Towards an EU sustainable health information infrastructure. Integrating technical and political views and interest
Abstract Background Health information systems (HIS) play a key role in providing information for decision-making. Europe lacks of an integrated HIS on non-communicable diseases (NCD) and Health Systems Performance (HSP) able to compare health problems across countries. NCDs are the main contributor...
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| Veröffentlicht in: | European journal of public health 2020-09, Vol.30 (Supplement_5) |
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| creator | Padrón-Monedero, A Sarmiento-Suárez, S Gómez-García, T Ortiz-Pinto, M Pérez-Gómez, B Fernández-Navarro, P Galán, I Noguer, I |
| description | Abstract
Background
Health information systems (HIS) play a key role in providing information for decision-making. Europe lacks of an integrated HIS on non-communicable diseases (NCD) and Health Systems Performance (HSP) able to compare health problems across countries. NCDs are the main contributor to the EU-burden of disease, including the highest mortality rates. There is a general agreement among public health policy makers and researchers on the need of an integrated EU health information (HI) infrastructure to monitor risk factors, NCD and HSP. Such infrastructure would provide common inputs for public health and research to prioritize health policies. However, there is no EU-EEA consensus on how to go forward with this initiative.
Methods
The Information for Action (InfAct) project is aimed at establishing a sustainable HI infrastructure on HIS and HSP by cataloging resources, experience, research capacities and expertise into a 'one-stop shop'. Significant political will is needed to support and systematically feed a functional and permanent governance structure. InfAct provides a ground for Member States to discuss and generate consensus through two main boards: 1) Technical Dialogues (TD), composed by national experts, to discuss scientific aspects, feasibility and added value; and 2) Assembly of Members (AoM) where political representatives from Ministries of Health and Research provide the framework of political acceptance and guarantee of implementation and future development.
Results
Both boards reveal different interests and concerns. The AoM rather focused on resources and necessary political decisions based on expected returns. The TD focused on feasibility aspects and new adaptations required from current systems. The feedback provided by both boards is key to develop a sustainable EU-HIS infrastructure.
Conclusions
The TD and the AoM are key forums to provide feedback, guidance and advocacy to build a sustainable EU-HIS infrastructure |
| doi_str_mv | 10.1093/eurpub/ckaa165.742 |
| format | Article |
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Background
Health information systems (HIS) play a key role in providing information for decision-making. Europe lacks of an integrated HIS on non-communicable diseases (NCD) and Health Systems Performance (HSP) able to compare health problems across countries. NCDs are the main contributor to the EU-burden of disease, including the highest mortality rates. There is a general agreement among public health policy makers and researchers on the need of an integrated EU health information (HI) infrastructure to monitor risk factors, NCD and HSP. Such infrastructure would provide common inputs for public health and research to prioritize health policies. However, there is no EU-EEA consensus on how to go forward with this initiative.
Methods
The Information for Action (InfAct) project is aimed at establishing a sustainable HI infrastructure on HIS and HSP by cataloging resources, experience, research capacities and expertise into a 'one-stop shop'. Significant political will is needed to support and systematically feed a functional and permanent governance structure. InfAct provides a ground for Member States to discuss and generate consensus through two main boards: 1) Technical Dialogues (TD), composed by national experts, to discuss scientific aspects, feasibility and added value; and 2) Assembly of Members (AoM) where political representatives from Ministries of Health and Research provide the framework of political acceptance and guarantee of implementation and future development.
Results
Both boards reveal different interests and concerns. The AoM rather focused on resources and necessary political decisions based on expected returns. The TD focused on feasibility aspects and new adaptations required from current systems. The feedback provided by both boards is key to develop a sustainable EU-HIS infrastructure.
