Videos on rhabdomyosarcoma on YouTube: an example of the availability of information on pediatric tumors on the web
Video-sharing sites have become increasingly important in recent years in providing information and orienting people's decisions relating to their health. Adolescents and their families use internet to obtain information on pediatric oncological diseases. We describe the availability and type o...
Gespeichert in:
| Veröffentlicht in: | Journal of pediatric hematology/oncology 2012-11, Vol.34 (8), p.e329-e331 |
|---|---|
| Hauptverfasser: | , , , , |
| Format: | Artikel |
| Sprache: | eng |
| Schlagworte: | |
| Online-Zugang: | Volltext |
| Tags: |
Tag hinzufügen
Keine Tags, Fügen Sie den ersten Tag hinzu!
|
| container_end_page | e331 |
|---|---|
| container_issue | 8 |
| container_start_page | e329 |
| container_title | Journal of pediatric hematology/oncology |
| container_volume | 34 |
| creator | Clerici, Carlo Alfredo Veneroni, Laura Bisogno, Gianni Trapuzzano, Alessandro Ferrari, Andrea |
| description | Video-sharing sites have become increasingly important in recent years in providing information and orienting people's decisions relating to their health. Adolescents and their families use internet to obtain information on pediatric oncological diseases.
We describe the availability and type of video content and origin on YouTube relating to a particular set of pediatric neoplastic diseases, that is, rhabdomyosarcoma and soft-tissue sarcoma.
A total of 149 videos were analyzed: 25 were considered as useful; only 1 video was produced by a doctor, whereas 82.5% were produced by patients or their families, in many cases for commemorating the death of a child.
Our observations indicate that video-sharing sites have become tools, such as blogs and social media, that make it easier for patients to describe their impressions and experiences of the disease, and this could help other patients devise strategies for coping with the disease, providing them with support and opportunities for sharing information and resources. |
| doi_str_mv | 10.1097/MPH.0b013e31825886f8 |
| format | Article |
| fullrecord | <record><control><sourceid>proquest_cross</sourceid><recordid>TN_cdi_proquest_miscellaneous_1124753874</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><sourcerecordid>1124753874</sourcerecordid><originalsourceid>FETCH-LOGICAL-c256t-948b570c9612bc0cdb8ce24601d9ed0d1e0583449de7977fbe3775e14ff40f7f3</originalsourceid><addsrcrecordid>eNpdkE1LxDAQhoMo7vrxD0R69NI1adIm9SaLusKKHlbBU8nHhI20mzVp1f33tu7qQRiY4eV9Z4YHoTOCJwSX_PLhaTbBChMKlIgsF6KwYg-NSU6LlBZc7Pcz5jxlhLAROorxDWPCKcsO0SjLRC5yjscovjgDPiZ-lYSlVMY3Gx9l0L6Rg_bqu0Wn4CqRqwS-ZLOuIfE2aZeQyA_paqlc7drNoLmV9aGRretjfa3BONkGp5O2a3z4uTDEPkGdoAMr6winu36Mnm9vFtNZOn-8u59ez1Od5UWblkyo_kddFiRTGmujhIaMFZiYEgw2BHAuKGOlAV5ybhVQznMgzFqGLbf0GF1s966Df-8gtlXjooa6livwXawIyRjPqeCst7KtVQcfYwBbrYNrZNhUBFcD7qrHXf3H3cfOdxc61YD5C_3ypd-eVX2d</addsrcrecordid><sourcetype>Aggregation Database</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>1124753874</pqid></control><display><type>article</type><title>Videos on rhabdomyosarcoma on YouTube: an example of the availability of information on pediatric tumors on the web</title><source>MEDLINE</source><source>Journals@Ovid Complete</source><creator>Clerici, Carlo Alfredo ; Veneroni, Laura ; Bisogno, Gianni ; Trapuzzano, Alessandro ; Ferrari, Andrea</creator><creatorcontrib>Clerici, Carlo Alfredo ; Veneroni, Laura ; Bisogno, Gianni ; Trapuzzano, Alessandro ; Ferrari, Andrea</creatorcontrib><description>Video-sharing sites have become increasingly important in recent years in providing information and orienting people's decisions relating to their health. Adolescents and their families use internet to obtain information on pediatric oncological diseases.
We describe the availability and type of video content and origin on YouTube relating to a particular set of pediatric neoplastic diseases, that is, rhabdomyosarcoma and soft-tissue sarcoma.
A total of 149 videos were analyzed: 25 were considered as useful; only 1 video was produced by a doctor, whereas 82.5% were produced by patients or their families, in many cases for commemorating the death of a child.
