Traditional Healers' Views of the Required Processes for a “Good Death” Among Xhosa Patients Pre- and Post-Death
Abstract Context South Africa faces enormous HIV-related mortality and increasing cancer incidence. Traditional healers are the preferred source of advice and care in Africa, and this is true for the large Xhosa ethnic group. Objectives To provide more appropriate multidimensional, culturally suitab...
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creator | Graham, Nicola, MBChB, DipHIVManSA, MPhilPallMed Gwyther, Liz, MBChB, FCFP, MSc Tiso, Thozama, Dip Nursing Science, Adv Cert HIV Management Harding, Richard, BSc (Joint Hons), MSc, PhD, DipSW |
description | Abstract Context South Africa faces enormous HIV-related mortality and increasing cancer incidence. Traditional healers are the preferred source of advice and care in Africa, and this is true for the large Xhosa ethnic group. Objectives To provide more appropriate multidimensional, culturally suitable care at the end of life; this study aimed to identify the care needs and cultural practices of Xhosa patients and families at the end of life, from the perspective of traditional healers. Methods The study design was qualitative and cross-sectional. The research took place in a 300 km radius around East London, Eastern Cape, South Africa. Interviewees were Xhosa individuals who were recognized by their communities as traditional healers. Data from two focus groups and eight individual interviews were analyzed, using an inductive thematic approach. Results Data were elicited around the facilitation of a good death in terms of care needs before death and important rituals after death. Care needs before death focused on relief of psychosocial suffering; the importance of the spoken word at the deathbed; and the importance of a relationship and spiritual connection at the end of life. There were broad similarities across the rituals described after death, but these rituals were recognized to differ according to family customs or the dying person's wishes. Conclusion Awareness of potential needs at the end of life can assist clinicians to understand the choices of their patients and develop effective end-of-life care plans that improve the outcomes for patients and families. |
doi_str_mv | 10.1016/j.jpainsymman.2012.08.005 |
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Traditional healers are the preferred source of advice and care in Africa, and this is true for the large Xhosa ethnic group. Objectives To provide more appropriate multidimensional, culturally suitable care at the end of life; this study aimed to identify the care needs and cultural practices of Xhosa patients and families at the end of life, from the perspective of traditional healers. Methods The study design was qualitative and cross-sectional. The research took place in a 300 km radius around East London, Eastern Cape, South Africa. Interviewees were Xhosa individuals who were recognized by their communities as traditional healers. Data from two focus groups and eight individual interviews were analyzed, using an inductive thematic approach. Results Data were elicited around the facilitation of a good death in terms of care needs before death and important rituals after death. Care needs before death focused on relief of psychosocial suffering; the importance of the spoken word at the deathbed; and the importance of a relationship and spiritual connection at the end of life. There were broad similarities across the rituals described after death, but these rituals were recognized to differ according to family customs or the dying person's wishes. Conclusion Awareness of potential needs at the end of life can assist clinicians to understand the choices of their patients and develop effective end-of-life care plans that improve the outcomes for patients and families.</description><identifier>ISSN: 0885-3924</identifier><identifier>EISSN: 1873-6513</identifier><identifier>DOI: 10.1016/j.jpainsymman.2012.08.005</identifier><identifier>PMID: 23149082</identifier><identifier>CODEN: JSPME2</identifier><language>eng</language><publisher>New York, NY: Elsevier Inc</publisher><subject>Africa ; Aged ; Anesthesia & Perioperative Care ; Attitude to Death - ethnology ; Attitude to Health - ethnology ; Biological and medical sciences ; Caregivers - statistics & numerical data ; Culture ; Death ; Death rituals ; Delivery of Health Care - ethnology ; End of life ; End of life decisions ; Female ; Humans ; Internationality ; Male ; Medical sciences ; Medicine, African Traditional ; Middle Aged ; Needs Assessment ; Pain Medicine ; Palliative care ; Pharmacology. Drug treatments ; South Africa ; South Africa - ethnology ; Terminal Care - statistics & numerical data ; traditional healer ; Traditional healers ; traditional medicine</subject><ispartof>Journal of pain and symptom management, 2013-09, Vol.46 (3), p.386-394</ispartof><rights>U.S. Cancer Pain Relief Committee</rights><rights>2013 U.S. Cancer Pain Relief Committee</rights><rights>2014 INIST-CNRS</rights><rights>Copyright © 2013 U.S. Cancer Pain Relief Committee. Published by Elsevier Inc. All rights reserved.