The experiences of stroke survivors with managing eating 6 months post stroke

Introduction: Stroke affects activities of daily living such as eating. Little is known about how stroke survivors cope with eating difficulties in the long term. This research conducted in the United Kingdom explores the complex phenomenon of eating difficulties 6 months post stroke. Method: This qualitative study used a participatory approach to explore the experiences of seven stroke survivors using a focus group and visual methods of photography, to explore the lived experiences of managing eating with a stroke disability. Findings: Participants (n = 8) identified barriers to managing eating including physical, social, environmental and emotional issues. Participants recognised that sustaining eating activities regardless of their disabilities was important for their wellbeing. Stroke survivors sought opportunities to participate in occupations that revolved around eating, which enabled them to experience mastery over eating activities. Participants viewed eating activities as a way to self-monitor recovery and progression. Conclusion: This study informs occupational therapy practice about how people living with stroke strive to adapt to eating difficulties.