Feelings of women regarding end-of-life decision making after ultrasound diagnosis of a lethal fetal malformation
this study investigated the feelings of women regarding end-of-life decision making after ultrasound diagnosis of a lethal fetal malformation. The aim of this study was to present the decision making process of women that chose for pregnancy termination and to present selected speeches of women abou...
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| Veröffentlicht in: | Midwifery 2012-08, Vol.28 (4), p.412-415 |
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| creator | Benute, Gláucia R.G. Nomura, Roseli M.Y. Liao, Adolfo W. Brizot, Maria de Lourdes de Lucia, Mara C.S. Zugaib, M. |
| description | this study investigated the feelings of women regarding end-of-life decision making after ultrasound diagnosis of a lethal fetal malformation. The aim of this study was to present the decision making process of women that chose for pregnancy termination and to present selected speeches of women about their feelings.
open psychological interviews conducted by a psychologist immediately after the diagnosis of fetal malformation by ultrasound. Analysis of the results was performed through a content analysis technique.
the study was carried out at a public university hospital in Brazil.
249 pregnant women who had received the diagnosis of a severe lethal fetal malformation.
fetal anencephaly was the most frequent anomaly detected in 135 cases (54.3%). Termination of pregnancy was decided by 172 (69.1%) patients and legally authorised by the judiciary (66%). The reason for asking for termination was to reduce suffering in all of them. In the 77 women who chose not to terminate pregnancy (30.9%), the reasons were related to feelings of guilt (74%).
the results support the importance of psychological counselling for couples when lethal fetal malformation is diagnosed. The act of reviewing moral and cultural values and elements of the unconscious provides assurance in the decision-making process and mitigates the risk of emotional trauma and guilt that can continue long after the pregnancy is terminated. |
| doi_str_mv | 10.1016/j.midw.2011.06.011 |
| format | Article |
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open psychological interviews conducted by a psychologist immediately after the diagnosis of fetal malformation by ultrasound. Analysis of the results was performed through a content analysis technique.
the study was carried out at a public university hospital in Brazil.
249 pregnant women who had received the diagnosis of a severe lethal fetal malformation.
fetal anencephaly was the most frequent anomaly detected in 135 cases (54.3%). Termination of pregnancy was decided by 172 (69.1%) patients and legally authorised by the judiciary (66%). The reason for asking for termination was to reduce suffering in all of them. In the 77 women who chose not to terminate pregnancy (30.9%), the reasons were related to feelings of guilt (74%).
the results support the importance of psychological counselling for couples when lethal fetal malformation is diagnosed. The act of reviewing moral and cultural values and elements of the unconscious provides assurance in the decision-making process and mitigates the risk of emotional trauma and guilt that can continue long after the pregnancy is terminated.</description><identifier>ISSN: 0266-6138</identifier><identifier>EISSN: 1532-3099</identifier><identifier>DOI: 10.1016/j.midw.2011.06.011</identifier><identifier>PMID: 21820776</identifier><language>eng</language><publisher>Scotland: Elsevier Ltd</publisher><subject>Abortion ; Abortion, Eugenic - psychology ; Adaptation, Psychological ; Adult ; Brazil ; Congenital Abnormalities - diagnostic imaging ; Congenital Abnormalities - psychology ; Decision making ; Diagnosis ; End of life decisions ; Female ; Fetal abnormality ; Guilt ; Humans ; Mothers - psychology ; Nurse's Role ; Nurse-Patient Relations ; Nursing ; Nursing Methodology Research ; Object Attachment ; Patient Acceptance of Health Care - psychology ; Pregnancy ; Pregnant Women - psychology ; Social Support ; Ultrasonography, Prenatal - psychology ; Women ; Young Adult</subject><ispartof>Midwifery, 2012-08, Vol.28 (4), p.412-415</ispartof><rights>2011 Elsevier Ltd</rights><rights>Copyright © 2011 Elsevier Ltd. All rights reserved.</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c525t-c2ea3db700a35e14192f26be43bbbfd8977defc80e95a780d9bf4cd3e5a75f063</citedby><cites>FETCH-LOGICAL-c525t-c2ea3db700a35e14192f26be43bbbfd8977defc80e95a780d9bf4cd3e5a75f063</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktohtml>$$Uhttps://dx.doi.org/10.1016/j.midw.2011.06.011$$EHTML$$P50$$Gelsevier$$H</linktohtml><link.rule.ids>314,780,784,3550,27924,27925,31000,45995</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/21820776$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Benute, Gláucia R.G.</creatorcontrib><creatorcontrib>Nomura, Roseli M.Y.</creatorcontrib><creatorcontrib>Liao, Adolfo W.</creatorcontrib><creatorcontrib>Brizot, Maria de Lourdes</creatorcontrib><creatorcontrib>de Lucia, Mara C.S.</creatorcontrib><creatorcontrib>Zugaib, M.</creatorcontrib><title>Feelings of women regarding end-of-life decision making after ultrasound diagnosis of a lethal fetal malformation</title><title>Midwifery</title><addtitle>Midwifery</addtitle><description>this study investigated the feelings of women regarding end-of-life decision making after ultrasound diagnosis of a lethal fetal malformation. The aim of this study was to present the decision making process of women that chose for pregnancy termination and to present selected speeches of women about their feelings.
