A framework for creating standardized outcome measures for patient registries

Our objectives were to create a conceptual framework for development of standard outcome measures and to design and pilot test a tool for displaying outcome measures. Information on outcome measures used in registries was gathered through stakeholder discussions, which informed the development of th...

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Veröffentlicht in:Journal of comparative effectiveness research 2014-09, Vol.3 (5), p.473-480
Hauptverfasser: Gliklich, Richard E, Leavy, Michelle B, Karl, Jannette, Campion, Daniel M, Levy, Daniel, Berliner, Elise
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container_end_page 480
container_issue 5
container_start_page 473
container_title Journal of comparative effectiveness research
container_volume 3
creator Gliklich, Richard E
Leavy, Michelle B
Karl, Jannette
Campion, Daniel M
Levy, Daniel
Berliner, Elise
description Our objectives were to create a conceptual framework for development of standard outcome measures and to design and pilot test a tool for displaying outcome measures. Information on outcome measures used in registries was gathered through stakeholder discussions, which informed the development of the outcome measurement framework and the related tool. The outcome measurement framework is a conceptual model for how information relevant to evaluating patient outcomes may be defined and collected in a standard way for a broad range of health areas. The related tool facilitates collecting, displaying and searching for information on outcome measures. The model developed through this process offers a framework that can be used to define outcome measures in a standard way across medical conditions.
doi_str_mv 10.2217/cer.14.38
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subjects Analysis
comparative effectiveness research
conceptual model
Humans
Outcome and process assessment (Medical care)
Outcome Assessment (Health Care) - methods
Outcome Assessment (Health Care) - statistics & numerical data
outcome measure
outcome measurement
patient outcomes
patient registry
Pilot Projects
Registries (Medicine)
Registries - standards
Registries - statistics & numerical data
title A framework for creating standardized outcome measures for patient registries
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