Bereavement care for ethnic minority communities: A systematic review of access to, models of, outcomes from, and satisfaction with, service provision
To review and synthesize the existing evidence on bereavement care, within the United Kingdom (UK), for ethnic minority communities in terms of barriers and facilitators to access; models of care; outcomes from, and satisfaction with, service provision. A systematic review adopting a framework synth...
Gespeichert in:
| Veröffentlicht in: | PloS one 2021-06, Vol.16 (6), p.e0252188 |
|---|---|
| Hauptverfasser: | , , , , |
| Format: | Artikel |
| Sprache: | eng |
| Schlagworte: | |
| Online-Zugang: | Volltext |
| Tags: |
Tag hinzufügen
Keine Tags, Fügen Sie den ersten Tag hinzu!
|
| container_end_page | |
|---|---|
| container_issue | 6 |
| container_start_page | e0252188 |
| container_title | PloS one |
| container_volume | 16 |
| creator | Mayland, Catriona R Powell, Richard A Clarke, Gemma C Ebenso, Bassey Allsop, Matthew J |
| description | To review and synthesize the existing evidence on bereavement care, within the United Kingdom (UK), for ethnic minority communities in terms of barriers and facilitators to access; models of care; outcomes from, and satisfaction with, service provision.
A systematic review adopting a framework synthesis approach was conducted. An electronic search of the literature was undertaken in MEDLINE, Embase, PsycINFO, Social Work Abstract and CINAHL via EBSCO, Global Health, Cochrane library, the Trip database and ProQuest between 1995 and 2020. Search terms included bereavement care, ethnic minority populations and the UK setting.
From 3,185 initial records, following screening for eligibility, and full-text review of 164 articles, seven studies were identified. There was no research literature outlining the role of family, friends and existing networks; and a real absence of evidence about outcomes and levels of satisfaction for those from an ethnic minority background who receive bereavement care. From the limited literature, the overarching theme for barriers to bereavement care was 'unfamiliarity and irregularities'. Four identified subthemes were 'lack of awareness'; 'variability in support'; 'type and format of support'; and 'culturally specific beliefs'. The overarching theme for facilitators for bereavement care was 'accessibility' with the two subthemes being 'readily available information' and 'inclusive approaches'. Three studies reported on examples of different models of care provision.
This review reveals a stark lack of evidence about bereavement care for ethnic minority populations. In particular, understanding more about the role of family, friends and existing support systems, alongside outcomes and satisfaction will begin to develop the evidence base underpinning current provision. Direct user-representation through proactive engagement and co-design approaches may begin to determine the most appropriate models and format of bereavement care for ethnic minority communities to inform service design and delivery. |
| doi_str_mv | 10.1371/journal.pone.0252188 |
| format | Article |
