Parent and clinician preferences for location of end-of-life care: Home, hospital or freestanding hospice?
Background Current options for location of end‐of‐life (EOL) care for children with cancer include home, hospital, and freestanding pediatric hospice (FSPH). However, access to these options varies greatly depending on geographical location. We aimed to determine bereaved parent and clinician prefer...
Gespeichert in:
| Veröffentlicht in: | Pediatric blood & cancer 2014-05, Vol.61 (5), p.859-864 |
|---|---|
| Hauptverfasser: | , , , |
| Format: | Artikel |
| Sprache: | eng |
| Schlagworte: | |
| Online-Zugang: | Volltext |
| Tags: |
Tag hinzufügen
Keine Tags, Fügen Sie den ersten Tag hinzu!
|
| container_end_page | 864 |
|---|---|
| container_issue | 5 |
| container_start_page | 859 |
| container_title | Pediatric blood & cancer |
| container_volume | 61 |
| creator | Kassam, Alisha Skiadaresis, Julia Alexander, Sarah Wolfe, Joanne |
| description | Background
Current options for location of end‐of‐life (EOL) care for children with cancer include home, hospital, and freestanding pediatric hospice (FSPH). However, access to these options varies greatly depending on geographical location. We aimed to determine bereaved parent and clinician preferences for location to EOL care and death.
Procedure
We administered questionnaires to 75 bereaved parents (response rate 54%) and 48 pediatric oncology clinicians (response rate 91%) at a large teaching hospital. Main outcome measure was parent and clinician ranking for preferred location of EOL care and death if given the options of home, hospital or FSPH.
Results
Majority of parents and clinicians ranked home as their first choice for EOL care (70.2% and 87%, respectively) and death (70.8% and 89.1%, respectively). Compared to clinicians, parents gave a higher ranking to hospital (P |
| doi_str_mv | 10.1002/pbc.24872 |
| format | Article |
| fullrecord | <record><control><sourceid>proquest_cross</sourceid><recordid>TN_cdi_proquest_miscellaneous_1506403364</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><sourcerecordid>3240553681</sourcerecordid><originalsourceid>FETCH-LOGICAL-c3912-c6b5dd459ee801cbef0c60dd52f05f6e1c922869f748d3599f388bba6c3501b13</originalsourceid><addsrcrecordid>eNp1kV1PFTEQhhujkS8v-AOmiTeQuNCPbbfrjdETBQkBEiFcNt3uVHvc0y7tnij_3uLCuTDhaprp876ZmRehfUqOKCHseOzsEatVw16gbSpqUQlCm5ebN2m30E7Oy4JKItRrtMVqJgVt6DZaXpkEYcIm9NgOPnjrTcBjAgelbyFjFxMeojWTjwFHhyH0VXTV4B1gW8Qf8GlcwXv8M-bRT2bAhXcJIE_F04cf84eFj3volTNDhjePdRfdfP1yvTitzi9Pvi0-nVeWt5RVVnai72vRAihCbQeOWEn6XjBHhJNAbcuYkq1ratVz0baOK9V1Rlpe1u4o30UHs--Y4t26zKFXPlsYBhMgrrOmgsiacC7rgr77D13GdQplugdKEEWUZIU6nCmbYs7lNHpMfmXSvaZEPwSgSwD6XwCFffvouO5W0G_Ip4sX4HgGfvsB7p930lefF0-W1azweYI_G4VJv7RseCP07cWJvj7jXJ3R7_qW_wWBKp2b</addsrcrecordid><sourcetype>Aggregation Database</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>1505080862</pqid></control><display><type>article</type><title>Parent and clinician preferences for location of end-of-life care: Home, hospital or freestanding hospice?</title><source>MEDLINE</source><source>Wiley Online Library Journals Frontfile Complete</source><creator>Kassam, Alisha ; Skiadaresis, Julia ; Alexander, Sarah ; Wolfe, Joanne</creator><creatorcontrib>Kassam, Alisha ; Skiadaresis, Julia ; Alexander, Sarah ; Wolfe, Joanne</creatorcontrib><description>Background
Current options for location of end‐of‐life (EOL) care for children with cancer include home, hospital, and freestanding pediatric hospice (FSPH). However, access to these options varies greatly depending on geographical location. We aimed to determine bereaved parent and clinician preferences for location to EOL care and death.
Procedure
We administered questionnaires to 75 bereaved parents (response rate 54%) and 48 pediatric oncology clinicians (response rate 91%) at a large teaching hospital. Main outcome measure was parent and clinician ranking for preferred location of EOL care and death if given the options of home, hospital or FSPH.
