The Development and Process Evaluation of PEER: A Camp-based Programme for Adolescents Impacted by Cancer
Adolescents impacted by their own or a relative’s cancer diagnosis experience significant psychosocial needs. Residential programmes provide opportunities to address these, yet limited evaluation research and unclear reporting of therapeutic and theoretical underpinnings complicate efforts to unders...
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| Veröffentlicht in: | Journal of child and family studies 2021-11, Vol.30 (11), p.2627-2640 |
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| creator | Patterson, Pandora McDonald, Fiona E. J. Kelly-Dalgety, Elizabeth Luo, Aileen Allison, Kimberley R. |
| description | Adolescents impacted by their own or a relative’s cancer diagnosis experience significant psychosocial needs. Residential programmes provide opportunities to address these, yet limited evaluation research and unclear reporting of therapeutic and theoretical underpinnings complicate efforts to understand programme effects. This paper reports the development and process evaluation of PEER, a four-day programme with psychosocial (acceptance and commitment therapy, self-compassion) and recreational components for adolescents impacted by their own or a parent/sibling’s cancer. Staff (
N
= 51) and adolescents (
N
= 148, 12–17 years) who attended a PEER programme participated in this evaluation. The evaluation of fidelity included measures of facilitators’ confidence to deliver content, adherence to the programme manual, quality of programme delivery, participants’ engagement, and overall satisfaction. The process evaluation included assessment of quality of life, distress, and process variables (psychological flexibility, mindfulness, self-compassion) at pre-programme, post-programme, and two-month follow-up, as well as qualitative feedback from participants and facilitators. Moderation analyses identified predictors of clinically significant improvement in psychosocial outcomes. The programme was delivered with good fidelity, and participants reported high satisfaction and engagement. Approximately 15–20% of participants experienced clinically-meaningful improvements in distress and quality of life; those who reported higher distress and lower baseline psychological flexibility, mindfulness and self-kindness experienced greater improvements. Qualitative feedback additionally evidenced the value of peer connection and support. The evaluation evidences PEER’s feasibility, acceptability and value for adolescents impacted by cancer, particularly those experiencing greater distress. Its success indicates the potential of the therapeutic approaches used, and for community organisations to develop interventions complementing services offered by healthcare systems.
Highlights
A new programme informed by Acceptance and Commitment Therapy and self-compassion was developed for adolescents impacted by cancer.
The programme was delivered with high fidelity, and found to be feasible and acceptable for participating adolescents.
15–20% of participants reported clinically-meaningful improvements in distress and quality of life.
Those with higher baseline distress and lower p |
| doi_str_mv | 10.1007/s10826-021-02061-8 |
| format | Article |
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N
= 51) and adolescents (
N
= 148, 12–17 years) who attended a PEER programme participated in this evaluation. The evaluation of fidelity included measures of facilitators’ confidence to deliver content, adherence to the programme manual, quality of programme delivery, participants’ engagement, and overall satisfaction. The process evaluation included assessment of quality of life, distress, and process variables (psychological flexibility, mindfulness, self-compassion) at pre-programme, post-programme, and two-month follow-up, as well as qualitative feedback from participants and facilitators. Moderation analyses identified predictors of clinically significant improvement in psychosocial outcomes. The programme was delivered with good fidelity, and participants reported high satisfaction and engagement. Approximately 15–20% of participants experienced clinically-meaningful improvements in distress and quality of life; those who reported higher distress and lower baseline psychological flexibility, mindfulness and self-kindness experienced greater improvements. Qualitative feedback additionally evidenced the value of peer connection and support. The evaluation evidences PEER’s feasibility, acceptability and value for adolescents impacted by cancer, particularly those experiencing greater distress. Its success indicates the potential of the therapeutic approaches used, and for community organisations to develop interventions complementing services offered by healthcare systems.
Highlights
A new programme informed by Acceptance and Commitment Therapy and self-compassion was developed for adolescents impacted by cancer.
The programme was delivered with high fidelity, and found to be feasible and acceptable for participating adolescents.
15–20% of participants reported clinically-meaningful improvements in distress and quality of life.
