Optimal Expectations and Limited Medical Testing: Evidence from Huntington Disease

We use novel data to study genetic testing among individuals at risk for Huntington disease (HD), a hereditary disease with limited life expectancy. Although genetic testing is perfectly predictive and carries little economic cost, presymptomatic testing is rare. Testing rates increase with increase...

Ausführliche Beschreibung

Gespeichert in:
Bibliographische Detailangaben
Veröffentlicht in:The American economic review 2013-04, Vol.103 (2), p.804-830
Hauptverfasser: Oster, Emily, Shoulson, Ira, Dorsey, E. Ray
Format: Artikel
Sprache:eng
Schlagworte:
Online-Zugang:Volltext
Tags: Tag hinzufügen
Keine Tags, Fügen Sie den ersten Tag hinzu!
container_end_page 830
container_issue 2
container_start_page 804
container_title The American economic review
container_volume 103
creator Oster, Emily
Shoulson, Ira
Dorsey, E. Ray
description We use novel data to study genetic testing among individuals at risk for Huntington disease (HD), a hereditary disease with limited life expectancy. Although genetic testing is perfectly predictive and carries little economic cost, presymptomatic testing is rare. Testing rates increase with increases in ex ante risk of having HD. Untested individuals express optimistic beliefs about their health and make decisions (e.g., retirement) as if they do not have HD, even though individuals with confirmed HD behave differently. We suggest that these facts can be reconciled by an optimal expectations model (Brunnermeier and Parker 2005).
doi_str_mv 10.1257/aer.103.2.804
format Article
fullrecord <record><control><sourceid>jstor_proqu</sourceid><recordid>TN_cdi_proquest_miscellaneous_1335018537</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><jstor_id>23469683</jstor_id><sourcerecordid>23469683</sourcerecordid><originalsourceid>FETCH-LOGICAL-c489t-42d40b8b28384b9c127bfa031b2f41b98777c27e84426616850e49e76022bfc3</originalsourceid><addsrcrecordid>eNpd0E1LwzAYB_AgCs7p0aMQ8OKlM29tEm-i0wmTgewe0jSVjDatSSr67c2YePD0vPDj4eEPwCVGC0xKfqttWGBEF2QhEDsCMywZK7gU-BjMEEKkEESQU3AW4w7tZ8xn4G0zJtfrDi6_RmuSTm7wEWrfwLXrXbINfLWNMxlsbUzOv9_B5adrrDcWtmHo4Wry-3UaPHx00epoz8FJq7toL37rHGyfltuHVbHePL883K8Lw4RMBSMNQ7WoiaCC1dJgwutWI4pr0jJcS8E5N4RbwRipKlyJElkmLa8QIXVr6BzcHM6OYfiY8nOqd9HYrtPeDlNUmNISYVFSnun1P7obpuDzc1kRKrnMR7MqDsqEIcZgWzWGHE34VhipfcAqB5x7qojKAWd_dfC7mIbwhwlllawEpT9Z6HYx</addsrcrecordid><sourcetype>Aggregation Database</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>1323979602</pqid></control><display><type>article</type><title>Optimal Expectations and Limited Medical Testing: Evidence from Huntington Disease</title><source>Jstor Complete Legacy</source><source>Business Source Complete</source><source>American Economic Association Web</source><creator>Oster, Emily ; Shoulson, Ira ; Dorsey, E. Ray</creator><creatorcontrib>Oster, Emily ; Shoulson, Ira ; Dorsey, E. Ray</creatorcontrib><description>We use novel data to study genetic testing among individuals at risk for Huntington disease (HD), a hereditary disease with limited life expectancy. Although genetic testing is perfectly predictive and carries little economic cost, presymptomatic testing is rare. Testing rates increase with increases in ex ante risk of having HD. Untested individuals express optimistic beliefs about their health and make decisions (e.g., retirement) as if they do not have HD, even though individuals with confirmed HD behave differently. We suggest that these facts can be reconciled by an optimal expectations model (Brunnermeier and Parker 2005).