Validation of a Care and Comfort Hypertonicity Questionnaire
The lack of evidence regarding functional and quality of life benefits resulting from tone reduction with intrathecal baclofen (ITB) infusion treatment relates to the lack of validated and responsive measures. We integrated our scale/questionnaire, developed from chart review, with the non-validated...
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| Veröffentlicht in: | Developmental medicine and child neurology 2006-03, Vol.48 (3), p.181-187 |
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| creator | McCoy, Robin Nemer Blasco, Peter A Russman, Barry S O'Malley, Jean P |
| description | The lack of evidence regarding functional and quality of life benefits resulting from tone reduction with intrathecal baclofen (ITB) infusion treatment relates to the lack of validated and responsive measures. We integrated our scale/questionnaire, developed from chart review, with the non-validated Caregiver Questionnaire (CQ) to yield a final document, the Care and Comfort Hypertonicity Questionnaire (CCHQ). Convergent validity was achieved by administering the CCHQ to 47 patients with spastic/dystonic cerebral palsy (CP) who were being evaluated for tone management. The population studied included 18 females and 29 males (mean age 10y [SD 4y 10mo]; range 3y 1mo–21y 1mo). Twenty-five patients were subsequently referred for botulinum toxin (BTX-A) injections (mean Gross Motor Function Classification System [GMFCS] 3.2); 11 patients were referred for ITB (mean GMFCS 4.4); four were referred for orthopedic surgery (mean GMFCS 3.3); 3 were referred for selective dorsal rhizotomy (mean GMFCS 2.7); one was recommended for oral baclofen (GMFCS 5); and three were recommended for no treatment (mean GMFCS 3.7). Blinded to the score, those with the highest scores (severe hypertonicity) were recommended for ITB; those with the lowest scores were recommended for BTX-A injections. Responsiveness of the CCHQ was established by administering the questionnaire to patients who already had an implanted ITB pump. The children with the largest dose increase demonstrated a statistically significant improvement in the CCHQ score. This scale can be used to document the efficacy of treating severe hypertonicity both in clinical and research protocols. |
| doi_str_mv | 10.1017/S0012162206000405 |
| format | Article |
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We integrated our scale/questionnaire, developed from chart review, with the non-validated Caregiver Questionnaire (CQ) to yield a final document, the Care and Comfort Hypertonicity Questionnaire (CCHQ). Convergent validity was achieved by administering the CCHQ to 47 patients with spastic/dystonic cerebral palsy (CP) who were being evaluated for tone management. The population studied included 18 females and 29 males (mean age 10y [SD 4y 10mo]; range 3y 1mo–21y 1mo). Twenty-five patients were subsequently referred for botulinum toxin (BTX-A) injections (mean Gross Motor Function Classification System [GMFCS] 3.2); 11 patients were referred for ITB (mean GMFCS 4.4); four were referred for orthopedic surgery (mean GMFCS 3.3); 3 were referred for selective dorsal rhizotomy (mean GMFCS 2.7); one was recommended for oral baclofen (GMFCS 5); and three were recommended for no treatment (mean GMFCS 3.7). Blinded to the score, those with the highest scores (severe hypertonicity) were recommended for ITB; those with the lowest scores were recommended for BTX-A injections. Responsiveness of the CCHQ was established by administering the questionnaire to patients who already had an implanted ITB pump. The children with the largest dose increase demonstrated a statistically significant improvement in the CCHQ score. This scale can be used to document the efficacy of treating severe hypertonicity both in clinical and research protocols.</description><identifier>ISSN: 0012-1622</identifier><identifier>EISSN: 1469-8749</identifier><identifier>DOI: 10.1017/S0012162206000405</identifier><identifier>PMID: 16483393</identifier><identifier>CODEN: DMCNAW</identifier><language>eng</language><publisher>Cambridge, UK: Cambridge University Press</publisher><subject>Adolescent ; Adult ; Botulinum Toxins, Type A - therapeutic use ; Caregivers ; Cerebral Palsy ; Cerebral Palsy - epidemiology ; Child ; Child Health ; Child, Preschool ; Communication (Thought Transfer) ; Construct Validity ; Content Validity ; Demography ; Family (Sociological Unit) ; Female ; Health Services ; Humans ; Injections, Intramuscular ; Male ; Muscle Hypertonia - diagnosis ; Muscle Hypertonia - drug therapy ; Muscle Hypertonia - epidemiology ; Neuromuscular Agents - therapeutic use ; Original Articles ; Patient Care ; Patients ; Quality of Life ; Questionnaires ; Reproducibility of Results ; Rest ; Sampling ; Severity of Illness Index ; Surveys and Questionnaires ; Validity</subject><ispartof>Developmental medicine and child neurology, 2006-03, Vol.48 (3), p.181-187</ispartof><rights>2006 Mac Keith Press</rights><rights>Copyright Mac Keith Press Mar 2006</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c4601-24afd84a38eb268a30406b37f15119fe140a0a565ebe13de4c29ca0c239c73483</citedby><cites>FETCH-LOGICAL-c4601-24afd84a38eb268a30406b37f15119fe140a0a565ebe13de4c29ca0c239c73483</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1017%2FS0012162206000405$$EPDF$$P50$$Gwiley$$H</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1017%2FS0012162206000405$$EHTML$$P50$$Gwiley$$H</linktohtml><link.rule.ids>314,776,780,1411,1427,27901,27902,45550,45551,46384,46808</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/16483393$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>McCoy, Robin Nemer</creatorcontrib><creatorcontrib>Blasco, Peter A</creatorcontrib><creatorcontrib>Russman, Barry S</creatorcontrib><creatorcontrib>O'Malley, Jean P</creatorcontrib><title>Validation of a Care and Comfort Hypertonicity Questionnaire</title><title>Developmental medicine and child neurology</title><addtitle>Dev. med. child neurol</addtitle><description>The lack of evidence regarding functional and quality of life benefits resulting from tone reduction with intrathecal baclofen (ITB) infusion treatment relates to the lack of validated and responsive measures. We integrated our scale/questionnaire, developed from chart review, with the non-validated Caregiver Questionnaire (CQ) to yield a final document, the Care and Comfort Hypertonicity Questionnaire (CCHQ). Convergent validity was achieved by administering the CCHQ to 47 patients with spastic/dystonic cerebral palsy (CP) who were being evaluated for tone management. The population studied included 18 females and 29 males (mean age 10y [SD 4y 10mo]; range 3y 1mo–21y 1mo). Twenty-five patients were subsequently referred for botulinum toxin (BTX-A) injections (mean Gross Motor Function Classification System [GMFCS] 3.2); 11 patients were referred for ITB (mean GMFCS 4.4); four were referred for orthopedic surgery (mean GMFCS 3.3); 3 were referred for selective dorsal rhizotomy (mean GMFCS 2.7); one was recommended for oral baclofen (GMFCS 5); and three were recommended for no treatment (mean GMFCS 3.7). Blinded to the score, those with the highest scores (severe hypertonicity) were recommended for ITB; those with the lowest scores were recommended for BTX-A injections. Responsiveness of the CCHQ was established by administering the questionnaire to patients who already had an implanted ITB pump. The children with the largest dose increase demonstrated a statistically significant improvement in the CCHQ score. This scale can be used to document the efficacy of treating severe hypertonicity both in clinical and research protocols.</description><subject>Adolescent</subject><subject>Adult</subject><subject>Botulinum Toxins, Type A - therapeutic use</subject><subject>Caregivers</subject><subject>Cerebral Palsy</subject><subject>Cerebral Palsy - epidemiology</subject><subject>Child</subject><subject>Child Health</subject><subject>Child, Preschool</subject><subject>Communication (Thought Transfer)</subject><subject>Construct Validity</subject><subject>Content Validity</subject><subject>Demography</subject><subject>Family (Sociological Unit)</subject><subject>Female</subject><subject>Health Services</subject><subject>Humans</subject><subject>Injections, Intramuscular</subject><subject>Male</subject><subject>Muscle Hypertonia - diagnosis</subject><subject>Muscle Hypertonia - drug therapy</subject><subject>Muscle Hypertonia - epidemiology</subject><subject>Neuromuscular Agents - therapeutic use</subject><subject>Original Articles</subject><subject>Patient Care</subject><subject>Patients</subject><subject>Quality of Life</subject><subject>Questionnaires</subject><subject>Reproducibility of Results</subject><subject>Rest</subject><subject>Sampling</subject><subject>Severity of Illness Index</subject><subject>Surveys and