Those with higher baseline distress and lower psychological flexibility, mindfulness and self-kindness reported greater benefits.</description><identifier>ISSN: 1062-1024</identifier><identifier>EISSN: 1573-2843</identifier><identifier>DOI: 10.1007/s10826-021-02061-8</identifier><language>eng</language><publisher>New York: Springer US</publisher><subject>Acceptance ; Acceptance and commitment therapy ; Adolescents ; Altruism ; Behavioral Science and Psychology ; Cancer ; Child and School Psychology ; Clinical significance ; Community organizations ; Evaluation ; Evaluation research ; Feasibility ; Fidelity ; Flexibility ; Formative Evaluation ; Health care industry ; Kindness ; Medical diagnosis ; Mindfulness ; Moderation ; Original Paper ; Psychological distress ; Psychological flexibility ; Psychology ; Psychosocial factors ; Quality of life ; Self compassion ; Social Sciences ; Sociology ; Sympathy ; Teenagers ; Treatment methods ; Value</subject><ispartof>Journal of child and family studies, 2021-11, Vol.30 (11), p.2627-2640</ispartof><rights>The Author(s), under exclusive licence to Springer Science+Business Media, LLC, part of Springer Nature 2021</rights><rights>The Author(s), under exclusive licence to Springer Science+Business Media, LLC, part of Springer Nature 2021.</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c319t-49a1e8b209829a5f79459daa77de7c8939c6fe91df055e5427242b5521d28b583</citedby><cites>FETCH-LOGICAL-c319t-49a1e8b209829a5f79459daa77de7c8939c6fe91df055e5427242b5521d28b583</cites><orcidid>0000-0003-4484-4929</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://link.springer.com/content/pdf/10.1007/s10826-021-02061-8$$EPDF$$P50$$Gspringer$$H</linktopdf><linktohtml>$$Uhttps://link.springer.com/10.1007/s10826-021-02061-8$$EHTML$$P50$$Gspringer$$H</linktohtml><link.rule.ids>314,780,784,12846,27924,27925,30999,41488,42557,51319</link.rule.ids></links><search><creatorcontrib>Patterson, Pandora</creatorcontrib><creatorcontrib>McDonald, Fiona E. J.</creatorcontrib><creatorcontrib>Kelly-Dalgety, Elizabeth</creatorcontrib><creatorcontrib>Luo, Aileen</creatorcontrib><creatorcontrib>Allison, Kimberley R.</creatorcontrib><title>The Development and Process Evaluation of PEER: A Camp-based Programme for Adolescents Impacted by Cancer</title><title>Journal of child and family studies</title><addtitle>J Child Fam Stud</addtitle><description>Adolescents impacted by their own or a relative’s cancer diagnosis experience significant psychosocial needs. Residential programmes provide opportunities to address these, yet limited evaluation research and unclear reporting of therapeutic and theoretical underpinnings complicate efforts to understand programme effects. This paper reports the development and process evaluation of PEER, a four-day programme with psychosocial (acceptance and commitment therapy, self-compassion) and recreational components for adolescents impacted by their own or a parent/sibling’s cancer. Staff (
N
= 51) and adolescents (
N
= 148, 12–17 years) who attended a PEER programme participated in this evaluation. The evaluation of fidelity included measures of facilitators’ confidence to deliver content, adherence to the programme manual, quality of programme delivery, participants’ engagement, and overall satisfaction. The process evaluation included assessment of quality of life, distress, and process variables (psychological flexibility, mindfulness, self-compassion) at pre-programme, post-programme, and two-month follow-up, as well as qualitative feedback from participants and facilitators. Moderation analyses identified predictors of clinically significant improvement in psychosocial outcomes. The programme was delivered with good fidelity, and participants reported high satisfaction and engagement. Approximately 15–20% of participants experienced clinically-meaningful improvements in distress and quality of life; those who reported higher distress and lower baseline psychological flexibility, mindfulness and self-kindness experienced greater improvements. Qualitative feedback additionally evidenced the value of peer connection and support. The evaluation evidences PEER’s feasibility, acceptability and value for adolescents impacted by cancer, particularly those experiencing greater distress. Its success indicates the potential of the therapeutic approaches used, and for community organisations to develop interventions complementing services offered by healthcare systems.