| fullrecord | <record><control><sourceid>gale_plos_</sourceid><recordid>TN_cdi_plos_journals_2546968766</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><galeid>A666947361</galeid><doaj_id>oai_doaj_org_article_1e49c148472345c6a56f35dadddc49e0</doaj_id><sourcerecordid>A666947361</sourcerecordid><originalsourceid>FETCH-LOGICAL-c692t-142721cdbb1dcd8fe5d64acc205f166e7a568f89b1b46d1dd51cc68d45ba6a583</originalsourceid><addsrcrecordid>eNqNk11r2zAUhs3YWLtu_2BsgsHYIMksWZLtXQyyso9AobCvWyFLx4mCbaWSnC5_ZL93SuOWePRi-MLm-HnfI73SSZLnOJ3hLMfv1rZ3nWxmG9vBLCWM4KJ4kJziMiNTTtLs4dH3SfLE-3Wasqzg_HFyklFc4iKlp8mfj-BAbqGFLiAlHaDaOgRh1RmFWtNZZ8IOKdu2fWeCAf8ezZHf-QCtDBFxsDVwjWyNpFLgPQp2glqrofGxOEG2D1EMHtXOthMkO418FPpaqmBsh65NWE2QB7c1CtDG2a3xsf40eVTLxsOz4X2W_Pz86cf51-nF5ZfF-fxiqnhJwhRTkhOsdFVhrXRRA9OcxoWQlNWYc8gl40VdlBWuKNdYa4aV4oWmrJJcsiI7S14efDeN9WKI1AvCKC95kXMeicWB0FauxcaZVrqdsNKIm4J1SyFdTKIBgYGWCtOC5iSjTMUGvM6YllprRUtIo9eHoVtftaBVzNzJZmQ6_tOZlVjarSgIpfHAosGbwcDZqx58EK3xCppGdmD7m3XnLGOE4Ii--ge9f3cDtZRxA6arbeyr9qZizjkvaZ7xvdfsHio-Glqj4v2rTayPBG9HgsgE-B2WsvdeLL5_-3_28teYfX3ErkA2YeVt0--vkh-D9AAqZ713UN-FjFOxH5_bNMR-fMQwPlH24viA7kS385L9BdI-GDk</addsrcrecordid><sourcetype>Open Website</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>2546968766</pqid></control><display><type>article</type><title>Bereavement care for ethnic minority communities: A systematic review of access to, models of, outcomes from, and satisfaction with, service provision</title><source>MEDLINE</source><source>DOAJ Directory of Open Access Journals</source><source>Elektronische Zeitschriftenbibliothek - Frei zugängliche E-Journals</source><source>Public Library of Science (PLoS)</source><source>PubMed Central</source><source>Free Full-Text Journals in Chemistry</source><creator>Mayland, Catriona R ; Powell, Richard A ; Clarke, Gemma C ; Ebenso, Bassey ; Allsop, Matthew J</creator><contributor>Luckett, Tim</contributor><creatorcontrib>Mayland, Catriona R ; Powell, Richard A ; Clarke, Gemma C ; Ebenso, Bassey ; Allsop, Matthew J ; Luckett, Tim</creatorcontrib><description>To review and synthesize the existing evidence on bereavement care, within the United Kingdom (UK), for ethnic minority communities in terms of barriers and facilitators to access; models of care; outcomes from, and satisfaction with, service provision.
A systematic review adopting a framework synthesis approach was conducted. An electronic search of the literature was undertaken in MEDLINE, Embase, PsycINFO, Social Work Abstract and CINAHL via EBSCO, Global Health, Cochrane library, the Trip database and ProQuest between 1995 and 2020. Search terms included bereavement care, ethnic minority populations and the UK setting.
From 3,185 initial records, following screening for eligibility, and full-text review of 164 articles, seven studies were identified. There was no research literature outlining the role of family, friends and existing networks; and a real absence of evidence about outcomes and levels of satisfaction for those from an ethnic minority background who receive bereavement care. From the limited literature, the overarching theme for barriers to bereavement care was 'unfamiliarity and irregularities'. Four identified subthemes were 'lack of awareness'; 'variability in support'; 'type and format of support'; and 'culturally specific beliefs'. The overarching theme for facilitators for bereavement care was 'accessibility' with the two subthemes being 'readily available information' and 'inclusive approaches'. Three studies reported on examples of different models of care provision.
