In their own words: Stories from HIV-positive African American women
Objectives: African American women are disproportionately impacted upon by HIV, particularly in the Southern states of the USA where the percentage of new cases of HIV and the percentage of people living with HIV in the USA are highest. This study describes the lived experiences of HIV-positive Afri...
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| Veröffentlicht in: | Health education journal 2017-10, Vol.76 (6), p.741-752 |
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| container_title | Health education journal |
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| creator | Robillard, Alyssa G Reed, Cymone Larkey, Linda Kohler, Connie Ingram, Lucy A Lewis, Kaleea Julious, Carmen |
| description | Objectives:
African American women are disproportionately impacted upon by HIV, particularly in the Southern states of the USA where the percentage of new cases of HIV and the percentage of people living with HIV in the USA are highest. This study describes the lived experiences of HIV-positive African American women based on their written stories.
Design:
Naturalistic qualitative design.
Setting:
Three organisations serving people living with HIV in a Southern state in the USA.
Method:
HIV-positive African American women 18 years of age and older (N = 23) recruited from organisations working with people living with HIV were given the opportunity to write their own story following their participation in a semi-structured individual private interview. Content analysis was conducted on the written accounts.
Results:
Analysis of narratives written by HIV-positive African American women revealed themes of self-actualisation and self-worth. While some stories highlighted experiences of helplessness/hopelessness, most stories were more optimistic in nature, offering advice for prevention and highlighting individual efforts of advocacy and education. Stories also touched on risk/protective behaviour and women’s acknowledgement of their own responsibility in their HIV status.
Conclusion:
Strengths and resources are expressed in stories, as well as the acknowledgement of stressors associated with HIV. These within-culture narratives may be useful in programmes and interventions to inform culturally resonant prevention efforts and promote self-management activities among women living with HIV. |
| doi_str_mv | 10.1177/0017896917713529 |
| format | Article |
| fullrecord | <record><control><sourceid>proquest_cross</sourceid><recordid>TN_cdi_proquest_journals_1934033375</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><ericid>EJ1153048</ericid><sage_id>10.1177_0017896917713529</sage_id><sourcerecordid>1934033375</sourcerecordid><originalsourceid>FETCH-LOGICAL-c331t-d0e13f3a232cca0e5b176a5b003f7f5a0d93d41254638ecdbb59d45313ee38a33</originalsourceid><addsrcrecordid>eNp1UE1Lw0AQXUTBWr17ERY8r-5kst3EW6nVVgoe_LiGTTKrKSZbd1OL_96EiIjgaR68j5l5jJ2CvADQ-lJK0Ek6STsMqKJ0j41Ax4lIQE_22ainRc8fsqMQ1lJGSic4YtfLhrevVHnudg3fOV-GK_7QOl9R4Na7mi-Wz2LjQtVWH8Sn1leFafi0pgHsXE3NMTuw5i3Qyfccs6eb-eNsIVb3t8vZdCUKRGhFKQnQookwKgojSeXdbUblUqLVVhlZpljGEKl4ggkVZZ6rtIwVAhJhYhDH7HzI3Xj3vqXQZmu39U23MoMUY4mIWnUqOagK70LwZLONr2rjPzOQWd9V9rerznI2WPqvfuTzOwCFMk46Xgx8MC_0a-l_eV-DnHC-</addsrcrecordid><sourcetype>Aggregation Database</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>1934033375</pqid></control><display><type>article</type><title>In their own words: Stories from HIV-positive African American women</title><source>Access via SAGE</source><source>Applied Social Sciences Index & Abstracts (ASSIA)</source><creator>Robillard, Alyssa G ; Reed, Cymone ; Larkey, Linda ; Kohler, Connie ; Ingram, Lucy A ; Lewis, Kaleea ; Julious, Carmen</creator><creatorcontrib>Robillard, Alyssa G ; Reed, Cymone ; Larkey, Linda ; Kohler, Connie ; Ingram, Lucy A ; Lewis, Kaleea ; Julious, Carmen</creatorcontrib><description>Objectives:
African American women are disproportionately impacted upon by HIV, particularly in the Southern states of the USA where the percentage of new cases of HIV and the percentage of people living with HIV in the USA are highest. This study describes the lived experiences of HIV-positive African American women based on their written stories.
Design:
Naturalistic qualitative design.
Setting:
Three organisations serving people living with HIV in a Southern state in the USA.
Method:
HIV-positive African American women 18 years of age and older (N = 23) recruited from organisations working with people living with HIV were given the opportunity to write their own story following their participation in a semi-structured individual private interview. Content analysis was conducted on the written accounts.
