The care for oncologic patients undergoing pediatric palliative care and the griefs of a health team
Introduction: The health care offered to children and adolescents with cancer has been expanded, giving space to orthothanasia and palliative care, with a comprehensive look at the subject facing the threat to the continuity of life, as well as challenging professionals to access issues related to g...
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Veröffentlicht in: | Psicooncología 2023-04, Vol.20 (1), p.103-119 |
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creator | Gomes Maia de Sena, Julita De Freitas Melo, Cynthia Vieira de Vasconcelos, Aline Cavalcante Teixeira, Leônia Miessa Ruiz, Erasmo Fernandes Alves, Railda Sabino |
description | Introduction: The health care offered to children and adolescents with cancer has been expanded, giving space to orthothanasia and palliative care, with a comprehensive look at the subject facing the threat to the continuity of life, as well as challenging professionals to access issues related to grief.
Objectives: In order to explore this reality, this study intended to analyze how professionals experience grieving processes in the exercise of palliative care in pediatric oncology.
Method: A qualitative research was conducted with the participation of 23 health professionals working in palliative oncology and pediatric care, who responded to a semi-structured interview script, whose analyses were performed with the support of the IRaMuTeQ (Interface de R pour les Analyses Multidimensionnelles de Textes et de Questionnaires) software.
Results: The results were organized in four classes: in class 1, the specificities of the treatment of children with cancer and other aspects related to chronic illness are portrayed; class 2 shows that health trainings do not prepare professionals to deal with death and with patients with no possibility of cure, and these professionals have (pre-) concepts about palliative care; class 3 highlights the principles of palliative care and other factors of the work in this therapy; and class 4 deals with the bonds formed by professionals and their grieving experiences.
Conclusions: Cure must not be a requirement for the provision of care in relation to children with cancer that can benefit from the adoption of palliative care therapy and the validation of the sensitivity of professionals. |
doi_str_mv | 10.5209/psic.78677 |
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Objectives: In order to explore this reality, this study intended to analyze how professionals experience grieving processes in the exercise of palliative care in pediatric oncology.
Method: A qualitative research was conducted with the participation of 23 health professionals working in palliative oncology and pediatric care, who responded to a semi-structured interview script, whose analyses were performed with the support of the IRaMuTeQ (Interface de R pour les Analyses Multidimensionnelles de Textes et de Questionnaires) software.
Results: The results were organized in four classes: in class 1, the specificities of the treatment of children with cancer and other aspects related to chronic illness are portrayed; class 2 shows that health trainings do not prepare professionals to deal with death and with patients with no possibility of cure, and these professionals have (pre-) concepts about palliative care; class 3 highlights the principles of palliative care and other factors of the work in this therapy; and class 4 deals with the bonds formed by professionals and their grieving experiences.
Conclusions: Cure must not be a requirement for the provision of care in relation to children with cancer that can benefit from the adoption of palliative care therapy and the validation of the sensitivity of professionals.</description><identifier>ISSN: 1696-7240</identifier><identifier>EISSN: 1988-8287</identifier><identifier>DOI: 10.5209/psic.78677</identifier><language>eng</language><publisher>Madrid: Universidad Complutense de Madrid</publisher><subject>Cancer ; Oncology ; Palliative care ; Pediatrics ; Qualitative research ; Questionnaires</subject><ispartof>Psicooncología, 2023-04, Vol.20 (1), p.103-119</ispartof><rights>2023. This work is licensed under https://creativecommons.org/licenses/by/4.0/legalcode (the “License”). Notwithstanding the ProQuest Terms and conditions, you may use this content in accordance with the terms of the License.</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><cites>FETCH-LOGICAL-c133t-e7af19d06a94b74e56418a4834d0f1b8d8e40c454b6bc7447f4f2b7e4379b753</cites><orcidid>0000-0003-3902-9102 ; 0000-0002-5525-8063 ; 0000-0002-4997-5349 ; 0000-0002-8280-0620 ; 0000-0001-5093-1952</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>314,777,781,27906,27907</link.rule.ids></links><search><creatorcontrib>Gomes Maia de Sena, Julita</creatorcontrib><creatorcontrib>De Freitas Melo, Cynthia</creatorcontrib><creatorcontrib>Vieira de Vasconcelos, Aline</creatorcontrib><creatorcontrib>Cavalcante Teixeira, Leônia</creatorcontrib><creatorcontrib>Miessa Ruiz, Erasmo</creatorcontrib><creatorcontrib>Fernandes Alves, Railda Sabino</creatorcontrib><title>The care for oncologic patients undergoing pediatric palliative care and the griefs of a health team</title><title>Psicooncología</title><description>Introduction: The health care offered to children and adolescents with cancer has been expanded, giving space to orthothanasia and palliative care, with a comprehensive look at the subject facing the threat to the continuity of life, as well as challenging professionals to access issues related to grief.
Objectives: In order to explore this reality, this study intended to analyze how professionals experience grieving processes in the exercise of palliative care in pediatric oncology.
Method: A qualitative research was conducted with the participation of 23 health professionals working in palliative oncology and pediatric care, who responded to a semi-structured interview script, whose analyses were performed with the support of the IRaMuTeQ (Interface de R pour les Analyses Multidimensionnelles de Textes et de Questionnaires) software.
