Transition From Pediatric to Adult Care in Sickle Cell Disease: Perspectives on the Family Role

Transition from pediatric to adult care poses challenges for adolescents with sickle cell disease (SCD). This study explored the transition perspectives of adolescents with SCD, their siblings, and caregivers. Focus groups were conducted with 12 African American families. Adolescents, siblings, and...

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Veröffentlicht in:	Journal of pediatric nursing 2014-03, Vol.29 (2), p.158-167
Hauptverfasser:	Porter, Jerlym S., Graff, J. Carolyn, Lopez, Alana D., Hankins, Jane S.
Format:	Artikel
Sprache:	eng
Schlagworte:	Adolescent Adolescents Adult Adults African Americans Anemia, Sickle Cell - nursing Anemia, Sickle Cell - therapy Caregivers Carers Child Disease management Families & family life Family Health Family perspective Female Focus Groups Humans Male Middle Aged Nursing Paediatrics Pediatric Nursing Pediatrics Qualitative methods Qualitative research Siblings Sickle cell anaemia Sickle cell disease Transition to adult care Transition to Adult Care - organization & administration Transitions Young Adult
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