Results:
Analysis of narratives written by HIV-positive African American women revealed themes of self-actualisation and self-worth. While some stories highlighted experiences of helplessness/hopelessness, most stories were more optimistic in nature, offering advice for prevention and highlighting individual efforts of advocacy and education. Stories also touched on risk/protective behaviour and women’s acknowledgement of their own responsibility in their HIV status.
Conclusion:
Strengths and resources are expressed in stories, as well as the acknowledgement of stressors associated with HIV. These within-culture narratives may be useful in programmes and interventions to inform culturally resonant prevention efforts and promote self-management activities among women living with HIV.</description><identifier>ISSN: 0017-8969</identifier><identifier>EISSN: 1748-8176</identifier><identifier>DOI: 10.1177/0017896917713529</identifier><language>eng</language><publisher>London, England: SAGE Publications</publisher><subject>Acquired Immunodeficiency Syndrome (AIDS) ; Adults ; Advocacy ; African Americans ; At Risk Persons ; Autobiographies ; Content analysis ; Coping ; Disproportionate Representation ; Experience ; Females ; Health Behavior ; Health psychology ; Helplessness ; HIV ; Hopelessness ; Human immunodeficiency virus ; Individual Characteristics ; Narratives ; Optimism ; Personal experiences ; Prevention ; Prevention programs ; Protective factors ; Psychological Patterns ; Qualitative Research ; Racial Differences ; Risk behavior ; Risk taking ; Self Actualization ; Self Esteem ; Self Management ; Selfmanagement ; Selfworth ; Semi Structured Interviews ; Women ; Womens health</subject><ispartof>Health education journal, 2017-10, Vol.76 (6), p.741-752</ispartof><rights>The Author(s) 2017</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c331t-d0e13f3a232cca0e5b176a5b003f7f5a0d93d41254638ecdbb59d45313ee38a33</citedby><cites>FETCH-LOGICAL-c331t-d0e13f3a232cca0e5b176a5b003f7f5a0d93d41254638ecdbb59d45313ee38a33</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://journals.sagepub.com/doi/pdf/10.1177/0017896917713529$$EPDF$$P50$$Gsage$$H</linktopdf><linktohtml>$$Uhttps://journals.sagepub.com/doi/10.1177/0017896917713529$$EHTML$$P50$$Gsage$$H</linktohtml><link.rule.ids>315,781,785,21824,27929,27930,31004,43626,43627</link.rule.ids><backlink>$$Uhttp://eric.ed.gov/ERICWebPortal/detail?accno=EJ1153048$$DView record in ERIC$$Hfree_for_read</backlink></links><search><creatorcontrib>Robillard, Alyssa G</creatorcontrib><creatorcontrib>Reed, Cymone</creatorcontrib><creatorcontrib>Larkey, Linda</creatorcontrib><creatorcontrib>Kohler, Connie</creatorcontrib><creatorcontrib>Ingram, Lucy A</creatorcontrib><creatorcontrib>Lewis, Kaleea</creatorcontrib><creatorcontrib>Julious, Carmen</creatorcontrib><title>In their own words: Stories from HIV-positive African American women</title><title>Health education journal</title><description>Objectives:
African American women are disproportionately impacted upon by HIV, particularly in the Southern states of the USA where the percentage of new cases of HIV and the percentage of people living with HIV in the USA are highest. This study describes the lived experiences of HIV-positive African American women based on their written stories.
Design:
Naturalistic qualitative design.
Setting:
Three organisations serving people living with HIV in a Southern state in the USA.
Method:
HIV-positive African American women 18 years of age and older (N = 23) recruited from organisations working with people living with HIV were given the opportunity to write their own story following their participation in a semi-structured individual private interview. Content analysis was conducted on the written accounts.
Results:
Analysis of narratives written by HIV-positive African American women revealed themes of self-actualisation and self-worth. While some stories highlighted experiences of helplessness/hopelessness, most stories were more optimistic in nature, offering advice for prevention and highlighting individual efforts of advocacy and education. Stories also touched on risk/protective behaviour and women’s acknowledgement of their own responsibility in their HIV status.