</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c546t-c9b96a8898592f9d9d19130fc384a1c4c4f9e4ed7bdcbb5b113b5f7dd91ac7b3</citedby><cites>FETCH-LOGICAL-c546t-c9b96a8898592f9d9d19130fc384a1c4c4f9e4ed7bdcbb5b113b5f7dd91ac7b3</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktohtml>$$Uhttps://dx.doi.org/10.1016/j.jpainsymman.2012.08.005$$EHTML$$P50$$Gelsevier$$H</linktohtml><link.rule.ids>314,780,784,3550,27924,27925,31000,45995</link.rule.ids><backlink>$$Uhttp://pascal-francis.inist.fr/vibad/index.php?action=getRecordDetail&idt=27738455$$DView record in Pascal Francis$$Hfree_for_read</backlink><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/23149082$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Graham, Nicola, MBChB, DipHIVManSA, MPhilPallMed</creatorcontrib><creatorcontrib>Gwyther, Liz, MBChB, FCFP, MSc</creatorcontrib><creatorcontrib>Tiso, Thozama, Dip Nursing Science, Adv Cert HIV Management</creatorcontrib><creatorcontrib>Harding, Richard, BSc (Joint Hons), MSc, PhD, DipSW</creatorcontrib><title>Traditional Healers' Views of the Required Processes for a “Good Death” Among Xhosa Patients Pre- and Post-Death</title><title>Journal of pain and symptom management</title><addtitle>J Pain Symptom Manage</addtitle><description>Abstract Context South Africa faces enormous HIV-related mortality and increasing cancer incidence. Traditional healers are the preferred source of advice and care in Africa, and this is true for the large Xhosa ethnic group. Objectives To provide more appropriate multidimensional, culturally suitable care at the end of life; this study aimed to identify the care needs and cultural practices of Xhosa patients and families at the end of life, from the perspective of traditional healers. Methods The study design was qualitative and cross-sectional. The research took place in a 300 km radius around East London, Eastern Cape, South Africa. Interviewees were Xhosa individuals who were recognized by their communities as traditional healers. Data from two focus groups and eight individual interviews were analyzed, using an inductive thematic approach. Results Data were elicited around the facilitation of a good death in terms of care needs before death and important rituals after death. Care needs before death focused on relief of psychosocial suffering; the importance of the spoken word at the deathbed; and the importance of a relationship and spiritual connection at the end of life. There were broad similarities across the rituals described after death, but these rituals were recognized to differ according to family customs or the dying person's wishes. Conclusion Awareness of potential needs at the end of life can assist clinicians to understand the choices of their patients and develop effective end-of-life care plans that improve the outcomes for patients and families.</description><subject>Africa</subject><subject>Aged</subject><subject>Anesthesia & Perioperative Care</subject><subject>Attitude to Death - ethnology</subject><subject>Attitude to Health - ethnology</subject><subject>Biological and medical sciences</subject><subject>Caregivers - statistics & numerical data</subject><subject>Culture</subject><subject>Death</subject><subject>Death rituals</subject><subject>Delivery of Health Care - ethnology</subject><subject>End of life</subject><subject>End of life decisions</subject><subject>Female</subject><subject>Humans</subject><subject>Internationality</subject><subject>Male</subject><subject>Medical sciences</subject><subject>Medicine, African Traditional</subject><subject>Middle Aged</subject><subject>Needs Assessment</subject><subject>Pain Medicine</subject><subject>Palliative care</subject><subject>Pharmacology. Drug treatments</subject><subject>South Africa</subject><subject>South Africa - ethnology</subject><subject>Terminal Care - statistics & numerical data</subject><subject>traditional healer</subject><subject>Traditional healers</subject><subject>traditional medicine</subject><issn>0885-3924</issn><issn>1873-6513</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2013</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>7QJ</sourceid><recordid>eNqNks2O0zAUhSMEYkrhFZBZINik2LGT2BukUYEZpJEYQYXYWY59Q12SuOObgrqbB4GXmyfBoeVHbGDlzXfOvT7nZtkjRheMsurZZrHZGj_gvu_NsCgoKxZULigtb2UzJmueVyXjt7MZlbLMuSrESXYPcUMTwSt-NzspOBOKymKWjatonB99GExHzsF0EPEJee_hC5LQknEN5C1c7XwERy5jsIAISNoQiSE311_PQnDkBZhxfXP9jZz2YfhIPqwDGnJpRg_DiEkFOTFDkgcc8x_s_exOazqEB8d3nq1evVwtz_OLN2evl6cXuS1FNeZWNaoyUipZqqJVTjmmGKet5VIYZoUVrQIBrm6cbZqyYYw3ZVs7p5ixdcPn2dOD7TaGqx3gqHuPFrrODBB2qFlZ0uQtRPFvVBSq4lLVdULVAbUxIEZo9Tb63sS9ZlRP9eiN_qMePdWjqdRT-PPs4XHMrunB_VL-7CMBj4-AQWu6NprBevzNpflSlJPR8sBBiu-zh6jRprgtuNSUHbUL_r_Wef6Xi-384NPgT7AH3IRdTGeRfq8xafS76Z6mc2IFpaJiNf8OkQDK0A</recordid><startdate>20130901</startdate><enddate>20130901</enddate><creator>Graham, Nicola, MBChB, DipHIVManSA, MPhilPallMed</creator><creator>Gwyther, Liz, MBChB, FCFP, MSc</creator><creator>Tiso, Thozama, Dip Nursing Science, Adv Cert HIV Management</creator><creator>Harding, Richard, BSc (Joint Hons), MSc, PhD, DipSW</creator><general>Elsevier Inc</general><general>Elsevier</general><scope>IQODW</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope><scope>7QJ</scope></search><sort><creationdate>20130901</creationdate><title>Traditional Healers' Views of the Required Processes for a “Good Death” Among Xhosa Patients Pre- and