Importance of health guidance for family members of children with sickle cell disease
To know the main health guidance needs of family members of children with sickle cell disease. Qualitative research, developed in a pediatric reference hospital of Ceará State, between April and May 2017, through the participation of 12 family members of children with sickle cell disease. The data w...
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| Veröffentlicht in: | Revista Brasileira de Enfermagem 2018-11, Vol.71 (6), p.2974-2982 |
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| container_title | Revista Brasileira de Enfermagem |
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| creator | Figueiredo, Sarah Vieira Lima, Letícia Alexandre Silva, Débora Pena Batista E Oliveira, Raquel de Maria Carvalho Santos, Macedônia Pinto Dos Gomes, Ilvana Lima Verde |
| description | To know the main health guidance needs of family members of children with sickle cell disease.
Qualitative research, developed in a pediatric reference hospital of Ceará State, between April and May 2017, through the participation of 12 family members of children with sickle cell disease. The data were collected through semi-structured interviewees and analyzed according to the Bardin's Thematic Categorical Analysis.
The relatives had divergent opinions about what this pathology would be and expressed the expectation of being broadly guided, from general information (signs and symptoms) to more complex ones about the disease, including major complications and ways of preventing them.
The health fragility due to the punctual and/or meager guidance provided to family members reflects the importance of increasing knowledge and clarifying doubts of these relatives about the disease, which makes it urgent to develop health education strategies by multiprofessional teams. |
| doi_str_mv | 10.1590/0034-7167-2017-0806 |
| format | Article |
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Qualitative research, developed in a pediatric reference hospital of Ceará State, between April and May 2017, through the participation of 12 family members of children with sickle cell disease. The data were collected through semi-structured interviewees and analyzed according to the Bardin's Thematic Categorical Analysis.
The relatives had divergent opinions about what this pathology would be and expressed the expectation of being broadly guided, from general information (signs and symptoms) to more complex ones about the disease, including major complications and ways of preventing them.
The health fragility due to the punctual and/or meager guidance provided to family members reflects the importance of increasing knowledge and clarifying doubts of these relatives about the disease, which makes it urgent to develop health education strategies by multiprofessional teams.</description><identifier>ISSN: 0034-7167</identifier><identifier>ISSN: 1984-0446</identifier><identifier>EISSN: 1984-0446</identifier><identifier>DOI: 10.1590/0034-7167-2017-0806</identifier><identifier>PMID: 30517401</identifier><language>eng</language><publisher>Brazil: Associação Brasileira de Enfermagem</publisher><subject>Adolescent ; Adult ; Anemia, Sickle Cell ; Anemia, Sickle Cell - complications ; Anemia, Sickle Cell - psychology ; Caregivers ; Child ; Comprehensive Health Care ; Cost of Illness ; Families & family life ; Family ; Family - psychology ; Female ; Health Education ; Hospitals ; Humans ; Internet ; Interviews as Topic - methods ; Male ; Middle Aged ; Neurosciences ; NURSING ; Qualitative Research ; Quality of Life - psychology ; Sickle cell anemia ; Sickle cell disease</subject><ispartof>Revista Brasileira de Enfermagem, 2018-11, Vol.71 (6), p.2974-2982</ispartof><rights>2018. This work is published under https://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><rights>This work is licensed under a Creative Commons Attribution 4.0 International License.</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c483t-7f058fc9362edc6abb786a0098f2e8451532dd8e4407e04d74398f4aba826b323</citedby><cites>FETCH-LOGICAL-c483t-7f058fc9362edc6abb786a0098f2e8451532dd8e4407e04d74398f4aba826b323</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>230,314,780,784,864,885,27924,27925</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/30517401$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Figueiredo, Sarah Vieira</creatorcontrib><creatorcontrib>Lima, Letícia Alexandre</creatorcontrib><creatorcontrib>Silva, Débora Pena Batista E</creatorcontrib><creatorcontrib>Oliveira, Raquel de Maria Carvalho</creatorcontrib><creatorcontrib>Santos, Macedônia Pinto Dos</creatorcontrib><creatorcontrib>Gomes, Ilvana Lima Verde</creatorcontrib><title>Importance of health guidance for family members of children with sickle cell disease</title><title>Revista Brasileira de Enfermagem</title><addtitle>Rev Bras Enferm</addtitle><description>To know the main health guidance needs of family members of children with sickle cell disease.
Qualitative research, developed in a pediatric reference hospital of Ceará State, between April and May 2017, through the participation of 12 family members of children with sickle cell disease. The data were collected through semi-structured interviewees and analyzed according to the Bardin's Thematic Categorical Analysis.
The relatives had divergent opinions about what this pathology would be and expressed the expectation of being broadly guided, from general information (signs and symptoms) to more complex ones about the disease, including major complications and ways of preventing them.