Highlights
A new programme informed by Acceptance and Commitment Therapy and self-compassion was developed for adolescents impacted by cancer.
The programme was delivered with high fidelity, and found to be feasible and acceptable for participating adolescents.
15–20% of participants reported clinically-meaningful improvements in distress and quality of life.
Those with higher baseline distress and lower psychological flexibility, mindfulness and self-kindness reported greater benefits.</description><subject>Acceptance</subject><subject>Acceptance and commitment therapy</subject><subject>Adolescents</subject><subject>Altruism</subject><subject>Behavioral Science and Psychology</subject><subject>Cancer</subject><subject>Child and School Psychology</subject><subject>Clinical significance</subject><subject>Community organizations</subject><subject>Evaluation</subject><subject>Evaluation research</subject><subject>Feasibility</subject><subject>Fidelity</subject><subject>Flexibility</subject><subject>Formative Evaluation</subject><subject>Health care industry</subject><subject>Kindness</subject><subject>Medical diagnosis</subject><subject>Mindfulness</subject><subject>Moderation</subject><subject>Original Paper</subject><subject>Psychological distress</subject><subject>Psychological flexibility</subject><subject>Psychology</subject><subject>Psychosocial factors</subject><subject>Quality of life</subject><subject>Self compassion</subject><subject>Social Sciences</subject><subject>Sociology</subject><subject>Sympathy</subject><subject>Teenagers</subject><subject>Treatment methods</subject><subject>Value</subject><issn>1062-1024</issn><issn>1573-2843</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2021</creationdate><recordtype>article</recordtype><sourceid>7QJ</sourceid><sourceid>8G5</sourceid><sourceid>ABUWG</sourceid><sourceid>AFKRA</sourceid><sourceid>AZQEC</sourceid><sourceid>BENPR</sourceid><sourceid>CCPQU</sourceid><sourceid>DWQXO</sourceid><sourceid>GNUQQ</sourceid><sourceid>GUQSH</sourceid><sourceid>M2O</sourceid><recordid>eNp9kF1LwzAUhoMoOKd_wKuA19EkbdrEuzHrBwwcMq9Dmp7OjbapSTfYvzdbBe-8CCcXz_uew4PQLaP3jNL8ITAqeUYoZ_HRjBF5hiZM5AnhMk3O459mnDDK00t0FcKWUqokVxO0WX0BfoI9NK5voRuw6Sq89M5CCLjYm2Znho3rsKvxsig-HvEMz03bk9IEOIFrb9oWcO08nlWugWBjS8BvbW_sEJHyEAOdBX-NLmrTBLj5nVP0-Vys5q9k8f7yNp8tiE2YGkiqDANZ8tN9RtS5SoWqjMnzCnIrVaJsVoNiVU2FAJHynKe8FIKzistSyGSK7sbe3rvvHYRBb93Od3Gl5kJyLpOoIlJ8pKx3IXiode83rfEHzag-KtWjUh2V6pNSfaxOxlCIcLcG_1f9T-oHIIh3uA</recordid><startdate>20211101</startdate><enddate>20211101</enddate><creator>Patterson, Pandora</creator><creator>McDonald, Fiona E. 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J. ; Kelly-Dalgety, Elizabeth ; Luo, Aileen ; Allison, Kimberley R.</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c319t-49a1e8b209829a5f79459daa77de7c8939c6fe91df055e5427242b5521d28b583</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2021</creationdate><topic>Acceptance</topic><topic>Acceptance and commitment therapy</topic><topic>Adolescents</topic><topic>Altruism</topic><topic>Behavioral Science and Psychology</topic><topic>Cancer</topic><topic>Child and School Psychology</topic><topic>Clinical significance</topic><topic>Community organizations</topic><topic>Evaluation</topic><topic>Evaluation research</topic><topic>Feasibility</topic><topic>Fidelity</topic><topic>Flexibility</topic><topic>Formative Evaluation</topic><topic>Health care industry</topic><topic>Kindness</topic><topic>Medical diagnosis</topic><topic>Mindfulness</topic><topic>Moderation</topic><topic>Original Paper</topic><topic>Psychological distress</topic><topic>Psychological flexibility</topic><topic>Psychology</topic><topic>Psychosocial factors</topic><topic>Quality of life</topic><topic>Self compassion</topic><topic>Social Sciences</topic><topic>Sociology</topic><topic>Sympathy</topic><topic>Teenagers</topic><topic>Treatment methods</topic><topic>Value</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Patterson, Pandora</creatorcontrib><creatorcontrib>McDonald, Fiona E. 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J.</au><au>Kelly-Dalgety, Elizabeth</au><au>Luo, Aileen</au><au>Allison, Kimberley R.