Service user experiences and views regarding telemental health during the COVID-19 pandemic: A co-produced framework analysis

The prominence of telemental health, including providing care by video call and telephone, has greatly increased during the COVID-19 pandemic. However, there are clear variations in uptake and acceptability, and concerns that digital exclusion may exacerbate previous inequalities in access to good q...

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Veröffentlicht in:PloS one 2021-09, Vol.16 (9), p.e0257270-e0257270
Hauptverfasser: Vera San Juan, Norha, Shah, Prisha, Schlief, Merle, Appleton, Rebecca, Nyikavaranda, Patrick, Birken, Mary, Foye, Una, Lloyd-Evans, Brynmor, Morant, Nicola, Needle, Justin J, Simpson, Alan, Lyons, Natasha, Rains, Luke Sheridan, Dedat, Zainab, Johnson, Sonia
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container_end_page e0257270
container_issue 9
container_start_page e0257270
container_title PloS one
container_volume 16
creator Vera San Juan, Norha
Shah, Prisha
Schlief, Merle
Appleton, Rebecca
Nyikavaranda, Patrick
Birken, Mary
Foye, Una
Lloyd-Evans, Brynmor
Morant, Nicola
Needle, Justin J
Simpson, Alan
Lyons, Natasha
Rains, Luke Sheridan
Dedat, Zainab
Johnson, Sonia
description The prominence of telemental health, including providing care by video call and telephone, has greatly increased during the COVID-19 pandemic. However, there are clear variations in uptake and acceptability, and concerns that digital exclusion may exacerbate previous inequalities in access to good quality care. Greater understanding is needed of how service users experience telemental health, and what determines whether they engage and find it acceptable. We conducted a collaborative framework analysis of data from semi-structured interviews with a sample of people already experiencing mental health problems prior to the pandemic. Data relevant to participants' experiences and views regarding telemental health during the pandemic were identified and extracted. Data collection and analysis used a participatory, coproduction approach where researchers with relevant lived experience, contributed to all stages of data collection, analysis and interpretation of findings alongside clinical and academic researchers. The experiences and preferences regarding telemental health care of the forty-four participants were dynamic and varied across time and settings, as well as between individuals. Participants' preferences were shaped by reasons for contacting services, their relationship with care providers, and both parties' access to technology and their individual preferences. While face-to-face care tended to be the preferred option, participants identified benefits of remote care including making care more accessible for some populations and improved efficiency for functional appointments such as prescription reviews. Participants highlighted important challenges related to safety and privacy in online settings, and gave examples of good remote care strategies they had experienced, including services scheduling regular phone calls and developing guidelines about how to access remote care tools. Participants in our study have highlighted advantages of telemental health care, as well as significant limitations that risk hindering mental health support and exacerbate inequalities in access to services. Some of these limitations are seen as potentially removable, for example through staff training or better digital access for staff or service users. Others indicate a need to maintain traditional face-to-face contact at least for some appointments. There is a clear need for care to be flexible and individualised to service user circumstances and preferences. Further re
doi_str_mv 10.1371/journal.pone.0257270
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However, there are clear variations in uptake and acceptability, and concerns that digital exclusion may exacerbate previous inequalities in access to good quality care. Greater understanding is needed of how service users experience telemental health, and what determines whether they engage and find it acceptable. We conducted a collaborative framework analysis of data from semi-structured interviews with a sample of people already experiencing mental health problems prior to the pandemic. Data relevant to participants' experiences and views regarding telemental health during the pandemic were identified and extracted. Data collection and analysis used a participatory, coproduction approach where researchers with relevant lived experience, contributed to all stages of data collection, analysis and interpretation of findings alongside clinical and academic researchers. The experiences and preferences regarding telemental health care of the forty-four participants were dynamic and varied across time and settings, as well as between individuals. Participants' preferences were shaped by reasons for contacting services, their relationship with care providers, and both parties' access to technology and their