Our observations indicate that video-sharing sites have become tools, such as blogs and social media, that make it easier for patients to describe their impressions and experiences of the disease, and this could help other patients devise strategies for coping with the disease, providing them with support and opportunities for sharing information and resources.</description><identifier>ISSN: 1077-4114</identifier><identifier>EISSN: 1536-3678</identifier><identifier>DOI: 10.1097/MPH.0b013e31825886f8</identifier><identifier>PMID: 22858570</identifier><language>eng</language><publisher>United States</publisher><subject>Adaptation, Psychological ; Adolescent ; Bereavement ; Child ; Decision Making ; Humans ; Information Dissemination ; Internet ; Patients - psychology ; Personal Narratives as Topic ; Rhabdomyosarcoma ; Sarcoma ; Social Media ; Social Support</subject><ispartof>Journal of pediatric hematology/oncology, 2012-11, Vol.34 (8), p.e329-e331</ispartof><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><cites>FETCH-LOGICAL-c256t-948b570c9612bc0cdb8ce24601d9ed0d1e0583449de7977fbe3775e14ff40f7f3</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>314,780,784,27924,27925</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/22858570$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Clerici, Carlo Alfredo</creatorcontrib><creatorcontrib>Veneroni, Laura</creatorcontrib><creatorcontrib>Bisogno, Gianni</creatorcontrib><creatorcontrib>Trapuzzano, Alessandro</creatorcontrib><creatorcontrib>Ferrari, Andrea</creatorcontrib><title>Videos on rhabdomyosarcoma on YouTube: an example of the availability of information on pediatric tumors on the web</title><title>Journal of pediatric hematology/oncology</title><addtitle>J Pediatr Hematol Oncol</addtitle><description>Video-sharing sites have become increasingly important in recent years in providing information and orienting people's decisions relating to their health. Adolescents and their families use internet to obtain information on pediatric oncological diseases.
We describe the availability and type of video content and origin on YouTube relating to a particular set of pediatric neoplastic diseases, that is, rhabdomyosarcoma and soft-tissue sarcoma.
A total of 149 videos were analyzed: 25 were considered as useful; only 1 video was produced by a doctor, whereas 82.5% were produced by patients or their families, in many cases for commemorating the death of a child.
Our observations indicate that video-sharing sites have become tools, such as blogs and social media, that make it easier for patients to describe their impressions and experiences of the disease, and this could help other patients devise strategies for coping with the disease, providing them with support and opportunities for sharing information and resources.</description><subject>Adaptation, Psychological</subject><subject>Adolescent</subject><subject>Bereavement</subject><subject>Child</subject><subject>Decision Making</subject><subject>Humans</subject><subject>Information Dissemination</subject><subject>Internet</subject><subject>Patients - psychology</subject><subject>Personal Narratives as Topic</subject><subject>Rhabdomyosarcoma</subject><subject>Sarcoma</subject><subject>Social Media</subject><subject>Social Support</subject><issn>1077-4114</issn><issn>1536-3678</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2012</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNpdkE1LxDAQhoMo7vrxD0R69NI1adIm9SaLusKKHlbBU8nHhI20mzVp1f33tu7qQRiY4eV9Z4YHoTOCJwSX_PLhaTbBChMKlIgsF6KwYg-NSU6LlBZc7Pcz5jxlhLAROorxDWPCKcsO0SjLRC5yjscovjgDPiZ-lYSlVMY3Gx9l0L6Rg_bqu0Wn4CqRqwS-ZLOuIfE2aZeQyA_paqlc7drNoLmV9aGRretjfa3BONkGp5O2a3z4uTDEPkGdoAMr6winu36Mnm9vFtNZOn-8u59ez1Od5UWblkyo_kddFiRTGmujhIaMFZiYEgw2BHAuKGOlAV5ybhVQznMgzFqGLbf0GF1s966Df-8gtlXjooa6livwXawIyRjPqeCst7KtVQcfYwBbrYNrZNhUBFcD7qrHXf3H3cfOdxc61YD5C_3ypd-eVX2d</recordid><startdate>201211</startdate><enddate>201211</enddate><creator>Clerici, Carlo Alfredo</creator><creator>Veneroni, Laura</creator><creator>Bisogno, Gianni</creator><creator>Trapuzzano, Alessandro</creator><creator>Ferrari, Andrea</creator><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope></search><sort><creationdate>201211</creationdate><title>Videos on rhabdomyosarcoma on YouTube: an example of the availability of information on pediatric tumors on the web</title><author>Clerici, Carlo Alfredo ; Veneroni, Laura ; Bisogno, Gianni ; Trapuzzano, Alessandro ; Ferrari, Andrea</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c256t-948b570c9612bc0cdb8ce24601d9ed0d1e0583449de7977fbe3775e14ff40f7f3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2012</creationdate><topic>Adaptation, Psychological</topic><topic>Adolescent</topic><topic>Bereavement</topic><topic>Child</topic><topic>Decision Making</topic><topic>Humans</topic><topic>Information Dissemination</topic><topic>Internet</topic><topic>Patients - psychology</topic><topic>Personal Narratives as Topic</topic><topic>Rhabdomyosarcoma</topic><topic>Sarcoma</topic><topic>Social Media</topic><topic>Social Support</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Clerici, Carlo Alfredo</creatorcontrib><creatorcontrib>Veneroni, Laura</creatorcontrib><creatorcontrib>Bisogno, Gianni</creatorcontrib><creatorcontrib>Trapuzzano, Alessandro</creatorcontrib><creatorcontrib>Ferrari, Andrea</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><jtitle>Journal of pediatric hematology/oncology</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Clerici, Carlo Alfredo</au><au>Veneroni, Laura</au><au>Bisogno, Gianni</au><au>Trapuzzano, Alessandro</au><au>Ferrari, Andrea</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Videos on rhabdomyosarcoma on YouTube: an example of the availability of information on pediatric tumors on the web</atitle><jtitle>Journal of pediatric hematology/oncology</jtitle><addtitle>J Pediatr Hematol Oncol</addtitle><date>2012-11</date><risdate>2012</risdate><volume>34</volume><issue>8</issue><spage>e329</spage><epage>e331</epage><pages>e329-e331</pages><issn>1077-4114</issn><eissn>1536-3678</eissn><abstract>Video-sharing sites have become increasingly important in recent years in providing information and orienting people's decisions relating to their health. Adolescents and their families use internet to obtain information on pediatric oncological diseases.
We describe the availability and type of video content and origin on YouTube relating to a particular set of pediatric neoplastic diseases, that is, rhabdomyosarcoma and soft-tissue sarcoma.
A total of 149 videos were analyzed: 25 were considered as useful; only 1 video was produced by a doctor, whereas 82.5% were produced by patients or their families, in many cases for commemorating the death of a child.
Our observations indicate that video-sharing sites have become tools, such as blogs and social media, that make it easier for patients to describe their impressions and experiences of the disease, and this could help other patients devise strategies for coping with the disease, providing them with support and opportunities for sharing information and resources.</abstract><cop>United States</cop><pmid>22858570</pmid><doi>10.1097/MPH.0b013e31825886f8</doi></addata></record> |
| fulltext | fulltext |
| identifier | ISSN: 1077-4114 |
| ispartof | Journal of pediatric hematology/oncology, 2012-11, Vol.34 (8), p.e329-e331 |
| issn | 1077-4114 1536-3678 |
| language | eng |
| recordid | cdi_proquest_miscellaneous_1124753874 |
| source | MEDLINE; Journals@Ovid Complete |
| subjects | Adaptation, Psychological Adolescent Bereavement Child Decision Making Humans Information Dissemination Internet Patients - psychology Personal Narratives as Topic Rhabdomyosarcoma Sarcoma Social Media Social Support |
| title | Videos on rhabdomyosarcoma on YouTube: an example of the availability of information on pediatric tumors on the web |
| url | https://sfx.bib-bvb.de/sfx_tum?ctx_ver=Z39.88-2004&ctx_enc=info:ofi/enc:UTF-8&ctx_tim=2024-12-24T07%3A03%3A17IST&url_ver=Z39.88-2004&url_ctx_fmt=infofi/fmt:kev:mtx:ctx&rfr_id=info:sid/primo.exlibrisgroup.com:primo3-Article-proquest_cross&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.genre=article&rft.atitle=Videos%20on%20rhabdomyosarcoma%20on%20YouTube:%20an%20example%20of%20the%20availability%20of%20information%20on%20pediatric%20tumors%20on%20the%20web&rft.jtitle=Journal%20of%20pediatric%20hematology/oncology&rft.au=Clerici,%20Carlo%20Alfredo&rft.date=2012-11&rft.volume=34&rft.issue=8&rft.spage=e329&rft.epage=e331&rft.pages=e329-e331&rft.issn=1077-4114&rft.eissn=1536-3678&rft_id=info:doi/10.1097/MPH.0b013e31825886f8&rft_dat=%3Cproquest_cross%3E1124753874%3C/proquest_cross%3E%3Curl%3E%3C/url%3E&disable_directlink=true&sfx.directlink=off&sfx.report_link=0&rft_id=info:oai/&rft_pqid=1124753874&rft_id=info:pmid/22858570&rfr_iscdi=true |