This review reveals a stark lack of evidence about bereavement care for ethnic minority populations. In particular, understanding more about the role of family, friends and existing support systems, alongside outcomes and satisfaction will begin to develop the evidence base underpinning current provision. Direct user-representation through proactive engagement and co-design approaches may begin to determine the most appropriate models and format of bereavement care for ethnic minority communities to inform service design and delivery.</description><identifier>ISSN: 1932-6203</identifier><identifier>EISSN: 1932-6203</identifier><identifier>DOI: 10.1371/journal.pone.0252188</identifier><identifier>PMID: 34191804</identifier><language>eng</language><publisher>United States: Public Library of Science</publisher><subject>Bereavement ; Care and treatment ; Co-design ; COVID-19 ; Ethnic and Racial Minorities - psychology ; Evaluation ; Format ; Global health ; Grief ; Health aspects ; Health risks ; Health Services Accessibility ; Hospice Care ; Humans ; Medicine and Health Sciences ; Minorities ; Minority & ethnic groups ; Newborn babies ; Pandemics ; Patient Satisfaction ; People and Places ; Populations ; Public health ; Research and Analysis Methods ; Reviews ; Social Sciences ; Support systems ; United Kingdom</subject><ispartof>PloS one, 2021-06, Vol.16 (6), p.e0252188</ispartof><rights>COPYRIGHT 2021 Public Library of Science</rights><rights>2021 Mayland et al. This is an open access article distributed under the terms of the Creative Commons Attribution License: http://creativecommons.org/licenses/by/4.0/ (the “License”), which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><rights>2021 Mayland et al 2021 Mayland et al</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c692t-142721cdbb1dcd8fe5d64acc205f166e7a568f89b1b46d1dd51cc68d45ba6a583</citedby><cites>FETCH-LOGICAL-c692t-142721cdbb1dcd8fe5d64acc205f166e7a568f89b1b46d1dd51cc68d45ba6a583</cites><orcidid>0000-0002-1440-9953 ; 0000-0003-4968-3714 ; 0000-0002-7399-0194</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC8244918/pdf/$$EPDF$$P50$$Gpubmedcentral$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC8244918/$$EHTML$$P50$$Gpubmedcentral$$Hfree_for_read</linktohtml><link.rule.ids>230,314,727,780,784,864,885,2100,2926,23865,27923,27924,53790,53792,79371,79372</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/34191804$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><contributor>Luckett, Tim</contributor><creatorcontrib>Mayland, Catriona R</creatorcontrib><creatorcontrib>Powell, Richard A</creatorcontrib><creatorcontrib>Clarke, Gemma C</creatorcontrib><creatorcontrib>Ebenso, Bassey</creatorcontrib><creatorcontrib>Allsop, Matthew J</creatorcontrib><title>Bereavement care for ethnic minority communities: A systematic review of access to, models of, outcomes from, and satisfaction with, service provision</title><title>PloS one</title><addtitle>PLoS One</addtitle><description>To review and synthesize the existing evidence on bereavement care, within the United Kingdom (UK), for ethnic minority communities in terms of barriers and facilitators to access; models of care; outcomes from, and satisfaction with, service provision.
A systematic review adopting a framework synthesis approach was conducted. An electronic search of the literature was undertaken in MEDLINE, Embase, PsycINFO, Social Work Abstract and CINAHL via EBSCO, Global Health, Cochrane library, the Trip database and ProQuest between 1995 and 2020. Search terms included bereavement care, ethnic minority populations and the UK setting.
From 3,185 initial records, following screening for eligibility, and full-text review of 164 articles, seven studies were identified. There was no research literature outlining the role of family, friends and existing networks; and a real absence of evidence about outcomes and levels of satisfaction for those from an ethnic minority background who receive bereavement care. From the limited literature, the overarching theme for barriers to bereavement care was 'unfamiliarity and irregularities'. Four identified subthemes were 'lack of awareness'; 'variability in support'; 'type and format of support'; and 'culturally specific beliefs'. The overarching theme for facilitators for bereavement care was 'accessibility' with the two subthemes being 'readily available information' and 'inclusive approaches'. Three studies reported on examples of different models of care provision.