Results
Majority of parents and clinicians ranked home as their first choice for EOL care (70.2% and 87%, respectively) and death (70.8% and 89.1%, respectively). Compared to clinicians, parents gave a higher ranking to hospital (P < 0.01) and lower ranking to FSPH (P < 0.01) as the preferred location for EOL care and death. Congruence between actual and preferred location of EOL care was more likely when a palliative care team was involved (P < 0.01) and less likely for children with haematologic malignancies (P = 0.03).
Conclusions
Parents and clinicians prefer home as the location for EOL care and death for children with cancer. Hospital based palliative care is a preferred alternative if home is not desired. FSPH is a relatively recent phenomena and further research needs to be directed towards understanding its cost benefit in comparison to home and hospital‐based EOL care. Pediatr Blood Cancer 2014;61:859–864. © 2013 Wiley Periodicals, Inc.</description><identifier>ISSN: 1545-5009</identifier><identifier>EISSN: 1545-5017</identifier><identifier>DOI: 10.1002/pbc.24872</identifier><identifier>PMID: 24265171</identifier><language>eng</language><publisher>United States: Blackwell Publishing Ltd</publisher><subject>Adolescent ; Attitude to Death ; Child ; Child, Preschool ; Choice Behavior ; end of life care ; Female ; Follow-Up Studies ; Hematology ; Home Care Services ; Hospice Care - organization & administration ; Hospitals ; Humans ; Male ; Neoplasms - psychology ; Neoplasms - therapy ; Oncology ; paediatric oncology ; palliative care ; Parents - psychology ; Pediatrics ; Physicians - psychology ; Prognosis ; Quality of Life ; Residence Characteristics - statistics & numerical data ; Surveys and Questionnaires ; Terminal Care - psychology</subject><ispartof>Pediatric blood & cancer, 2014-05, Vol.61 (5), p.859-864</ispartof><rights>2013 Wiley Periodicals, Inc.</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c3912-c6b5dd459ee801cbef0c60dd52f05f6e1c922869f748d3599f388bba6c3501b13</citedby><cites>FETCH-LOGICAL-c3912-c6b5dd459ee801cbef0c60dd52f05f6e1c922869f748d3599f388bba6c3501b13</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1002%2Fpbc.24872$$EPDF$$P50$$Gwiley$$H</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1002%2Fpbc.24872$$EHTML$$P50$$Gwiley$$H</linktohtml><link.rule.ids>314,776,780,1411,27901,27902,45550,45551</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/24265171$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Kassam, Alisha</creatorcontrib><creatorcontrib>Skiadaresis, Julia</creatorcontrib><creatorcontrib>Alexander, Sarah</creatorcontrib><creatorcontrib>Wolfe, Joanne</creatorcontrib><title>Parent and clinician preferences for location of end-of-life care: Home, hospital or freestanding hospice?</title><title>Pediatric blood & cancer</title><addtitle>Pediatr Blood Cancer</addtitle><description>Background
Current options for location of end‐of‐life (EOL) care for children with cancer include home, hospital, and freestanding pediatric hospice (FSPH). However, access to these options varies greatly depending on geographical location. We aimed to determine bereaved parent and clinician preferences for location to EOL care and death.
Procedure
We administered questionnaires to 75 bereaved parents (response rate 54%) and 48 pediatric oncology clinicians (response rate 91%) at a large teaching hospital. Main outcome measure was parent and clinician ranking for preferred location of EOL care and death if given the options of home, hospital or FSPH.
Results
Majority of parents and clinicians ranked home as their first choice for EOL care (70.2% and 87%, respectively) and death (70.8% and 89.1%, respectively). Compared to clinicians, parents gave a higher ranking to hospital (P < 0.01) and lower ranking to FSPH (P < 0.01) as the preferred location for EOL care and death. Congruence between actual and preferred location of EOL care was more likely when a palliative care team was involved (P < 0.01) and less likely for children with haematologic malignancies (P = 0.03).
