The evaluation of a palliative care programme for people suffering from life-limiting diseases
Aims and objectives To report on the effectiveness of an eight‐week palliative care programme in Hong Kong. Background A recent survey reported that the quality of palliative care services in Hong Kong ranked the 20th among 40 countries and it is far behind other Asian countries. There are disagreem...
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| Veröffentlicht in: | Journal of clinical nursing 2014-01, Vol.23 (1-2), p.113-123 |
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| creator | Chan, Carmen WH Chui, Ying Yu Chair, Sek Ying Sham, Michael MK Lo, Raymond SK Ng, Catalina SM Chan, Helen YL Lai, David CY |
| description | Aims and objectives
To report on the effectiveness of an eight‐week palliative care programme in Hong Kong.
Background
A recent survey reported that the quality of palliative care services in Hong Kong ranked the 20th among 40 countries and it is far behind other Asian countries. There are disagreement and inadequate communication in clinical decision‐making among patients, families and healthcare professionals, and that the nurses lack sufficient knowledge and skills in providing palliative care and advance care planning.
Design
A pretest post‐test design and semi‐structured interviews were adopted.
Methods
A total of 108 home care patients with life‐limiting disease and their family caregivers in Hong Kong were recruited to complete a set of questionnaire including The McGill Quality of Life Questionnaire for Hong Kong Chinese and the Family Satisfaction Scale before and after they attended an eight‐week programme. The programme comprised the elements of symptom management, intensive communication on advance care planning and psychosocial intervention.
Results
Pearson's chi‐square tests and Wilcoxon matched paired tests show a general trend that the patients' quality of life was improved after the programme. Their understanding and active participation in advance care planning was also improved. The hospital readmission rate and the days of hospital stays were significantly reduced. In qualitative interview, four major themes were identified that are as follows: improvement in the communication of treatment plans and after‐death arrangements, symptom management, emotional support and suggested areas of improvement.
Conclusion
The study supports the benefit of implementing a palliative care programme to patients with life‐limiting disease. Patients demonstrated improved understanding and changed behaviour as regards the preparation for death and dying after the eight‐week programme.
Relevance to clinical practice
The programme could be replicated in other hospitals and infirmaries that offer home care services. |
| doi_str_mv | 10.1111/jocn.12094 |
| format | Article |
| fullrecord | <record><control><sourceid>proquest_cross</sourceid><recordid>TN_cdi_proquest_miscellaneous_1499094201</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><sourcerecordid>3159965631</sourcerecordid><originalsourceid>FETCH-LOGICAL-c4584-bb629916082778f518e1a473d37e39f58f842ca5fe1c56c678abc8eb336821673</originalsourceid><addsrcrecordid>eNqF0c1rFDEUAPAgil2rF_8ACYggwtR8TZI5ymKr0o9LRfBgyGRfatbMZEx2qv3vzbrbCh40l5Dwe-8l7yH0lJIjWtfrdXLjEWWkE_fQgnLZNkwRdh8tSCdZQ4lUB-hRKWtCKGeMP0QHjCvFGWUL9OXyK2C4tnG2m5BGnDy2eLIxhnq-BuxsBjzldJXtMAD2KeMJ0hQBl9l7yGG8wj6nAcfgoYlhCJvt1SoUsAXKY_TA21jgyX4_RB-P314u3zWnFyfvl29OGydaLZq-l6zrqCSaKaV9SzVQKxRfcQW88632WjBnWw_UtdJJpW3vNPScS82oVPwQvdzlrU_9PkPZmCEUBzHaEdJcDBVdV_vDagf-T6XkSggmKn3-F12nOY_1I1vVEapZq6t6tVMup1IyeDPlMNh8Yygx2wGZ7YDM7wFV_Gyfcu4HWN3R24lU8GIPbHE2-mxHF8ofpzmhgrTV0Z37ESLc_KOk-XCxPL8t3uxiQtnAz7sYm7-Z2kPVmk_nJ4aL7uzzmT42lP8CQGK1Iw</addsrcrecordid><sourcetype>Aggregation Database</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>1469018258</pqid></control><display><type>article</type><title>The evaluation of a palliative care programme for people suffering from life-limiting diseases</title><source>MEDLINE</source><source>Wiley Online Library Journals Frontfile Complete</source><creator>Chan, Carmen WH ; Chui, Ying Yu ; Chair, Sek Ying ; Sham, Michael MK ; Lo, Raymond SK ; Ng, Catalina SM ; Chan, Helen YL ; Lai, David CY</creator><creatorcontrib>Chan, Carmen WH ; Chui, Ying Yu ; Chair, Sek Ying ; Sham, Michael MK ; Lo, Raymond SK ; Ng, Catalina SM ; Chan, Helen YL ; Lai, David CY</creatorcontrib><description>Aims and objectives
To report on the effectiveness of an eight‐week palliative care programme in Hong Kong.