This review reveals a stark lack of evidence about bereavement care for ethnic minority populations. In particular, understanding more about the role of family, friends and existing support systems, alongside outcomes and satisfaction will begin to develop the evidence base underpinning current provision. Direct user-representation through proactive engagement and co-design approaches may begin to determine the most appropriate models and format of bereavement care for ethnic minority communities to inform service design and delivery.</description><subject>Bereavement</subject><subject>Care and treatment</subject><subject>Co-design</subject><subject>COVID-19</subject><subject>Ethnic and Racial Minorities - psychology</subject><subject>Evaluation</subject><subject>Format</subject><subject>Global health</subject><subject>Grief</subject><subject>Health aspects</subject><subject>Health risks</subject><subject>Health Services Accessibility</subject><subject>Hospice Care</subject><subject>Humans</subject><subject>Medicine and Health Sciences</subject><subject>Minorities</subject><subject>Minority & ethnic groups</subject><subject>Newborn babies</subject><subject>Pandemics</subject><subject>Patient Satisfaction</subject><subject>People and Places</subject><subject>Populations</subject><subject>Public health</subject><subject>Research and Analysis Methods</subject><subject>Reviews</subject><subject>Social Sciences</subject><subject>Support systems</subject><subject>United Kingdom</subject><issn>1932-6203</issn><issn>1932-6203</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2021</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>ABUWG</sourceid><sourceid>AFKRA</sourceid><sourceid>AZQEC</sourceid><sourceid>BENPR</sourceid><sourceid>CCPQU</sourceid><sourceid>DWQXO</sourceid><sourceid>GNUQQ</sourceid><sourceid>DOA</sourceid><recordid>eNqNk11r2zAUhs3YWLtu_2BsgsHYIMksWZLtXQyyso9AobCvWyFLx4mCbaWSnC5_ZL93SuOWePRi-MLm-HnfI73SSZLnOJ3hLMfv1rZ3nWxmG9vBLCWM4KJ4kJziMiNTTtLs4dH3SfLE-3Wasqzg_HFyklFc4iKlp8mfj-BAbqGFLiAlHaDaOgRh1RmFWtNZZ8IOKdu2fWeCAf8ezZHf-QCtDBFxsDVwjWyNpFLgPQp2glqrofGxOEG2D1EMHtXOthMkO418FPpaqmBsh65NWE2QB7c1CtDG2a3xsf40eVTLxsOz4X2W_Pz86cf51-nF5ZfF-fxiqnhJwhRTkhOsdFVhrXRRA9OcxoWQlNWYc8gl40VdlBWuKNdYa4aV4oWmrJJcsiI7S14efDeN9WKI1AvCKC95kXMeicWB0FauxcaZVrqdsNKIm4J1SyFdTKIBgYGWCtOC5iSjTMUGvM6YllprRUtIo9eHoVtftaBVzNzJZmQ6_tOZlVjarSgIpfHAosGbwcDZqx58EK3xCppGdmD7m3XnLGOE4Ii--ge9f3cDtZRxA6arbeyr9qZizjkvaZ7xvdfsHio-Glqj4v2rTayPBG9HgsgE-B2WsvdeLL5_-3_28teYfX3ErkA2YeVt0--vkh-D9AAqZ713UN-FjFOxH5_bNMR-fMQwPlH24viA7kS385L9BdI-GDk</recordid><startdate>20210630</startdate><enddate>20210630</enddate><creator>Mayland, Catriona R</creator><creator>Powell, Richard A</creator><creator>Clarke, Gemma C</creator><creator>Ebenso, Bassey</creator><creator>Allsop, Matthew J</creator><general>Public Library of Science</general><general>Public Library of Science (PLoS)</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>IOV</scope><scope>ISR</scope><scope>3V.</scope><scope>7QG</scope><scope>7QL</scope><scope>7QO</scope><scope>7RV</scope><scope>7SN</scope><scope>7SS</scope><scope>7T5</scope><scope>7TG</scope><scope>7TM</scope><scope>7U9</scope><scope>7X2</scope><scope>7X7</scope><scope>7XB</scope><scope>88E</scope><scope>8AO</scope><scope>8C1</scope><scope>8FD</scope><scope>8FE</scope><scope>8FG</scope><scope>8FH</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>ABJCF</scope><scope>ABUWG</scope><scope>AEUYN</scope><scope>AFKRA</scope><scope>ARAPS</scope><scope>ATCPS</scope><scope>AZQEC</scope><scope>BBNVY</scope><scope>BENPR</scope><scope>BGLVJ</scope><scope>BHPHI</scope><scope>C1K</scope><scope>CCPQU</scope><scope>COVID</scope><scope>D1I</scope><scope>DWQXO</scope><scope>FR3</scope><scope>FYUFA</scope><scope>GHDGH</scope><scope>GNUQQ</scope><scope>H94</scope><scope>HCIFZ</scope><scope>K9.</scope><scope>KB.</scope><scope>KB0</scope><scope>KL.