</description><identifier>ISSN: 0002-8282</identifier><identifier>EISSN: 1944-7981</identifier><identifier>DOI: 10.1257/aer.103.2.804</identifier><identifier>CODEN: AENRAA</identifier><language>eng</language><publisher>Nashville: American Economic Association</publisher><subject>Age ; Behavior ; Decision making ; Disease models ; Diseases ; Economic models ; Funding ; Genetic disorders ; Genetic engineering ; Genetic mutation ; Genetic testing ; Health care ; Health economics ; Health risk assessment ; Human genetics ; Huntington disease ; Huntingtons disease ; Life expectancy ; Medical genetics ; Medical screening ; Medical treatment ; Pregnancy ; Probability ; Retirement ; Studies ; Symptoms ; Utilities costs</subject><ispartof>The American economic review, 2013-04, Vol.103 (2), p.804-830</ispartof><rights>Copyright© 2013 The American Economic Association</rights><rights>Copyright American Economic Association Apr 2013</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c489t-42d40b8b28384b9c127bfa031b2f41b98777c27e84426616850e49e76022bfc3</citedby><cites>FETCH-LOGICAL-c489t-42d40b8b28384b9c127bfa031b2f41b98777c27e84426616850e49e76022bfc3</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.jstor.org/stable/pdf/23469683$$EPDF$$P50$$Gjstor$$H</linktopdf><linktohtml>$$Uhttps://www.jstor.org/stable/23469683$$EHTML$$P50$$Gjstor$$H</linktohtml><link.rule.ids>314,776,780,799,3735,27901,27902,57992,58225</link.rule.ids></links><search><creatorcontrib>Oster, Emily</creatorcontrib><creatorcontrib>Shoulson, Ira</creatorcontrib><creatorcontrib>Dorsey, E. Ray</creatorcontrib><title>Optimal Expectations and Limited Medical Testing: Evidence from Huntington Disease</title><title>The American economic review</title><description>We use novel data to study genetic testing among individuals at risk for Huntington disease (HD), a hereditary disease with limited life expectancy. Although genetic testing is perfectly predictive and carries little economic cost, presymptomatic testing is rare. Testing rates increase with increases in ex ante risk of having HD. Untested individuals express optimistic beliefs about their health and make decisions (e.g., retirement) as if they do not have HD, even though individuals with confirmed HD behave differently. We suggest that these facts can be reconciled by an optimal expectations model (Brunnermeier and Parker 2005).</description><subject>Age</subject><subject>Behavior</subject><subject>Decision making</subject><subject>Disease models</subject><subject>Diseases</subject><subject>Economic models</subject><subject>Funding</subject><subject>Genetic disorders</subject><subject>Genetic engineering</subject><subject>Genetic mutation</subject><subject>Genetic testing</subject><subject>Health care</subject><subject>Health economics</subject><subject>Health risk assessment</subject><subject>Human genetics</subject><subject>Huntington disease</subject><subject>Huntingtons disease</subject><subject>Life expectancy</subject><subject>Medical genetics</subject><subject>Medical screening</subject><subject>Medical treatment</subject><subject>Pregnancy</subject><subject>Probability</subject><subject>Retirement</subject><subject>Studies</subject><subject>Symptoms</subject><subject>Utilities costs</subject><issn>0002-8282</issn><issn>1944-7981</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2013</creationdate><recordtype>article</recordtype><sourceid>8G5</sourceid><sourceid>BENPR</sourceid><sourceid>GUQSH</sourceid><sourceid>M2O</sourceid><recordid>eNpd0E1LwzAYB_AgCs7p0aMQ8OKlM29tEm-i0wmTgewe0jSVjDatSSr67c2YePD0vPDj4eEPwCVGC0xKfqttWGBEF2QhEDsCMywZK7gU-BjMEEKkEESQU3AW4w7tZ8xn4G0zJtfrDi6_RmuSTm7wEWrfwLXrXbINfLWNMxlsbUzOv9_B5adrrDcWtmHo4Wry-3UaPHx00epoz8FJq7toL37rHGyfltuHVbHePL883K8Lw4RMBSMNQ7WoiaCC1dJgwutWI4pr0jJcS8E5N4RbwRipKlyJElkmLa8QIXVr6BzcHM6OYfiY8nOqd9HYrtPeDlNUmNISYVFSnun1P7obpuDzc1kRKrnMR7MqDsqEIcZgWzWGHE34VhipfcAqB5x7qojKAWd_dfC7mIbwhwlllawEpT9Z6HYx</recordid><startdate>20130401</startdate><enddate>20130401</enddate><creator>Oster, Emily</creator><creator>Shoulson, Ira</creator><creator>Dorsey, E. Ray</creator><general>American Economic Association</general><scope>AAYXX</scope><scope>CITATION</scope><scope>0-V</scope><scope>3V.