Conclusions
The TD and the AoM are key forums to provide feedback, guidance and advocacy to build a sustainable EU-HIS infrastructure</description><identifier>ISSN: 1101-1262</identifier><identifier>EISSN: 1464-360X</identifier><identifier>DOI: 10.1093/eurpub/ckaa165.742</identifier><language>eng</language><publisher>Oxford: Oxford University Press</publisher><subject>Adaptation ; Boards ; Decision making ; Disease ; Feasibility ; Feedback ; Health care policy ; Health policy ; Health problems ; Heat shock proteins ; Information ; Information systems ; Infrastructure ; Mortality rates ; Policy making ; Politics ; Public health ; Risk analysis ; Risk factors ; Sustainability</subject><ispartof>European journal of public health, 2020-09, Vol.30 (Supplement_5)</ispartof><rights>The Author(s) 2020. Published by Oxford University Press on behalf of the European Public Health Association. All rights reserved. 2020</rights><rights>The Author(s) 2020. Published by Oxford University Press on behalf of the European Public Health Association. All rights reserved.</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>314,780,784,27865,27923,27924</link.rule.ids></links><search><creatorcontrib>Padrón-Monedero, A</creatorcontrib><creatorcontrib>Sarmiento-Suárez, S</creatorcontrib><creatorcontrib>Gómez-García, T</creatorcontrib><creatorcontrib>Ortiz-Pinto, M</creatorcontrib><creatorcontrib>Pérez-Gómez, B</creatorcontrib><creatorcontrib>Fernández-Navarro, P</creatorcontrib><creatorcontrib>Galán, I</creatorcontrib><creatorcontrib>Noguer, I</creatorcontrib><title>Towards an EU sustainable health information infrastructure. Integrating technical and political views and interest</title><title>European journal of public health</title><description>Abstract
Background
Health information systems (HIS) play a key role in providing information for decision-making. Europe lacks of an integrated HIS on non-communicable diseases (NCD) and Health Systems Performance (HSP) able to compare health problems across countries. NCDs are the main contributor to the EU-burden of disease, including the highest mortality rates. There is a general agreement among public health policy makers and researchers on the need of an integrated EU health information (HI) infrastructure to monitor risk factors, NCD and HSP. Such infrastructure would provide common inputs for public health and research to prioritize health policies. However, there is no EU-EEA consensus on how to go forward with this initiative.
Methods
The Information for Action (InfAct) project is aimed at establishing a sustainable HI infrastructure on HIS and HSP by cataloging resources, experience, research capacities and expertise into a 'one-stop shop'. Significant political will is needed to support and systematically feed a functional and permanent governance structure. InfAct provides a ground for Member States to discuss and generate consensus through two main boards: 1) Technical Dialogues (TD), composed by national experts, to discuss scientific aspects, feasibility and added value; and 2) Assembly of Members (AoM) where political representatives from Ministries of Health and Research provide the framework of political acceptance and guarantee of implementation and future development.
Results
Both boards reveal different interests and concerns. The AoM rather focused on resources and necessary political decisions based on expected returns. The TD focused on feasibility aspects and new adaptations required from current systems. The feedback provided by both boards is key to develop a sustainable EU-HIS infrastructure.
Conclusions
The TD and the AoM are key forums to provide feedback, guidance and advocacy to build a sustainable EU-HIS infrastructure</description><subject>Adaptation</subject><subject>Boards</subject><subject>Decision making</subject><subject>Disease</subject><subject>Feasibility</subject><subject>Feedback</subject><subject>Health care policy</subject><subject>Health policy</subject><subject>Health problems</subject><subject>Heat shock proteins</subject><subject>Information</subject><subject>Information systems</subject><subject>Infrastructure</subject><subject>Mortality rates</subject><subject>Policy making</subject><subject>Politics</subject><subject>Public health</subject><subject>Risk analysis</subject><subject>Risk factors</subject><subject>Sustainability</subject><issn>1101-1262</issn><issn>1464-360X</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2020</creationdate><recordtype>article</recordtype><sourceid>7TQ</sourceid><recordid>eNqNUMtOwzAQtBBIlMIPcLLEOa3XTuz4iKoClSpxaSVukZM4bUoaBz-o-HtM0w_gtLO785AGoUcgMyCSzXWwQyjn1adSwLOZSOkVmkDK04Rx8nEdMRBIgHJ6i-6cOxBCMpHTCXIbc1K2dlj1eLnFLjiv2l6VncZ7rTq_x23fGHtUvjX9H7bKeRsqH6ye4VXv9c7GX7_DXlf7vq1UF61qPJiu9eftu9Und761kW218_foplGd0w-XOUXbl-Vm8Zas319Xi-d1UkHGaCJIJWSqUpnJMhe6KXkDORMZkFrzUjR5yZgiaa1BZ0Jkmqm8lqUEDinVtMnZFD2NvoM1XyEGFwcTbB8jC5oKDkKAlJFFR1ZljXNWN8Vg26OyPwWQ4q_cYiy3uJRbxHKjKBlFJgz_4f8CwgaBWQ</recordid><startdate>20200901</startdate><enddate>20200901</enddate><creator>Padrón-Monedero, A</creator><creator>Sarmiento-Suárez, S</creator><creator>Gómez-García, T</creator><creator>Ortiz-Pinto, M</creator><creator>Pérez-Gómez, B</creator><creator>Fernández-Navarro, P</creator><creator>Galán, I</creator><creator>Noguer, I</creator><general>Oxford University Press</general><general>Oxford Publishing Limited (England)</general><scope>AAYXX</scope><scope>CITATION</scope><scope>7T2</scope><scope>7TQ</scope><scope>C1K</scope><scope>DHY</scope><scope>DON</scope><scope>K9.