</scope><scope>L6V</scope><scope>LK8</scope><scope>M0K</scope><scope>M0S</scope><scope>M1P</scope><scope>M7N</scope><scope>M7P</scope><scope>M7S</scope><scope>NAPCQ</scope><scope>P5Z</scope><scope>P62</scope><scope>P64</scope><scope>PATMY</scope><scope>PDBOC</scope><scope>PIMPY</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PRINS</scope><scope>PTHSS</scope><scope>PYCSY</scope><scope>RC3</scope><scope>7X8</scope><scope>5PM</scope><scope>DOA</scope><orcidid>https://orcid.org/0000-0002-1440-9953</orcidid><orcidid>https://orcid.org/0000-0003-4968-3714</orcidid><orcidid>https://orcid.org/0000-0002-7399-0194</orcidid></search><sort><creationdate>20210630</creationdate><title>Bereavement care for ethnic minority communities: A systematic review of access to, models of, outcomes from, and satisfaction with, service provision</title><author>Mayland, Catriona R ; Powell, Richard A ; Clarke, Gemma C ; Ebenso, Bassey ; Allsop, Matthew J</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c692t-142721cdbb1dcd8fe5d64acc205f166e7a568f89b1b46d1dd51cc68d45ba6a583</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2021</creationdate><topic>Bereavement</topic><topic>Care and treatment</topic><topic>Co-design</topic><topic>COVID-19</topic><topic>Ethnic and Racial Minorities - psychology</topic><topic>Evaluation</topic><topic>Format</topic><topic>Global health</topic><topic>Grief</topic><topic>Health aspects</topic><topic>Health risks</topic><topic>Health Services Accessibility</topic><topic>Hospice Care</topic><topic>Humans</topic><topic>Medicine and Health Sciences</topic><topic>Minorities</topic><topic>Minority & ethnic groups</topic><topic>Newborn babies</topic><topic>Pandemics</topic><topic>Patient Satisfaction</topic><topic>People and Places</topic><topic>Populations</topic><topic>Public health</topic><topic>Research and Analysis Methods</topic><topic>Reviews</topic><topic>Social Sciences</topic><topic>Support systems</topic><topic>United Kingdom</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Mayland, Catriona R</creatorcontrib><creatorcontrib>Powell, Richard A</creatorcontrib><creatorcontrib>Clarke, Gemma C</creatorcontrib><creatorcontrib>Ebenso, Bassey</creatorcontrib><creatorcontrib>Allsop, Matthew J</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Gale In Context: Opposing Viewpoints</collection><collection>Gale In Context: Science</collection><collection>ProQuest Central (Corporate)</collection><collection>Animal Behavior Abstracts</collection><collection>Bacteriology Abstracts (Microbiology B)</collection><collection>Biotechnology Research Abstracts</collection><collection>Nursing & Allied Health Database</collection><collection>Ecology Abstracts</collection><collection>Entomology Abstracts (Full archive)</collection><collection>Immunology Abstracts</collection><collection>Meteorological & Geoastrophysical Abstracts</collection><collection>Nucleic Acids Abstracts</collection><collection>Virology and AIDS Abstracts</collection><collection>Agricultural Science Collection</collection><collection>Health & Medical Collection</collection><collection>ProQuest Central (purchase pre-March 2016)</collection><collection>Medical Database (Alumni Edition)</collection><collection>ProQuest Pharma Collection</collection><collection>Public Health Database</collection><collection>Technology Research Database</collection><collection>ProQuest SciTech Collection</collection><collection>ProQuest Technology Collection</collection><collection>ProQuest Natural Science Collection</collection><collection>Hospital Premium Collection</collection><collection>Hospital Premium Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni) (purchase pre-March 2016)</collection><collection>Materials Science & Engineering Collection</collection><collection>ProQuest Central (Alumni Edition)</collection><collection>ProQuest One Sustainability</collection><collection>ProQuest Central UK/Ireland</collection><collection>Advanced