Questionnaires</subject><subject>Validity</subject><issn>0012-1622</issn><issn>1469-8749</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2006</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>BENPR</sourceid><recordid>eNqFkEtLxDAUhYMozjj6A9xIcV_NbdK0ATdSHyOMivjYlts2kQzTZkw7SP-9KVNQEHGVxf3Oycch5BjoGVBIzp8phQhEFFFBKeU03iFT4EKGacLlLpkO53C4T8hB2y49w0TM98kEBE8Zk2xKLt5wZSrsjG0CqwMMMnQqwKYKMltr67pg3q-V62xjStP1wdNGtQPcoHHqkOxpXLXqaHxn5PXm-iWbh4vH27vschGWXFAII466SjmyVBWRSJF5VVGwREMMILUCTpFiLGJVKGCV4mUkS6RlxGSZMG86I6fb3rWzH4NAvrQb1_gvc5BxLFmSJB6CLVQ627ZO6XztTI2uz4Hmw1z5r7l85mQs3hS1qr4T4z4eEFvg06xU_39jfnWfPUAKPshGG6wLZ6p39cP5T58vvKyBqA</recordid><startdate>200603</startdate><enddate>200603</enddate><creator>McCoy, Robin Nemer</creator><creator>Blasco, Peter A</creator><creator>Russman, Barry S</creator><creator>O'Malley, Jean P</creator><general>Cambridge University Press</general><general>Blackwell Publishing Ltd</general><general>Mac Keith Press</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>0-V</scope><scope>3V.</scope><scope>7RV</scope><scope>7X7</scope><scope>7XB</scope><scope>88B</scope><scope>88E</scope><scope>88G</scope><scope>88I</scope><scope>8AF</scope><scope>8AO</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>ALSLI</scope><scope>AN0</scope><scope>AZQEC</scope><scope>BENPR</scope><scope>CCPQU</scope><scope>CJNVE</scope><scope>DWQXO</scope><scope>FYUFA</scope><scope>GHDGH</scope><scope>GNUQQ</scope><scope>HCIFZ</scope><scope>K9.</scope><scope>KB0</scope><scope>M0P</scope><scope>M0S</scope><scope>M1P</scope><scope>M2M</scope><scope>M2P</scope><scope>NAPCQ</scope><scope>PQEDU</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PRINS</scope><scope>PSYQQ</scope><scope>Q9U</scope><scope>S0X</scope></search><sort><creationdate>200603</creationdate><title>Validation of a Care and Comfort Hypertonicity Questionnaire</title><author>McCoy, Robin Nemer ; Blasco, Peter A ; Russman, Barry S ; O'Malley, Jean P</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c4601-24afd84a38eb268a30406b37f15119fe140a0a565ebe13de4c29ca0c239c73483</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2006</creationdate><topic>Adolescent</topic><topic>Adult</topic><topic>Botulinum Toxins, Type A - therapeutic use</topic><topic>Caregivers</topic><topic>Cerebral Palsy</topic><topic>Cerebral Palsy - epidemiology</topic><topic>Child</topic><topic>Child Health</topic><topic>Child, Preschool</topic><topic>Communication (Thought Transfer)</topic><topic>Construct Validity</topic><topic>Content Validity</topic><topic>Demography</topic><topic>Family (Sociological Unit)</topic><topic>Female</topic><topic>Health Services</topic><topic>Humans</topic><topic>Injections, Intramuscular</topic><topic>Male</topic><topic>Muscle Hypertonia - diagnosis</topic><topic>Muscle Hypertonia - drug therapy</topic><topic>Muscle Hypertonia - epidemiology</topic><topic>Neuromuscular Agents - therapeutic use</topic><topic>Original Articles</topic><topic>Patient Care</topic><topic>Patients</topic><topic>Quality of Life</topic><topic>Questionnaires</topic><topic>Reproducibility of Results</topic><topic>Rest</topic><topic>Sampling</topic><topic>Severity of Illness Index</topic><topic>Surveys and Questionnaires</topic><topic>Validity</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>McCoy, Robin Nemer</creatorcontrib><creatorcontrib>Blasco, Peter A</creatorcontrib><creatorcontrib>Russman, Barry S</creatorcontrib><creatorcontrib>O'Malley, Jean P</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>ProQuest Social Sciences Premium Collection</collection><collection>ProQuest Central (Corporate)</collection><collection>Nursing & Allied Health Database</collection><collection>Health & Medical Collection</collection><collection>ProQuest Central (purchase pre-March 2016)</collection><collection>Education Database (Alumni Edition)</collection><collection>Medical Database (Alumni Edition)</collection><collection>Psychology Database (Alumni)</collection><collection>Science Database (Alumni Edition)</collection><collection>STEM Database</collection><collection>ProQuest Pharma Collection</collection><collection>Hospital Premium Collection</collection><collection>Hospital Premium Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni) (purchase pre-March 2016)</collection><collection>ProQuest Central (Alumni Edition)</collection><collection>ProQuest Central UK/Ireland</collection><collection>Social Science Premium Collection</collection><collection>British Nursing Database</collection><collection>ProQuest Central Essentials</collection><collection>ProQuest Central</collection><collection>ProQuest One Community College</collection><collection>Education Collection</collection><collection>ProQuest Central Korea</collection><collection>Health Research Premium