The health fragility due to the punctual and/or meager guidance provided to family members reflects the importance of increasing knowledge and clarifying doubts of these relatives about the disease, which makes it urgent to develop health education strategies by multiprofessional teams.</description><subject>Adolescent</subject><subject>Adult</subject><subject>Anemia, Sickle Cell</subject><subject>Anemia, Sickle Cell - complications</subject><subject>Anemia, Sickle Cell - psychology</subject><subject>Caregivers</subject><subject>Child</subject><subject>Comprehensive Health Care</subject><subject>Cost of Illness</subject><subject>Families & family life</subject><subject>Family</subject><subject>Family - psychology</subject><subject>Female</subject><subject>Health Education</subject><subject>Hospitals</subject><subject>Humans</subject><subject>Internet</subject><subject>Interviews as Topic - methods</subject><subject>Male</subject><subject>Middle Aged</subject><subject>Neurosciences</subject><subject>NURSING</subject><subject>Qualitative Research</subject><subject>Quality of Life - psychology</subject><subject>Sickle cell anemia</subject><subject>Sickle cell disease</subject><issn>0034-7167</issn><issn>1984-0446</issn><issn>1984-0446</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2018</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>ABUWG</sourceid><sourceid>AFKRA</sourceid><sourceid>AZQEC</sourceid><sourceid>BENPR</sourceid><sourceid>CCPQU</sourceid><sourceid>DWQXO</sourceid><sourceid>DOA</sourceid><recordid>eNpdkUtr3DAUhUVpaYZpfkGhGLrpxunVw5K8LKGPgUAWbdZClq4ySu3RVBpT8u8rZ1IvshJcfffo6BxC3lO4ol0PnwG4aBWVqmVAVQsa5Cuyob0WLQghX5PNSlyQy1LiANB1lDOp35ILDh1VAuiG3O2mY8one3DYpNDs0Y6nfXM_R_80Cik3wU5xfGwmnAbMZaHcPo4-46H5Gytcovs9YuNwHBsfC9qC78ibYMeCl8_nltx9-_rr-kd7c_t9d_3lpnVC81OrAnQ6uJ5Lht5JOwxKSwvQ68BQi452nHmvUQhQCMIrweuVsIPVTA6c8S3ZnXV9sg_mmONk86NJNpqnQcr3xuZTdCMaGiztOhB9jUVYilY7C6I-hj1YFXzVujprFRdxTOYhzflQzZufS5JmSbJGrQFAAuurlS35dF445vRnxnIyUyxLCvaAaS6GUdUzTimoin58ga7qjEqmGGWyrxQ_Uy6nUjKG9UcUzNK6WZ2YpXWztF63Pjxrz8OEft353zH_B4Zgonw</recordid><startdate>20181101</startdate><enddate>20181101</enddate><creator>Figueiredo, Sarah Vieira</creator><creator>Lima, Letícia Alexandre</creator><creator>Silva, Débora Pena Batista E</creator><creator>Oliveira, Raquel de Maria Carvalho</creator><creator>Santos, Macedônia Pinto Dos</creator><creator>Gomes, Ilvana Lima Verde</creator><general>Associação Brasileira de Enfermagem</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>3V.</scope><scope>7RV</scope><scope>7X7</scope><scope>7XB</scope><scope>88E</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>AN0</scope><scope>AZQEC</scope><scope>BENPR</scope><scope>CCPQU</scope><scope>CLZPN</scope><scope>DWQXO</scope><scope>FYUFA</scope><scope>GHDGH</scope><scope>K9.</scope><scope>KB0</scope><scope>M0S</scope><scope>M1P</scope><scope>NAPCQ</scope><scope>PIMPY</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PRINS</scope><scope>7X8</scope><scope>GPN</scope><scope>DOA</scope></search><sort><creationdate>20181101</creationdate><title>Importance of health guidance for family members of children with sickle cell disease</title><author>Figueiredo, Sarah Vieira ; 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Qualitative research, developed in a pediatric reference hospital of Ceará State, between April and May 2017, through the participation of 12 family members of children with sickle cell disease. The data were collected through semi-structured interviewees and analyzed according to the Bardin's Thematic Categorical Analysis.
The relatives had divergent opinions about what this pathology would be and expressed the expectation of being broadly guided, from general information (signs and symptoms) to more complex ones about the disease, including major complications and ways of preventing them.
The health fragility due to the punctual and/or meager guidance provided to family members reflects the importance of increasing knowledge and clarifying doubts of these relatives about the disease, which makes it urgent to develop health education strategies by multiprofessional teams.</abstract><cop>Brazil</cop><pub>Associação Brasileira de Enfermagem</pub><pmid>30517401</pmid><doi>10.1590/0034-7167-2017-0806</doi><tpages>9</tpages><oa>free_for_read</oa></addata></record> |
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| subjects | Adolescent Adult Anemia, Sickle Cell Anemia, Sickle Cell - complications Anemia, Sickle Cell - psychology Caregivers Child Comprehensive Health Care Cost of Illness Families & family life Family Family - psychology Female Health Education Hospitals Humans Internet Interviews as Topic - methods Male Middle Aged Neurosciences NURSING Qualitative Research Quality of Life - psychology Sickle cell anemia Sickle cell disease |
| title | Importance of health guidance for family members of children with sickle cell disease |
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