DECIDE: a Decision Support Tool to Facilitate Parents’ Choices Regarding Genome-Wide Sequencing

We describe the rationale, development, and usability testing for an integrated e-learning tool and decision aid for parents facing decisions about genome-wide sequencing (GWS) for their children with a suspected genetic condition. The online tool, DECIDE, is designed to provide decision-support and...

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Veröffentlicht in:	Journal of genetic counseling 2016-12, Vol.25 (6), p.1298-1308
Hauptverfasser:	Birch, Patricia, Adam, S., Bansback, N., Coe, R. R., Hicklin, J., Lehman, A., Li, K. C., Friedman, J. M.
Format:	Artikel
Sprache:	eng
Schlagworte:	Adolescent Biomedical and Life Sciences Biomedicine Child Child, Preschool Children Children & youth Clinical Psychology Counseling Decision aid Decision making Decision support Decision support systems Decision Support Techniques Diagrams Distance learning Ethics E‐counselling Female Genetic counseling Genetic Counseling - methods Genetic Testing Genomes Genomic and genetic sequencing Genomic counselling Gynecology Human Genetics Humans Internet Male Medical personnel Original Research Parents & parenting Parents - education Pretest counselling Public Health Referral and Consultation Sequence Analysis, DNA Software Usability study
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