Background
A recent survey reported that the quality of palliative care services in Hong Kong ranked the 20th among 40 countries and it is far behind other Asian countries. There are disagreement and inadequate communication in clinical decision‐making among patients, families and healthcare professionals, and that the nurses lack sufficient knowledge and skills in providing palliative care and advance care planning.
Design
A pretest post‐test design and semi‐structured interviews were adopted.
Methods
A total of 108 home care patients with life‐limiting disease and their family caregivers in Hong Kong were recruited to complete a set of questionnaire including The McGill Quality of Life Questionnaire for Hong Kong Chinese and the Family Satisfaction Scale before and after they attended an eight‐week programme. The programme comprised the elements of symptom management, intensive communication on advance care planning and psychosocial intervention.
Results
Pearson's chi‐square tests and Wilcoxon matched paired tests show a general trend that the patients' quality of life was improved after the programme. Their understanding and active participation in advance care planning was also improved. The hospital readmission rate and the days of hospital stays were significantly reduced. In qualitative interview, four major themes were identified that are as follows: improvement in the communication of treatment plans and after‐death arrangements, symptom management, emotional support and suggested areas of improvement.
Conclusion
The study supports the benefit of implementing a palliative care programme to patients with life‐limiting disease. Patients demonstrated improved understanding and changed behaviour as regards the preparation for death and dying after the eight‐week programme.
Relevance to clinical practice
The programme could be replicated in other hospitals and infirmaries that offer home care services.</description><identifier>ISSN: 0962-1067</identifier><identifier>EISSN: 1365-2702</identifier><identifier>DOI: 10.1111/jocn.12094</identifier><identifier>PMID: 23773212</identifier><language>eng</language><publisher>Oxford: Blackwell Publishing Ltd</publisher><subject>advance care planning ; advance directive ; Aged ; Aged, 80 and over ; Biological and medical sciences ; Caregivers ; Decision making ; Female ; Home health care ; Hong Kong ; Humans ; Male ; Medical sciences ; Middle Aged ; Miscellaneous ; Nursing ; Palliative care ; Palliative Care - organization & administration ; Public health. Hygiene ; Public health. Hygiene-occupational medicine ; Quality of care ; Social support ; Surveys and Questionnaires ; Terminally Ill</subject><ispartof>Journal of clinical nursing, 2014-01, Vol.23 (1-2), p.113-123</ispartof><rights>2013 John Wiley & Sons Ltd</rights><rights>2013 John Wiley & Sons Ltd.</rights><rights>Copyright Blackwell Publishing Ltd. Jan 2014</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c4584-bb629916082778f518e1a473d37e39f58f842ca5fe1c56c678abc8eb336821673</citedby><cites>FETCH-LOGICAL-c4584-bb629916082778f518e1a473d37e39f58f842ca5fe1c56c678abc8eb336821673</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1111%2Fjocn.12094$$EPDF$$P50$$Gwiley$$H</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1111%2Fjocn.12094$$EHTML$$P50$$Gwiley$$H</linktohtml><link.rule.ids>314,776,780,1411,4010,27900,27901,27902,45550,45551</link.rule.ids><backlink>$$Uhttp://pascal-francis.inist.fr/vibad/index.php?action=getRecordDetail&idt=28301405$$DView record in Pascal Francis$$Hfree_for_read</backlink><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/23773212$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Chan, Carmen WH</creatorcontrib><creatorcontrib>Chui, Ying Yu</creatorcontrib><creatorcontrib>Chair, Sek Ying</creatorcontrib><creatorcontrib>Sham, Michael MK</creatorcontrib><creatorcontrib>Lo, Raymond SK</creatorcontrib><creatorcontrib>Ng, Catalina SM</creatorcontrib><creatorcontrib>Chan, Helen YL</creatorcontrib><creatorcontrib>Lai, David CY</creatorcontrib><title>The evaluation of a palliative care programme for people suffering from life-limiting diseases</title><title>Journal of clinical nursing</title><addtitle>J Clin Nurs</addtitle><description>Aims and objectives
To report on the effectiveness of an eight‐week palliative care programme in Hong Kong.
Background
A recent survey reported that the quality of palliative care services in Hong Kong ranked the 20th among 40 countries and it is far behind other Asian countries. There are disagreement and inadequate communication in clinical decision‐making among patients, families and healthcare professionals, and that the nurses lack sufficient knowledge and skills in providing palliative care and advance care planning.