Conclusions
Parents and clinicians prefer home as the location for EOL care and death for children with cancer. Hospital based palliative care is a preferred alternative if home is not desired. FSPH is a relatively recent phenomena and further research needs to be directed towards understanding its cost benefit in comparison to home and hospital‐based EOL care. Pediatr Blood Cancer 2014;61:859–864. © 2013 Wiley Periodicals, Inc.</description><subject>Adolescent</subject><subject>Attitude to Death</subject><subject>Child</subject><subject>Child, Preschool</subject><subject>Choice Behavior</subject><subject>end of life care</subject><subject>Female</subject><subject>Follow-Up Studies</subject><subject>Hematology</subject><subject>Home Care Services</subject><subject>Hospice Care - organization & administration</subject><subject>Hospitals</subject><subject>Humans</subject><subject>Male</subject><subject>Neoplasms - psychology</subject><subject>Neoplasms - therapy</subject><subject>Oncology</subject><subject>paediatric oncology</subject><subject>palliative care</subject><subject>Parents - psychology</subject><subject>Pediatrics</subject><subject>Physicians - psychology</subject><subject>Prognosis</subject><subject>Quality of Life</subject><subject>Residence Characteristics - statistics & numerical data</subject><subject>Surveys and Questionnaires</subject><subject>Terminal Care - psychology</subject><issn>1545-5009</issn><issn>1545-5017</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2014</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNp1kV1PFTEQhhujkS8v-AOmiTeQuNCPbbfrjdETBQkBEiFcNt3uVHvc0y7tnij_3uLCuTDhaprp876ZmRehfUqOKCHseOzsEatVw16gbSpqUQlCm5ebN2m30E7Oy4JKItRrtMVqJgVt6DZaXpkEYcIm9NgOPnjrTcBjAgelbyFjFxMeojWTjwFHhyH0VXTV4B1gW8Qf8GlcwXv8M-bRT2bAhXcJIE_F04cf84eFj3volTNDhjePdRfdfP1yvTitzi9Pvi0-nVeWt5RVVnai72vRAihCbQeOWEn6XjBHhJNAbcuYkq1ratVz0baOK9V1Rlpe1u4o30UHs--Y4t26zKFXPlsYBhMgrrOmgsiacC7rgr77D13GdQplugdKEEWUZIU6nCmbYs7lNHpMfmXSvaZEPwSgSwD6XwCFffvouO5W0G_Ip4sX4HgGfvsB7p930lefF0-W1azweYI_G4VJv7RseCP07cWJvj7jXJ3R7_qW_wWBKp2b</recordid><startdate>201405</startdate><enddate>201405</enddate><creator>Kassam, Alisha</creator><creator>Skiadaresis, Julia</creator><creator>Alexander, Sarah</creator><creator>Wolfe, Joanne</creator><general>Blackwell Publishing Ltd</general><general>Wiley Subscription Services, Inc</general><scope>BSCLL</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7T5</scope><scope>7TK</scope><scope>7TO</scope><scope>8FD</scope><scope>FR3</scope><scope>H94</scope><scope>K9.</scope><scope>P64</scope><scope>RC3</scope><scope>7X8</scope></search><sort><creationdate>201405</creationdate><title>Parent and clinician preferences for location of end-of-life care: Home, hospital or freestanding hospice?</title><author>Kassam, Alisha ; Skiadaresis, Julia ; Alexander, Sarah ; Wolfe, Joanne</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c3912-c6b5dd459ee801cbef0c60dd52f05f6e1c922869f748d3599f388bba6c3501b13</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2014</creationdate><topic>Adolescent</topic><topic>Attitude to Death</topic><topic>Child</topic><topic>Child, Preschool</topic><topic>Choice Behavior</topic><topic>end of life care</topic><topic>Female</topic><topic>Follow-Up Studies</topic><topic>Hematology</topic><topic>Home Care Services</topic><topic>Hospice Care - organization & administration</topic><topic>Hospitals</topic><topic>Humans</topic><topic>Male</topic><topic>Neoplasms - psychology</topic><topic>Neoplasms - therapy</topic><topic>Oncology</topic><topic>paediatric oncology</topic><topic>palliative care</topic><topic>Parents - psychology</topic><topic>Pediatrics</topic><topic>Physicians - psychology</topic><topic>Prognosis</topic><topic>Quality of Life</topic><topic>Residence Characteristics - statistics & numerical data</topic><topic>Surveys and Questionnaires</topic><topic>Terminal Care - psychology</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Kassam, Alisha</creatorcontrib><creatorcontrib>Skiadaresis, Julia</creatorcontrib><creatorcontrib>Alexander, Sarah</creatorcontrib><creatorcontrib>Wolfe, Joanne</creatorcontrib><collection>Istex</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Immunology Abstracts</collection><collection>Neurosciences Abstracts</collection><collection>Oncogenes and Growth Factors Abstracts</collection><collection>Technology Research Database</collection><collection>Engineering Research Database</collection><collection>AIDS and Cancer Research Abstracts</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Biotechnology and BioEngineering Abstracts</collection><collection>Genetics Abstracts</collection><collection>MEDLINE - Academic</collection><jtitle>Pediatric blood & cancer</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Kassam, Alisha</au><au>Skiadaresis, Julia</au><au>Alexander, Sarah</au><au>Wolfe, Joanne</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Parent and clinician preferences for location of end-of-life care: Home, hospital or freestanding hospice?</atitle><jtitle>Pediatric blood & cancer</jtitle><addtitle>Pediatr Blood Cancer</addtitle><date>2014-05</date><risdate>2014</risdate><volume>61</volume><issue>5</issue><spage>859</spage><epage>864</epage><pages>859-864</pages><issn>1545-5009</issn><eissn>1545-5017</eissn><abstract>Background
Current options for location of end‐of‐life (EOL) care for children with cancer include home, hospital, and freestanding pediatric hospice (FSPH). However, access to these options varies greatly depending on geographical location. We aimed to determine bereaved parent and clinician preferences for location to EOL care and death.
