Experiences of mothers of infants with congenital heart disease before, during, and after complex cardiac surgery
Abstract Objective Experiences of mothers of infants undergoing complex heart surgery were explored to build evidence-based family-centered interventions. Background Congenital heart disease is the most frequent birth defect in the United States and is common worldwide. Methods Eight mothers recalle...
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| Veröffentlicht in: | Heart & lung 2013-11, Vol.42 (6), p.399-406 |
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| creator | Harvey, Kayla A., MSN, ARNP Kovalesky, Andrea, PhD, RN Woods, Ronald K., MD, PhD Loan, Lori A., PhD, RN, FAAN |
| description | Abstract Objective Experiences of mothers of infants undergoing complex heart surgery were explored to build evidence-based family-centered interventions. Background Congenital heart disease is the most frequent birth defect in the United States and is common worldwide. Methods Eight mothers recalled through journal entries their experiences of the days before, during, and after their infant's surgery and shared advice for other mothers. Colaizzi's phenomenological method was utilized for data analysis. A validation survey of seven additional mothers from a support group occurred via email. Results Six themes were identified and validated: Feeling Intense Fluctuating Emotion; Navigating the Medical World; Dealing with the Unknown; Facing the Possibility of My Baby Dying, Finding Meaning and Spiritual Connection, and the umbrella theme of Mothering Through It All. Conclusions Through a clearer understanding of experiences as described by mothers, health-care providers may gain insight as to how to better support mothers of infants undergoing heart surgery. |
| doi_str_mv | 10.1016/j.hrtlng.2013.08.009 |
| format | Article |
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Background Congenital heart disease is the most frequent birth defect in the United States and is common worldwide. Methods Eight mothers recalled through journal entries their experiences of the days before, during, and after their infant's surgery and shared advice for other mothers. Colaizzi's phenomenological method was utilized for data analysis. A validation survey of seven additional mothers from a support group occurred via email. Results Six themes were identified and validated: Feeling Intense Fluctuating Emotion; Navigating the Medical World; Dealing with the Unknown; Facing the Possibility of My Baby Dying, Finding Meaning and Spiritual Connection, and the umbrella theme of Mothering Through It All. Conclusions Through a clearer understanding of experiences as described by mothers, health-care providers may gain insight as to how to better support mothers of infants undergoing heart surgery.</description><identifier>ISSN: 0147-9563</identifier><identifier>EISSN: 1527-3288</identifier><identifier>DOI: 10.1016/j.hrtlng.2013.08.009</identifier><identifier>PMID: 24064303</identifier><language>eng</language><publisher>United States: Mosby, Inc</publisher><subject>Attitude to Health ; Cardiac Surgical Procedures - nursing ; Cardiac Surgical Procedures - psychology ; Cardiovascular ; Congenital diseases ; Congenital heart defect ; Critical Care ; Data Collection ; Emotions ; Female ; Heart Defects, Congenital - surgery ; Heart surgery ; Humans ; Infant ; Infant, Newborn ; Journaling ; Mother ; Mothers ; Mothers - psychology ; Pediatric heart surgery ; Pediatrics ; Professional-Family Relations ; Pulmonary/Respiratory ; Qualitative ; Qualitative research ; Self-Help Groups ; United States</subject><ispartof>Heart & lung, 2013-11, Vol.42 (6), p.399-406</ispartof><rights>Elsevier Inc.</rights><rights>2013 Elsevier Inc.</rights><rights>Copyright © 2013 Elsevier Inc. All rights reserved.