</scope><scope>NAPCQ</scope></search><sort><creationdate>20200901</creationdate><title>Towards an EU sustainable health information infrastructure. Integrating technical and political views and interest</title><author>Padrón-Monedero, A ; Sarmiento-Suárez, S ; Gómez-García, T ; Ortiz-Pinto, M ; Pérez-Gómez, B ; Fernández-Navarro, P ; Galán, I ; Noguer, I</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c1532-70c794a4959b87efb6f1837510de6b7f8b33a04de1e5775e3a8d9b916142e2f83</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2020</creationdate><topic>Adaptation</topic><topic>Boards</topic><topic>Decision making</topic><topic>Disease</topic><topic>Feasibility</topic><topic>Feedback</topic><topic>Health care policy</topic><topic>Health policy</topic><topic>Health problems</topic><topic>Heat shock proteins</topic><topic>Information</topic><topic>Information systems</topic><topic>Infrastructure</topic><topic>Mortality rates</topic><topic>Policy making</topic><topic>Politics</topic><topic>Public health</topic><topic>Risk analysis</topic><topic>Risk factors</topic><topic>Sustainability</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Padrón-Monedero, A</creatorcontrib><creatorcontrib>Sarmiento-Suárez, S</creatorcontrib><creatorcontrib>Gómez-García, T</creatorcontrib><creatorcontrib>Ortiz-Pinto, M</creatorcontrib><creatorcontrib>Pérez-Gómez, B</creatorcontrib><creatorcontrib>Fernández-Navarro, P</creatorcontrib><creatorcontrib>Galán, I</creatorcontrib><creatorcontrib>Noguer, I</creatorcontrib><collection>CrossRef</collection><collection>Health and Safety Science Abstracts (Full archive)</collection><collection>PAIS Index</collection><collection>Environmental Sciences and Pollution Management</collection><collection>PAIS International</collection><collection>PAIS International (Ovid)</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Premium</collection><jtitle>European journal of public health</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Padrón-Monedero, A</au><au>Sarmiento-Suárez, S</au><au>Gómez-García, T</au><au>Ortiz-Pinto, M</au><au>Pérez-Gómez, B</au><au>Fernández-Navarro, P</au><au>Galán, I</au><au>Noguer, I</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Towards an EU sustainable health information infrastructure. Integrating technical and political views and interest</atitle><jtitle>European journal of public health</jtitle><date>2020-09-01</date><risdate>2020</risdate><volume>30</volume><issue>Supplement_5</issue><issn>1101-1262</issn><eissn>1464-360X</eissn><abstract>Abstract
Background
Health information systems (HIS) play a key role in providing information for decision-making. Europe lacks of an integrated HIS on non-communicable diseases (NCD) and Health Systems Performance (HSP) able to compare health problems across countries. NCDs are the main contributor to the EU-burden of disease, including the highest mortality rates. There is a general agreement among public health policy makers and researchers on the need of an integrated EU health information (HI) infrastructure to monitor risk factors, NCD and HSP. Such infrastructure would provide common inputs for public health and research to prioritize health policies. However, there is no EU-EEA consensus on how to go forward with this initiative.
Methods
The Information for Action (InfAct) project is aimed at establishing a sustainable HI infrastructure on HIS and HSP by cataloging resources, experience, research capacities and expertise into a 'one-stop shop'. Significant political will is needed to support and systematically feed a functional and permanent governance structure. InfAct provides a ground for Member States to discuss and generate consensus through two main boards: 1) Technical Dialogues (TD), composed by national experts, to discuss scientific aspects, feasibility and added value; and 2) Assembly of Members (AoM) where political representatives from Ministries of Health and Research provide the framework of political acceptance and guarantee of implementation and future development.
Results
Both boards reveal different interests and concerns. The AoM rather focused on resources and necessary political decisions based on expected returns. The TD focused on feasibility aspects and new adaptations required from current systems. The feedback provided by both boards is key to develop a sustainable EU-HIS infrastructure.
Conclusions
The TD and the AoM are key forums to provide feedback, guidance and advocacy to build a sustainable EU-HIS infrastructure</abstract><cop>Oxford</cop><pub>Oxford University Press</pub><doi>10.1093/eurpub/ckaa165.742</doi><oa>free_for_read</oa></addata></record> |
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| ispartof | European journal of public health, 2020-09, Vol.30 (Supplement_5) |
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| source | PAIS Index; Oxford Journals Open Access Collection; EZB-FREE-00999 freely available EZB journals; PubMed Central; Alma/SFX Local Collection |
| subjects | Adaptation Boards Decision making Disease Feasibility Feedback Health care policy Health policy Health problems Heat shock proteins Information Information systems Infrastructure Mortality rates Policy making Politics Public health Risk analysis Risk factors Sustainability |
| title | Towards an EU sustainable health information infrastructure. Integrating technical and political views and interest |
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