Barriers and facilitators to qualitative data sharing in the United States: A survey of qualitative researchers
Qualitative health data are rarely shared in the United States (U.S.). This is unfortunate because gathering qualitative data is labor and time-intensive, and data sharing enables secondary research, training, and transparency. A new U.S. federal policy mandates data sharing by 2023, and is agnostic...
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| Veröffentlicht in: | PloS one 2021-12, Vol.16 (12), p.e0261719-e0261719 |
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| creator | Mozersky, Jessica McIntosh, Tristan Walsh, Heidi A Parsons, Meredith V Goodman, Melody DuBois, James M |
| description | Qualitative health data are rarely shared in the United States (U.S.). This is unfortunate because gathering qualitative data is labor and time-intensive, and data sharing enables secondary research, training, and transparency. A new U.S. federal policy mandates data sharing by 2023, and is agnostic to data type. We surveyed U.S. qualitative researchers (N = 425) on the barriers and facilitators of sharing qualitative health or sensitive research data. Most researchers (96%) have never shared qualitative data in a repository. Primary concerns were lack of participant permission to share data, data sensitivity, and breaching trust. Researcher willingness to share would increase if participants agreed and if sharing increased the societal impact of their research. Key resources to increase willingness to share were funding, guidance, and de-identification assistance. Public health and biomedical researchers were most willing to share. Qualitative researchers need to prepare for this new reality as sharing qualitative data requires unique considerations. |
| doi_str_mv | 10.1371/journal.pone.0261719 |
| format | Article |
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This is unfortunate because gathering qualitative data is labor and time-intensive, and data sharing enables secondary research, training, and transparency. A new U.S. federal policy mandates data sharing by 2023, and is agnostic to data type. We surveyed U.S. qualitative researchers (N = 425) on the barriers and facilitators of sharing qualitative health or sensitive research data. Most researchers (96%) have never shared qualitative data in a repository. Primary concerns were lack of participant permission to share data, data sensitivity, and breaching trust. Researcher willingness to share would increase if participants agreed and if sharing increased the societal impact of their research. Key resources to increase willingness to share were funding, guidance, and de-identification assistance. Public health and biomedical researchers were most willing to share. Qualitative researchers need to prepare for this new reality as sharing qualitative data requires unique considerations.</description><identifier>ISSN: 1932-6203</identifier><identifier>EISSN: 1932-6203</identifier><identifier>DOI: 10.1371/journal.pone.0261719</identifier><identifier>PMID: 34972126</identifier><language>eng</language><publisher>United States: Public Library of Science</publisher><subject>Access to Information ; Adult ; Bioethics ; Biology and Life Sciences ; Biomedical Research ; Computer and Information Sciences ; Data Accuracy ; Data Collection ; Data retrieval ; Engineering and Technology ; Federal policy ; Female ; Health aspects ; Humans ; Information Dissemination ; Information management ; Information sharing ; Male ; Management ; Medical records ; Medical research ; Medicine ; Medicine and Health Sciences ; Middle Aged ; National Institutes of Health (U.S.) ; Public Health ; Qualitative analysis ; Qualitative Research ; Research and Analysis Methods ; Research Personnel ; Researchers ; Science Policy ; Social Sciences ; Surveys and Questionnaires ; Trust ; United States</subject><ispartof>PloS one, 2021-12, Vol.16 (12), p.e0261719-e0261719</ispartof><rights>COPYRIGHT 2021 Public Library of Science</rights><rights>2021 Mozersky et al. 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| subjects | Access to Information Adult Bioethics Biology and Life Sciences Biomedical Research Computer and Information Sciences Data Accuracy Data Collection Data retrieval Engineering and Technology Federal policy Female Health aspects Humans Information Dissemination Information management Information sharing Male Management Medical records Medical research Medicine Medicine and Health Sciences Middle Aged National Institutes of Health (U.S.) Public Health Qualitative analysis Qualitative Research Research and Analysis Methods Research Personnel Researchers Science Policy Social Sciences Surveys and Questionnaires Trust United States |
| title | Barriers and facilitators to qualitative data sharing in the United States: A survey of qualitative researchers |
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