Health related quality of life in adult primary Ciliary dyskinesia patients in Cyprus: development and validation of the Greek version of the QOL-PCD questionnaire
The QOL-PCD questionnaire is a recently developed Health Related Quality of Life (HRQoL) instrument for Primary Ciliary Dyskinesia. The aim of this study was to translate the adult QOL-PCD questionnaire into Greek language and to conduct psychometric validation to assess its performance. Forward tra...
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| creator | Ioannou, Phivos Kouis, Panayiotis Kakkoura, Maria G Kaliva, Margarita Toliopoulou, Aristoula Andreou, Kyriacos Behan, Laura Lucas, Jane S Papanikolaou, Vicky Charalambous, George Middleton, Nicos Yiallouros, Panayiotis K |
| description | The QOL-PCD questionnaire is a recently developed Health Related Quality of Life (HRQoL) instrument for Primary Ciliary Dyskinesia. The aim of this study was to translate the adult QOL-PCD questionnaire into Greek language and to conduct psychometric validation to assess its performance.
Forward translations to Greek and backward translation to English were performed, followed by cognitive interviews in 12 adult PCD patients. The finalized translated version was administered to a consecutive sample of 31 adult, Greek speaking PCD patients in Cyprus for psychometric validation, which included assessment of internal consistency, test-retest reliability, construct and convergent validity. Internal consistency was assessed by Cronbach's alpha test in terms of the overall and sub-scales. Test-retest reliability was assessed by repeat administration of the questionnaire within 2 weeks and calculation of the intra-class correlation (ICC). Construct validity was assessed by comparing different groups of patients based on a-priori hypotheses and convergent validity was evaluated by examining associations between the QOL-PCD and SF-36 questionnaires.
Moderate to good internal consistency was observed (Cronbach's α: 0.46-0.88 across sub-scales) and test-retest reliability assessment demonstrated good repeatability for most scales (ICC: 0.67-0.91 across subscales). Patients of female gender, older age and lower lung function exhibited lower QOL-PCD scores in general, while high correlations for most QOL-PCD scales with corresponding SF-36 scales were observed, in particular for physical functioning (r = 0.78, p |
| doi_str_mv | 10.1186/s12955-020-01360-w |
| format | Article |
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Forward translations to Greek and backward translation to English were performed, followed by cognitive interviews in 12 adult PCD patients. The finalized translated version was administered to a consecutive sample of 31 adult, Greek speaking PCD patients in Cyprus for psychometric validation, which included assessment of internal consistency, test-retest reliability, construct and convergent validity. Internal consistency was assessed by Cronbach's alpha test in terms of the overall and sub-scales. Test-retest reliability was assessed by repeat administration of the questionnaire within 2 weeks and calculation of the intra-class correlation (ICC). Construct validity was assessed by comparing different groups of patients based on a-priori hypotheses and convergent validity was evaluated by examining associations between the QOL-PCD and SF-36 questionnaires.
Moderate to good internal consistency was observed (Cronbach's α: 0.46-0.88 across sub-scales) and test-retest reliability assessment demonstrated good repeatability for most scales (ICC: 0.67-0.91 across subscales). Patients of female gender, older age and lower lung function exhibited lower QOL-PCD scores in general, while high correlations for most QOL-PCD scales with corresponding SF-36 scales were observed, in particular for physical functioning (r = 0.78, p < 0.05).
The adult version of QoL-PCD questionnaire has been translated according to international guidelines resulting to a cross-culturally validated Greek version which exhibited moderate to good metric properties in terms of internal consistency, stability, known-group and convergent validity.</description><identifier>ISSN: 1477-7525</identifier><identifier>EISSN: 1477-7525</identifier><identifier>DOI: 10.1186/s12955-020-01360-w</identifier><identifier>PMID: 32321519</identifier><language>eng</language><publisher>England: BioMed Central Ltd</publisher><subject>Adults ; Age ; Cognitive ability ; Consistency ; Convergence ; Dyskinesia ; English language ; Ethnicity ; Females ; Gender ; Hypotheses ; Medical research ; Microscopy ; Movement disorders ; Mutation ; Patients ; Primary Ciliary dyskinesia ; Psychometric testing ; Quality of life ; Questionnaires ; Reliability analysis ; Respiratory function ; Statistical analysis ; Surveys ; Translation (Languages) ; Translations ; Validation studies ; Validity</subject><ispartof>Health and quality of life outcomes, 2020-04, Vol.18 (1), p.105-105, Article 105</ispartof><rights>COPYRIGHT 2020 BioMed Central Ltd.</rights><rights>2020. This work is licensed under http://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><rights>The Author(s) 2020</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c597t-fe9c1825c6202d19964cddfe1594ecf40f17894fef788deee28bc60cdfac70bb3</citedby><cites>FETCH-LOGICAL-c597t-fe9c1825c6202d19964cddfe1594ecf40f17894fef788deee28bc60cdfac70bb3</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC7178983/pdf/$$EPDF$$P50$$Gpubmedcentral$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC7178983/$$EHTML$$P50$$Gpubmedcentral$$Hfree_for_read</linktohtml><link.rule.ids>230,314,723,776,780,860,881,2096,27901,27902,53766,53768</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/32321519$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Ioannou, Phivos</creatorcontrib><creatorcontrib>Kouis, Panayiotis</creatorcontrib><creatorcontrib>Kakkoura, Maria G</creatorcontrib><creatorcontrib>Kaliva, Margarita</creatorcontrib><creatorcontrib>Toliopoulou, Aristoula</creatorcontrib><creatorcontrib>Andreou, Kyriacos</creatorcontrib><creatorcontrib>Behan, Laura</creatorcontrib><creatorcontrib>Lucas, Jane S</creatorcontrib><creatorcontrib>Papanikolaou, Vicky</creatorcontrib><creatorcontrib>Charalambous, George</creatorcontrib><creatorcontrib>Middleton, Nicos</creatorcontrib><creatorcontrib>Yiallouros, Panayiotis K</creatorcontrib><title>Health related quality of life in adult primary Ciliary dyskinesia patients in Cyprus: development and validation of the Greek version of the QOL-PCD questionnaire</title><title>Health and quality of life outcomes</title><addtitle>Health Qual Life Outcomes</addtitle><description>The QOL-PCD questionnaire is a recently developed Health Related Quality of Life (HRQoL) instrument for Primary Ciliary Dyskinesia. The aim of this study was to translate the adult QOL-PCD questionnaire into Greek language and to conduct psychometric validation to assess its performance.
