Best practice when service users do not consent to sharinginformation with carers: National multimethod study
BackgroundService users with psychosis may not consent to sharing information withcarers. However, carers require access to relevant information to supportthem in their role.AimsTo inform clinical practice when service users withhold consent to shareinformation with their carer.MethodStudy data were...
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| Veröffentlicht in: | British journal of psychiatry 2007-02, Vol.190 (2), p.148-155 |
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| container_title | British journal of psychiatry |
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| creator | Slade, Mike Pinfold Vanessa Rapaport, Joan Bellringer Sophie Banerjee Sube Kuipers, Elizabeth Huxley, Peter |
| description | BackgroundService users with psychosis may not consent to sharing information withcarers. However, carers require access to relevant information to supportthem in their role.AimsTo inform clinical practice when service users withhold consent to shareinformation with their carer.MethodStudy data were derived from a synthesis of policy review(n=91), national survey (n=595) andindividual interviews (n=24).ResultsKey principles to guide information-sharing practices were identified.Service users highlighted confidentiality being guaranteed by consentprocesses. Carers suggested a ‘culture shift’ was required, withprofessionals trained to work with carers. Professionals emphasisedmental capacity, professional judgement and the context of care. A bestpractice framework is proposed.ConclusionsAn important distinction is between general information, which can alwaysbe shared without consent, and personal information, which is new to thecarer and where consent needs to be considered. Clinical judgement iscentral to balancing conflicting ethical imperatives in this area. |
| doi_str_mv | 10.1192/bjp.bp.106.024935 |
| format | Article |
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However, carers require access to relevant information to supportthem in their role.AimsTo inform clinical practice when service users withhold consent to shareinformation with their carer.MethodStudy data were derived from a synthesis of policy review(n=91), national survey (n=595) andindividual interviews (n=24).ResultsKey principles to guide information-sharing practices were identified.Service users highlighted confidentiality being guaranteed by consentprocesses. Carers suggested a ‘culture shift’ was required, withprofessionals trained to work with carers. Professionals emphasisedmental capacity, professional judgement and the context of care. A bestpractice framework is proposed.ConclusionsAn important distinction is between general information, which can alwaysbe shared without consent, and personal information, which is new to thecarer and where consent needs to be considered. Clinical judgement iscentral to balancing conflicting ethical imperatives in this area.</description><identifier>ISSN: 0007-1250</identifier><identifier>EISSN: 1472-1465</identifier><identifier>DOI: 10.1192/bjp.bp.106.024935</identifier><language>eng</language><publisher>London: Cambridge University Press</publisher><subject>Best practice ; Caregivers ; Clinical decision making ; Clinical medicine ; Confidentiality ; Consent ; Data collection ; Information communication ; Information sharing ; Interviews ; Medical personnel ; Mental health ; Personal information ; Polls & surveys ; Professionals ; Psychiatry ; Psychosis ; R&D ; Research & development ; Stakeholders</subject><ispartof>British journal of psychiatry, 2007-02, Vol.190 (2), p.148-155</ispartof><rights>Copyright © Royal College of Psychiatrists, 2007</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>314,778,782,12833,27911,27912,30986</link.rule.ids></links><search><creatorcontrib>Slade, Mike</creatorcontrib><creatorcontrib>Pinfold Vanessa</creatorcontrib><creatorcontrib>Rapaport, Joan</creatorcontrib><creatorcontrib>Bellringer Sophie</creatorcontrib><creatorcontrib>Banerjee Sube</creatorcontrib><creatorcontrib>Kuipers, Elizabeth</creatorcontrib><creatorcontrib>Huxley, Peter</creatorcontrib><title>Best practice when service users do not consent to sharinginformation with carers: National multimethod study</title><title>British journal of psychiatry</title><description>BackgroundService users with psychosis may not consent to sharing information withcarers. However, carers require access to relevant information to