</scope><scope>7WY</scope><scope>7WZ</scope><scope>7X7</scope><scope>7XB</scope><scope>87Z</scope><scope>88C</scope><scope>88E</scope><scope>88J</scope><scope>8BJ</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>8FL</scope><scope>8G5</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>ALSLI</scope><scope>AZQEC</scope><scope>BENPR</scope><scope>BEZIV</scope><scope>CCPQU</scope><scope>DWQXO</scope><scope>FQK</scope><scope>FRNLG</scope><scope>FYUFA</scope><scope>F~G</scope><scope>GHDGH</scope><scope>GNUQQ</scope><scope>GUQSH</scope><scope>JBE</scope><scope>K60</scope><scope>K6~</scope><scope>K9.</scope><scope>L.-</scope><scope>M0C</scope><scope>M0S</scope><scope>M0T</scope><scope>M1P</scope><scope>M2O</scope><scope>M2R</scope><scope>MBDVC</scope><scope>PQBIZ</scope><scope>PQBZA</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>Q9U</scope></search><sort><creationdate>20130401</creationdate><title>Optimal Expectations and Limited Medical Testing: Evidence from Huntington Disease</title><author>Oster, Emily ; Shoulson, Ira ; Dorsey, E. Ray</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c489t-42d40b8b28384b9c127bfa031b2f41b98777c27e84426616850e49e76022bfc3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2013</creationdate><topic>Age</topic><topic>Behavior</topic><topic>Decision making</topic><topic>Disease models</topic><topic>Diseases</topic><topic>Economic models</topic><topic>Funding</topic><topic>Genetic disorders</topic><topic>Genetic engineering</topic><topic>Genetic mutation</topic><topic>Genetic testing</topic><topic>Health care</topic><topic>Health economics</topic><topic>Health risk assessment</topic><topic>Human genetics</topic><topic>Huntington disease</topic><topic>Huntingtons disease</topic><topic>Life expectancy</topic><topic>Medical genetics</topic><topic>Medical screening</topic><topic>Medical treatment</topic><topic>Pregnancy</topic><topic>Probability</topic><topic>Retirement</topic><topic>Studies</topic><topic>Symptoms</topic><topic>Utilities costs</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Oster, Emily</creatorcontrib><creatorcontrib>Shoulson, Ira</creatorcontrib><creatorcontrib>Dorsey, E. Ray</creatorcontrib><collection>CrossRef</collection><collection>ProQuest Social Sciences Premium Collection</collection><collection>ProQuest Central (Corporate)</collection><collection>ABI/INFORM Collection</collection><collection>ABI/INFORM Global (PDF only)</collection><collection>Health &amp; Medical Collection</collection><collection>ProQuest Central (purchase pre-March 2016)</collection><collection>ABI/INFORM Global (Alumni Edition)</collection><collection>Healthcare Administration Database (Alumni)</collection><collection>Medical Database (Alumni Edition)</collection><collection>Social Science Database (Alumni Edition)</collection><collection>International Bibliography of the Social Sciences (IBSS)</collection><collection>Hospital Premium Collection</collection><collection>Hospital Premium Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni) (purchase pre-March 2016)</collection><collection>ABI/INFORM Collection (Alumni Edition)</collection><collection>Research Library (Alumni Edition)</collection><collection>ProQuest Central (Alumni Edition)</collection><collection>ProQuest Central UK/Ireland</collection><collection>Social Science Premium Collection</collection><collection>ProQuest Central Essentials</collection><collection>ProQuest Central</collection><collection>Business Premium Collection</collection><collection>ProQuest One Community College</collection><collection>ProQuest Central Korea</collection><collection>International Bibliography of the Social Sciences</collection><collection>Business Premium Collection (Alumni)</collection><collection>Health Research Premium Collection</collection><collection>ABI/INFORM Global (Corporate)</collection><collection>Health Research Premium Collection (Alumni)</collection><collection>ProQuest Central Student</collection><collection>Research Library Prep</collection><collection>International Bibliography of the Social