Forward translations to Greek and backward translation to English were performed, followed by cognitive interviews in 12 adult PCD patients. The finalized translated version was administered to a consecutive sample of 31 adult, Greek speaking PCD patients in Cyprus for psychometric validation, which included assessment of internal consistency, test-retest reliability, construct and convergent validity. Internal consistency was assessed by Cronbach's alpha test in terms of the overall and sub-scales. Test-retest reliability was assessed by repeat administration of the questionnaire within 2 weeks and calculation of the intra-class correlation (ICC). Construct validity was assessed by comparing different groups of patients based on a-priori hypotheses and convergent validity was evaluated by examining associations between the QOL-PCD and SF-36 questionnaires.
Moderate to good internal consistency was observed (Cronbach's α: 0.46-0.88 across sub-scales) and test-retest reliability assessment demonstrated good repeatability for most scales (ICC: 0.67-0.91 across subscales). Patients of female gender, older age and lower lung function exhibited lower QOL-PCD scores in general, while high correlations for most QOL-PCD scales with corresponding SF-36 scales were observed, in particular for physical functioning (r = 0.78, p < 0.05).
The adult version of QoL-PCD questionnaire has been translated according to international guidelines resulting to a cross-culturally validated Greek version which exhibited moderate to good metric properties in terms of internal consistency, stability, known-group and convergent validity.</description><subject>Adults</subject><subject>Age</subject><subject>Cognitive ability</subject><subject>Consistency</subject><subject>Convergence</subject><subject>Dyskinesia</subject><subject>English language</subject><subject>Ethnicity</subject><subject>Females</subject><subject>Gender</subject><subject>Hypotheses</subject><subject>Medical research</subject><subject>Microscopy</subject><subject>Movement disorders</subject><subject>Mutation</subject><subject>Patients</subject><subject>Primary Ciliary dyskinesia</subject><subject>Psychometric testing</subject><subject>Quality of life</subject><subject>Questionnaires</subject><subject>Reliability analysis</subject><subject>Respiratory 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George</au><au>Middleton, Nicos</au><au>Yiallouros, Panayiotis K</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Health related quality of life in adult primary Ciliary dyskinesia patients in Cyprus: development and validation of the Greek version of the QOL-PCD questionnaire</atitle><jtitle>Health and quality of life outcomes</jtitle><addtitle>Health Qual Life Outcomes</addtitle><date>2020-04-22</date><risdate>2020</risdate><volume>18</volume><issue>1</issue><spage>105</spage><epage>105</epage><pages>105-105</pages><artnum>105</artnum><issn>1477-7525</issn><eissn>1477-7525</eissn><abstract>The QOL-PCD questionnaire is a recently developed Health Related Quality of Life (HRQoL) instrument for Primary Ciliary Dyskinesia. The aim of this study was to translate the adult QOL-PCD questionnaire into Greek language and to conduct psychometric validation to assess its performance.
Forward translations to Greek and backward translation to English were performed, followed by cognitive interviews in 12 adult PCD patients. The finalized translated version was administered to a consecutive sample of 31 adult, Greek speaking PCD patients in Cyprus for psychometric validation, which included assessment of internal consistency, test-retest reliability, construct and convergent validity. Internal consistency was assessed by Cronbach's alpha test in terms of the overall and sub-scales. Test-retest reliability was assessed by repeat administration of the questionnaire within 2 weeks and calculation of the intra-class correlation (ICC). Construct validity was assessed by comparing different groups of patients based on a-priori hypotheses and convergent validity was evaluated by examining associations between the QOL-PCD and SF-36 questionnaires.
Moderate to good internal consistency was observed (Cronbach's α: 0.46-0.88 across sub-scales) and test-retest reliability assessment demonstrated good repeatability for most scales (ICC: 0.67-0.91 across subscales). Patients of female gender, older age and lower lung function exhibited lower QOL-PCD scores in general, while high correlations for most QOL-PCD scales with corresponding SF-36 scales were observed, in particular for physical functioning (r = 0.78, p < 0.05).
The adult version of QoL-PCD questionnaire has been translated according to international guidelines resulting to a cross-culturally validated Greek version which exhibited moderate to good metric properties in terms of internal consistency, stability, known-group and convergent validity.</abstract><cop>England</cop><pub>BioMed Central Ltd</pub><pmid>32321519</pmid><doi>10.1186/s12955-020-01360-w</doi><tpages>1</tpages><oa>free_for_read</oa></addata></record> |
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| subjects | Adults Age Cognitive ability Consistency Convergence Dyskinesia English language Ethnicity Females Gender Hypotheses Medical research Microscopy Movement disorders Mutation Patients Primary Ciliary dyskinesia Psychometric testing Quality of life Questionnaires Reliability analysis Respiratory function Statistical analysis Surveys Translation (Languages) Translations Validation studies Validity |
| title | Health related quality of life in adult primary Ciliary dyskinesia patients in Cyprus: development and validation of the Greek version of the QOL-PCD questionnaire |
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