open psychological interviews conducted by a psychologist immediately after the diagnosis of fetal malformation by ultrasound. Analysis of the results was performed through a content analysis technique.
the study was carried out at a public university hospital in Brazil.
249 pregnant women who had received the diagnosis of a severe lethal fetal malformation.
fetal anencephaly was the most frequent anomaly detected in 135 cases (54.3%). Termination of pregnancy was decided by 172 (69.1%) patients and legally authorised by the judiciary (66%). The reason for asking for termination was to reduce suffering in all of them. In the 77 women who chose not to terminate pregnancy (30.9%), the reasons were related to feelings of guilt (74%).
the results support the importance of psychological counselling for couples when lethal fetal malformation is diagnosed. The act of reviewing moral and cultural values and elements of the unconscious provides assurance in the decision-making process and mitigates the risk of emotional trauma and guilt that can continue long after the pregnancy is terminated.</description><subject>Abortion</subject><subject>Abortion, Eugenic - psychology</subject><subject>Adaptation, Psychological</subject><subject>Adult</subject><subject>Brazil</subject><subject>Congenital Abnormalities - diagnostic imaging</subject><subject>Congenital Abnormalities - psychology</subject><subject>Decision making</subject><subject>Diagnosis</subject><subject>End of life decisions</subject><subject>Female</subject><subject>Fetal abnormality</subject><subject>Guilt</subject><subject>Humans</subject><subject>Mothers - psychology</subject><subject>Nurse's Role</subject><subject>Nurse-Patient Relations</subject><subject>Nursing</subject><subject>Nursing Methodology Research</subject><subject>Object Attachment</subject><subject>Patient Acceptance of Health Care - psychology</subject><subject>Pregnancy</subject><subject>Pregnant Women - psychology</subject><subject>Social Support</subject><subject>Ultrasonography, Prenatal - psychology</subject><subject>Women</subject><subject>Young Adult</subject><issn>0266-6138</issn><issn>1532-3099</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2012</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>7QJ</sourceid><recordid>eNqFkcFuFSEUhompsbfVF3BhWHYz0wNzB4bEjWlabdLEja4JA4crV2ZoYcbGty_XW13aDX-A73yL8xPynkHLgInLfTsF99hyYKwF0dZ4RTas73jTgVInZANciEawbjglZ6XsAUBtQb4hp5wNHKQUG_JwgxjDvCs0efqYJpxpxp3Jrr5RnF2TfBODR-rQhhLSTCfz8_Bn_IKZrnHJpqR1dtQFs5tTCX9MhkZcfphIPS71nEz0KU9mqYK35LU3seC75zwn32-uv119ae6-fr69-nTX2J73S2M5ms6NEsB0PbItU9xzMeK2G8fRu0FJ6dDbAVD1Rg7g1Oi31nVYb70H0Z2Ti6P3PqeHFcuip1AsxmhmTGvRjPGeD1xA_zIKXIqBSaUqyo-ozamUjF7f5zCZ_LtC-tCK3utDK_rQigaha9ShD8_-dZzQ_Rv5W0MFPh4BrAv5FTDrYgPOFl3IaBftUvif_wk4e5_P</recordid><startdate>20120801</startdate><enddate>20120801</enddate><creator>Benute, Gláucia R.G.</creator><creator>Nomura, Roseli M.Y.</creator><creator>Liao, Adolfo W.</creator><creator>Brizot, Maria de Lourdes</creator><creator>de Lucia, Mara C.S.</creator><creator>Zugaib, M.</creator><general>Elsevier Ltd</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope><scope>7QJ</scope></search><sort><creationdate>20120801</creationdate><title>Feelings of women regarding end-of-life decision making after ultrasound diagnosis of a lethal fetal malformation</title><author>Benute, Gláucia R.G. ; Nomura, Roseli M.Y. ; Liao, Adolfo W. ; Brizot, Maria de Lourdes ; de Lucia, Mara C.S. ; Zugaib, M.