Sciences</collection><collection>ProQuest Business Collection (Alumni Edition)</collection><collection>ProQuest Business Collection</collection><collection>ProQuest Health &amp; Medical Complete (Alumni)</collection><collection>ABI/INFORM Professional Advanced</collection><collection>ABI/INFORM Global</collection><collection>Health &amp; Medical Collection (Alumni Edition)</collection><collection>Healthcare Administration Database</collection><collection>Medical Database</collection><collection>Research Library</collection><collection>Social Science Database</collection><collection>Research Library (Corporate)</collection><collection>ProQuest One Business</collection><collection>ProQuest One Business (Alumni)</collection><collection>ProQuest One Academic Eastern Edition (DO NOT USE)</collection><collection>ProQuest One Academic</collection><collection>ProQuest One Academic UKI Edition</collection><collection>ProQuest Central Basic</collection><jtitle>The American economic review</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Oster, Emily</au><au>Shoulson, Ira</au><au>Dorsey, E. Ray</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Optimal Expectations and Limited Medical Testing: Evidence from Huntington Disease</atitle><jtitle>The American economic review</jtitle><date>2013-04-01</date><risdate>2013</risdate><volume>103</volume><issue>2</issue><spage>804</spage><epage>830</epage><pages>804-830</pages><issn>0002-8282</issn><eissn>1944-7981</eissn><coden>AENRAA</coden><abstract>We use novel data to study genetic testing among individuals at risk for Huntington disease (HD), a hereditary disease with limited life expectancy. Although genetic testing is perfectly predictive and carries little economic cost, presymptomatic testing is rare. Testing rates increase with increases in ex ante risk of having HD. Untested individuals express optimistic beliefs about their health and make decisions (e.g., retirement) as if they do not have HD, even though individuals with confirmed HD behave differently. We suggest that these facts can be reconciled by an optimal expectations model (Brunnermeier and Parker 2005).</abstract><cop>Nashville</cop><pub>American Economic Association</pub><doi>10.1257/aer.103.2.804</doi><tpages>27</tpages><oa>free_for_read</oa></addata></record>
fulltext fulltext
identifier ISSN: 0002-8282
ispartof The American economic review, 2013-04, Vol.103 (2), p.804-830
issn 0002-8282
1944-7981
language eng
recordid cdi_proquest_miscellaneous_1335018537
source Jstor Complete Legacy; Business Source Complete; American Economic Association Web
subjects Age
Behavior
Decision making
Disease models
Diseases
Economic models
Funding
Genetic disorders
Genetic engineering
Genetic mutation
Genetic testing
Health care
Health economics
Health risk assessment
Human genetics
Huntington disease
Huntingtons disease
Life expectancy
Medical genetics
Medical screening
Medical treatment
Pregnancy
Probability
Retirement
Studies
Symptoms
Utilities costs
title Optimal Expectations and Limited Medical Testing: Evidence from Huntington Disease
url https://sfx.bib-bvb.de/sfx_tum?ctx_ver=Z39.88-2004&ctx_enc=info:ofi/enc:UTF-8&ctx_tim=2025-02-12T21%3A43%3A49IST&url_ver=Z39.88-2004&url_ctx_fmt=infofi/fmt:kev:mtx:ctx&rfr_id=info:sid/primo.exlibrisgroup.com:primo3-Article-jstor_proqu&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.genre=article&rft.atitle=Optimal%20Expectations%20and%20Limited%20Medical%20Testing:%20Evidence%20from%20Huntington%20Disease&rft.jtitle=The%20American%20economic%20review&rft.au=Oster,%20Emily&rft.date=2013-04-01&rft.volume=103&rft.issue=2&rft.spage=804&rft.epage=830&rft.pages=804-830&rft.issn=0002-8282&rft.eissn=1944-7981&rft.coden=AENRAA&rft_id=info:doi/10.1257/aer.103.2.804&rft_dat=%3Cjstor_proqu%3E23469683%3C/jstor_proqu%3E%3Curl%3E%3C/url%3E&disable_directlink=true&sfx.directlink=off&sfx.report_link=0&rft_id=info:oai/&rft_pqid=1323979602&rft_id=info:pmid/&rft_jstor_id=23469683&rfr_iscdi=true