supportthem in their role.AimsTo inform clinical practice when service users withhold consent to shareinformation with their carer.MethodStudy data were derived from a synthesis of policy review(n=91), national survey (n=595) andindividual interviews (n=24).ResultsKey principles to guide information-sharing practices were identified.Service users highlighted confidentiality being guaranteed by consentprocesses. Carers suggested a ‘culture shift’ was required, withprofessionals trained to work with carers. Professionals emphasisedmental capacity, professional judgement and the context of care. A bestpractice framework is proposed.ConclusionsAn important distinction is between general information, which can alwaysbe shared without consent, and personal information, which is new to thecarer and where consent needs to be considered. Clinical judgement iscentral to balancing conflicting ethical imperatives in this area.</description><subject>Best practice</subject><subject>Caregivers</subject><subject>Clinical decision making</subject><subject>Clinical medicine</subject><subject>Confidentiality</subject><subject>Consent</subject><subject>Data collection</subject><subject>Information communication</subject><subject>Information sharing</subject><subject>Interviews</subject><subject>Medical personnel</subject><subject>Mental health</subject><subject>Personal information</subject><subject>Polls & surveys</subject><subject>Professionals</subject><subject>Psychiatry</subject><subject>Psychosis</subject><subject>R&D</subject><subject>Research & development</subject><subject>Stakeholders</subject><issn>0007-1250</issn><issn>1472-1465</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2007</creationdate><recordtype>article</recordtype><sourceid>7QJ</sourceid><sourceid>8G5</sourceid><sourceid>ABUWG</sourceid><sourceid>AFKRA</sourceid><sourceid>AZQEC</sourceid><sourceid>BENPR</sourceid><sourceid>CCPQU</sourceid><sourceid>DWQXO</sourceid><sourceid>GNUQQ</sourceid><sourceid>GUQSH</sourceid><sourceid>M2O</sourceid><recordid>eNqNjUsKwjAYhIMoWB8HcPeD69Y827pVFLeC-xJrtCma1CTV6xvBA7ia-ZgZBqEFwRkha7o6t1127jKC8wxTvmZigBLCC5oSnoshSjDGRUqowGM08b6NyDgtEnTcKB-gc7IOulbwbpQBr9zrC300Hi4WjA1QW-OVCRAs-EY6bW7aXK17yKCtgbcODdTSxcEMja7y7tX8p1O03O9O20PaOfvs41vV2t6ZGFWUESFKVvKC_df6AENvR0Y</recordid><startdate>20070201</startdate><enddate>20070201</enddate><creator>Slade, Mike</creator><creator>Pinfold Vanessa</creator><creator>Rapaport, Joan</creator><creator>Bellringer Sophie</creator><creator>Banerjee Sube</creator><creator>Kuipers, Elizabeth</creator><creator>Huxley, Peter</creator><general>Cambridge University Press</general><scope>0-V</scope><scope>3V.</scope><scope>7QJ</scope><scope>7TK</scope><scope>7XB</scope><scope>88G</scope><scope>88J</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>8G5</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>ALSLI</scope><scope>AZQEC</scope><scope>BENPR</scope><scope>CCPQU</scope><scope>DWQXO</scope><scope>FYUFA</scope><scope>GHDGH</scope><scope>GNUQQ</scope><scope>GUQSH</scope><scope>HEHIP</scope><scope>M2M</scope><scope>M2O</scope><scope>M2R</scope><scope>M2S</scope><scope>MBDVC</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PRINS</scope><scope>PSYQQ</scope><scope>Q9U</scope></search><sort><creationdate>20070201</creationdate><title>Best practice when service users do not consent to sharinginformation with carers</title><author>Slade, Mike ; Pinfold Vanessa ; Rapaport, Joan ; Bellringer Sophie ; Banerjee Sube ; Kuipers, Elizabeth ; Huxley, Peter</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-proquest_journals_23155838473</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2007</creationdate><topic>Best practice</topic><topic>Caregivers</topic><topic>Clinical decision making</topic><topic>Clinical medicine</topic><topic>Confidentiality</topic><topic>Consent</topic><topic>Data collection</topic><topic>Information communication</topic><topic>Information sharing</topic><topic>Interviews</topic><topic>Medical personnel</topic><topic>Mental health</topic><topic>Personal information</topic><topic>Polls & surveys</topic><topic>Professionals</topic><topic>Psychiatry</topic><topic>Psychosis</topic><topic>R&D</topic><topic>Research & development</topic><topic>Stakeholders</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Slade, Mike</creatorcontrib><creatorcontrib>Pinfold Vanessa</creatorcontrib><creatorcontrib>Rapaport, Joan</creatorcontrib><creatorcontrib>Bellringer Sophie</creatorcontrib><creatorcontrib>Banerjee