</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c525t-c2ea3db700a35e14192f26be43bbbfd8977defc80e95a780d9bf4cd3e5a75f063</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2012</creationdate><topic>Abortion</topic><topic>Abortion, Eugenic - psychology</topic><topic>Adaptation, Psychological</topic><topic>Adult</topic><topic>Brazil</topic><topic>Congenital Abnormalities - diagnostic imaging</topic><topic>Congenital Abnormalities - psychology</topic><topic>Decision making</topic><topic>Diagnosis</topic><topic>End of life decisions</topic><topic>Female</topic><topic>Fetal abnormality</topic><topic>Guilt</topic><topic>Humans</topic><topic>Mothers - psychology</topic><topic>Nurse's Role</topic><topic>Nurse-Patient Relations</topic><topic>Nursing</topic><topic>Nursing Methodology Research</topic><topic>Object Attachment</topic><topic>Patient Acceptance of Health Care - psychology</topic><topic>Pregnancy</topic><topic>Pregnant Women - psychology</topic><topic>Social Support</topic><topic>Ultrasonography, Prenatal - psychology</topic><topic>Women</topic><topic>Young Adult</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Benute, Gláucia R.G.</creatorcontrib><creatorcontrib>Nomura, Roseli M.Y.</creatorcontrib><creatorcontrib>Liao, Adolfo W.</creatorcontrib><creatorcontrib>Brizot, Maria de Lourdes</creatorcontrib><creatorcontrib>de Lucia, Mara C.S.</creatorcontrib><creatorcontrib>Zugaib, M.</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><collection>Applied Social Sciences Index & Abstracts (ASSIA)</collection><jtitle>Midwifery</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Benute, Gláucia R.G.</au><au>Nomura, Roseli M.Y.</au><au>Liao, Adolfo W.</au><au>Brizot, Maria de Lourdes</au><au>de Lucia, Mara C.S.</au><au>Zugaib, M.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Feelings of women regarding end-of-life decision making after ultrasound diagnosis of a lethal fetal malformation</atitle><jtitle>Midwifery</jtitle><addtitle>Midwifery</addtitle><date>2012-08-01</date><risdate>2012</risdate><volume>28</volume><issue>4</issue><spage>412</spage><epage>415</epage><pages>412-415</pages><issn>0266-6138</issn><eissn>1532-3099</eissn><abstract>this study investigated the feelings of women regarding end-of-life decision making after ultrasound diagnosis of a lethal fetal malformation. The aim of this study was to present the decision making process of women that chose for pregnancy termination and to present selected speeches of women about their feelings.
open psychological interviews conducted by a psychologist immediately after the diagnosis of fetal malformation by ultrasound. Analysis of the results was performed through a content analysis technique.
the study was carried out at a public university hospital in Brazil.
249 pregnant women who had received the diagnosis of a severe lethal fetal malformation.
fetal anencephaly was the most frequent anomaly detected in 135 cases (54.3%). Termination of pregnancy was decided by 172 (69.1%) patients and legally authorised by the judiciary (66%). The reason for asking for termination was to reduce suffering in all of them. In the 77 women who chose not to terminate pregnancy (30.9%), the reasons were related to feelings of guilt (74%).
the results support the importance of psychological counselling for couples when lethal fetal malformation is diagnosed. The act of reviewing moral and cultural values and elements of the unconscious provides assurance in the decision-making process and mitigates the risk of emotional trauma and guilt that can continue long after the pregnancy is terminated.</abstract><cop>Scotland</cop><pub>Elsevier Ltd</pub><pmid>21820776</pmid><doi>10.1016/j.midw.2011.06.011</doi><tpages>4</tpages></addata></record> |
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| subjects | Abortion Abortion, Eugenic - psychology Adaptation, Psychological Adult Brazil Congenital Abnormalities - diagnostic imaging Congenital Abnormalities - psychology Decision making Diagnosis End of life decisions Female Fetal abnormality Guilt Humans Mothers - psychology Nurse's Role Nurse-Patient Relations Nursing Nursing Methodology Research Object Attachment Patient Acceptance of Health Care - psychology Pregnancy Pregnant Women - psychology Social Support Ultrasonography, Prenatal - psychology Women Young Adult |
| title | Feelings of women regarding end-of-life decision making after ultrasound diagnosis of a lethal fetal malformation |
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