individual preferences. While face-to-face care tended to be the preferred option, participants identified benefits of remote care including making care more accessible for some populations and improved efficiency for functional appointments such as prescription reviews. Participants highlighted important challenges related to safety and privacy in online settings, and gave examples of good remote care strategies they had experienced, including services scheduling regular phone calls and developing guidelines about how to access remote care tools. Participants in our study have highlighted advantages of telemental health care, as well as significant limitations that risk hindering mental health support and exacerbate inequalities in access to services. Some of these limitations are seen as potentially removable, for example through staff training or better digital access for staff or service users. Others indicate a need to maintain traditional face-to-face contact at least for some appointments. There is a clear need for care to be flexible and individualised to service user circumstances and preferences. Further research is needed on ways of minimising digital exclusion and of supporting staff in making effective and collaborative use of relevant technologies.</description><identifier>ISSN: 1932-6203</identifier><identifier>EISSN: 1932-6203</identifier><identifier>DOI: 10.1371/journal.pone.0257270</identifier><identifier>PMID: 34529705</identifier><language>eng</language><publisher>United States: Public Library of Science</publisher><subject><![CDATA[Acceptability ; Adolescent ; Adult ; Collaboration ; Control ; Coronaviruses ; COVID-19 ; COVID-19 - epidemiology ; COVID-19 - prevention & control ; COVID-19 - virology ; Data analysis ; Data collection ; Delivery of Health Care - methods ; Delivery of Health Care - statistics & numerical data ; Earth Sciences ; Epidemics ; Evaluation ; Female ; Health care ; Health Personnel - statistics & numerical data ; Health problems ; Health risks ; Health services ; Humans ; Inequalities ; Male ; Medical care ; Medical research ; Medicine and Health Sciences ; Mental disorders ; Mental health ; Mental Health - standards ; Mental Health - statistics & numerical data ; Mental Health Services - statistics & numerical data ; Middle Aged ; Pandemics ; Population ; Professional ethics ; Psychiatric services ; Psychiatry ; Quality management ; Quality of Health Care - standards ; Quality of Health Care - statistics & numerical data ; SARS-CoV-2 - physiology ; Social Sciences ; Supervision ; Surveys and Questionnaires - statistics & numerical data ; Telemedicine ; Telemedicine - methods ; Telemedicine - statistics & numerical data ; Telephone calls ; United Kingdom ; User experience ; Young Adult]]></subject><ispartof>PloS one, 2021-09, Vol.16 (9), p.e0257270-e0257270</ispartof><rights>COPYRIGHT 2021 Public Library of Science</rights><rights>2021 Vera San Juan et al. 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Allied Health Database (Alumni Edition)</collection><collection>Meteorological &amp; Geoastrophysical Abstracts - Academic</collection><collection>ProQuest Engineering Collection</collection><collection>Biological Sciences</collection><collection>Agriculture Science Database</collection><collection>Health &amp; Medical Collection (Alumni Edition)</collection><collection>PML(ProQuest Medical Library)</collection><collection>Algology Mycology and Protozoology Abstracts (Microbiology C)</collection><collection>Biological Science Database</collection><collection>Engineering Database</collection><collection>Nursing &amp; Allied Health Premium</collection><collection>ProQuest advanced technologies &amp; aerospace journals</collection><collection>ProQuest Advanced Technologies &amp; Aerospace Collection</collection><collection>Biotechnology and BioEngineering Abstracts</collection><collection>Environmental Science Database</collection><collection>Materials Science Collection</collection><collection>Publicly Available Content Database</collection><collection>ProQuest One Academic Eastern Edition (DO NOT USE)</collection><collection>ProQuest One Academic</collection><collection>ProQuest One Academic UKI Edition</collection><collection>Engineering collection</collection><collection>Environmental Science Collection</collection><collection>Genetics Abstracts</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><collection>DOAJ Directory of Open Access Journals</collection><jtitle>PloS one</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Vera San Juan, Norha</au><au>Shah, Prisha</au><au>Schlief, Merle</au><au>Appleton, Rebecca</au><au>Nyikavaranda, Patrick</au><au>Birken, Mary</au><au>Foye, Una</au><au>Lloyd-Evans, Brynmor</au><au>Morant, Nicola</au><au>Needle, Justin J</au><au>Simpson, Alan</au><au>Lyons, Natasha</au><au>Rains, Luke Sheridan</au><au>Dedat, Zainab</au><au>Johnson, Sonia</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Service user experiences and views regarding telemental health during the COVID-19 pandemic: A co-produced framework