>30</volume><issue>5</issue><spage>691</spage><epage>699</epage><pages>691-699</pages><issn>0882-5963</issn><eissn>1532-8449</eissn><abstract>The Self-Management and Transition to Adulthood with Rx=Treatment (STARx) Questionnaire was developed to collect information on self-management and health care transition (HCT) skills, via self-report, in a broad population of adolescents and young adults (AYAs) with chronic conditions.
Over several iterations, the STARx questionnaire was created with AYA, family, and health provider input. The development and pilot testing of the STARx Questionnaire took place with the assistance of 1219 AYAs with different chronic health conditions, in multiple institutions and settings over three phases: item development, pilot testing, reliability and factor structuring.
The three development phases resulted in a final version of the STARx Questionnaire. The exploratory factor analysis of the third version of the 18-item STARx identified six factors that accounted for about 65% of the variance: Medication management, Provider communication, Engagement during appointments, Disease knowledge, Adult health responsibilities, and Resource utilization. Reliability estimates revealed good internal consistency and temporal stability, with the alpha coefficient for the overall scale being .80. The STARx was developmentally sensitive, with older patients scoring significantly higher on nearly every factor than younger patients.
The STARx Questionnaire is a reliable, self-report tool with adequate internal consistency, temporal stability, and a strong, multidimensional factor structure. It provides another assessment strategy to measure self-management and transition skills in AYAs with chronic conditions.
•We describe the development of a transition tool for youth with chronic conditions.•The STARX Questionnaire measures transition readiness and self-management skills.•The STARX Questionnaire displays good internal consistency and temporal stability.•The STARX Questionnaire displays a strong, multidimensional factor structure.•The tool is developmentally sensitive and can guide interventions by age group.</abstract><cop>United States</cop><pub>Elsevier Inc</pub><pmid>26209873</pmid><doi>10.1016/j.pedn.2015.05.009</doi><tpages>9</tpages></addata></record> |
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| ispartof | Journal of pediatric nursing, 2015-09, Vol.30 (5), p.691-699 |
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| source | MEDLINE; ScienceDirect Journals (5 years ago - present) |
| subjects | Adolescent Adolescents Adult Age Factors Child Chronic conditions Chronic Disease - therapy Female Humans Male Measure Nursing Pilot Projects Program Evaluation Reproducibility of Results Self Care - methods Self-management Surveys and Questionnaires Transition Transition to Adult Care - organization & administration Transitional Care - organization & administration Young Adult Young adults |
| title | Self-Management and Transition Readiness Assessment: Development, Reliability, and Factor Structure of the STARx Questionnaire |
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