Framework and overview of the Pediatric Spinal Muscular Atrophy Registry Program of Iran

Background The Pediatric Spinal Muscular Atrophy Registry Program of Iran (PSMAIR) was established as part of the global TREAT-NMD network, which collects data from spinal muscular atrophy (SMA) patients under 18 years of age in Iran. The registry employs a web-based data entry system to collect det...

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Veröffentlicht in:	The Egyptian Journal of Neurology, Psychiatry and Neurosurgery Psychiatry and Neurosurgery, 2024-12, Vol.60 (1), p.153-16, Article 153
Hauptverfasser:	Babaee, Marzieh, Vahidi Ara, Sara, Vahidi, Hossein, Jafari, Narjes, Zeinali, Vahide, Farahbakhsh, Nazanin, Sadr, Saeed, Khanbabaee, Ghamartaj, Tabatabaii, Seyed Ahmad, Ahamdabadi, Farzad, Miryounesi, Mohammad, Hashemi Nazari, Seyed Saeed, Rayegani, Seyed Mansoor, Taghdiri, Mohammad Mahdi, Karimzadeh, Parvaneh, Nasehi, Mohammad Mehdi, Boland Nazar, Najmeh Sadat
Format:	Artikel
Sprache:	eng
Schlagworte:	Atrophy Iran Medicine Medicine & Public Health Neurology Neurosurgery Pediatric Pediatrics Psychiatry Questionnaires Registry Spinal muscular atrophy (SMA) TREAT-NMD
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