The daily lives of people with Parkinson's disease
To understand the daily lives of people with Parkinson's disease. Qualitative research, using as methodological and theoretical referential the Grounded Theory and Symbolic Interactionism, respectively. The in-depth interview was conducted with 30 people with Parkinson's disease. From data...
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| Veröffentlicht in: | Revista Brasileira de Enfermagem 2018-03, Vol.71 (2), p.272-279 |
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| container_title | Revista Brasileira de Enfermagem |
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| creator | Valcarenghi, Rafaela Vivian Alvarez, Angela Maria Santos, Silvana Sidney Costa Siewert, Josiane Steil Nunes, Simony Fabíola Lopes Tomasi, Andrelise Viana Rosa |
| description | To understand the daily lives of people with Parkinson's disease.
Qualitative research, using as methodological and theoretical referential the Grounded Theory and Symbolic Interactionism, respectively. The in-depth interview was conducted with 30 people with Parkinson's disease.
From data analysis, three themes were selected: Living with the disease - living with the treatment and changes in lifestyle; Modifying of one's job performance - revealing incapacity for work and the need to anticipate retirement and; Living with the stigma - the feeling of prejudice against the disease and the perceived limitations of the health services.
Living with a chronic and non-transferable disease encompasses social, physical and cultural effects, along with the personal experiences of each unique individual. This study assists the improvement of care to people with the disease, because the care practice emerges from the interactions between the subjects. |
| doi_str_mv | 10.1590/0034-7167-2016-0577 |
| format | Article |
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Qualitative research, using as methodological and theoretical referential the Grounded Theory and Symbolic Interactionism, respectively. The in-depth interview was conducted with 30 people with Parkinson's disease.
From data analysis, three themes were selected: Living with the disease - living with the treatment and changes in lifestyle; Modifying of one's job performance - revealing incapacity for work and the need to anticipate retirement and; Living with the stigma - the feeling of prejudice against the disease and the perceived limitations of the health services.
Living with a chronic and non-transferable disease encompasses social, physical and cultural effects, along with the personal experiences of each unique individual. This study assists the improvement of care to people with the disease, because the care practice emerges from the interactions between the subjects.</description><identifier>ISSN: 0034-7167</identifier><identifier>ISSN: 1984-0446</identifier><identifier>EISSN: 1984-0446</identifier><identifier>DOI: 10.1590/0034-7167-2016-0577</identifier><identifier>PMID: 29412283</identifier><language>eng</language><publisher>Brazil: Associação Brasileira de Enfermagem</publisher><subject>Acontecimentos que Mudam a Vida ; Adaptation, Psychological ; Adult ; Age ; Aged ; Aged, 80 and over ; Chronic Disease - psychology ; Chronic Disease - therapy ; Cost of Illness ; Doença Crônica ; Doença de Parkinson ; Enfermagem ; Female ; Grounded Theory ; Humans ; Internet ; Interviews as Topic ; Male ; Mental depression ; Middle Aged ; Nurses ; NURSING ; Older people ; Parkinson Disease - complications ; Parkinson Disease - psychology ; Parkinson Disease - therapy ; Parkinson's disease ; Patients ; Pesquisa Qualitativa ; Psychological aspects ; Qualitative Research</subject><ispartof>Revista Brasileira de Enfermagem, 2018-03, Vol.71 (2), p.272-279</ispartof><rights>Copyright Associação Brasileira de Enfermagem Mar/Apr 2018</rights><rights>This work is licensed under a Creative Commons Attribution 4.0 International License.</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c483t-559ca85c117747591fe4ba76886c791adbb36f4b3c1263affb24ca0f0955f2ba3</citedby><cites>FETCH-LOGICAL-c483t-559ca85c117747591fe4ba76886c791adbb36f4b3c1263affb24ca0f0955f2ba3</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>230,314,777,781,861,882,27905,27906</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/29412283$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Valcarenghi, Rafaela Vivian</creatorcontrib><creatorcontrib>Alvarez, Angela Maria</creatorcontrib><creatorcontrib>Santos, Silvana Sidney Costa</creatorcontrib><creatorcontrib>Siewert, Josiane Steil</creatorcontrib><creatorcontrib>Nunes, Simony Fabíola Lopes</creatorcontrib><creatorcontrib>Tomasi, Andrelise Viana Rosa</creatorcontrib><title>The daily lives of people with Parkinson's disease</title><title>Revista Brasileira de Enfermagem</title><addtitle>Rev Bras Enferm</addtitle><description>To understand the daily lives of people with Parkinson's disease.
Qualitative research, using as methodological and theoretical referential the Grounded Theory and Symbolic Interactionism, respectively. The in-depth interview was conducted with 30 people with Parkinson's disease.
From data analysis, three themes were selected: Living with the disease - living with the treatment and changes in lifestyle; Modifying of one's job performance - revealing incapacity for work and the need to anticipate retirement and; Living with the stigma - the feeling of prejudice against the disease and the perceived limitations of the health services.