</rights><rights>Copyright Elsevier Science Ltd. Nov/Dec 2013</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c478t-53a242eaa89d149d7460dd31ab5c86f0e54599da538e9b30233ab43403c5cac63</citedby><cites>FETCH-LOGICAL-c478t-53a242eaa89d149d7460dd31ab5c86f0e54599da538e9b30233ab43403c5cac63</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktohtml>$$Uhttps://dx.doi.org/10.1016/j.hrtlng.2013.08.009$$EHTML$$P50$$Gelsevier$$H</linktohtml><link.rule.ids>315,781,785,3551,27929,27930,46000</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/24064303$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Harvey, Kayla A., MSN, ARNP</creatorcontrib><creatorcontrib>Kovalesky, Andrea, PhD, RN</creatorcontrib><creatorcontrib>Woods, Ronald K., MD, PhD</creatorcontrib><creatorcontrib>Loan, Lori A., PhD, RN, FAAN</creatorcontrib><title>Experiences of mothers of infants with congenital heart disease before, during, and after complex cardiac surgery</title><title>Heart & lung</title><addtitle>Heart Lung</addtitle><description>Abstract Objective Experiences of mothers of infants undergoing complex heart surgery were explored to build evidence-based family-centered interventions. Background Congenital heart disease is the most frequent birth defect in the United States and is common worldwide. Methods Eight mothers recalled through journal entries their experiences of the days before, during, and after their infant's surgery and shared advice for other mothers. Colaizzi's phenomenological method was utilized for data analysis. A validation survey of seven additional mothers from a support group occurred via email. Results Six themes were identified and validated: Feeling Intense Fluctuating Emotion; Navigating the Medical World; Dealing with the Unknown; Facing the Possibility of My Baby Dying, Finding Meaning and Spiritual Connection, and the umbrella theme of Mothering Through It All. Conclusions Through a clearer understanding of experiences as described by mothers, health-care providers may gain insight as to how to better support mothers of infants undergoing heart surgery.</description><subject>Attitude to Health</subject><subject>Cardiac Surgical Procedures - nursing</subject><subject>Cardiac Surgical Procedures - psychology</subject><subject>Cardiovascular</subject><subject>Congenital diseases</subject><subject>Congenital heart defect</subject><subject>Critical Care</subject><subject>Data Collection</subject><subject>Emotions</subject><subject>Female</subject><subject>Heart Defects, Congenital - surgery</subject><subject>Heart surgery</subject><subject>Humans</subject><subject>Infant</subject><subject>Infant, Newborn</subject><subject>Journaling</subject><subject>Mother</subject><subject>Mothers</subject><subject>Mothers - psychology</subject><subject>Pediatric heart surgery</subject><subject>Pediatrics</subject><subject>Professional-Family Relations</subject><subject>Pulmonary/Respiratory</subject><subject>Qualitative</subject><subject>Qualitative research</subject><subject>Self-Help Groups</subject><subject>United States</subject><issn>0147-9563</issn><issn>1527-3288</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2013</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNqNkk1v1DAQhi0EokvhHyBkiQuHJow_ktgXpKoqH1IlDsDZcuzJrpfE2doJdP892d0CUi_gi3145rVmniHkJYOSAavfbstNmvq4LjkwUYIqAfQjsmIVbwrBlXpMVsBkU-iqFmfkWc5bWI6om6fkjEuopQCxIrfXdztMAaPDTMeODuO0wXR8htjZOGX6M0wb6sa4xhgm29MN2jRRHzLajLTFbkx4Qf2cQlxfUBs9td2EaSkZdj3eUWeTD9bRPKc1pv1z8qSzfcYX9_c5-fb--uvVx-Lm84dPV5c3hZONmopKWC45Wqu0Z1L7RtbgvWC2rZyqO8BKVlp7WwmFuhXAhbCtFBKEq5x1tTgnb065uzTezpgnM4TssO9txHHOhsm6Bs2lUv-BSs2bRkG1oK8foNtxTnFp5EhBo7iQCyVPlEtjzgk7s0thsGlvGJiDPbM1J3vmYM-AMou9pezVffjcDuj_FP3WtQDvTgAug_sRMJnsju58SOgm48fwrx8eBrg-xOBs_x33mP_2YjI3YL4cNuiwQEwAcM1r8QvgKcGk</recordid><startdate>20131101</startdate><enddate>20131101</enddate><creator>Harvey, Kayla A., MSN, ARNP</creator><creator>Kovalesky, Andrea, PhD, RN</creator><creator>Woods, Ronald K., MD, PhD</creator><creator>Loan, Lori A., PhD, RN, FAAN</creator><general>Mosby, Inc</general><general>Elsevier Science Ltd</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>ASE</scope><scope>FPQ</scope><scope>K6X</scope><scope>NAPCQ</scope><scope>7X8</scope></search><sort><creationdate>20131101</creationdate><title>Experiences of mothers of infants with congenital heart disease before, during, and after complex cardiac surgery</title><author>Harvey, Kayla A., MSN, ARNP ; Kovalesky, Andrea, PhD, RN ; Woods, Ronald K., MD, PhD ; Loan, Lori