Advancing the ethical use of digital data in human research: challenges and strategies to promote ethical practice
The proliferation of digital data and internet-based research technologies is transforming the research landscape, and researchers and research ethics communities are struggling to respond to the ethical issues being raised. This paper discusses the findings from a collaborative project that explore...
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| Veröffentlicht in: | Ethics and information technology 2019-03, Vol.21 (1), p.59-73 |
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| creator | Clark, Karin Duckham, Matt Guillemin, Marilys Hunter, Assunta McVernon, Jodie O’Keefe, Christine Pitkin, Cathy Prawer, Steven Sinnott, Richard Warr, Deborah Waycott, Jenny |
| description | The proliferation of digital data and internet-based research technologies is transforming the research landscape, and researchers and research ethics communities are struggling to respond to the ethical issues being raised. This paper discusses the findings from a collaborative project that explored emerging ethical issues associated with the expanding use of digital data for research. The project involved consulting with researchers from a broad range of disciplinary fields. These discussions identified five key sets of issues and informed the development of guidelines orientated to meet the needs of researchers and ethics committee members. We argue that establishing common approaches to assessing ethical risks of research involving digital data will promote consistency in the ethical standards for research, enable the smooth functioning of ethics committees, and sustain public confidence in research. We conclude with recommendations for the development of educational resources for ethics committees, data management guidelines and further public education. |
| doi_str_mv | 10.1007/s10676-018-9490-4 |
| format | Article |
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All Rights Reserved.</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c316t-300c67f146160102e351534cd9c096bd0d6075e43f26e0c8fd633884b8dbba073</citedby><cites>FETCH-LOGICAL-c316t-300c67f146160102e351534cd9c096bd0d6075e43f26e0c8fd633884b8dbba073</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://link.springer.com/content/pdf/10.1007/s10676-018-9490-4$$EPDF$$P50$$Gspringer$$H</linktopdf><linktohtml>$$Uhttps://link.springer.com/10.1007/s10676-018-9490-4$$EHTML$$P50$$Gspringer$$H</linktohtml><link.rule.ids>314,777,781,27905,27906,41469,42538,51300</link.rule.ids></links><search><creatorcontrib>Clark, Karin</creatorcontrib><creatorcontrib>Duckham, Matt</creatorcontrib><creatorcontrib>Guillemin, Marilys</creatorcontrib><creatorcontrib>Hunter, Assunta</creatorcontrib><creatorcontrib>McVernon, Jodie</creatorcontrib><creatorcontrib>O’Keefe, Christine</creatorcontrib><creatorcontrib>Pitkin, Cathy</creatorcontrib><creatorcontrib>Prawer, Steven</creatorcontrib><creatorcontrib>Sinnott, Richard</creatorcontrib><creatorcontrib>Warr, Deborah</creatorcontrib><creatorcontrib>Waycott, Jenny</creatorcontrib><title>Advancing the ethical use of digital data in human research: challenges and strategies to promote ethical practice</title><title>Ethics and information technology</title><addtitle>Ethics Inf Technol</addtitle><description>The proliferation of digital data and internet-based research technologies is transforming the research landscape, and researchers and research ethics communities are struggling to respond to the ethical issues being raised. 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| ispartof | Ethics and information technology, 2019-03, Vol.21 (1), p.59-73 |
| issn | 1388-1957 1572-8439 |
| language | eng |
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| source | Springer LINK 全文期刊数据库 |
| subjects | Computer Science Data integrity Data management Digital data Ethical standards Ethics Guidelines Human subjects Information sharing Informed consent Innovation/Technology Management Library Science Management of Computing and Information Systems Original Paper Professional ethics Public concern Research data management Research ethics Research methodology Resource management User Interfaces and Human Computer Interaction |
| title | Advancing the ethical use of digital data in human research: challenges and strategies to promote ethical practice |
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