Living with a chronic and non-transferable disease encompasses social, physical and cultural effects, along with the personal experiences of each unique individual. This study assists the improvement of care to people with the disease, because the care practice emerges from the interactions between the subjects.</description><subject>Acontecimentos que Mudam a Vida</subject><subject>Adaptation, Psychological</subject><subject>Adult</subject><subject>Age</subject><subject>Aged</subject><subject>Aged, 80 and over</subject><subject>Chronic Disease - psychology</subject><subject>Chronic Disease - therapy</subject><subject>Cost of Illness</subject><subject>Doença Crônica</subject><subject>Doença de Parkinson</subject><subject>Enfermagem</subject><subject>Female</subject><subject>Grounded Theory</subject><subject>Humans</subject><subject>Internet</subject><subject>Interviews as Topic</subject><subject>Male</subject><subject>Mental depression</subject><subject>Middle Aged</subject><subject>Nurses</subject><subject>NURSING</subject><subject>Older people</subject><subject>Parkinson Disease - complications</subject><subject>Parkinson Disease - psychology</subject><subject>Parkinson Disease - therapy</subject><subject>Parkinson's disease</subject><subject>Patients</subject><subject>Pesquisa Qualitativa</subject><subject>Psychological aspects</subject><subject>Qualitative Research</subject><issn>0034-7167</issn><issn>1984-0446</issn><issn>1984-0446</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2018</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>ABUWG</sourceid><sourceid>AFKRA</sourceid><sourceid>AZQEC</sourceid><sourceid>BENPR</sourceid><sourceid>CCPQU</sourceid><sourceid>DWQXO</sourceid><sourceid>DOA</sourceid><recordid>eNpdkV9rFDEUxYNY7NL2Ewgy4IO-TL1Jbv49Sqm2UFBo-xySTGJTZzdrslvpt3fGrfMgXAhczvlxcw4hbymcU2HgEwDHXlGpegZU9iCUekVW1GjsAVG-JqtFcUzOWsseQAjKmdRvyDEzSBnTfEXY3UPsBpfH527MT7F1JXXbWLZj7H7n3UP33dWfedPK5kPrhtyia_GUHCU3tnj28p6Q-y-XdxdX_c23r9cXn2_6gJrveiFMcFoESpVCJQxNEb1TUmsZlKFu8J7LhJ4HyiR3KXmGwUECI0Ri3vETcn3gDsU92m3Na1efbXHZ_l2U-sO6usthjBYABxTINQOD2g86oEicJQggwdE4sc4PrBZyHIt9LPu6mY63t3NMdo5pylEDAJtGscnw8WDY1vJrH9vOrnMLcRzdJpZ9s9QYQw1KxEn6_j_pQp9gWis0nE8qflCFWlqrMS0_omDnSu1yiZ0rtXOlk-vdC3vv13FYPP8K5H8AkA2VWw</recordid><startdate>20180301</startdate><enddate>20180301</enddate><creator>Valcarenghi, Rafaela Vivian</creator><creator>Alvarez, Angela Maria</creator><creator>Santos, Silvana Sidney Costa</creator><creator>Siewert, Josiane Steil</creator><creator>Nunes, Simony Fabíola Lopes</creator><creator>Tomasi, Andrelise Viana Rosa</creator><general>Associação Brasileira de Enfermagem</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>3V.</scope><scope>7RV</scope><scope>7X7</scope><scope>7XB</scope><scope>88E</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>AN0</scope><scope>AZQEC</scope><scope>BENPR</scope><scope>CCPQU</scope><scope>CLZPN</scope><scope>DWQXO</scope><scope>FYUFA</scope><scope>GHDGH</scope><scope>K9.</scope><scope>KB0</scope><scope>M0S</scope><scope>M1P</scope><scope>NAPCQ</scope><scope>PIMPY</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PRINS</scope><scope>7X8</scope><scope>GPN</scope><scope>DOA</scope></search><sort><creationdate>20180301</creationdate><title>The daily lives of people with Parkinson's disease</title><author>Valcarenghi, Rafaela Vivian ; 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Qualitative research, using as methodological and theoretical referential the Grounded Theory and Symbolic Interactionism, respectively. The in-depth interview was conducted with 30 people with Parkinson's disease.
From data analysis, three themes were selected: Living with the disease - living with the treatment and changes in lifestyle; Modifying of one's job performance - revealing incapacity for work and the need to anticipate retirement and; Living with the stigma - the feeling of prejudice against the disease and the perceived limitations of the health services.
Living with a chronic and non-transferable disease encompasses social, physical and cultural effects, along with the personal experiences of each unique individual. This study assists the improvement of care to people with the disease, because the care practice emerges from the interactions between the subjects.</abstract><cop>Brazil</cop><pub>Associação Brasileira de Enfermagem</pub><pmid>29412283</pmid><doi>10.1590/0034-7167-2016-0577</doi><tpages>8</tpages><oa>free_for_read</oa></addata></record> |
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| ispartof | Revista Brasileira de Enfermagem, 2018-03, Vol.71 (2), p.272-279 |
| issn | 0034-7167 1984-0446 1984-0446 |
| language | eng |
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| subjects | Acontecimentos que Mudam a Vida Adaptation, Psychological Adult Age Aged Aged, 80 and over Chronic Disease - psychology Chronic Disease - therapy Cost of Illness Doença Crônica Doença de Parkinson Enfermagem Female Grounded Theory Humans Internet Interviews as Topic Male Mental depression Middle Aged Nurses NURSING Older people Parkinson Disease - complications Parkinson Disease - psychology Parkinson Disease - therapy Parkinson's disease Patients Pesquisa Qualitativa Psychological aspects Qualitative Research |
| title | The daily lives of people with Parkinson's disease |
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