The Ups and Downs of Down Syndrome: A Qualitative Study of Positive and Negative Parenting Experiences
The current study sought to expand current literature by providing a comparison of the positive and negative experiences reported by parents of children with a Down syndrome (DS) diagnosis. A total of 435 participants from a national study were included in the current qualitative analysis based on r...
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| Veröffentlicht in: | Journal of family issues 2019-03, Vol.40 (4), p.518-539 |
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| container_issue | 4 |
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| container_title | Journal of family issues |
| container_volume | 40 |
| creator | Farkas, Laura Cless, Jessica D. Cless, Adam W. Nelson Goff, Briana S. Bodine, Ellen Edelman, Ashley |
| description | The current study sought to expand current literature by providing a comparison of the positive and negative experiences reported by parents of children with a Down syndrome (DS) diagnosis. A total of 435 participants from a national study were included in the current qualitative analysis based on responses to online survey data from two research questions asking parents to describe their most positive and most negative experiences in parenting their child with DS. Positive experiences themes included the following: impact on parents and other people, child’s achievements, social acceptance/connection, and everyday/everything/many. Negative experiences themes included medical experiences, lack of social acceptance/connection, the DS diagnosis, and the impact on parents and other people. Implications for professionals and future research are presented. |
| doi_str_mv | 10.1177/0192513X18812192 |
| format | Article |
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| identifier | ISSN: 0192-513X |
| ispartof | Journal of family issues, 2019-03, Vol.40 (4), p.518-539 |
| issn | 0192-513X 1552-5481 |
| language | eng |
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| source | Sociological Abstracts; SAGE Complete A-Z List |
| subjects | Childrearing practices Children Down syndrome Internet Medicine Parents & parenting Qualitative research Social acceptance |
| title | The Ups and Downs of Down Syndrome: A Qualitative Study of Positive and Negative Parenting Experiences |
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