Procedure
We administered questionnaires to 75 bereaved parents (response rate 54%) and 48 pediatric oncology clinicians (response rate 91%) at a large teaching hospital. Main outcome measure was parent and clinician ranking for preferred location of EOL care and death if given the options of home, hospital or FSPH.
Results
Majority of parents and clinicians ranked home as their first choice for EOL care (70.2% and 87%, respectively) and death (70.8% and 89.1%, respectively). Compared to clinicians, parents gave a higher ranking to hospital (P < 0.01) and lower ranking to FSPH (P < 0.01) as the preferred location for EOL care and death. Congruence between actual and preferred location of EOL care was more likely when a palliative care team was involved (P < 0.01) and less likely for children with haematologic malignancies (P = 0.03).
Conclusions
Parents and clinicians prefer home as the location for EOL care and death for children with cancer. Hospital based palliative care is a preferred alternative if home is not desired. FSPH is a relatively recent phenomena and further research needs to be directed towards understanding its cost benefit in comparison to home and hospital‐based EOL care. Pediatr Blood Cancer 2014;61:859–864. © 2013 Wiley Periodicals, Inc.</abstract><cop>United States</cop><pub>Blackwell Publishing Ltd</pub><pmid>24265171</pmid><doi>10.1002/pbc.24872</doi><tpages>6</tpages></addata></record> |
| fulltext | fulltext |
| identifier | ISSN: 1545-5009 |
| ispartof | Pediatric blood & cancer, 2014-05, Vol.61 (5), p.859-864 |
| issn | 1545-5009 1545-5017 |
| language | eng |
| recordid | cdi_proquest_miscellaneous_1506403364 |
| source | MEDLINE; Wiley Online Library Journals Frontfile Complete |
| subjects | Adolescent Attitude to Death Child Child, Preschool Choice Behavior end of life care Female Follow-Up Studies Hematology Home Care Services Hospice Care - organization & administration Hospitals Humans Male Neoplasms - psychology Neoplasms - therapy Oncology paediatric oncology palliative care Parents - psychology Pediatrics Physicians - psychology Prognosis Quality of Life Residence Characteristics - statistics & numerical data Surveys and Questionnaires Terminal Care - psychology |
| title | Parent and clinician preferences for location of end-of-life care: Home, hospital or freestanding hospice? |
| url | https://sfx.bib-bvb.de/sfx_tum?ctx_ver=Z39.88-2004&ctx_enc=info:ofi/enc:UTF-8&ctx_tim=2025-02-06T14%3A34%3A46IST&url_ver=Z39.88-2004&url_ctx_fmt=infofi/fmt:kev:mtx:ctx&rfr_id=info:sid/primo.exlibrisgroup.com:primo3-Article-proquest_cross&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.genre=article&rft.atitle=Parent%20and%20clinician%20preferences%20for%20location%20of%20end-of-life%20care:%20Home,%20hospital%20or%20freestanding%20hospice?&rft.jtitle=Pediatric%20blood%20&%20cancer&rft.au=Kassam,%20Alisha&rft.date=2014-05&rft.volume=61&rft.issue=5&rft.spage=859&rft.epage=864&rft.pages=859-864&rft.issn=1545-5009&rft.eissn=1545-5017&rft_id=info:doi/10.1002/pbc.24872&rft_dat=%3Cproquest_cross%3E3240553681%3C/proquest_cross%3E%3Curl%3E%3C/url%3E&disable_directlink=true&sfx.directlink=off&sfx.report_link=0&rft_id=info:oai/&rft_pqid=1505080862&rft_id=info:pmid/24265171&rfr_iscdi=true |