A., PhD, RN, FAAN</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c478t-53a242eaa89d149d7460dd31ab5c86f0e54599da538e9b30233ab43403c5cac63</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2013</creationdate><topic>Attitude to Health</topic><topic>Cardiac Surgical Procedures - nursing</topic><topic>Cardiac Surgical Procedures - psychology</topic><topic>Cardiovascular</topic><topic>Congenital diseases</topic><topic>Congenital heart defect</topic><topic>Critical Care</topic><topic>Data Collection</topic><topic>Emotions</topic><topic>Female</topic><topic>Heart Defects, Congenital - surgery</topic><topic>Heart surgery</topic><topic>Humans</topic><topic>Infant</topic><topic>Infant, Newborn</topic><topic>Journaling</topic><topic>Mother</topic><topic>Mothers</topic><topic>Mothers - psychology</topic><topic>Pediatric heart surgery</topic><topic>Pediatrics</topic><topic>Professional-Family Relations</topic><topic>Pulmonary/Respiratory</topic><topic>Qualitative</topic><topic>Qualitative research</topic><topic>Self-Help Groups</topic><topic>United States</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Harvey, Kayla A., MSN, ARNP</creatorcontrib><creatorcontrib>Kovalesky, Andrea, PhD, RN</creatorcontrib><creatorcontrib>Woods, Ronald K., MD, PhD</creatorcontrib><creatorcontrib>Loan, Lori A., PhD, RN, FAAN</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>British Nursing Index</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>British Nursing Index</collection><collection>Nursing & Allied Health Premium</collection><collection>MEDLINE - Academic</collection><jtitle>Heart & lung</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Harvey, Kayla A., MSN, ARNP</au><au>Kovalesky, Andrea, PhD, RN</au><au>Woods, Ronald K., MD, PhD</au><au>Loan, Lori A., PhD, RN, FAAN</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Experiences of mothers of infants with congenital heart disease before, during, and after complex cardiac surgery</atitle><jtitle>Heart & lung</jtitle><addtitle>Heart Lung</addtitle><date>2013-11-01</date><risdate>2013</risdate><volume>42</volume><issue>6</issue><spage>399</spage><epage>406</epage><pages>399-406</pages><issn>0147-9563</issn><eissn>1527-3288</eissn><abstract>Abstract Objective Experiences of mothers of infants undergoing complex heart surgery were explored to build evidence-based family-centered interventions. Background Congenital heart disease is the most frequent birth defect in the United States and is common worldwide. Methods Eight mothers recalled through journal entries their experiences of the days before, during, and after their infant's surgery and shared advice for other mothers. Colaizzi's phenomenological method was utilized for data analysis. A validation survey of seven additional mothers from a support group occurred via email. Results Six themes were identified and validated: Feeling Intense Fluctuating Emotion; Navigating the Medical World; Dealing with the Unknown; Facing the Possibility of My Baby Dying, Finding Meaning and Spiritual Connection, and the umbrella theme of Mothering Through It All. Conclusions Through a clearer understanding of experiences as described by mothers, health-care providers may gain insight as to how to better support mothers of infants undergoing heart surgery.</abstract><cop>United States</cop><pub>Mosby, Inc</pub><pmid>24064303</pmid><doi>10.1016/j.hrtlng.2013.08.009</doi><tpages>8</tpages></addata></record> |
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| subjects | Attitude to Health Cardiac Surgical Procedures - nursing Cardiac Surgical Procedures - psychology Cardiovascular Congenital diseases Congenital heart defect Critical Care Data Collection Emotions Female Heart Defects, Congenital - surgery Heart surgery Humans Infant Infant, Newborn Journaling Mother Mothers Mothers - psychology Pediatric heart surgery Pediatrics Professional-Family Relations Pulmonary/Respiratory Qualitative Qualitative research Self-Help Groups United States |
| title | Experiences of mothers of infants with congenital heart disease before, during, and after complex cardiac surgery |
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