Technologies & Aerospace Collection</collection><collection>Agricultural & Environmental Science Collection</collection><collection>ProQuest Central Essentials</collection><collection>Biological Science Collection</collection><collection>ProQuest Central</collection><collection>Technology Collection</collection><collection>Natural Science Collection</collection><collection>Environmental Sciences and Pollution Management</collection><collection>ProQuest One Community College</collection><collection>Coronavirus Research Database</collection><collection>ProQuest Materials Science Collection</collection><collection>ProQuest Central Korea</collection><collection>Engineering Research Database</collection><collection>Health Research Premium Collection</collection><collection>Health Research Premium Collection (Alumni)</collection><collection>ProQuest Central Student</collection><collection>AIDS and Cancer Research Abstracts</collection><collection>SciTech Premium Collection</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Materials Science Database</collection><collection>Nursing & Allied Health Database (Alumni Edition)</collection><collection>Meteorological & Geoastrophysical Abstracts - Academic</collection><collection>ProQuest Engineering Collection</collection><collection>ProQuest Biological Science Collection</collection><collection>Agricultural Science Database</collection><collection>Health & Medical Collection (Alumni Edition)</collection><collection>Medical Database</collection><collection>Algology Mycology and Protozoology Abstracts (Microbiology C)</collection><collection>Biological Science Database</collection><collection>Engineering Database</collection><collection>Nursing & Allied Health Premium</collection><collection>Advanced Technologies & Aerospace Database</collection><collection>ProQuest Advanced Technologies & Aerospace Collection</collection><collection>Biotechnology and BioEngineering Abstracts</collection><collection>Environmental Science Database</collection><collection>Materials Science Collection</collection><collection>Publicly Available Content Database</collection><collection>ProQuest One Academic Eastern Edition (DO NOT USE)</collection><collection>ProQuest One Academic</collection><collection>ProQuest One Academic UKI Edition</collection><collection>ProQuest Central China</collection><collection>Engineering Collection</collection><collection>Environmental Science Collection</collection><collection>Genetics Abstracts</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><collection>DOAJ Directory of Open Access Journals</collection><jtitle>PloS one</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Mayland, Catriona R</au><au>Powell, Richard A</au><au>Clarke, Gemma C</au><au>Ebenso, Bassey</au><au>Allsop, Matthew J</au><au>Luckett, Tim</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Bereavement care for ethnic minority communities: A systematic review of access to, models of, outcomes from, and satisfaction with, service provision</atitle><jtitle>PloS one</jtitle><addtitle>PLoS One</addtitle><date>2021-06-30</date><risdate>2021</risdate><volume>16</volume><issue>6</issue><spage>e0252188</spage><pages>e0252188-</pages><issn>1932-6203</issn><eissn>1932-6203</eissn><abstract>To review and synthesize the existing evidence on bereavement care, within the United Kingdom (UK), for ethnic minority communities in terms of barriers and facilitators to access; models of care; outcomes from, and satisfaction with, service provision.
A systematic review adopting a framework synthesis approach was conducted. An electronic search of the literature was undertaken in MEDLINE, Embase, PsycINFO, Social Work Abstract and CINAHL via EBSCO, Global Health, Cochrane library, the Trip database and ProQuest between 1995 and 2020. Search terms included bereavement care, ethnic minority populations and the UK setting.