analysis</atitle><jtitle>PloS one</jtitle><addtitle>PLoS One</addtitle><date>2021-09-16</date><risdate>2021</risdate><volume>16</volume><issue>9</issue><spage>e0257270</spage><epage>e0257270</epage><pages>e0257270-e0257270</pages><issn>1932-6203</issn><eissn>1932-6203</eissn><abstract>The prominence of telemental health, including providing care by video call and telephone, has greatly increased during the COVID-19 pandemic. However, there are clear variations in uptake and acceptability, and concerns that digital exclusion may exacerbate previous inequalities in access to good quality care. Greater understanding is needed of how service users experience telemental health, and what determines whether they engage and find it acceptable. We conducted a collaborative framework analysis of data from semi-structured interviews with a sample of people already experiencing mental health problems prior to the pandemic. Data relevant to participants' experiences and views regarding telemental health during the pandemic were identified and extracted. Data collection and analysis used a participatory, coproduction approach where researchers with relevant lived experience, contributed to all stages of data collection, analysis and interpretation of findings alongside clinical and academic researchers. The experiences and preferences regarding telemental health care of the forty-four participants were dynamic and varied across time and settings, as well as between individuals. Participants' preferences were shaped by reasons for contacting services, their relationship with care providers, and both parties' access to technology and their individual preferences. While face-to-face care tended to be the preferred option, participants identified benefits of remote care including making care more accessible for some populations and improved efficiency for functional appointments such as prescription reviews. Participants highlighted important challenges related to safety and privacy in online settings, and gave examples of good remote care strategies they had experienced, including services scheduling regular phone calls and developing guidelines about how to access remote care tools. Participants in our study have highlighted advantages of telemental health care, as well as significant limitations that risk hindering mental health support and exacerbate inequalities in access to services. Some of these limitations are seen as potentially removable, for example through staff training or better digital access for staff or service users. Others indicate a need to maintain traditional face-to-face contact at least for some appointments. There is a clear need for care to be flexible and individualised to service user circumstances and preferences. Further research is needed on ways of minimising digital exclusion and of supporting staff in making effective and collaborative use of relevant technologies.</abstract><cop>United States</cop><pub>Public Library of Science</pub><pmid>34529705</pmid><doi>10.1371/journal.pone.0257270</doi><tpages>e0257270</tpages><orcidid>https://orcid.org/0000-0003-3286-9846</orcidid><orcidid>https://orcid.org/0000-0002-8677-7341</orcidid><orcidid>https://orcid.org/0000-0002-9896-6078</orcidid><orcidid>https://orcid.org/0000-0002-3414-2854</orcidid><orcidid>https://orcid.org/0000-0003-4022-8133</orcidid><oa>free_for_read</oa></addata></record>
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identifier ISSN: 1932-6203
ispartof PloS one, 2021-09, Vol.16 (9), p.e0257270-e0257270
issn 1932-6203
1932-6203
language eng
recordid cdi_plos_journals_2573409466
source MEDLINE; Public Library of Science; DOAJ Directory of Open Access Journals; PubMed Central; Free Full-Text Journals in Chemistry; EZB Electronic Journals Library
subjects Acceptability
Adolescent
Adult
Collaboration
Control
Coronaviruses
COVID-19
COVID-19 - epidemiology
COVID-19 - prevention & control
COVID-19 - virology
Data analysis
Data collection
Delivery of Health Care - methods
Delivery of Health Care - statistics & numerical data
Earth Sciences
Epidemics
Evaluation
Female
Health care
Health Personnel - statistics & numerical data
Health problems
Health risks
Health services
Humans
Inequalities
Male
Medical care
Medical research
Medicine and Health Sciences
Mental disorders
Mental health
Mental Health - standards
Mental Health - statistics & numerical data
Mental Health Services - statistics & numerical data
Middle Aged
Pandemics
Population
Professional ethics
Psychiatric services
Psychiatry
Quality management
Quality of Health Care - standards
Quality of Health Care - statistics & numerical data
SARS-CoV-2 - physiology
Social Sciences
Supervision
Surveys and Questionnaires - statistics & numerical data
Telemedicine
Telemedicine - methods
Telemedicine - statistics & numerical data
Telephone calls
United Kingdom
User experience
Young Adult
title Service user experiences and views regarding telemental health during the COVID-19 pandemic: A co-produced framework analysis
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