Conclusion:
Strengths and resources are expressed in stories, as well as the acknowledgement of stressors associated with HIV. These within-culture narratives may be useful in programmes and interventions to inform culturally resonant prevention efforts and promote self-management activities among women living with HIV.</description><subject>Acquired Immunodeficiency Syndrome (AIDS)</subject><subject>Adults</subject><subject>Advocacy</subject><subject>African Americans</subject><subject>At Risk Persons</subject><subject>Autobiographies</subject><subject>Content analysis</subject><subject>Coping</subject><subject>Disproportionate Representation</subject><subject>Experience</subject><subject>Females</subject><subject>Health Behavior</subject><subject>Health psychology</subject><subject>Helplessness</subject><subject>HIV</subject><subject>Hopelessness</subject><subject>Human immunodeficiency virus</subject><subject>Individual Characteristics</subject><subject>Narratives</subject><subject>Optimism</subject><subject>Personal experiences</subject><subject>Prevention</subject><subject>Prevention programs</subject><subject>Protective factors</subject><subject>Psychological Patterns</subject><subject>Qualitative Research</subject><subject>Racial Differences</subject><subject>Risk behavior</subject><subject>Risk taking</subject><subject>Self Actualization</subject><subject>Self Esteem</subject><subject>Self Management</subject><subject>Selfmanagement</subject><subject>Selfworth</subject><subject>Semi Structured Interviews</subject><subject>Women</subject><subject>Womens health</subject><issn>0017-8969</issn><issn>1748-8176</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2017</creationdate><recordtype>article</recordtype><sourceid>7QJ</sourceid><recordid>eNp1UE1Lw0AQXUTBWr17ERY8r-5kst3EW6nVVgoe_LiGTTKrKSZbd1OL_96EiIjgaR68j5l5jJ2CvADQ-lJK0Ek6STsMqKJ0j41Ax4lIQE_22ainRc8fsqMQ1lJGSic4YtfLhrevVHnudg3fOV-GK_7QOl9R4Na7mi-Wz2LjQtVWH8Sn1leFafi0pgHsXE3NMTuw5i3Qyfccs6eb-eNsIVb3t8vZdCUKRGhFKQnQookwKgojSeXdbUblUqLVVhlZpljGEKl4ggkVZZ6rtIwVAhJhYhDH7HzI3Xj3vqXQZmu39U23MoMUY4mIWnUqOagK70LwZLONr2rjPzOQWd9V9rerznI2WPqvfuTzOwCFMk46Xgx8MC_0a-l_eV-DnHC-</recordid><startdate>201710</startdate><enddate>201710</enddate><creator>Robillard, Alyssa G</creator><creator>Reed, Cymone</creator><creator>Larkey, Linda</creator><creator>Kohler, Connie</creator><creator>Ingram, Lucy A</creator><creator>Lewis, Kaleea</creator><creator>Julious, Carmen</creator><general>SAGE Publications</general><general>SAGE PUBLICATIONS, INC</general><scope>7SW</scope><scope>BJH</scope><scope>BNH</scope><scope>BNI</scope><scope>BNJ</scope><scope>BNO</scope><scope>ERI</scope><scope>PET</scope><scope>REK</scope><scope>WWN</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7QJ</scope><scope>7T2</scope><scope>7TS</scope><scope>8BJ</scope><scope>ASE</scope><scope>C1K</scope><scope>FPQ</scope><scope>FQK</scope><scope>JBE</scope><scope>K6X</scope><scope>NAPCQ</scope></search><sort><creationdate>201710</creationdate><title>In their own words: Stories from HIV-positive African American women</title><author>Robillard, Alyssa G ; Reed, Cymone ; Larkey, Linda ; Kohler, Connie ; Ingram, Lucy A ; Lewis, Kaleea ; Julious, Carmen</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c331t-d0e13f3a232cca0e5b176a5b003f7f5a0d93d41254638ecdbb59d45313ee38a33</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2017</creationdate><topic>Acquired Immunodeficiency Syndrome (AIDS)</topic><topic>Adults</topic><topic>Advocacy</topic><topic>African Americans</topic><topic>At Risk Persons</topic><topic>Autobiographies</topic><topic>Content analysis</topic><topic>Coping</topic><topic>Disproportionate Representation</topic><topic>Experience</topic><topic>Females</topic><topic>Health Behavior</topic><topic>Health psychology</topic><topic>Helplessness</topic><topic>HIV</topic><topic>Hopelessness</topic><topic>Human immunodeficiency virus</topic><topic>Individual Characteristics</topic><topic>Narratives</topic><topic>Optimism</topic><topic>Personal experiences</topic><topic>Prevention</topic><topic>Prevention programs</topic><topic>Protective factors</topic><topic>Psychological Patterns</topic><topic>Qualitative Research</topic><topic>Racial Differences</topic><topic>Risk behavior</topic><topic>Risk taking</topic><topic>Self Actualization</topic><topic>Self Esteem</topic><topic>Self Management</topic><topic>Selfmanagement</topic><topic>Selfworth</topic><topic>Semi Structured Interviews</topic><topic>Women</topic><topic>Womens health</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Robillard, Alyssa G</creatorcontrib><creatorcontrib>Reed, Cymone</creatorcontrib><creatorcontrib>Larkey, Linda</creatorcontrib><creatorcontrib>Kohler, Connie</creatorcontrib><creatorcontrib>Ingram, Lucy