From 3,185 initial records, following screening for eligibility, and full-text review of 164 articles, seven studies were identified. There was no research literature outlining the role of family, friends and existing networks; and a real absence of evidence about outcomes and levels of satisfaction for those from an ethnic minority background who receive bereavement care. From the limited literature, the overarching theme for barriers to bereavement care was 'unfamiliarity and irregularities'. Four identified subthemes were 'lack of awareness'; 'variability in support'; 'type and format of support'; and 'culturally specific beliefs'. The overarching theme for facilitators for bereavement care was 'accessibility' with the two subthemes being 'readily available information' and 'inclusive approaches'. Three studies reported on examples of different models of care provision.
This review reveals a stark lack of evidence about bereavement care for ethnic minority populations. In particular, understanding more about the role of family, friends and existing support systems, alongside outcomes and satisfaction will begin to develop the evidence base underpinning current provision. Direct user-representation through proactive engagement and co-design approaches may begin to determine the most appropriate models and format of bereavement care for ethnic minority communities to inform service design and delivery.</abstract><cop>United States</cop><pub>Public Library of Science</pub><pmid>34191804</pmid><doi>10.1371/journal.pone.0252188</doi><tpages>e0252188</tpages><orcidid>https://orcid.org/0000-0002-1440-9953</orcidid><orcidid>https://orcid.org/0000-0003-4968-3714</orcidid><orcidid>https://orcid.org/0000-0002-7399-0194</orcidid><oa>free_for_read</oa></addata></record> |
| fulltext | fulltext |
| identifier | ISSN: 1932-6203 |
| ispartof | PloS one, 2021-06, Vol.16 (6), p.e0252188 |
| issn | 1932-6203 1932-6203 |
| language | eng |
| recordid | cdi_plos_journals_2546968766 |
| source | MEDLINE; DOAJ Directory of Open Access Journals; Elektronische Zeitschriftenbibliothek - Frei zugängliche E-Journals; Public Library of Science (PLoS); PubMed Central; Free Full-Text Journals in Chemistry |
| subjects | Bereavement Care and treatment Co-design COVID-19 Ethnic and Racial Minorities - psychology Evaluation Format Global health Grief Health aspects Health risks Health Services Accessibility Hospice Care Humans Medicine and Health Sciences Minorities Minority & ethnic groups Newborn babies Pandemics Patient Satisfaction People and Places Populations Public health Research and Analysis Methods Reviews Social Sciences Support systems United Kingdom |
| title | Bereavement care for ethnic minority communities: A systematic review of access to, models of, outcomes from, and satisfaction with, service provision |
| url | https://sfx.bib-bvb.de/sfx_tum?ctx_ver=Z39.88-2004&ctx_enc=info:ofi/enc:UTF-8&ctx_tim=2025-01-11T07%3A11%3A57IST&url_ver=Z39.88-2004&url_ctx_fmt=infofi/fmt:kev:mtx:ctx&rfr_id=info:sid/primo.exlibrisgroup.com:primo3-Article-gale_plos_&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.genre=article&rft.atitle=Bereavement%20care%20for%20ethnic%20minority%20communities:%20A%20systematic%20review%20of%20access%20to,%20models%20of,%20outcomes%20from,%20and%20satisfaction%20with,%20service%20provision&rft.jtitle=PloS%20one&rft.au=Mayland,%20Catriona%20R&rft.date=2021-06-30&rft.volume=16&rft.issue=6&rft.spage=e0252188&rft.pages=e0252188-&rft.issn=1932-6203&rft.eissn=1932-6203&rft_id=info:doi/10.1371/journal.pone.0252188&rft_dat=%3Cgale_plos_%3EA666947361%3C/gale_plos_%3E%3Curl%3E%3C/url%3E&disable_directlink=true&sfx.directlink=off&sfx.report_link=0&rft_id=info:oai/&rft_pqid=2546968766&rft_id=info:pmid/34191804&rft_galeid=A666947361&rft_doaj_id=oai_doaj_org_article_1e49c148472345c6a56f35dadddc49e0&rfr_iscdi=true |