Sube</creatorcontrib><creatorcontrib>Kuipers, Elizabeth</creatorcontrib><creatorcontrib>Huxley, Peter</creatorcontrib><collection>ProQuest Social Sciences Premium Collection</collection><collection>ProQuest Central (Corporate)</collection><collection>Applied Social Sciences Index & Abstracts (ASSIA)</collection><collection>Neurosciences Abstracts</collection><collection>ProQuest Central (purchase pre-March 2016)</collection><collection>Psychology Database (Alumni)</collection><collection>Social Science Database (Alumni Edition)</collection><collection>Hospital Premium Collection</collection><collection>Hospital Premium Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni) (purchase pre-March 2016)</collection><collection>Research Library (Alumni Edition)</collection><collection>ProQuest Central (Alumni Edition)</collection><collection>ProQuest Central UK/Ireland</collection><collection>Social Science Premium Collection</collection><collection>ProQuest Central Essentials</collection><collection>ProQuest Central</collection><collection>ProQuest One Community College</collection><collection>ProQuest Central Korea</collection><collection>Health Research Premium Collection</collection><collection>Health Research Premium Collection (Alumni)</collection><collection>ProQuest Central Student</collection><collection>Research Library Prep</collection><collection>Sociology Collection</collection><collection>Psychology Database</collection><collection>Research Library</collection><collection>Social Science Database</collection><collection>Sociology Database</collection><collection>Research Library (Corporate)</collection><collection>ProQuest One Academic Eastern Edition (DO NOT USE)</collection><collection>ProQuest One Academic</collection><collection>ProQuest One Academic UKI Edition</collection><collection>ProQuest Central China</collection><collection>ProQuest One Psychology</collection><collection>ProQuest Central Basic</collection><jtitle>British journal of psychiatry</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Slade, Mike</au><au>Pinfold Vanessa</au><au>Rapaport, Joan</au><au>Bellringer Sophie</au><au>Banerjee Sube</au><au>Kuipers, Elizabeth</au><au>Huxley, Peter</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Best practice when service users do not consent to sharinginformation with carers: National multimethod study</atitle><jtitle>British journal of psychiatry</jtitle><date>2007-02-01</date><risdate>2007</risdate><volume>190</volume><issue>2</issue><spage>148</spage><epage>155</epage><pages>148-155</pages><issn>0007-1250</issn><eissn>1472-1465</eissn><abstract>BackgroundService users with psychosis may not consent to sharing information withcarers. However, carers require access to relevant information to supportthem in their role.AimsTo inform clinical practice when service users withhold consent to shareinformation with their carer.MethodStudy data were derived from a synthesis of policy review(n=91), national survey (n=595) andindividual interviews (n=24).ResultsKey principles to guide information-sharing practices were identified.Service users highlighted confidentiality being guaranteed by consentprocesses. Carers suggested a ‘culture shift’ was required, withprofessionals trained to work with carers. Professionals emphasisedmental capacity, professional judgement and the context of care. A bestpractice framework is proposed.ConclusionsAn important distinction is between general information, which can alwaysbe shared without consent, and personal information, which is new to thecarer and where consent needs to be considered. Clinical judgement iscentral to balancing conflicting ethical imperatives in this area.</abstract><cop>London</cop><pub>Cambridge University Press</pub><doi>10.1192/bjp.bp.106.024935</doi></addata></record> |
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| source | Elektronische Zeitschriftenbibliothek - Frei zugängliche E-Journals; Applied Social Sciences Index & Abstracts (ASSIA); Alma/SFX Local Collection; Cambridge University Press Journals Complete |
| subjects | Best practice Caregivers Clinical decision making Clinical medicine Confidentiality Consent Data collection Information communication Information sharing Interviews Medical personnel Mental health Personal information Polls & surveys Professionals Psychiatry Psychosis R&D Research & development Stakeholders |
| title | Best practice when service users do not consent to sharinginformation with carers: National multimethod study |
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