Results: The results were organized in four classes: in class 1, the specificities of the treatment of children with cancer and other aspects related to chronic illness are portrayed; class 2 shows that health trainings do not prepare professionals to deal with death and with patients with no possibility of cure, and these professionals have (pre-) concepts about palliative care; class 3 highlights the principles of palliative care and other factors of the work in this therapy; and class 4 deals with the bonds formed by professionals and their grieving experiences.
Conclusions: Cure must not be a requirement for the provision of care in relation to children with cancer that can benefit from the adoption of palliative care therapy and the validation of the sensitivity of professionals.</description><subject>Cancer</subject><subject>Oncology</subject><subject>Palliative care</subject><subject>Pediatrics</subject><subject>Qualitative research</subject><subject>Questionnaires</subject><issn>1696-7240</issn><issn>1988-8287</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2023</creationdate><recordtype>article</recordtype><sourceid>ABUWG</sourceid><sourceid>AFKRA</sourceid><sourceid>AZQEC</sourceid><sourceid>BENPR</sourceid><sourceid>CCPQU</sourceid><sourceid>DWQXO</sourceid><sourceid>GNUQQ</sourceid><recordid>eNotkM1qwzAQhEVpoSHNpU8g6K3gVLLWXvlYQv8g0EvuRpIlR8WxXEkp9O3rNDnNwMzOwkfIPWfrqmTN05S8WaOsEa_IgjdSFrKUeD37uqkLLIHdklVKXrOKoUDWwIJ0u72lRkVLXYg0jCYMofeGTip7O-ZEj2NnYx_82NPJdl7l-J8Ow2z9z-VWjR3N81AfvXWJBkcV3Vs15D3NVh3uyI1TQ7Kriy7J7vVlt3kvtp9vH5vnbWG4ELmwqBxvOlarBjSCrWrgUoEU0DHHteykBWagAl1rgwDowJUaLQhsNFZiSR7Os1MM30ebcvsVjnGcP7aCl8ARZFXOrcdzy8SQUrSunaI_qPjbctaeOLYnju0_R_EHFtlmaQ</recordid><startdate>20230411</startdate><enddate>20230411</enddate><creator>Gomes Maia de Sena, Julita</creator><creator>De Freitas Melo, Cynthia</creator><creator>Vieira de Vasconcelos, Aline</creator><creator>Cavalcante Teixeira, Leônia</creator><creator>Miessa Ruiz, Erasmo</creator><creator>Fernandes Alves, Railda Sabino</creator><general>Universidad Complutense de Madrid</general><scope>AAYXX</scope><scope>CITATION</scope><scope>3V.</scope><scope>7RV</scope><scope>7X7</scope><scope>7XB</scope><scope>88G</scope><scope>89V</scope><scope>8BY</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>AZQEC</scope><scope>BENPR</scope><scope>BFMQW</scope><scope>CCPQU</scope><scope>CLZPN</scope><scope>DWQXO</scope><scope>FYUFA</scope><scope>GHDGH</scope><scope>GNUQQ</scope><scope>K9.</scope><scope>KB0</scope><scope>M0S</scope><scope>M2M</scope><scope>NAPCQ</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PRINS</scope><scope>PSYQQ</scope><scope>Q9U</scope><orcidid>https://orcid.org/0000-0003-3902-9102</orcidid><orcidid>https://orcid.org/0000-0002-5525-8063</orcidid><orcidid>https://orcid.org/0000-0002-4997-5349</orcidid><orcidid>https://orcid.org/0000-0002-8280-0620</orcidid><orcidid>https://orcid.org/0000-0001-5093-1952</orcidid></search><sort><creationdate>20230411</creationdate><title>The care for oncologic patients undergoing pediatric palliative care and the griefs of a health team</title><author>Gomes Maia de Sena, Julita ; 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Objectives: In order to explore this reality, this study intended to analyze how professionals experience grieving processes in the exercise of palliative care in pediatric oncology.
Method: A qualitative research was conducted with the participation of 23 health professionals working in palliative oncology and pediatric care, who responded to a semi-structured interview script, whose analyses were performed with the support of the IRaMuTeQ (Interface de R pour les Analyses Multidimensionnelles de Textes et de Questionnaires) software.
Results: The results were organized in four classes: in class 1, the specificities of the treatment of children with cancer and other aspects related to chronic illness are portrayed; class 2 shows that health trainings do not prepare professionals to deal with death and with patients with no possibility of cure, and these professionals have (pre-) concepts about palliative care; class 3 highlights the principles of palliative care and other factors of the work in this therapy; and class 4 deals with the bonds formed by professionals and their grieving experiences.
Conclusions: Cure must not be a requirement for the provision of care in relation to children with cancer that can benefit from the adoption of palliative care therapy and the validation of the sensitivity of professionals.</abstract><cop>Madrid</cop><pub>Universidad Complutense de Madrid</pub><doi>10.5209/psic.78677</doi><tpages>17</tpages><orcidid>https://orcid.org/0000-0003-3902-9102</orcidid><orcidid>https://orcid.org/0000-0002-5525-8063</orcidid><orcidid>https://orcid.org/0000-0002-4997-5349</orcidid><orcidid>https://orcid.org/0000-0002-8280-0620</orcidid><orcidid>https://orcid.org/0000-0001-5093-1952</orcidid></addata></record> |
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issn | 1696-7240 1988-8287 |
language | eng |
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source | Universidad Complutense de Madrid Free Journals; EZB-FREE-00999 freely available EZB journals |
subjects | Cancer Oncology Palliative care Pediatrics Qualitative research Questionnaires |
title | The care for oncologic patients undergoing pediatric palliative care and the griefs of a health team |
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