Patient-Centered Care or Cultural Competence: Negotiating Palliative Care at Home for Chinese Canadian Immigrants
The literature about Chinese attitudes toward death and dying contains frequent references to strong taboos against open discussion about death; consequently, there is an assumption that dying at home is not the preferred option. This focused ethnographic study examined the palliative home care expe...
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| Veröffentlicht in: | American journal of hospice & palliative medicine 2015-06, Vol.32 (4), p.372-379 |
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| container_title | American journal of hospice & palliative medicine |
| container_volume | 32 |
| creator | Nielsen, Lisa Seto Angus, Jan E. Howell, Doris Husain, Amna Gastaldo, Denise |
| description | The literature about Chinese attitudes toward death and dying contains frequent references to strong taboos against open discussion about death; consequently, there is an assumption that dying at home is not the preferred option. This focused ethnographic study examined the palliative home care experiences of 4 Chinese immigrants with terminal cancer, their family caregivers, and home care nurses and key informant interviews with 11 health care providers. Three main themes emerged: (1) the many facets of taboo; (2) discursive tensions between patient-centered care and cultural competence; and (3) rethinking language barriers. Thus, training on cultural competence needs to move away from models that portray cultural beliefs as shared, fixed patterns, and take into account the complicated reality of everyday care provision at end of life in the home. |
| doi_str_mv | 10.1177/1049909114527338 |
| format | Article |
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| fulltext | fulltext |
| identifier | ISSN: 1049-9091 |
| ispartof | American journal of hospice & palliative medicine, 2015-06, Vol.32 (4), p.372-379 |
| issn | 1049-9091 1938-2715 |
| language | eng |
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| source | MEDLINE; SAGE Complete A-Z List |
| subjects | Aged Aged, 80 and over Canada - epidemiology Caregivers China - ethnology Cultural Competency Emigrants and Immigrants Female Home Care Services - organization & administration Humans Male Middle Aged Neoplasms Nursing Palliative Care - organization & administration Patient Comfort Patient-Centered Care - organization & administration |
| title | Patient-Centered Care or Cultural Competence: Negotiating Palliative Care at Home for Chinese Canadian Immigrants |
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