A</creatorcontrib><creatorcontrib>Lewis, Kaleea</creatorcontrib><creatorcontrib>Julious, Carmen</creatorcontrib><collection>ERIC</collection><collection>ERIC (Ovid)</collection><collection>ERIC</collection><collection>ERIC</collection><collection>ERIC (Legacy Platform)</collection><collection>ERIC( SilverPlatter )</collection><collection>ERIC</collection><collection>ERIC PlusText (Legacy Platform)</collection><collection>Education Resources Information Center (ERIC)</collection><collection>ERIC</collection><collection>CrossRef</collection><collection>Applied Social Sciences Index & Abstracts (ASSIA)</collection><collection>Health and Safety Science Abstracts (Full archive)</collection><collection>Physical Education Index</collection><collection>International Bibliography of the Social Sciences (IBSS)</collection><collection>British Nursing Index</collection><collection>Environmental Sciences and Pollution Management</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>International Bibliography of the Social Sciences</collection><collection>International Bibliography of the Social Sciences</collection><collection>British Nursing Index</collection><collection>Nursing & Allied Health Premium</collection><jtitle>Health education journal</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Robillard, Alyssa G</au><au>Reed, Cymone</au><au>Larkey, Linda</au><au>Kohler, Connie</au><au>Ingram, Lucy A</au><au>Lewis, Kaleea</au><au>Julious, Carmen</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><ericid>EJ1153048</ericid><atitle>In their own words: Stories from HIV-positive African American women</atitle><jtitle>Health education journal</jtitle><date>2017-10</date><risdate>2017</risdate><volume>76</volume><issue>6</issue><spage>741</spage><epage>752</epage><pages>741-752</pages><issn>0017-8969</issn><eissn>1748-8176</eissn><abstract>Objectives:
African American women are disproportionately impacted upon by HIV, particularly in the Southern states of the USA where the percentage of new cases of HIV and the percentage of people living with HIV in the USA are highest. This study describes the lived experiences of HIV-positive African American women based on their written stories.
Design:
Naturalistic qualitative design.
Setting:
Three organisations serving people living with HIV in a Southern state in the USA.
Method:
HIV-positive African American women 18 years of age and older (N = 23) recruited from organisations working with people living with HIV were given the opportunity to write their own story following their participation in a semi-structured individual private interview. Content analysis was conducted on the written accounts.
Results:
Analysis of narratives written by HIV-positive African American women revealed themes of self-actualisation and self-worth. While some stories highlighted experiences of helplessness/hopelessness, most stories were more optimistic in nature, offering advice for prevention and highlighting individual efforts of advocacy and education. Stories also touched on risk/protective behaviour and women’s acknowledgement of their own responsibility in their HIV status.
Conclusion:
Strengths and resources are expressed in stories, as well as the acknowledgement of stressors associated with HIV. These within-culture narratives may be useful in programmes and interventions to inform culturally resonant prevention efforts and promote self-management activities among women living with HIV.</abstract><cop>London, England</cop><pub>SAGE Publications</pub><doi>10.1177/0017896917713529</doi><tpages>12</tpages></addata></record> |
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| ispartof | Health education journal, 2017-10, Vol.76 (6), p.741-752 |
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| language | eng |
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| source | Access via SAGE; Applied Social Sciences Index & Abstracts (ASSIA) |
| subjects | Acquired Immunodeficiency Syndrome (AIDS) Adults Advocacy African Americans At Risk Persons Autobiographies Content analysis Coping Disproportionate Representation Experience Females Health Behavior Health psychology Helplessness HIV Hopelessness Human immunodeficiency virus Individual Characteristics Narratives Optimism Personal experiences Prevention Prevention programs Protective factors Psychological Patterns Qualitative Research Racial Differences Risk behavior Risk taking Self Actualization Self Esteem Self Management Selfmanagement Selfworth Semi Structured Interviews Women Womens health |
| title | In their own words: Stories from HIV-positive African American women |
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