Design
A pretest post‐test design and semi‐structured interviews were adopted.
Methods
A total of 108 home care patients with life‐limiting disease and their family caregivers in Hong Kong were recruited to complete a set of questionnaire including The McGill Quality of Life Questionnaire for Hong Kong Chinese and the Family Satisfaction Scale before and after they attended an eight‐week programme. The programme comprised the elements of symptom management, intensive communication on advance care planning and psychosocial intervention.
Results
Pearson's chi‐square tests and Wilcoxon matched paired tests show a general trend that the patients' quality of life was improved after the programme. Their understanding and active participation in advance care planning was also improved. The hospital readmission rate and the days of hospital stays were significantly reduced. In qualitative interview, four major themes were identified that are as follows: improvement in the communication of treatment plans and after‐death arrangements, symptom management, emotional support and suggested areas of improvement.
Conclusion
The study supports the benefit of implementing a palliative care programme to patients with life‐limiting disease. Patients demonstrated improved understanding and changed behaviour as regards the preparation for death and dying after the eight‐week programme.
Relevance to clinical practice
The programme could be replicated in other hospitals and infirmaries that offer home care services.</description><subject>advance care planning</subject><subject>advance directive</subject><subject>Aged</subject><subject>Aged, 80 and over</subject><subject>Biological and medical sciences</subject><subject>Caregivers</subject><subject>Decision making</subject><subject>Female</subject><subject>Home health care</subject><subject>Hong Kong</subject><subject>Humans</subject><subject>Male</subject><subject>Medical sciences</subject><subject>Middle Aged</subject><subject>Miscellaneous</subject><subject>Nursing</subject><subject>Palliative care</subject><subject>Palliative Care - organization & administration</subject><subject>Public health. Hygiene</subject><subject>Public health. Hygiene-occupational medicine</subject><subject>Quality of care</subject><subject>Social support</subject><subject>Surveys and Questionnaires</subject><subject>Terminally Ill</subject><issn>0962-1067</issn><issn>1365-2702</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2014</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNqF0c1rFDEUAPAgil2rF_8ACYggwtR8TZI5ymKr0o9LRfBgyGRfatbMZEx2qv3vzbrbCh40l5Dwe-8l7yH0lJIjWtfrdXLjEWWkE_fQgnLZNkwRdh8tSCdZQ4lUB-hRKWtCKGeMP0QHjCvFGWUL9OXyK2C4tnG2m5BGnDy2eLIxhnq-BuxsBjzldJXtMAD2KeMJ0hQBl9l7yGG8wj6nAcfgoYlhCJvt1SoUsAXKY_TA21jgyX4_RB-P314u3zWnFyfvl29OGydaLZq-l6zrqCSaKaV9SzVQKxRfcQW88632WjBnWw_UtdJJpW3vNPScS82oVPwQvdzlrU_9PkPZmCEUBzHaEdJcDBVdV_vDagf-T6XkSggmKn3-F12nOY_1I1vVEapZq6t6tVMup1IyeDPlMNh8Yygx2wGZ7YDM7wFV_Gyfcu4HWN3R24lU8GIPbHE2-mxHF8ofpzmhgrTV0Z37ESLc_KOk-XCxPL8t3uxiQtnAz7sYm7-Z2kPVmk_nJ4aL7uzzmT42lP8CQGK1Iw</recordid><startdate>201401</startdate><enddate>201401</enddate><creator>Chan, Carmen WH</creator><creator>Chui, Ying Yu</creator><creator>Chair, Sek Ying</creator><creator>Sham, Michael MK</creator><creator>Lo, Raymond SK</creator><creator>Ng, Catalina SM</creator><creator>Chan, Helen YL</creator><creator>Lai, David CY</creator><general>Blackwell Publishing Ltd</general><general>Blackwell</general><general>Wiley Subscription Services, Inc</general><scope>BSCLL</scope><scope>IQODW</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>ASE</scope><scope>FPQ</scope><scope>K6X</scope><scope>NAPCQ</scope><scope>7X8</scope></search><sort><creationdate>201401</creationdate><title>The evaluation of a palliative care programme for people suffering from life-limiting diseases</title><author>Chan, Carmen WH ; Chui, Ying Yu ; Chair, Sek Ying ; Sham, Michael MK ; Lo, Raymond SK ; Ng, Catalina SM ; Chan, Helen YL ; Lai, David CY</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c4584-bb629916082778f518e1a473d37e39f58f842ca5fe1c56c678abc8eb336821673</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2014</creationdate><topic>advance care planning</topic><topic>advance directive</topic><topic>Aged</topic><topic>Aged, 80 and over</topic><topic>Biological and medical sciences</topic><topic>Caregivers</topic><topic>Decision making</topic><topic>Female</topic><topic>Home health care</topic><topic>Hong Kong</topic><topic>Humans</topic><topic>Male</topic><topic>Medical sciences</topic><topic>Middle Aged</topic><topic>Miscellaneous</topic><topic>Nursing</topic><topic>Palliative care</topic><topic>Palliative Care - organization & administration</topic><topic>Public health. Hygiene</topic><topic>Public health. Hygiene-occupational medicine</topic><topic>Quality of care</topic><topic>Social support</topic><topic>Surveys and Questionnaires</topic><topic>Terminally Ill</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Chan, Carmen WH</creatorcontrib><creatorcontrib>Chui, Ying Yu</creatorcontrib><creatorcontrib>Chair, Sek Ying</creatorcontrib><creatorcontrib>Sham, Michael MK</creatorcontrib><creatorcontrib>Lo, Raymond SK</creatorcontrib><creatorcontrib>Ng, Catalina SM</creatorcontrib><creatorcontrib>Chan, Helen YL</creatorcontrib><creatorcontrib>Lai, David CY</creatorcontrib><collection>Istex</collection><collection>Pascal-Francis</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>British Nursing Index</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>British Nursing Index</collection><collection>Nursing & Allied Health Premium</collection><collection>MEDLINE - Academic</collection><jtitle>Journal of clinical nursing</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Chan, Carmen WH</au><au>Chui, Ying Yu</au><au>Chair, Sek Ying</au><au>Sham, Michael MK</au><au>Lo, Raymond SK</au><au>Ng, Catalina SM</au><au>Chan, Helen YL</au><au>Lai, David CY</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>The evaluation of a palliative care programme for people suffering from life-limiting diseases</atitle><jtitle>Journal of clinical nursing</jtitle><addtitle>J Clin Nurs</addtitle><date>2014-01</date><risdate>2014</risdate><volume>23</volume><issue>1-2</issue><spage>113</spage><epage>123</epage><pages>113-123</pages><issn>0962-1067</issn><eissn>1365-2702</eissn><abstract>Aims and objectives
To report on the effectiveness of an eight‐week palliative care programme in Hong Kong.
Background
A recent survey reported that the quality of palliative care services in Hong Kong ranked the 20th among 40 countries and it is far behind other Asian countries. There are disagreement and inadequate communication in clinical decision‐making among patients, families and healthcare professionals, and that the nurses lack sufficient knowledge and skills in providing palliative care and advance care planning.
Design
A pretest post‐test design and semi‐structured interviews were adopted.
Methods
A total of 108 home care patients with life‐limiting disease and their family caregivers in Hong Kong were recruited to complete a set of questionnaire including The McGill Quality of Life Questionnaire for Hong Kong Chinese and the Family Satisfaction Scale before and after they attended an eight‐week programme. The programme comprised the elements of symptom management, intensive communication on advance care planning and psychosocial intervention.
Results
Pearson's chi‐square tests and Wilcoxon matched paired tests show a general trend that the patients' quality of life was improved after the programme. Their understanding and active participation in advance care planning was also improved. The hospital readmission rate and the days of hospital stays were significantly reduced. In qualitative interview, four major themes were identified that are as follows: improvement in the communication of treatment plans and after‐death arrangements, symptom management, emotional support and suggested areas of improvement.
Conclusion
The study supports the benefit of implementing a palliative care programme to patients with life‐limiting disease. Patients demonstrated improved understanding and changed behaviour as regards the preparation for death and dying after the eight‐week programme.
Relevance to clinical practice
The programme could be replicated in other hospitals and infirmaries that offer home care services.</abstract><cop>Oxford</cop><pub>Blackwell Publishing Ltd</pub><pmid>23773212</pmid><doi>10.1111/jocn.12094</doi><tpages>11</tpages></addata></record> |
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| ispartof | Journal of clinical nursing, 2014-01, Vol.23 (1-2), p.113-123 |
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| source | MEDLINE; Wiley Online Library Journals Frontfile Complete |
| subjects | advance care planning advance directive Aged Aged, 80 and over Biological and medical sciences Caregivers Decision making Female Home health care Hong Kong Humans Male Medical sciences Middle Aged Miscellaneous Nursing Palliative care Palliative Care - organization & administration Public health. Hygiene Public health. Hygiene-occupational medicine Quality of care Social support Surveys and Questionnaires Terminally Ill |
| title | The evaluation of a palliative care programme for people suffering from life-limiting diseases |
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