Collection</collection><collection>Health Research Premium Collection (Alumni)</collection><collection>ProQuest Central Student</collection><collection>SciTech Premium Collection</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Database (Alumni Edition)</collection><collection>Education Database (ProQuest)</collection><collection>Health & Medical Collection (Alumni Edition)</collection><collection>Medical Database</collection><collection>ProQuest Psychology</collection><collection>Science Database</collection><collection>Nursing & Allied Health Premium</collection><collection>ProQuest One Education</collection><collection>ProQuest One Academic Eastern Edition (DO NOT USE)</collection><collection>ProQuest One Academic</collection><collection>ProQuest One Academic UKI Edition</collection><collection>ProQuest Central China</collection><collection>ProQuest One Psychology</collection><collection>ProQuest Central Basic</collection><collection>SIRS Editorial</collection><jtitle>Developmental medicine and child neurology</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>McCoy, Robin Nemer</au><au>Blasco, Peter A</au><au>Russman, Barry S</au><au>O'Malley, Jean P</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Validation of a Care and Comfort Hypertonicity Questionnaire</atitle><jtitle>Developmental medicine and child neurology</jtitle><addtitle>Dev. med. child neurol</addtitle><date>2006-03</date><risdate>2006</risdate><volume>48</volume><issue>3</issue><spage>181</spage><epage>187</epage><pages>181-187</pages><issn>0012-1622</issn><eissn>1469-8749</eissn><coden>DMCNAW</coden><abstract>The lack of evidence regarding functional and quality of life benefits resulting from tone reduction with intrathecal baclofen (ITB) infusion treatment relates to the lack of validated and responsive measures. We integrated our scale/questionnaire, developed from chart review, with the non-validated Caregiver Questionnaire (CQ) to yield a final document, the Care and Comfort Hypertonicity Questionnaire (CCHQ). Convergent validity was achieved by administering the CCHQ to 47 patients with spastic/dystonic cerebral palsy (CP) who were being evaluated for tone management. The population studied included 18 females and 29 males (mean age 10y [SD 4y 10mo]; range 3y 1mo–21y 1mo). Twenty-five patients were subsequently referred for botulinum toxin (BTX-A) injections (mean Gross Motor Function Classification System [GMFCS] 3.2); 11 patients were referred for ITB (mean GMFCS 4.4); four were referred for orthopedic surgery (mean GMFCS 3.3); 3 were referred for selective dorsal rhizotomy (mean GMFCS 2.7); one was recommended for oral baclofen (GMFCS 5); and three were recommended for no treatment (mean GMFCS 3.7). Blinded to the score, those with the highest scores (severe hypertonicity) were recommended for ITB; those with the lowest scores were recommended for BTX-A injections. Responsiveness of the CCHQ was established by administering the questionnaire to patients who already had an implanted ITB pump. The children with the largest dose increase demonstrated a statistically significant improvement in the CCHQ score. This scale can be used to document the efficacy of treating severe hypertonicity both in clinical and research protocols.</abstract><cop>Cambridge, UK</cop><pub>Cambridge University Press</pub><pmid>16483393</pmid><doi>10.1017/S0012162206000405</doi><tpages>7</tpages><oa>free_for_read</oa></addata></record> |
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| identifier | ISSN: 0012-1622 |
| ispartof | Developmental medicine and child neurology, 2006-03, Vol.48 (3), p.181-187 |
| issn | 0012-1622 1469-8749 |
| language | eng |
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| source | Wiley Free Content; MEDLINE; Wiley Online Library Journals Frontfile Complete |
| subjects | Adolescent Adult Botulinum Toxins, Type A - therapeutic use Caregivers Cerebral Palsy Cerebral Palsy - epidemiology Child Child Health Child, Preschool Communication (Thought Transfer) Construct Validity Content Validity Demography Family (Sociological Unit) Female Health Services Humans Injections, Intramuscular Male Muscle Hypertonia - diagnosis Muscle Hypertonia - drug therapy Muscle Hypertonia - epidemiology Neuromuscular Agents - therapeutic use Original Articles Patient Care Patients Quality of Life Questionnaires Reproducibility of Results Rest Sampling Severity of Illness Index Surveys and Questionnaires Validity |
| title | Validation of a Care and Comfort Hypertonicity Questionnaire |
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