Post-Death</title><author>Graham, Nicola, MBChB, DipHIVManSA, MPhilPallMed ; Gwyther, Liz, MBChB, FCFP, MSc ; Tiso, Thozama, Dip Nursing Science, Adv Cert HIV Management ; Harding, Richard, BSc (Joint Hons), MSc, PhD, DipSW</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c546t-c9b96a8898592f9d9d19130fc384a1c4c4f9e4ed7bdcbb5b113b5f7dd91ac7b3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2013</creationdate><topic>Africa</topic><topic>Aged</topic><topic>Anesthesia & Perioperative Care</topic><topic>Attitude to Death - ethnology</topic><topic>Attitude to Health - ethnology</topic><topic>Biological and medical sciences</topic><topic>Caregivers - statistics & numerical data</topic><topic>Culture</topic><topic>Death</topic><topic>Death rituals</topic><topic>Delivery of Health Care - ethnology</topic><topic>End of life</topic><topic>End of life decisions</topic><topic>Female</topic><topic>Humans</topic><topic>Internationality</topic><topic>Male</topic><topic>Medical sciences</topic><topic>Medicine, African Traditional</topic><topic>Middle Aged</topic><topic>Needs Assessment</topic><topic>Pain Medicine</topic><topic>Palliative care</topic><topic>Pharmacology. Drug treatments</topic><topic>South Africa</topic><topic>South Africa - ethnology</topic><topic>Terminal Care - statistics & numerical data</topic><topic>traditional healer</topic><topic>Traditional healers</topic><topic>traditional medicine</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Graham, Nicola, MBChB, DipHIVManSA, MPhilPallMed</creatorcontrib><creatorcontrib>Gwyther, Liz, MBChB, FCFP, MSc</creatorcontrib><creatorcontrib>Tiso, Thozama, Dip Nursing Science, Adv Cert HIV Management</creatorcontrib><creatorcontrib>Harding, Richard, BSc (Joint Hons), MSc, PhD, DipSW</creatorcontrib><collection>Pascal-Francis</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><collection>Applied Social Sciences Index & Abstracts (ASSIA)</collection><jtitle>Journal of pain and symptom management</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Graham, Nicola, MBChB, DipHIVManSA, MPhilPallMed</au><au>Gwyther, Liz, MBChB, FCFP, MSc</au><au>Tiso, Thozama, Dip Nursing Science, Adv Cert HIV Management</au><au>Harding, Richard, BSc (Joint Hons), MSc, PhD, DipSW</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Traditional Healers' Views of the Required Processes for a “Good Death” Among Xhosa Patients Pre- and Post-Death</atitle><jtitle>Journal of pain and symptom management</jtitle><addtitle>J Pain Symptom Manage</addtitle><date>2013-09-01</date><risdate>2013</risdate><volume>46</volume><issue>3</issue><spage>386</spage><epage>394</epage><pages>386-394</pages><issn>0885-3924</issn><eissn>1873-6513</eissn><coden>JSPME2</coden><abstract>Abstract Context South Africa faces enormous HIV-related mortality and increasing cancer incidence. Traditional healers are the preferred source of advice and care in Africa, and this is true for the large Xhosa ethnic group. Objectives To provide more appropriate multidimensional, culturally suitable care at the end of life; this study aimed to identify the care needs and cultural practices of Xhosa patients and families at the end of life, from the perspective of traditional healers. Methods The study design was qualitative and cross-sectional. The research took place in a 300 km radius around East London, Eastern Cape, South Africa. Interviewees were Xhosa individuals who were recognized by their communities as traditional healers. Data from two focus groups and eight individual interviews were analyzed, using an inductive thematic approach. Results Data were elicited around the facilitation of a good death in terms of care needs before death and important rituals after death. Care needs before death focused on relief of psychosocial suffering; the importance of the spoken word at the deathbed; and the importance of a relationship and spiritual connection at the end of life. There were broad similarities across the rituals described after death, but these rituals were recognized to differ according to family customs or the dying person's wishes. Conclusion Awareness of potential needs at the end of life can assist clinicians to understand the choices of their patients and develop effective end-of-life care plans that improve the outcomes for patients and families.</abstract><cop>New York, NY</cop><pub>Elsevier Inc</pub><pmid>23149082</pmid><doi>10.1016/j.jpainsymman.2012.08.005</doi><tpages>9</tpages><oa>free_for_read</oa></addata></record> |
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subjects | Africa Aged Anesthesia & Perioperative Care Attitude to Death - ethnology Attitude to Health - ethnology Biological and medical sciences Caregivers - statistics & numerical data Culture Death Death rituals Delivery of Health Care - ethnology End of life End of life decisions Female Humans Internationality Male Medical sciences Medicine, African Traditional Middle Aged Needs Assessment Pain Medicine Palliative care Pharmacology. Drug treatments South Africa South Africa - ethnology Terminal Care - statistics & numerical data traditional healer Traditional healers traditional medicine |
title | Traditional Healers' Views of the Required Processes for a “Good Death” Among Xhosa Patients Pre- and Post-Death |
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