Body matters: rethinking the ethical acceptability of non-beneficial clinical research with children
The involvement of children in non-beneficial clinical research is extremely important for improving pediatric care, but its ethical acceptability is still disputed. Therefore, various pro-research justifications have been proposed throughout the years. The present essay aims at contributing to the...
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| Veröffentlicht in: | Medicine, health care, and philosophy health care, and philosophy, 2015-08, Vol.18 (3), p.421-431 |
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| container_title | Medicine, health care, and philosophy |
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| creator | De Clercq, Eva Badarau, Domnita Oana Ruhe, Katharina M. Wangmo, Tenzin |
| description | The involvement of children in non-beneficial clinical research is extremely important for improving pediatric care, but its ethical acceptability is still disputed. Therefore, various pro-research justifications have been proposed throughout the years. The present essay aims at contributing to the on-going discussion surrounding children’s participation in non-beneficial clinical research. Building on Wendler’s ‘contribution to a valuable project’ justification, but going beyond a risk/benefit analysis, it articulates a pro-research argument which appeals to a phenomenological view on the body and vulnerability. It is claimed that children’s bodies are not mere physical objects, but body-subjects due to which children, as persons, can contribute to research that may hold no direct clinical benefit to them even before they can give informed consent. |
| doi_str_mv | 10.1007/s11019-014-9616-3 |
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| subjects | Altruism Bioethics Biomedical Research - ethics Child Education Ethical Analysis Ethics Humans Informed consent Informed Consent By Minors - ethics International organizations Medical Law Nontherapeutic Human Experimentation - ethics Pediatrics Pediatrics - ethics Philosophy Philosophy of Biology Philosophy of Medicine Risk Assessment Scientific Contribution Theory of Medicine/Bioethics Vulnerable Populations |
| title | Body matters: rethinking the ethical acceptability of non-beneficial clinical research with children |
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