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>The Development and Process Evaluation of PEER: A Camp-based Programme for Adolescents Impacted by Cancer</atitle><jtitle>Journal of child and family studies</jtitle><stitle>J Child Fam Stud</stitle><date>2021-11-01</date><risdate>2021</risdate><volume>30</volume><issue>11</issue><spage>2627</spage><epage>2640</epage><pages>2627-2640</pages><issn>1062-1024</issn><eissn>1573-2843</eissn><abstract>Adolescents impacted by their own or a relative’s cancer diagnosis experience significant psychosocial needs. Residential programmes provide opportunities to address these, yet limited evaluation research and unclear reporting of therapeutic and theoretical underpinnings complicate efforts to understand programme effects. This paper reports the development and process evaluation of PEER, a four-day programme with psychosocial (acceptance and commitment therapy, self-compassion) and recreational components for adolescents impacted by their own or a parent/sibling’s cancer. Staff (
N
= 51) and adolescents (
N
= 148, 12–17 years) who attended a PEER programme participated in this evaluation. The evaluation of fidelity included measures of facilitators’ confidence to deliver content, adherence to the programme manual, quality of programme delivery, participants’ engagement, and overall satisfaction. The process evaluation included assessment of quality of life, distress, and process variables (psychological flexibility, mindfulness, self-compassion) at pre-programme, post-programme, and two-month follow-up, as well as qualitative feedback from participants and facilitators. Moderation analyses identified predictors of clinically significant improvement in psychosocial outcomes. The programme was delivered with good fidelity, and participants reported high satisfaction and engagement. Approximately 15–20% of participants experienced clinically-meaningful improvements in distress and quality of life; those who reported higher distress and lower baseline psychological flexibility, mindfulness and self-kindness experienced greater improvements. Qualitative feedback additionally evidenced the value of peer connection and support. The evaluation evidences PEER’s feasibility, acceptability and value for adolescents impacted by cancer, particularly those experiencing greater distress. Its success indicates the potential of the therapeutic approaches used, and for community organisations to develop interventions complementing services offered by healthcare systems.
Highlights
A new programme informed by Acceptance and Commitment Therapy and self-compassion was developed for adolescents impacted by cancer.
The programme was delivered with high fidelity, and found to be feasible and acceptable for participating adolescents.
15–20% of participants reported clinically-meaningful improvements in distress and quality of life.
Those with higher baseline distress and lower psychological flexibility, mindfulness and self-kindness reported greater benefits.</abstract><cop>New York</cop><pub>Springer US</pub><doi>10.1007/s10826-021-02061-8</doi><tpages>14</tpages><orcidid>https://orcid.org/0000-0003-4484-4929</orcidid></addata></record> |
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| ispartof | Journal of child and family studies, 2021-11, Vol.30 (11), p.2627-2640 |
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| language | eng |
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| subjects | Acceptance Acceptance and commitment therapy Adolescents Altruism Behavioral Science and Psychology Cancer Child and School Psychology Clinical significance Community organizations Evaluation Evaluation research Feasibility Fidelity Flexibility Formative Evaluation Health care industry Kindness Medical diagnosis Mindfulness Moderation Original Paper Psychological distress Psychological flexibility Psychology Psychosocial factors Quality of life Self compassion Social Sciences Sociology Sympathy Teenagers Treatment methods Value |
| title | The Development and Process Evaluation of PEER: A Camp-based Programme for Adolescents Impacted by Cancer |
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